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    Last Updated: 01/09/2026

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    MediFind found 14 doctor with experience in Walker-Warburg Syndrome near Minnesota, US. Of these, 9 are Experienced, 3 are Advanced and 2 are Distinguished.

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    LocationClose
    14 providers found
      Distinguished in Walker-Warburg Syndrome
      Distinguished in Walker-Warburg Syndrome

      Gillette Childrens Specialty Healthcare

      435 Phalen Blvd, 
      Saint Paul, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Jill Gettings is a Physiatrist in Saint Paul, Minnesota. Dr. Gettings is rated as a Distinguished provider by MediFind in the treatment of Walker-Warburg Syndrome. Her top areas of expertise are Cerebral Palsy, Miyoshi Myopathy, Emery-Dreifuss Muscular Dystrophy, and Walker-Warburg Syndrome. Dr. Gettings is currently accepting new patients.

      Distinguished in Walker-Warburg Syndrome
      Pediatric Neurology | Neurology
      Distinguished in Walker-Warburg Syndrome
      Pediatric Neurology | Neurology

      Gillette Childrens Specialty Healthcare

      200 University Ave E, 
      Saint Paul, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Randal Richardson is a Pediatric Neurologist and a Neurologist in Saint Paul, Minnesota. Dr. Richardson is rated as a Distinguished provider by MediFind in the treatment of Walker-Warburg Syndrome. His top areas of expertise are Emery-Dreifuss Muscular Dystrophy, Miyoshi Myopathy, Fukuyama Type Muscular Dystrophy, and Oculopharyngeal Muscular Dystrophy. Dr. Richardson is currently accepting new patients.

      Margherita Milone
      Experienced in Walker-Warburg Syndrome
      Experienced in Walker-Warburg Syndrome

      MN - Neuro

      200 1st St SW, 
      Rochester, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Margherita Milone is a Neurologist in Rochester, Minnesota. Dr. Milone is rated as an Experienced provider by MediFind in the treatment of Walker-Warburg Syndrome. Her top areas of expertise are Progressive External Ophthalmoplegia, Necrotizing Myopathy (NM), Nemaline Myopathy, and Congenital Fiber-Type Disproportion.

      Learn about our expert tiers
      Advanced in Walker-Warburg Syndrome
      Advanced in Walker-Warburg Syndrome
      200 University Ave E, 
      Saint Paul, MN 
      Languages Spoken:
      English, Hindi, Kanarese, Marathi
      Accepting New Patients

      Supreet Deshpande is a Physiatrist in Saint Paul, Minnesota. Dr. Deshpande is rated as an Advanced provider by MediFind in the treatment of Walker-Warburg Syndrome. Her top areas of expertise are Cerebral Palsy, Spasticity, Moebius Syndrome, and Koolen De Vries Syndrome. Dr. Deshpande is currently accepting new patients.

      Advanced in Walker-Warburg Syndrome
      Child and Adolescent Psychiatry | Pediatrics | Neurology
      Advanced in Walker-Warburg Syndrome
      Child and Adolescent Psychiatry | Pediatrics | Neurology

      Fairview Express Care

      909 Fulton St Se, Suite 4 392, 
      Minneapolis, MN 
      Languages Spoken:
      English, Russian
      Accepting New Patients
      Offers Telehealth

      Peter Karachunski is a Child and Adolescent Psychiatrist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Karachunski is rated as an Advanced provider by MediFind in the treatment of Walker-Warburg Syndrome. His top areas of expertise are Duchenne Muscular Dystrophy, Paramyotonia Congenita, Myotonic Dystrophy, and Myotonic Dystrophy Type 2. Dr. Karachunski is currently accepting new patients.

      Advanced in Walker-Warburg Syndrome
      Advanced in Walker-Warburg Syndrome

      Gillette Childrens Specialty Healthcare

      200 University Ave E, 
      Saint Paul, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Mark Gormley is a Physiatrist in Saint Paul, Minnesota. Dr. Gormley is rated as an Advanced provider by MediFind in the treatment of Walker-Warburg Syndrome. His top areas of expertise are Spasticity, Cerebral Palsy, Spastic Diplegia Infantile Type, Moebius Syndrome, and Rhizotomy. Dr. Gormley is currently accepting new patients.

      Experienced in Walker-Warburg Syndrome
      Experienced in Walker-Warburg Syndrome

      The Duluth Clinic Ltd

      1101 9th St N, 
      Virginia, MN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Amber Erickson is a Neurologist in Virginia, Minnesota. Dr. Erickson is rated as an Experienced provider by MediFind in the treatment of Walker-Warburg Syndrome. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 3, Spinal Muscular Atrophy Type 2, and Spinal Muscular Atrophy with Arthrogryposis. Dr. Erickson is currently accepting new patients.

