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    Last Updated: 10/30/2025

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    MediFind found 10 doctor with experience in X-Linked Spondyloepiphyseal Dysplasia Tarda near Wisconsin, US. Of these, 8 are Experienced and 2 are Advanced.

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    10 providers found
      Advanced in X-Linked Spondyloepiphyseal Dysplasia Tarda
      Medical Genetics
      Advanced in X-Linked Spondyloepiphyseal Dysplasia Tarda
      Medical Genetics
      202 N Yellowstone Dr, 
      Madison, WI 
      Languages Spoken:
      English

      Richard Pauli is a Medical Genetics provider in Madison, Wisconsin. Dr. Pauli is rated as an Advanced provider by MediFind in the treatment of X-Linked Spondyloepiphyseal Dysplasia Tarda. His top areas of expertise are Achondroplasia, Spondyloepimetaphyseal Dysplasia Strudwick Type, X-Linked Spondyloepiphyseal Dysplasia Tarda, Adenoidectomy, and Myringotomy.

      Advanced in X-Linked Spondyloepiphyseal Dysplasia Tarda
      Developmental and Behavioral Pediatrics | Pediatrics
      Advanced in X-Linked Spondyloepiphyseal Dysplasia Tarda
      Developmental and Behavioral Pediatrics | Pediatrics

      University Of Wisconsin Medical Foundation Inc

      1500 Highland Ave, 
      Madison, WI 
      Languages Spoken:
      English

      Janet Legare is a Developmental and Behavioral Pediatrics specialist and a Pediatrics provider in Madison, Wisconsin. Dr. Legare is rated as an Advanced provider by MediFind in the treatment of X-Linked Spondyloepiphyseal Dysplasia Tarda. Her top areas of expertise are Chondrodystrophy, Hypochondroplasia, X-Linked Spondyloepiphyseal Dysplasia Tarda, Adenoidectomy, and Myringotomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in X-Linked Spondyloepiphyseal Dysplasia Tarda
      Pediatrics | Medical Genetics
      Experienced in X-Linked Spondyloepiphyseal Dysplasia Tarda
      Pediatrics | Medical Genetics
      1500 Highland Ave, 
      Madison, WI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Philip Giampietro is a Pediatrics specialist and a Medical Genetics provider in Madison, Wisconsin. Dr. Giampietro is rated as an Experienced provider by MediFind in the treatment of X-Linked Spondyloepiphyseal Dysplasia Tarda. His top areas of expertise are Arthrogryposis Multiplex Congenita, Congenital Contractures, VACTERL Association, and FG Syndrome. Dr. Giampietro is currently accepting new patients.

      Learn about our expert tiers
      Experienced in X-Linked Spondyloepiphyseal Dysplasia Tarda
      Experienced in X-Linked Spondyloepiphyseal Dysplasia Tarda

      Mayo Clinic Health System-Southwest Wisconsin Region Inc

      700 W Ave S, 
      La Crosse, WI 
      Languages Spoken:
      English

      Theodore Hanson is a Radiologist in La Crosse, Wisconsin. Dr. Hanson is rated as an Experienced provider by MediFind in the treatment of X-Linked Spondyloepiphyseal Dysplasia Tarda. His top areas of expertise are Breast Lump, Vertigo, Chondrodystrophy, and Schwartz-Jampel Syndrome.

      Experienced in X-Linked Spondyloepiphyseal Dysplasia Tarda
      Experienced in X-Linked Spondyloepiphyseal Dysplasia Tarda
      5249 E Terrace Dr, 
      Madison, WI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Hannah Wakefield is a Pediatrics provider in Madison, Wisconsin. Dr. Wakefield is rated as an Experienced provider by MediFind in the treatment of X-Linked Spondyloepiphyseal Dysplasia Tarda. Her top areas of expertise are Obesity in Children, Delayed Growth, Oppositional Defiant Disorder (ODD), and Vascular Birthmark. Dr. Wakefield is currently accepting new patients.

      Experienced in X-Linked Spondyloepiphyseal Dysplasia Tarda
      Ophthalmology | Pediatrics
      Experienced in X-Linked Spondyloepiphyseal Dysplasia Tarda
      Ophthalmology | Pediatrics

      The Medical College Of Wisconsin Inc

      8701 Watertown Plank Rd, Room 4041 Mfrc, 
      Milwaukee, WI 
      Languages Spoken:
      English
      Accepting New Patients

      Heather Stiff is an Ophthalmologist and a Pediatrics provider in Milwaukee, Wisconsin. Dr. Stiff is rated as an Experienced provider by MediFind in the treatment of X-Linked Spondyloepiphyseal Dysplasia Tarda. Her top areas of expertise are Strabismus, Retinopathy Pigmentary Mental Retardation, Esotropia, and Amblyopia. Dr. Stiff is currently accepting new patients.

