A Phase 3, Prospective, Multicenter, Uncontrolled, Open-Label Clinical Study to Determine the Efficacy, Safety, and Tolerability of rVWF With or Without ADVATE in the Treatment and Control of Bleeding Episodes, the Efficacy and Safety of rVWF in Elective and Emergency Surgeries, and the Pharmacokinetics (PK) of rVWF in Children Diagnosed With Severe Von Willebrand Disease

Who is this study for? Child patients with Von Willebrand Disease
What treatments are being studied? Von Willebrand Factor
Status: Recruiting
Location: See all (45) locations...
Intervention Type: Biological
Study Type: Interventional
Study Phase: Phase 3
SUMMARY

The main aim of the study is to check effectiveness, side effects, and tolerability of vonicog alfa (recombinant von Willebrand factor \[rVWF\]), with or without ADVATE, in the treatment and control of nonsurgical bleeding events in pediatric participants (less than (\<)18 years of age) with severe hereditary von Willebrand disease (VWD). The participants will be treated with vonicog alfa for 12-18 months. Their von Willebrand Disease will be treated by their doctor according to their doctor's usual clinical practice. During the study, participants will be followed up at clinics or over telephone calls.

Eligibility
Participation Requirements
Sex: All
Maximum Age: 17
Healthy Volunteers: f
View:

• Diagnosis of severe von Willebrand disease (VWD) (defined as von Willebrand factor: ristocetin cofactor \[VWF:RCo\] less than \[\<\] 20 percent \[%\]):

‣ Type 1 (VWF:RCo \<20 International Units per deciliter \[IU/dL\]); or

⁃ Type 2A (VWF:RCo \<20 IU/dL), Type 2B (as diagnosed by genotype), Type 2N (Factor VIII coagulation activity \[FVIII:C\] \<10 % and historically documented genetics), Type 2M; or

⁃ Type 3 (VWF:Ag less than or equal to \[=\<\] 3 IU/dL).

• Age 0 to \<18 years at the time of Screening.

• The participant has provided assent (if appropriate) and legally authorized representative(s) has provided informed consent.

• If female of childbearing potential, participant presents with a negative serum pregnancy test.

• If applicable, participant agrees to employ adequate birth control measures for the duration of the study.

• The participant and/or the legally authorized representative are willing and able to comply with the requirements of the protocol, which should also be confirmed based on a pre-screening evaluation held between the Investigator and the Sponsor, to ensure no eminent risk is present that could challenge the participants compliance with the study requirements.

∙ Additional inclusion criteria for both previously treated participants and participants undergoing surgery are as follows:

• Unable to tolerate are inadequately responsive to, or not a good candidate for 1-deamino-8-D-arginine vasopressin (DDAVP). Examples of participants who are not good candidates for DDAVP include participants with type 2B or type 3 VWD.

• The participant has had a minimum of 1 documented bleed requiring VWF coagulation factor replacement therapy (i.e. treatment with a VWF product) during the previous 12 months prior to enrollment and overall historically 3 or more exposure days (EDs) to VWF replacement therapy.

∙ Additional inclusion criterion for previously untreated participants are as follows:

∙ \- The participant has not received prior VWF coagulation factor replacement therapy.