      Experienced in Walker-Warburg Syndrome
      Pediatric Neurology | Neurology
      Experienced in Walker-Warburg Syndrome
      Pediatric Neurology | Neurology

      Gillette Childrens Specialty Healthcare

      200 University Ave E, 
      Saint Paul, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Jamie Eskuri is a Pediatric Neurologist and a Neurologist in Saint Paul, Minnesota. Dr. Eskuri is rated as an Experienced provider by MediFind in the treatment of Walker-Warburg Syndrome. Her top areas of expertise are Dysferlinopathy, Duchenne Muscular Dystrophy, Myotonia Congenita, and Paramyotonia Congenita. Dr. Eskuri is currently accepting new patients.

      Experienced in Walker-Warburg Syndrome
      Experienced in Walker-Warburg Syndrome

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Teerin Liewluck is a Neurologist in Rochester, Minnesota. Dr. Liewluck is rated as an Experienced provider by MediFind in the treatment of Walker-Warburg Syndrome. His top areas of expertise are Necrotizing Myopathy (NM), Limb-Girdle Muscular Dystrophy, Myositis, and Inclusion Body Myositis. Dr. Liewluck is currently accepting new patients.

      Experienced in Walker-Warburg Syndrome
      Experienced in Walker-Warburg Syndrome
      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      Margaret Moutvic-Wasz is a Physiatrist in Rochester, Minnesota. Dr. Moutvic-Wasz is rated as an Experienced provider by MediFind in the treatment of Walker-Warburg Syndrome. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Spinal and Bulbar Muscular Atrophy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Spinal Muscular Atrophy Type 3.

      Experienced in Walker-Warburg Syndrome
      Experienced in Walker-Warburg Syndrome

      Fairview Express Care

      5200 Fairview Blvd, Suite F, 
      Wyoming, MN 
      Languages Spoken:
      English, Greek
      Accepting New Patients

      Georgios Manousakis is a Neurologist in Wyoming, Minnesota. Dr. Manousakis is rated as an Experienced provider by MediFind in the treatment of Walker-Warburg Syndrome. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Paramyotonia Congenita, Myotonic Dystrophy, and Myotonic Dystrophy Type 2. Dr. Manousakis is currently accepting new patients.

      Experienced in Walker-Warburg Syndrome
      Internal Medicine
      Experienced in Walker-Warburg Syndrome
      Internal Medicine

      Centracare Clinic Southwest LLC

      600 Peterson Pkwy, 
      New London, MN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kendall Bos is a primary care provider, practicing in Internal Medicine in New London, Minnesota. Dr. Bos is rated as an Experienced provider by MediFind in the treatment of Walker-Warburg Syndrome. His top areas of expertise are Chronic Kidney Disease, End-Stage Renal Disease (ESRD), Type 1 Diabetes (T1D), and Heart Failure with Preserved Ejection Fraction (HFpEF). Dr. Bos is currently accepting new patients.

      Experienced in Walker-Warburg Syndrome
      Family Medicine
      Experienced in Walker-Warburg Syndrome
      Family Medicine

      Sawtooth Mountain Clinic Inc

      513 5th Ave W, 
      Grand Marais, MN 
      Languages Spoken:
      English, French
      Accepting New Patients

      Jennifer Delfs is a primary care provider, practicing in Family Medicine in Grand Marais, Minnesota. Dr. Delfs is rated as an Experienced provider by MediFind in the treatment of Walker-Warburg Syndrome. Her top areas of expertise are Congenital Cytomegalovirus, Cytomegalovirus Antenatal Infection, Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Delfs is currently accepting new patients.

      Experienced in Walker-Warburg Syndrome
      Pediatrics | Internal Medicine
      Experienced in Walker-Warburg Syndrome
      Pediatrics | Internal Medicine

      Allina Health System

      800 E 28th St, Suite H2100, 
      Minneapolis, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Peter Melchert is a primary care provider, practicing in Pediatrics and Internal Medicine in Minneapolis, Minnesota. Dr. Melchert is rated as an Experienced provider by MediFind in the treatment of Walker-Warburg Syndrome. His top areas of expertise are Moebius Syndrome, Cerebral Palsy, Rett Syndrome, and Weill-Marchesani Syndrome. Dr. Melchert is currently accepting new patients.

      Showing 1-14 of 14

      Last Updated: 01/09/2026

      What is the definition of Walker-Warburg Syndrome?

      Walker-Warburg syndrome is an inherited disorder that affects development of the muscles, brain, and eyes. It is the most severe of a group of genetic conditions known as congenital muscular dystrophies, which cause muscle weakness and wasting (atrophy) beginning very early in life. The signs and symptoms of Walker-Warburg syndrome are present at birth or in early infancy. Because of the severity of the problems caused by Walker-Warburg syndrome, most affected individuals do not survive past childhood.

      When should I see a Walker-Warburg Syndrome doctor in Minnesota, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Walker-Warburg Syndrome doctor in Minnesota, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Walker-Warburg Syndrome doctors in Minnesota, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Walker-Warburg Syndrome doctors in Minnesota, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Walker-Warburg Syndrome doctor in Minnesota, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Walker-Warburg Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Walker-Warburg Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Walker-Warburg Syndrome doctor in Minnesota, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Walker-Warburg Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Walker-Warburg Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Walker-Warburg Syndrome doctors in Minnesota, US?

      Look for the filter feature on the left side of the Walker-Warburg Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Walker-Warburg Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Walker-Warburg Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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