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    Last Updated: 01/09/2026

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    MediFind found 53 doctor with experience in Zellweger Syndrome near Netherlands. Of these, 30 are Advanced, 15 are Experienced, 6 are Elite and 2 are Distinguished.

    Location
    LocationClose
    53 providers found
      Elite in Zellweger Syndrome
      Elite in Zellweger Syndrome
      Amsterdam, NH, NL 

      Hans Waterham practices in Amsterdam, Netherlands. Mr. Waterham is rated as an Elite expert by MediFind in the treatment of Zellweger Syndrome. His top areas of expertise are Zellweger Syndrome, Refsum Disease, Chondrodysplasia Punctata Syndrome, and X-Linked Chondrodysplasia Punctata 2.

      Elite in Zellweger Syndrome
      Elite in Zellweger Syndrome
      Amsterdam, NH, NL 

      Ronald Wanders practices in Amsterdam, Netherlands. Mr. Wanders is rated as an Elite expert by MediFind in the treatment of Zellweger Syndrome. His top areas of expertise are Zellweger Syndrome, Refsum Disease, Barth Syndrome, and Infantile Refsum Disease.

      Elite in Zellweger Syndrome
      Elite in Zellweger Syndrome
      Amsterdam, NH, NL 

      Femke Klouwer practices in Amsterdam, Netherlands. Ms. Klouwer is rated as an Elite expert by MediFind in the treatment of Zellweger Syndrome. Her top areas of expertise are Zellweger Syndrome, Refsum Disease, X-Linked Chondrodysplasia Punctata 2, and Chondrodysplasia Punctata Syndrome.

      Learn about our expert tiers
      Elite in Zellweger Syndrome
      Elite in Zellweger Syndrome
      Amsterdam, NH, NL 

      Sacha Ferdinandusse practices in Amsterdam, Netherlands. Ms. Ferdinandusse is rated as an Elite expert by MediFind in the treatment of Zellweger Syndrome. Her top areas of expertise are Zellweger Syndrome, Primary Carnitine Deficiency, Protein Deficiency, and Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency.

      Elite in Zellweger Syndrome
      Elite in Zellweger Syndrome
      Amsterdam, NH, NL 

      Kevin Berendse practices in Amsterdam, Netherlands. Mr. Berendse is rated as an Elite expert by MediFind in the treatment of Zellweger Syndrome. His top areas of expertise are Zellweger Syndrome, Mosaicism, Bile Duct Obstruction, and Cholestasis.

      Elite in Zellweger Syndrome
      Elite in Zellweger Syndrome
      Amsterdam, NH, NL 

      Bwee The-Poll practices in Amsterdam, Netherlands. The-Poll is rated as an Elite expert by MediFind in the treatment of Zellweger Syndrome. Their top areas of expertise are Zellweger Syndrome, X-Linked Chondrodysplasia Punctata 2, Chondrodysplasia Punctata Syndrome, and Pontocerebellar Hypoplasia.

      Distinguished in Zellweger Syndrome
      Distinguished in Zellweger Syndrome
      Amsterdam, NH, NL 

      Frederic Vaz practices in Amsterdam, Netherlands. Mr. Vaz is rated as a Distinguished expert by MediFind in the treatment of Zellweger Syndrome. His top areas of expertise are Barth Syndrome, Primary Carnitine Deficiency, Zellweger Syndrome, Xanthoma, and Laryngectomy.

      Distinguished in Zellweger Syndrome
      Distinguished in Zellweger Syndrome
      Amsterdam, NH, NL 

      Bart Koot practices in Amsterdam, Netherlands. Mr. Koot is rated as a Distinguished expert by MediFind in the treatment of Zellweger Syndrome. His top areas of expertise are Zellweger Syndrome, Sclerosing Cholangitis, Cholangitis, Endoscopy, and Liver Transplant.

      Henkjan J. Verkade
      Advanced in Zellweger Syndrome
      Advanced in Zellweger Syndrome
      Groningen, GR, NL 

      Henkjan Verkade practices in Groningen, Netherlands. Mr. Verkade is rated as an Advanced expert by MediFind in the treatment of Zellweger Syndrome. His top areas of expertise are Progressive Familial Intrahepatic Cholestasis Type 1, Cholestasis, Alagille Syndrome, Liver Transplant, and Hepato-Pancreato-Biliary Surgery.

      Advanced in Zellweger Syndrome
      Advanced in Zellweger Syndrome
      Amsterdam, NH, NL 

      Wim Kulik practices in Amsterdam, Netherlands. Kulik is rated as an Advanced expert by MediFind in the treatment of Zellweger Syndrome. Their top areas of expertise are Zellweger Syndrome, Barth Syndrome, N-Acetylglutamate Synthase Deficiency, and Mucolipidosis Type 4.

      Advanced in Zellweger Syndrome
      Advanced in Zellweger Syndrome
      Amsterdam, NH, NL 

      Peter Jansen practices in Amsterdam, Netherlands. Mr. Jansen is rated as an Advanced expert by MediFind in the treatment of Zellweger Syndrome. His top areas of expertise are Zellweger Syndrome, Bile Duct Obstruction, Cholestasis, Hepatectomy, and Gastric Bypass.

