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    Last Updated: 01/09/2026

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    MediFind found 17 doctor with experience in Walker-Warburg Syndrome near Netherlands. Of these, 9 are Experienced, 5 are Advanced and 3 are Distinguished.

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    17 providers found
      Distinguished in Walker-Warburg Syndrome

      Moniek Riemersma
      Distinguished in Walker-Warburg Syndrome

      Moniek Riemersma
      Nijmegen, GE, NL 

      Moniek Riemersma practices in Nijmegen, Netherlands. Riemersma is rated as a Distinguished expert by MediFind in the treatment of Walker-Warburg Syndrome. Their top areas of expertise are X-Linked Retinal Dysplasia, Walker-Warburg Syndrome, Fukuyama Type Muscular Dystrophy, and Lissencephaly.

      Distinguished in Walker-Warburg Syndrome

      Dirk J. Lefeber
      Distinguished in Walker-Warburg Syndrome

      Dirk J. Lefeber
      Nijmegen, GE, NL 

      Dirk Lefeber practices in Nijmegen, Netherlands. Mr. Lefeber is rated as a Distinguished expert by MediFind in the treatment of Walker-Warburg Syndrome. His top areas of expertise are DPAGT1-CDG, ALG1-CDG, PMM2-Congenital Disorder of Glycosylation, PGM1-CDG, and Leg or Foot Amputation.

      Distinguished in Walker-Warburg Syndrome

      Hans Van Bokhoven
      Distinguished in Walker-Warburg Syndrome

      Hans Van Bokhoven
      Nijmegen, GE, NL 

      Hans Van Bokhoven practices in Nijmegen, Netherlands. Mr. Van Bokhoven is rated as a Distinguished expert by MediFind in the treatment of Walker-Warburg Syndrome. His top areas of expertise are Crouzon Syndrome, X-Linked Retinal Dysplasia, Split Hand Foot Malformation, and Lissencephaly.

      Learn about our expert tiers
      Advanced in Walker-Warburg Syndrome

      Michel A. Willemsen
      Advanced in Walker-Warburg Syndrome

      Michel A. Willemsen
      Nijmegen, GE, NL 

      Michel Willemsen practices in Nijmegen, Netherlands. Mr. Willemsen is rated as an Advanced expert by MediFind in the treatment of Walker-Warburg Syndrome. His top areas of expertise are Ataxia-Telangiectasia, Telangiectasia, Sjogren-Larsson Syndrome, and Dopamine Beta-Hydroxylase Deficiency.

      Advanced in Walker-Warburg Syndrome

      Ellen Van Beusekom
      Advanced in Walker-Warburg Syndrome

      Ellen Van Beusekom
      Nijmegen, GE, NL 

      Ellen Van Beusekom practices in Nijmegen, Netherlands. Ms. Van Beusekom is rated as an Advanced expert by MediFind in the treatment of Walker-Warburg Syndrome. Her top areas of expertise are Walker-Warburg Syndrome, Fukuyama Type Muscular Dystrophy, X-Linked Retinal Dysplasia, and Lissencephaly.

      Advanced in Walker-Warburg Syndrome

      Rolph R. Pfundt
      Advanced in Walker-Warburg Syndrome

      Rolph R. Pfundt

      Radboudumc

      Nijmegen, GE, NL 

      Rolph Pfundt practices in Nijmegen, Netherlands. Mr. Pfundt is rated as an Advanced expert by MediFind in the treatment of Walker-Warburg Syndrome. His top areas of expertise are Short Philtrum, Hypotonia, Increased Head Circumference, Cortical Dysplasia, and Orchiectomy.

      Advanced in Walker-Warburg Syndrome

      Hanna Mandel
      Advanced in Walker-Warburg Syndrome

      Hanna Mandel

      Erasmus MC

      Rotterdam, ZH, NL 

      Hanna Mandel practices in Rotterdam, Netherlands. Ms. Mandel is rated as an Advanced expert by MediFind in the treatment of Walker-Warburg Syndrome. Her top areas of expertise are Vici Syndrome, Mitochondrial Neurogastrointestinal Encephalopathy Disease, Lactic Acidosis, MELAS Syndrome, and Liver Transplant.

      Advanced in Walker-Warburg Syndrome

      Thijn R. Brummelkamp
      Advanced in Walker-Warburg Syndrome

      Thijn R. Brummelkamp
      Amsterdam, NH, NL 

      Thijn Brummelkamp practices in Amsterdam, Netherlands. Brummelkamp is rated as an Advanced expert by MediFind in the treatment of Walker-Warburg Syndrome. Their top areas of expertise are Niemann-Pick Disease, Walker-Warburg Syndrome, Fukuyama Type Muscular Dystrophy, and X-Linked Retinal Dysplasia.

      Experienced in Walker-Warburg Syndrome

      Erik-jan J. Kamsteeg
      Experienced in Walker-Warburg Syndrome

      Erik-jan J. Kamsteeg

      Radboud UMC

      Nijmegen, GE, NL 

      Erik-jan Kamsteeg practices in Nijmegen, Netherlands. Kamsteeg is rated as an Experienced expert by MediFind in the treatment of Walker-Warburg Syndrome. Their top areas of expertise are Spasticity, Spastic Paraplegia Type 7, Drug Induced Dyskinesia, and Paraplegia.

      Experienced in Walker-Warburg Syndrome

      Marjolein H. Willemsen
      Experienced in Walker-Warburg Syndrome

      Marjolein H. Willemsen
      Nijmegen, GE, NL 

      Marjolein Willemsen practices in Nijmegen, Netherlands. Willemsen is rated as an Experienced expert by MediFind in the treatment of Walker-Warburg Syndrome. Their top areas of expertise are Hypotonia, KBG Syndrome, Achalasia Microcephaly Syndrome, and Microcephaly.

