The 20 Best Wildervanck Syndrome Doctors Near Me in Massachusetts, US

Find the Top Wildervanck Syndrome Experts and Specialists

The 20 Best Wildervanck Syndrome Doctors in Massachusetts, US

Last Updated: 02/22/2026

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MediFind found 299 doctor with experience in Wildervanck Syndrome near Massachusetts, US. Of these, 269 are Experienced and 30 are Advanced.

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299 providers found
    Michael N. Singh
    Advanced in Wildervanck Syndrome
    Advanced in Wildervanck Syndrome

    Brigham And Women's Hospital, Heart And Vascular Center

    70 Francis Street, Carl J. And Ruth Shapiro Cardiovascular Center, 
    Boston, MA 
    Languages Spoken:
    English

    Dr. Michael N. Singh is a cardiovascular medicine specialist at Brigham and Women’s Hospital (BWH) and an instructor in pediatrics at Harvard Medical School.Dr. Singh received his medical degree from Loma Linda University School of Medicine. He completed a combined residency in medicine/pediatrics at Medical College of Ohio Hospital (now The University of Toledo Medical Center). Dr. Singh then completed a cardiology fellowship at Baystate Medical Center and fellowships in adult congenital heart disease, congenital echocardiography, Marfan syndrome/related connective tissue disorders, and pulmonary hypertension at BWH and Boston Children's Hospital. He is board certified in internal medicine, pediatrics and cardiovascular disease.Dr. Singh’s clinical interests include congenital heart disease, connective tissue disorder and Marfan syndrome. The author of 11 peer-reviewed publications, his research focuses on Marfan syndrome, adults with congenital heart disease and aortic valve dysfunction. Dr. Singh is rated as an Advanced provider by MediFind in the treatment of Wildervanck Syndrome. His top areas of expertise are Marfan Syndrome, Bicuspid Aortic Valve, Congenital Heart Disease (CHD), and Truncus Arteriosus.

    Advanced in Wildervanck Syndrome
    Advanced in Wildervanck Syndrome

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Helen Lyon is a Pediatrics provider in Boston, Massachusetts. Dr. Lyon is rated as an Advanced provider by MediFind in the treatment of Wildervanck Syndrome. Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), DOOR Syndrome, and Beare-Stevenson Cutis Gyrata Syndrome.

    Advanced in Wildervanck Syndrome
    Advanced in Wildervanck Syndrome
    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Aiden Shearer is a Pediatrics provider in Boston, Massachusetts. Dr. Shearer is rated as an Advanced provider by MediFind in the treatment of Wildervanck Syndrome. His top areas of expertise are Hearing Loss, Infant Hearing Loss, Laryngeal Cleft, Adenoidectomy, and Myringotomy.

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    Megan E. Anderson
    Experienced in Wildervanck Syndrome
    Experienced in Wildervanck Syndrome

    Beth Israel Deaconess Medical Center

    330 Brookline Avenue, Shapiro 2, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Megan Anderson is an Orthopedics provider in Boston, Massachusetts. Dr. Anderson is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her top areas of expertise are Osteochondroma, Hereditary Multiple Osteochondromas, Epithelioid Sarcoma, Knee Replacement, and Hip Replacement.

    Jose E. Monroy
    Experienced in Wildervanck Syndrome
    Ophthalmology
    Experienced in Wildervanck Syndrome
    Ophthalmology

    Beth Israel Deaconess Medical Center

    330 Brookline Avenue, Shapiro 5th Floor, 
    Boston, MA 
    Languages Spoken:
    English, Italian, Spanish

    Jose Monroy is an Ophthalmologist in Boston, Massachusetts. Dr. Monroy is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. His top areas of expertise are Micropthalmia Associated with Colobomatous Cyst, Lenz Microphthalmia Syndrome, Microphthalmia, Cataract Removal, and Myringotomy.

    Michelle Gurvitz
    Experienced in Wildervanck Syndrome
    Pediatric Cardiology
    Experienced in Wildervanck Syndrome
    Pediatric Cardiology

    Department Of Cardiology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Michelle Gurvitz is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Gurvitz is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her top areas of expertise are Congenital Heart Disease (CHD), Coarctation of the Aorta, Transposition of the Great Arteries, Tetralogy of Fallot, and Thymectomy.

