The 20 Best Von Hippel-Lindau (VHL) Syndrome Doctors Near Me

Find the Top Von Hippel-Lindau (VHL) Syndrome Experts and Specialists

Last Updated: 09/26/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 4175 doctor with experience in Von Hippel-Lindau (VHL) Syndrome. Of these, 3773 are Experienced, 325 are Advanced, 59 are Distinguished and 18 are Elite.

Location
LocationClose
4,175 providers found
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required
    Milan, IT 

    Umberto Capitanio practices practicing medicine in Milan, Italy. Mr. Capitanio is rated as an Elite expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Renal Cell Carcinoma (RCC), Prostate Cancer, Von Hippel-Lindau (VHL) Syndrome, Nephrectomy, and Prostatectomy.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required
    Milan, IT 

    Francesco Montorsi practices practicing medicine in Milan, Italy. Mr. Montorsi is rated as an Elite expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 56 other conditions, according to our data. His clinical expertise encompasses Prostate Cancer, Bladder Cancer, Renal Cell Carcinoma (RCC), Prostatectomy, and Cystectomy.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Referral required

    Rogel Cancer Center

    1500 E Medical Center Dr, Floor B1 Reception A, 
    Ann Arbor, MI 
    Languages Spoken:
    English, German
    Accepting New Patients
    Offers Telehealth

    Tobias Else is an Endocrinologist practicing medicine in Ann Arbor, Michigan. Dr. Else is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 105 other conditions, according to our data. His clinical expertise encompasses Adrenal Cancer, Adrenocortical Carcinoma, Adrenal Gland Adenoma, Neuroendocrine Tumor, and Thyroidectomy. Dr. Else is board certified in Endocrinology, Diabetes & Metabolism and Internal Medicine. Dr. Else is currently accepting new patients.

    Learn about our expert tiers
    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Hematology Oncology | Neurology | Hematology
    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Hematology Oncology | Neurology | Hematology
    Referral may be required
    675 N St Clair St Ste 20-100, Galter Pavilion, 
    Chicago, IL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Rimas Lukas is a Hematologist Oncology specialist and a Neurologist practicing medicine in Chicago, Illinois. Dr. Lukas is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Astrocytoma, Glioma, Glioblastoma, Brain Tumor, and Gastrostomy. Dr. Lukas is board certified in American Board Of Psychiatry And Neurology - Neurology (Certified). Dr. Lukas is currently accepting new patients.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required
    8 Xishiku Street, 
    Beijing, CN 

    Kan Gong practices practicing medicine in Beijing, China. Mr. Gong is rated as an Elite expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Hemangioblastoma, Renal Cell Carcinoma (RCC), Nephrectomy, and Vasectomy.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Ohio State University Hospital-Pavilion

    300 W 10th Ave, 
    Columbus, OH 
    Languages Spoken:
    English
    Accepting New Patients

    Russell Lonser is a Neurosurgery provider practicing medicine in Columbus, Ohio. Dr. Lonser is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Hemangioblastoma, Von Hippel-Lindau (VHL) Syndrome, Hemangioma, Awake Craniotomy, and Craniectomy. Dr. Lonser is currently accepting new patients.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Urology | Plastic Surgery
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Urology | Plastic Surgery
    Referral may be required
    10 Center Drive Rm 2-5942, 
    Bethesda, MD 
    Languages Spoken:
    English
    Accepting New Patients

    Mark Ball is a Urologist and a Plastic Surgeon practicing medicine in Bethesda, Maryland. Dr. Ball is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Renal Cell Carcinoma (RCC), Renal Oncocytoma, Nephrectomy, and Prostatectomy. Dr. Ball is board certified in American Board Of Urology. Dr. Ball is currently accepting new patients.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    UVA Health General Neurosurgery And Spine Care Fontaine

    415 Ray C Hunt Dr Fl 3, 
    Charlottesville, VA 
    Languages Spoken:
    English, Tamil
    Accepting New Patients
    Offers Telehealth

    Ashok Asthagiri is a Neurosurgery provider practicing medicine in Charlottesville, Virginia. Dr. Asthagiri is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 52 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 2 (NF2), Von Hippel-Lindau (VHL) Syndrome, Acoustic Neuroma, Awake Craniotomy, and Gamma Knife Radiosurgery. Dr. Asthagiri is currently accepting new patients.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Referral may be required