      Experienced in Walker-Warburg Syndrome

      Jeroen Van Reeuwijk
      Experienced in Walker-Warburg Syndrome

      Jeroen Van Reeuwijk
      Nijmegen, GE, NL 

      Jeroen Van Reeuwijk practices in Nijmegen, Netherlands. Mr. Van Reeuwijk is rated as an Experienced expert by MediFind in the treatment of Walker-Warburg Syndrome. His top areas of expertise are Asphyxiating Thoracic Dystrophy, KBG Syndrome, Ellis-Van Creveld Syndrome, and 3M Syndrome.

      Experienced in Walker-Warburg Syndrome

      Christine E. Smulders-De Die
      Experienced in Walker-Warburg Syndrome

      Christine E. Smulders-De Die
      Maastricht, LI, NL 

      Christine Smulders-De Die practices in Maastricht, Netherlands. Ms. Smulders-De Die is rated as an Experienced expert by MediFind in the treatment of Walker-Warburg Syndrome. Her top areas of expertise are Microcephalic Osteodysplastic Primordial Dwarfism Type 2 (MOPD2), Microcephalic Osteodysplastic Primordial Dwarfism Type 1 (MOPD1), Huntington Disease, and Bone Dysplasia Corpus Callosum Agenesis.

      Experienced in Walker-Warburg Syndrome

      Gert Jansen
      Experienced in Walker-Warburg Syndrome

      Gert Jansen

      Erasmus MC

      Rotterdam, ZH, NL 

      Gert Jansen practices in Rotterdam, Netherlands. Jansen is rated as an Experienced expert by MediFind in the treatment of Walker-Warburg Syndrome. Their top areas of expertise are Thanatophoric Dysplasia, Fukuyama Type Muscular Dystrophy, Walker-Warburg Syndrome, and X-Linked Retinal Dysplasia.

      Experienced in Walker-Warburg Syndrome

      Arjan M. De Brouwer
      Experienced in Walker-Warburg Syndrome

      Arjan M. De Brouwer
      Nijmegen, GE, NL 

      Arjan De Brouwer practices in Nijmegen, Netherlands. Mr. De Brouwer is rated as an Experienced expert by MediFind in the treatment of Walker-Warburg Syndrome. His top areas of expertise are Blepharophimosis, Lissencephaly, Cortical Dysplasia, and FG Syndrome.

      Experienced in Walker-Warburg Syndrome

      Benno Kusters
      Experienced in Walker-Warburg Syndrome

      Benno Kusters

      Radboudumc

      Nijmegen, GE, NL 

      Benno Kusters practices in Nijmegen, Netherlands. Mr. Kusters is rated as an Experienced expert by MediFind in the treatment of Walker-Warburg Syndrome. His top areas of expertise are Pheochromocytoma, Myotonia Congenita, Amyotonia Congenita, Bone Marrow Aspiration, and Gastrostomy.

      Experienced in Walker-Warburg Syndrome

      Willemijn M. Lindhout-Wissink
      Experienced in Walker-Warburg Syndrome

      Willemijn M. Lindhout-Wissink
      Nijmegen, GE, NL 

      Willemijn Lindhout-Wissink practices in Nijmegen, Netherlands. Lindhout-Wissink is rated as an Experienced expert by MediFind in the treatment of Walker-Warburg Syndrome. Their top areas of expertise are Fukuyama Type Muscular Dystrophy, Walker-Warburg Syndrome, X-Linked Retinal Dysplasia, and Lissencephaly.

      Experienced in Walker-Warburg Syndrome

      Tjitske Kleefstra
      Experienced in Walker-Warburg Syndrome

      Tjitske Kleefstra

      Erasmus MC

      Rotterdam, ZH, NL 

      Tjitske Kleefstra practices in Rotterdam, Netherlands. Kleefstra is rated as an Experienced expert by MediFind in the treatment of Walker-Warburg Syndrome. Their top areas of expertise are KBG Syndrome, Hypotonia, Increased Head Circumference, and Short Philtrum.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-17 of 17

      Last Updated: 01/09/2026

      What is the definition of Walker-Warburg Syndrome?

      Walker-Warburg syndrome is an inherited disorder that affects development of the muscles, brain, and eyes. It is the most severe of a group of genetic conditions known as congenital muscular dystrophies, which cause muscle weakness and wasting (atrophy) beginning very early in life. The signs and symptoms of Walker-Warburg syndrome are present at birth or in early infancy. Because of the severity of the problems caused by Walker-Warburg syndrome, most affected individuals do not survive past childhood.

      When should I see a Walker-Warburg Syndrome doctor in Netherlands?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Walker-Warburg Syndrome doctor in Netherlands?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Walker-Warburg Syndrome doctor in Netherlands?

      You can find a Walker-Warburg Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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      Walker-Warburg Syndrome doctor near Boston, MA
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      Walker-Warburg Syndrome doctor near San Jose, CA

      How does MediFind rank Walker-Warburg Syndrome doctors in Netherlands?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Walker-Warburg Syndrome doctors in Netherlands?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Walker-Warburg Syndrome doctor in Netherlands?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Walker-Warburg Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Walker-Warburg Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Walker-Warburg Syndrome doctor in Netherlands?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Walker-Warburg Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Walker-Warburg Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Walker-Warburg Syndrome doctors in Netherlands?

      Look for the filter feature on the left side of the Walker-Warburg Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Walker-Warburg Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Walker-Warburg Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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