      Experienced in X-Linked Spondyloepiphyseal Dysplasia Tarda
      Medical Genetics | Pediatrics
      Experienced in X-Linked Spondyloepiphyseal Dysplasia Tarda
      Medical Genetics | Pediatrics

      The Medical College Of Wisconsin Inc

      8701 Watertown Plank Rd, Room 4041 Mfrc, 
      Milwaukee, WI 
      Languages Spoken:
      English

      Donald Basel is a Medical Genetics specialist and a Pediatrics provider in Milwaukee, Wisconsin. Dr. Basel is rated as an Experienced provider by MediFind in the treatment of X-Linked Spondyloepiphyseal Dysplasia Tarda. His top areas of expertise are Achondroplasia, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Crouzon Syndrome.

      Experienced in X-Linked Spondyloepiphyseal Dysplasia Tarda
      Pediatric Radiology | Radiology
      Experienced in X-Linked Spondyloepiphyseal Dysplasia Tarda
      Pediatric Radiology | Radiology
      216 S Pinckney St Apt 1123, 
      Madison, WI 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Jane Lyon is a Pediatric Radiologist and a Radiologist in Madison, Wisconsin. Dr. Lyon is rated as an Experienced provider by MediFind in the treatment of X-Linked Spondyloepiphyseal Dysplasia Tarda. Her top areas of expertise are Chondrodystrophy, Collins Pope Syndrome, Schwartz-Jampel Syndrome, and X-Linked Spondyloepiphyseal Dysplasia Tarda. Dr. Lyon is currently accepting new patients.

      Experienced in X-Linked Spondyloepiphyseal Dysplasia Tarda
      Orthopedics | Pediatric Orthopedics
      Experienced in X-Linked Spondyloepiphyseal Dysplasia Tarda
      Orthopedics | Pediatric Orthopedics
      1675 Highland Ave, 
      Madison, WI 
      Languages Spoken:
      English
      Accepting New Patients

      Jeffrey Henstenburg is an Orthopedics specialist and a Pediatric Orthopedics provider in Madison, Wisconsin. Dr. Henstenburg is rated as an Experienced provider by MediFind in the treatment of X-Linked Spondyloepiphyseal Dysplasia Tarda. His top areas of expertise are Scoliosis, Spondylolisthesis, Tennis Elbow, Chondrodystrophy, and Spinal Fusion. Dr. Henstenburg is currently accepting new patients.

      Family Medicine
      Family Medicine

      Mile Bluff Medical Center Inc

      1050 Division St, 
      Mauston, WI 
      Languages Spoken:
      English
      Accepting New Patients

      Kimberley Sabey is a primary care provider, practicing in Family Medicine in Mauston, Wisconsin. Dr. Sabey is rated as an Experienced provider by MediFind in the treatment of X-Linked Spondyloepiphyseal Dysplasia Tarda. Her top areas of expertise are Torticollis, Type 2 Diabetes (T2D), Magnesium Deficiency, and Maturity Onset Diabetes of the Young. Dr. Sabey is currently accepting new patients.

      Showing 1-10 of 10

      Last Updated: 10/30/2025

      What is the definition of X-Linked Spondyloepiphyseal Dysplasia Tarda?

      X-linked spondyloepiphyseal dysplasia tarda is an inherited skeletal disorder that affects males only. Physical characteristics include moderate short-stature (dwarfism); moderate to severe spinal deformities; barrel-chest; disproportionately short trunk and neck; disproportionately long arms, and premature osteoarthritis, especially in the hip joints. Final male adult height ranges from 4 feet 10 inches to 5 feet 6 inches. Other skeletal features of this condition include decreased mobility of the elbow and hip joints, arthritis, and abnormalities of the hip joint which causes the upper leg bones to turn inward. This condition is caused by genetic changes in the TRAPPC2 gene and is inherited in an X-linked recessive pattern.

      When should I see a X-Linked Spondyloepiphyseal Dysplasia Tarda doctor in Wisconsin, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a X-Linked Spondyloepiphyseal Dysplasia Tarda doctor in Wisconsin, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank X-Linked Spondyloepiphyseal Dysplasia Tarda doctors in Wisconsin, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by X-Linked Spondyloepiphyseal Dysplasia Tarda doctors in Wisconsin, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a X-Linked Spondyloepiphyseal Dysplasia Tarda doctor in Wisconsin, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Spondyloepiphyseal Dysplasia Tarda doctor search results page. 

      Why is it important to get a second opinion from a different X-Linked Spondyloepiphyseal Dysplasia Tarda doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a X-Linked Spondyloepiphyseal Dysplasia Tarda doctor in Wisconsin, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my X-Linked Spondyloepiphyseal Dysplasia Tarda doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my X-Linked Spondyloepiphyseal Dysplasia Tarda doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female X-Linked Spondyloepiphyseal Dysplasia Tarda doctors in Wisconsin, US?

      Look for the filter feature on the left side of the X-Linked Spondyloepiphyseal Dysplasia Tarda doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a X-Linked Spondyloepiphyseal Dysplasia Tarda doctor that offers video calls?

      Look for the filter feature on the left-side of the X-Linked Spondyloepiphyseal Dysplasia Tarda doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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