    Dept Of Transfusion Medicine/Nih Clinical Center

    10 Center Dr, 
    Bethesda, MD 
    Languages Spoken:
    English

    Emily Chew is an Ophthalmologist practicing medicine in Bethesda, Maryland. Dr. Chew is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, Geographic Atrophy, Von Hippel-Lindau (VHL) Syndrome, and Cataract Removal.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required
    Via Gattamelata 64, 
    Padova, IT 

    Giuseppe Opocher practices practicing medicine in Padova, Italy. Mr. Opocher is rated as an Elite expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Pheochromocytoma, Neuroendocrine Tumor, and Adrenal Cancer.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required
    Milan, IT 

    Andrea Salonia practices practicing medicine in Milan, Italy. Ms. Salonia is rated as an Elite expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 48 other conditions, according to our data. Her clinical expertise encompasses Erectile Dysfunction (ED), Premature Ejaculation, Infertility, Prostatectomy, and Cystectomy.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Benefis Health System East Campus

    1101 26th St S, 
    Great Falls, MT 
    Languages Spoken:
    English
    Accepting New Patients

    Kristin Huntoon is a Neurosurgery provider practicing medicine in Great Falls, Montana. Dr. Huntoon is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Hemangioblastoma, Hemangioma, Deep Brain Stimulation, and Vertebroplasty. Dr. Huntoon is currently accepting new patients.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery | General Surgery
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery | General Surgery
    Referral may be required

    Stanford Health Care

    500 Pasteur Dr, 
    Palo Alto, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Steven Chang is a Neurosurgery specialist and a General Surgeon practicing medicine in Palo Alto, California. Dr. Chang is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 89 other conditions, according to our data. His clinical expertise encompasses Meningioma, Arteriovenous Malformation, Trigeminal Neuralgia, Awake Craniotomy, and Gamma Knife Radiosurgery. Dr. Chang is currently accepting new patients.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Office

    10 Center Dr Rm 3D20, 
    Bethesda, MD 
    Languages Spoken:
    English

    Prashant Chittiboina is a Neurosurgery provider practicing medicine in Bethesda, Maryland. Dr. Chittiboina is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Cushing's disease, Hemangioblastoma, Von Hippel-Lindau (VHL) Syndrome, Pituitary Tumor, and Laminectomy.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required
    Groningen, GR, NL 

    Thera Links practices practicing medicine in Groningen, Netherlands. Ms. Links is rated as an Elite expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 23 other conditions, according to our data. Her clinical expertise encompasses Thyroid Cancer, Von Hippel-Lindau (VHL) Syndrome, Medullary Thyroid Carcinoma, Thyroidectomy, and Hormone Replacement Therapy (HRT).

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required
    Padova, IT 

    Stefania Zovato practices practicing medicine in Padova, Italy. Ms. Zovato is rated as an Elite expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Hemangioblastoma, Neuroendocrine Tumor, Parathyroidectomy, and Salpingo-Oophorectomy.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required
    No. 1 Dongjiaomingxiang Street, Dongcheng District, 
    Beijing, CN 

    Kaifang Ma practices practicing medicine in Beijing, China. Ma is rated as an Elite expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Hemangioblastoma, Renal Cell Carcinoma (RCC), Vasectomy, and Nephrectomy.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Nih Clinical Center

    9000 Rockville Pike Bldg 10, 
    Bethesda, MD 
    Languages Spoken:
    English

    William Linehan is a Urologist practicing medicine in Bethesda, Maryland. Dr. Linehan is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Renal Cell Carcinoma (RCC), Renal Oncocytoma, Nephrectomy, and Hormone Replacement Therapy (HRT).

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required
    Milan, IT 

    Alessandro Larcher practices practicing medicine in Milan, Italy. Mr. Larcher is rated as an Elite expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Renal Cell Carcinoma (RCC), Von Hippel-Lindau (VHL) Syndrome, Prostate Cancer, Nephrectomy, and Prostatectomy.

    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Referral required

    Office

    1515 Holcombe Blvd Unit 1461, 
    Houston, TX 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Steven Waguespack is an Endocrinologist practicing medicine in Houston, Texas. Dr. Waguespack is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Thyroid Cancer, Medullary Thyroid Carcinoma, Multiple Endocrine Neoplasia, Thyroidectomy, and Parathyroidectomy. Dr. Waguespack is currently accepting new patients.

    Showing 1-20 of 4,175

    Last Updated: 09/26/2026

    What is the definition of Von Hippel-Lindau (VHL) Syndrome?

    Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

    When should I see a Von Hippel-Lindau (VHL) Syndrome doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors near me?

    Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy.