Wieacker Wolff Syndrome
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Wieacker Wolff Syndrome Overview

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Learn About Wieacker Wolff Syndrome

What is the definition of Wieacker Wolff Syndrome?
Wieacker Wolff syndrome is a rare X-linked recessive genetic disorder of the joints, muscles, and intellect that mainly occurs in males.
What are the symptoms of Wieacker Wolff Syndrome?
Symptoms of Wieacker Wolff syndrome include progressive muscle degeneration, joint deformities of the feet (contractures), inability to move some muscles in the eyes, face, and tongue, and mild intellectual disability. Muscle weakness may cause respiratory distress. Some individuals may also have curvature of the spine (scoliosis), spasticity, or seizures.
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What are the current treatments for Wieacker Wolff Syndrome?
Treatment for Wieacker Wolff syndrome focuses on alleviating the symptoms and supportive care and may include speech therapy, physical therapy, and surgery.
Who are the top Wieacker Wolff Syndrome Local Doctors?
Advanced in Wieacker Wolff Syndrome
Dr. Kerry Levin
Neurology
Advanced in Wieacker Wolff Syndrome
Dr. Kerry Levin
Neurology

Cleveland Clinic Main Campus

9500 Euclid Avenue, 
Cleveland, OH 
216-444-2200
Experience:
53+ years
Languages Spoken:
English
See accepted insurances
Offers Telehealth

Kerry Levin is a Neurologist practicing medicine in Cleveland, Ohio. He has been practicing medicine for over 53 years. Dr. Levin is rated as an Advanced provider by MediFind in the treatment of Wieacker Wolff Syndrome. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Ptosis, Lambert-Eaton Syndrome, and Peripheral Neuropathy. Dr. Levin is board certified in American Board Of Psychiatry And Neurology, 2008.

Advanced in Wieacker Wolff Syndrome
Dr. Stephen Youmans
Family Medicine
Advanced in Wieacker Wolff Syndrome
Dr. Stephen Youmans
Family Medicine

University Medical Associates Of Aiken

934 Dougherty Rd, 
Aiken, SC 
803-643-0588
Languages Spoken:
English
See accepted insurances
Offers Telehealth

Stephen Youmans is a primary care provider, practicing in Family Medicine in Aiken, South Carolina. Dr. Youmans is rated as an Advanced provider by MediFind in the treatment of Wieacker Wolff Syndrome. He is also highly rated in 51 other conditions, according to our data. His clinical expertise encompasses Familial Combined Hyperlipidemia, Xanthoma, Cirrhosis, and Migraine with Brainstem Aura. Dr. Youmans is board certified in Family Medicine.

 
 
 
 
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Advanced in Wieacker Wolff Syndrome
Dr. Kumaraswamy Sivakumar
Neurology
Advanced in Wieacker Wolff Syndrome
Dr. Kumaraswamy Sivakumar
Neurology

Neuromuscular Research Center

4545 E Shea Blvd, Ste 175, 
Phoenix, AZ 
480-314-1007
Languages Spoken:
English
See accepted insurances
Accepting New Patients
Offers Telehealth

Kumaraswamy Sivakumar is a Neurologist practicing medicine in Phoenix, Arizona. Dr. Sivakumar is rated as an Advanced provider by MediFind in the treatment of Wieacker Wolff Syndrome. He is also highly rated in 73 other conditions, according to our data. His clinical expertise encompasses Inclusion Body Myositis, Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, and Pompe Disease. Dr. Sivakumar is board certified in Psychiatry & Neurology (Neurology), Psychiatry & Neurology (Sub: Clinical Neurophysiolog, and Psychiatry & Neurology (Sub: Neuromuscular Medicine). Dr. Sivakumar is currently accepting new patients.

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What are the latest Wieacker Wolff Syndrome Clinical Trials?
Congenital Muscle Disease Patient and Proxy Reported Outcome Study
Congenital Muscle Disease Patient and Proxy Reported Outcome Study
Enrollment Status: Recruiting
Publish Date: August 09, 2021

Summary: The Congenital Muscle Disease Patient and Proxy Reported Outcome Study (CMDPROS) is a longitudinal 10 year study to identify and trend care parameters, adverse events in the congenital muscle diseases using the Congenital Muscle Disease International Registry (CMDIR) to acquire necessary data for adverse event calculations (intake survey and medical records curation). To support this study and bec...

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