      Advanced in Zellweger Syndrome
      Advanced in Zellweger Syndrome
      Maastricht, LI, NL 

      Frank Schaap practices in Maastricht, Netherlands. Mr. Schaap is rated as an Advanced expert by MediFind in the treatment of Zellweger Syndrome. His top areas of expertise are Cholestasis, Bile Duct Obstruction, Zellweger Syndrome, Hepatectomy, and Pancreaticoduodenectomy.

      Advanced in Zellweger Syndrome
      Advanced in Zellweger Syndrome
      Amsterdam, NH, NL 

      Elles Kemper practices in Amsterdam, Netherlands. Mr. Kemper is rated as an Advanced expert by MediFind in the treatment of Zellweger Syndrome. His top areas of expertise are Cerebrotendinous Xanthomatosis, Xanthoma, Zellweger Syndrome, and Chinese Restaurant Syndrome.

      Advanced in Zellweger Syndrome
      Advanced in Zellweger Syndrome
      Maastricht, LI, NL 

      Kiran Koelfat practices in Maastricht, Netherlands. Koelfat is rated as an Advanced expert by MediFind in the treatment of Zellweger Syndrome. Their top areas of expertise are Zellweger Syndrome, Biliary Dyskinesia, Cholestasis, and Gastrointestinal Fistula.

      Advanced in Zellweger Syndrome
      Advanced in Zellweger Syndrome
      Amsterdam, NH, NL 

      Janet Koster practices in Amsterdam, Netherlands. Ms. Koster is rated as an Advanced expert by MediFind in the treatment of Zellweger Syndrome. Her top areas of expertise are Zellweger Syndrome, Perrault Syndrome, Smith-Lemli-Opitz Syndrome, and Succinic Semialdehyde Dehydrogenase Deficiency.

      Advanced in Zellweger Syndrome
      Advanced in Zellweger Syndrome
      Amsterdam, NH, NL 

      Rob Ofman practices in Amsterdam, Netherlands. Mr. Ofman is rated as an Advanced expert by MediFind in the treatment of Zellweger Syndrome. His top areas of expertise are Adrenoleukodystrophy (ALD), Zellweger Syndrome, Addison's Disease, and Mevalonate Kinase Deficiency.

      Advanced in Zellweger Syndrome
      Advanced in Zellweger Syndrome
      Amsterdam, NH, NL 

      Katharina Herzog practices in Amsterdam, Netherlands. Ms. Herzog is rated as an Advanced expert by MediFind in the treatment of Zellweger Syndrome. Her top areas of expertise are Refsum Disease, Zellweger Syndrome, Hepatitis C, Maturity Onset Diabetes of the Young, and Gastric Bypass.

      Advanced in Zellweger Syndrome
      Advanced in Zellweger Syndrome
      Amsterdam, NH, NL 

      Serhii Chornyi practices in Amsterdam, Netherlands. Chornyi is rated as an Advanced expert by MediFind in the treatment of Zellweger Syndrome. Their top areas of expertise are Zellweger Syndrome and Primary Hyperoxaluria Type 1.

      Advanced in Zellweger Syndrome
      Advanced in Zellweger Syndrome
      Amsterdam, NH, NL 

      Yorrick Jaspers practices in Amsterdam, Netherlands. Jaspers is rated as an Advanced expert by MediFind in the treatment of Zellweger Syndrome. Their top areas of expertise are Adrenoleukodystrophy (ALD), Addison's Disease, CACH Syndrome, and Zellweger Syndrome.

      Advanced in Zellweger Syndrome
      Advanced in Zellweger Syndrome
      Maastricht, LI, NL 

      Maria Gozalbo-Rubio practices in Maastricht, Netherlands. Ms. Gozalbo-Rubio is rated as an Advanced expert by MediFind in the treatment of Zellweger Syndrome. Her top areas of expertise are Classic Galactosemia, Galactosemia, Galactose Epimerase Deficiency, and Galactokinase Deficiency.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 53

      Last Updated: 01/09/2026

      What is the definition of Zellweger Syndrome?

      Zellweger syndrome is the most severe form of a spectrum of conditions called Zellweger spectrum. The signs and symptoms of Zellweger syndrome typically appear during the newborn period and may include poor muscle tone (hypotonia), poor feeding, seizures, hearing loss, vision loss, distinctive facial features, and skeletal abnormalities. Affected children also develop life-threatening problems in other organs and tissues, such as the liver, heart, and kidneys. Zellweger syndrome is caused by genetic changes in any one of at least 12 genes; genetic changes in the PEX1 gene are the most common cause. It is inherited in an autosomal recessive manner.

      When should I see a Zellweger Syndrome doctor in Netherlands?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Zellweger Syndrome doctor in Netherlands?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Zellweger Syndrome doctors in Netherlands?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Zellweger Syndrome doctors in Netherlands?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Zellweger Syndrome doctor in Netherlands?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Zellweger Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Zellweger Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Zellweger Syndrome doctor in Netherlands?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Zellweger Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Zellweger Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Zellweger Syndrome doctors in Netherlands?

      Look for the filter feature on the left side of the Zellweger Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Zellweger Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Zellweger Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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