    Anne M. Valente
    Experienced in Wildervanck Syndrome
    Experienced in Wildervanck Syndrome

    Brigham And Women's Hospital, Heart And Vascular Center

    70 Francis Street, Carl J. And Ruth Shapiro Cardiovascular Center, 
    Boston, MA 
    Languages Spoken:
    English

    Dr. Anne Marie Valente is the co-director of the Pregnancy and Cardiovascular Disease Program at Brigham and Women’s Hospital and outpatient director of the Boston Adult Congenital Heart Disease & Pulmonary Hypertension Program. A cardiovascular medicine and adult congenital heart disease specialist, she is also an associate professor of medicine and pediatrics at Harvard Medical School. Dr. Valente is the director of the Adult Congenital Heart Disease and Pulmonary Hypertension Senior Fellowship Program at Harvard Medical School.She received her medical degree from University of Vermont College of Medicine. She completed a combined internal medicine/pediatrics residency, as well as pediatric cardiology, adult cardiovascular disease and cardiovascular magnetic resonance imaging fellowships at Duke University Medical Center. Dr. Valente is board certified in internal medicine, pediatrics, cardiovascular disease and pediatric cardiology.Dr. Valente’s clinical and research interests focus on adult congenital heart disease. Her current research examines heart failure complications in patients with repaired tetralogy of Fallot, a congenital heart defect. She has authored over 50 peer-reviewed publications, as well as numerous chapters and reviews about congenital heart disease imaging and the care of women with heart disease during pregnancy. She has received institutional recognition with the Lerner Research Award and the Watkins Discovery Award as well as research funding from the American Heart Association, the Children’s Miracle Network and the National Heart, Lung and Blood Institute.**The BACH program has been training clinicians in the care of adults with congenital heart disease for several decades.  For more information about the Adult Congenital Heart Disease and Pulmonary Hypertension Senior Fellowship Program at Harvard Medical School, please visit the program website.**The BACH program is closely integrated in the Pregnancy and Cardiovascular Disease Program.  This program involves a multi-disciplinary team dedicated to caring for women with heart disease during pregnancy. More information may be found here. Dr. Valente is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her top areas of expertise are Tetralogy of Fallot, Congenital Heart Disease (CHD), Ebstein's Anomaly, Cardiac Ablation, and Heart Transplant.

    Terrance P. Murphy
    Experienced in Wildervanck Syndrome
    Experienced in Wildervanck Syndrome

    Dana-Farber/Boston Children's Cancer And Blood Disorders Center

    450 Brookline Avenue, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Terrance Murphy is a Pediatrics provider in Boston, Massachusetts. Dr. Murphy is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. His top areas of expertise are Epilepsy in Children, CHARGE Syndrome, Microcephaly Deafness Syndrome, and Wildervanck Syndrome.

    Experienced in Wildervanck Syndrome
    Pediatrics
    Experienced in Wildervanck Syndrome
    Pediatrics

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Mark Dexter is a Pediatrics provider in Boston, Massachusetts. Dr. Dexter is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. His top areas of expertise are Early Infantile Epileptic Encephalopathy, Koolen De Vries Syndrome, Wildervanck Syndrome, and Microcephaly Deafness Syndrome.

    Experienced in Wildervanck Syndrome
    Intensive Care Medicine
    Experienced in Wildervanck Syndrome
    Intensive Care Medicine

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Ahmet Uluer is an Intensive Care Medicine provider in Boston, Massachusetts. Dr. Uluer is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. His top areas of expertise are Cystic Fibrosis, Bronchiectasis, Secondary Immunodeficiency (SID), and Newborn Jaundice.

    Experienced in Wildervanck Syndrome
    Pediatric Cardiology
    Experienced in Wildervanck Syndrome
    Pediatric Cardiology

    Department Of Cardiology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Susan Saleeb is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Saleeb is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her top areas of expertise are Heart Block, Heart Murmurs, Ventricular Septal Defects, Pulmonary Atresia, and Myringotomy.

    Experienced in Wildervanck Syndrome
    Intensive Care Medicine
    Experienced in Wildervanck Syndrome
    Intensive Care Medicine

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Juliana Mariani is an Intensive Care Medicine provider in Boston, Massachusetts. Dr. Mariani is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her top areas of expertise are Bilateral Perisylvian Polymicrogyria, Orofaciodigital Syndrome 6, Lissencephaly 1, Myringotomy, and Adenoidectomy.