Locations
United States
Colorado
University of Colorado Hemophilia & Thrombosis Center
RECRUITING
Aurora
Washington, D.c.
Children's National Medical Center
COMPLETED
Washington D.c.
Florida
University of Florida College of Medicine
RECRUITING
Jacksonville
Illinois
Bleeding and Clotting Disorders Institute
RECRUITING
Peoria
Indiana
Indiana Hemophilia and Thrombosis Center
COMPLETED
Indianapolis
North Carolina
St. Jude Affiliate Clinic at Novant Health
COMPLETED
Charlotte
Comprehensive Cancer Center of Wake Forest Unversity
COMPLETED
Winston-salem
Nebraska
University of Nebraska Medical Center
COMPLETED
Omaha
Ohio
Cincinnati Children's Hospital Medical Center
RECRUITING
Cincinnati
Rainbow Babies and Children's Hospital
RECRUITING
Cleveland
Nationwide Children's Hospital
RECRUITING
Columbus
Pennsylvania
Children's Hospital of Philadelphia
COMPLETED
Philadelphia
South Carolina
Medical University of South Carolina
RECRUITING
Charleston
Texas
Texas Children's Cancer and Hematology Center
RECRUITING
Houston
Texas Children's Hospital
RECRUITING
Houston
Wisconsin
Comprehensive Center for Bleeding Disorders
COMPLETED
Milwaukee
Other Locations
Austria
Medizinische Universität Innsbruck
COMPLETED
Innsbruck
AKH - Medizinische Universität Wien
RECRUITING
Vienna
Belgium
UZ Leuven
RECRUITING
Leuven
France
Groupe Hospitalier Pellegrin - Hôpital Pellegrin
RECRUITING
Bordeaux
Hôpital Morvan
COMPLETED
Brest
Groupement Hospitalier Est- Hôpital Louis Pradel
RECRUITING
Bron
CHU CAEN - Hôpital de la Côte de Nacre
RECRUITING
Caen
Groupement Hospitalier Sud - Hôpital Bicêtre
RECRUITING
Le Kremlin-bicêtre
Hopital Cardiologique - CHU Lille
RECRUITING
Lille
CHU de Nantes Site Hotel Dieu
COMPLETED
Nantes
Hôpital Necker - Enfants Malades
RECRUITING
Paris
Germany
Universitaetsklinikum Hamburg-Eppendorf
COMPLETED
Hamburg
Medizinische Hochschule Hannover
COMPLETED
Hanover
Werlhof-Institut GmbH
COMPLETED
Hanover
Italy
Azienda Ospedaliera Universitaria Careggi
RECRUITING
Florence
Fondazione IRCCS CA' Granda Ospedale Maggiore Policlinico
RECRUITING
Milan
Azienda Ospedaliera Pediatrica Santobono Pausillipon
RECRUITING
Napoli
Ospedale Pediatrico Bambino Gesù
RECRUITING
Roma
Netherlands
Erasmus Medisch Centrum
COMPLETED
Rotterdam
Russian Federation
SBEI HPE Altai State Medical University of MoH and SD
COMPLETED
Barnaul
SAIH Kemerovo Regional Clinical Hospital
COMPLETED
Kemerovo
FSBI of Science Kirov Scientific and Research Institute of Hematology and Blood Transfusion of FMBA
ACTIVE_NOT_RECRUITING
Kirov
Spain
Hospital General Universitario de Alicante
RECRUITING
Alicante
Hospital Universitari i Politecnic La Fe
RECRUITING
Valencia
Turkey
Istanbul University Cerrahpasa Medical Faculty
RECRUITING
Istanbul
Ege University Medical Faculty
RECRUITING
Izmir
Ondokuz Mayis Univ. Med. Fac.
RECRUITING
Samsun
Ukraine
SI Institute of Blood Pathology and Transfusion Medicine of NAMSU
COMPLETED
Lviv
United Kingdom
Royal Manchester Children's Hospital
COMPLETED
Manchester
Contact Information
Primary
Takeda Contact
medinfoUS@takeda.com
1-877-825-3327
Time Frame
Start Date: 2017-11-06
Estimated Completion Date: 2026-03-31
Participants
Target number of participants: 31
Treatments
Experimental: On-demand Treatment
Participants will receive vonicog alfa (recombinant von Willebrand factor \[rVWF\]) treatment for non-surgical bleeding episodes over a 12 to 18-month period.
Experimental: Elective Surgery
12-24 hours prior to surgery and within 3 hours of surgery. Minor surgery: infuse every 12-24 hours for at least 48 hours based on post-operative dosing. Oral Surgery: infuse at least once within first 8-12 hours post-surgery based on post-operative dosing. Major Surgery: infuse every 12-24 hours for at least first 96 hours post-surgery based on post-operative dosing.
Experimental: Emergency Surgery
Within 3 hours prior to surgery. Minor surgery: infuse every 12-24 hours for at least 48 hours based on post-operative dosing. Oral Surgery: infuse at least once within first 8-12 hours post-surgery based on post-operative dosing. Major Surgery: infuse every 12-24 hours for at least first 96 hours post-surgery based on post-operative dosing.
Sponsors
Leads: Baxalta now part of Shire
Collaborators: Takeda Development Center Americas, Inc.

This content was sourced from clinicaltrials.gov