The 20 Best X-Linked Infantile Spinal Muscular Atrophy Doctors Near Me in wilmington, DE

Find the Top X-Linked Infantile Spinal Muscular Atrophy Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 5 doctor with experience in X-Linked Infantile Spinal Muscular Atrophy near wilmington, DE. Of these, 5 are Experienced.

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5 providers found
    Experienced in X-Linked Infantile Spinal Muscular Atrophy
    Experienced in X-Linked Infantile Spinal Muscular Atrophy
    Referral may be required

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
     (2.4 miles away)
    800-416-4441
    Experience:
    18+ years
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients

    Manish Kumar is a Neurologist practicing medicine in Wilmington, Delaware. He has been practicing medicine for over 18 years. Dr. Kumar is rated as an Experienced provider by MediFind in the treatment of X-Linked Infantile Spinal Muscular Atrophy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Dysferlinopathy, Duchenne Muscular Dystrophy, Migraine, Osteotomy, and Percutaneous Coronary Intervention (PCI). Dr. Kumar is board certified in American Board Of Psychiatry & Neurology. Dr. Kumar is currently accepting new patients.

    Experienced in X-Linked Infantile Spinal Muscular Atrophy
    Experienced in X-Linked Infantile Spinal Muscular Atrophy
    Referral may be required

    Nemours Children's Hospital Delaware

    1600 Rockland Rd, 
    Wilmington, DE 
     (2.4 miles away)
    302-651-4000
    Languages Spoken:
    English
    See accepted insurances

    Mena Scavina is a Neurologist practicing medicine in Wilmington, Delaware. Dr. Scavina is rated as an Experienced provider by MediFind in the treatment of X-Linked Infantile Spinal Muscular Atrophy. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Primary Lateral Sclerosis, and Dysferlinopathy.

    Experienced in X-Linked Infantile Spinal Muscular Atrophy
    Experienced in X-Linked Infantile Spinal Muscular Atrophy
    Referral required

    Neurology Specialist Newark

    200 Hygeia Drive, Suite 1420, 
    Newark, DE 
     (7.6 miles away)
    302-623-3017
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients
    Offers Telehealth

    Marissa Blackwell is a Neurologist practicing medicine in Newark, Delaware. Dr. Blackwell is rated as an Experienced provider by MediFind in the treatment of X-Linked Infantile Spinal Muscular Atrophy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Axillary Nerve Dysfunction, Myasthenia Gravis, Becker Muscular Dystrophy, and Paramyotonia Congenita. Dr. Blackwell is currently accepting new patients.

    Learn about our expert tiers
    Experienced in X-Linked Infantile Spinal Muscular Atrophy
    Experienced in X-Linked Infantile Spinal Muscular Atrophy
    Referral may be required

    Nemours Children's Health, Glen Mills

    101 Applied Bank Blvd., Suite 11, 
    Glen Mills, PA 
     (9.5 miles away)
    800-416-4441
    Languages Spoken:
    English, Mandarin
    See accepted insurances
    Accepting New Patients

    Eileen Shieh is a Physiatrist practicing medicine in Glen Mills, Pennsylvania. Dr. Shieh is rated as an Experienced provider by MediFind in the treatment of X-Linked Infantile Spinal Muscular Atrophy. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Spastic Diplegia Infantile Type, Concussion, Neurogenic Bowel, and Osteotomy. Dr. Shieh is board certified in American Board Of Physical Medicine & Rehabilitation. Dr. Shieh is currently accepting new patients.

    Experienced in X-Linked Infantile Spinal Muscular Atrophy
    Experienced in X-Linked Infantile Spinal Muscular Atrophy
    Referral may be required

    Christiana Care Neurology Specialists

    200 Hygeia Dr Ste 1420, 
    Newark, DE 
     (10.1 miles away)
    302-623-3017
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients
    Offers Telehealth

    Sandeep Devarapalli is a Neurologist practicing medicine in Newark, Delaware. Dr. Devarapalli is rated as an Experienced provider by MediFind in the treatment of X-Linked Infantile Spinal Muscular Atrophy. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Peripheral Neuropathy, Myasthenia Gravis, Cramp-Fasciculation Syndrome, and Sensorimotor Polyneuropathy. Dr. Devarapalli is currently accepting new patients.

    Showing 1-5 of 5

    Last Updated: 09/26/2026

    What is the definition of X-Linked Infantile Spinal Muscular Atrophy?

    X-linked infantile spinal muscular atrophy is a condition that affects only boys and is characterized by severe muscle weakness and absent reflexes (areflexia). Affected children often have multiple joint deformities (contractures) from birth that cause joint stiffness (arthrogryposis) and impair movement. In severe cases, affected infants are born with broken bones. The muscle weakness worsens over time; affected children reach some early motor developmental milestones, such as sitting unassisted, but these skills are often lost (developmental regression).

    When should I see a X-Linked Infantile Spinal Muscular Atrophy doctor near wilmington, DE?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a X-Linked Infantile Spinal Muscular Atrophy doctor near wilmington, DE?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best X-Linked Infantile Spinal Muscular Atrophy doctor near wilmington, DE?

    You can find a X-Linked Infantile Spinal Muscular Atrophy doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank X-Linked Infantile Spinal Muscular Atrophy doctors near wilmington, DE?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by X-Linked Infantile Spinal Muscular Atrophy doctors near wilmington, DE?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a X-Linked Infantile Spinal Muscular Atrophy doctor near wilmington, DE?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Infantile Spinal Muscular Atrophy doctor search results page. 

    Why is it important to get a second opinion from a different X-Linked Infantile Spinal Muscular Atrophy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a X-Linked Infantile Spinal Muscular Atrophy doctor near wilmington, DE?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my X-Linked Infantile Spinal Muscular Atrophy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my X-Linked Infantile Spinal Muscular Atrophy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female X-Linked Infantile Spinal Muscular Atrophy doctors near wilmington, DE?

    Look for the filter feature on the left side of the X-Linked Infantile Spinal Muscular Atrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a X-Linked Infantile Spinal Muscular Atrophy doctor that offers video calls?

    Look for the filter feature on the left-side of the X-Linked Infantile Spinal Muscular Atrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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