Learn About Wieacker Wolff Syndrome
Orel Everett is a primary care provider, practicing in Family Medicine in Corpus Christi, Texas. Dr. Everett is rated as an Advanced provider by MediFind in the treatment of Wieacker Wolff Syndrome. His top areas of expertise are Myofibrillar Myopathy, Wieacker Wolff Syndrome, Inclusion Body Myopathy 2, and Cytoplasmic Body Myopathy. Dr. Everett is currently accepting new patients.
University Medical Associates Of Aiken
Stephen Youmans is a primary care provider, practicing in General Practice in Aiken, South Carolina. Dr. Youmans is rated as an Advanced provider by MediFind in the treatment of Wieacker Wolff Syndrome. His top areas of expertise are Familial Combined Hyperlipidemia, Xanthoma, Cirrhosis, and Migraine with Brainstem Aura. Dr. Youmans is currently accepting new patients.
Integris Ambulatory Care Corporation
Brent Beson is a Neurologist in Ponca City, Oklahoma. Dr. Beson is rated as a Distinguished provider by MediFind in the treatment of Wieacker Wolff Syndrome. His top areas of expertise are Spinal Muscular Atrophy (SMA), Paramyotonia Congenita, Myotonic Dystrophy, and Myotonic Dystrophy Type 2. Dr. Beson is currently accepting new patients.
Summary: The Congenital Muscle Disease Patient and Proxy Reported Outcome Study (CMDPROS) is a longitudinal 10 year study to identify and trend care parameters, adverse events in the congenital muscle diseases using the Congenital Muscle Disease International Registry (CMDIR) to acquire necessary data for adverse event calculations (intake survey and medical records curation). To support this study and bec...