    Experienced in Wildervanck Syndrome
    Ophthalmology
    Experienced in Wildervanck Syndrome
    Ophthalmology

    Mass Eye And Ear, Longwood Eye Care

    800 Huntington Avenue, 
    Boston, MA 
    Languages Spoken:
    English

    Nimesh Patel is an Ophthalmologist in Boston, Massachusetts. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. His top areas of expertise are Retinal Detachment, Endophthalmitis, Late-Onset Retinal Degeneration, Cone-Rod Dystrophy, and Cataract Removal.

    Experienced in Wildervanck Syndrome
    Experienced in Wildervanck Syndrome

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Ashley Marchese is a Pediatrics provider in Boston, Massachusetts. Dr. Marchese is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her top areas of expertise are Croup, Autism Spectrum Disorder, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), and Respiratory Syncytial Virus (RSV) Infection.

    Experienced in Wildervanck Syndrome
    Pediatric Cardiology
    Experienced in Wildervanck Syndrome
    Pediatric Cardiology

    Department Of Cardiology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Kathy Jenkins is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Jenkins is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her top areas of expertise are Pulmonary Vein Stenosis, Congenital Heart Disease (CHD), Infantile Pneumothorax, Coarctation of the Aorta, and Angioplasty.

    Experienced in Wildervanck Syndrome
    Experienced in Wildervanck Syndrome

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Amy Kritzer is a Pediatrics provider in Boston, Massachusetts. Dr. Kritzer is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her top areas of expertise are Maternal Hyperphenylalaninemia, Phenylketonuria (PKU), Biotinidase Deficiency, and Mucopolysaccharidosis Type 3A (MPS IIIA, Sanfilippo Syndrome A).

    Experienced in Wildervanck Syndrome
    Experienced in Wildervanck Syndrome

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Suzanne Gouda is a Pediatrics provider in Boston, Massachusetts. Dr. Gouda is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her top areas of expertise are Bilateral Perisylvian Polymicrogyria, Agyria Pachygyria Polymicrogyria, Orofaciodigital Syndrome 6, and Hydranencephaly.

    Experienced in Wildervanck Syndrome
    Pediatric Cardiology
    Experienced in Wildervanck Syndrome
    Pediatric Cardiology

    Department Of Cardiology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    John Triedman is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Triedman is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. His top areas of expertise are Heart Block, Wolff-Parkinson-White Syndrome, Congenital Heart Block, Cardiac Ablation, and Heart Transplant.

    Experienced in Wildervanck Syndrome
    Experienced in Wildervanck Syndrome

    C H Neurology Foundation Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Jurriaan Peters is a Pediatrics provider in Boston, Massachusetts. Dr. Peters is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. His top areas of expertise are Tuberous Sclerosis Complex, Tuberous Sclerosis, Cortical Dysplasia, Seizures, and Prostatectomy.

    Experienced in Wildervanck Syndrome
    Experienced in Wildervanck Syndrome

    Boston Childrens Heart Foundation Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Suellen Yin is a Pediatrics provider in Boston, Massachusetts. Dr. Yin is rated as an Experienced provider by MediFind in the treatment of Wildervanck Syndrome. Her top areas of expertise are Coronary Artery Fistula, Congenital Coronary Artery Malformation, Anomalous Left Coronary Artery from the Pulmonary Artery, and Coronary Artery Aneurysm.

    Showing 1-20 of 299

    Last Updated: 02/22/2026

    What is the definition of Wildervanck Syndrome?

    Wildervanck syndrome is a condition that affects the bones in the neck, the eyes, and the ears. It is characterized by Klippel-Feil anomaly (in which the bones of the neck fuse together), Duane syndrome (an eye movement disorder), and hearing loss. Wildervanck syndrome occurs primarily in females. In most cases, Wildervanck syndrome occurs randomly for unknown reasons in a family with no prior history (sporadically), though a deletion on the X chromosome was identified in one individual with Wildervanck syndrome. X-linked dominant inheritance has been suggested due to the high prevalence of affected females.

    When should I see a Wildervanck Syndrome doctor in Massachusetts, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Wildervanck Syndrome doctor in Massachusetts, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Wildervanck Syndrome doctors in Massachusetts, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Wildervanck Syndrome doctors in Massachusetts, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Wildervanck Syndrome doctor in Massachusetts, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Wildervanck Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Wildervanck Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Wildervanck Syndrome doctor in Massachusetts, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Wildervanck Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Wildervanck Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Wildervanck Syndrome doctors in Massachusetts, US?

    Look for the filter feature on the left side of the Wildervanck Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Wildervanck Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Wildervanck Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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