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    Last Updated: 10/30/2025

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    MediFind found 9 doctor with experience in Zellweger Syndrome near Indiana, US. Of these, 7 are Experienced and 2 are Advanced.

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    9 providers found
      Experienced in Zellweger Syndrome
      Ophthalmology | General Surgery
      Experienced in Zellweger Syndrome
      Ophthalmology | General Surgery

      Vision Care Ophthalmology

      3301 Lake Ave, 
      Fort Wayne, IN 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Anne Krafsig is an Ophthalmologist and a General Surgeon in Fort Wayne, Indiana. Dr. Krafsig is rated as an Experienced provider by MediFind in the treatment of Zellweger Syndrome. Her top areas of expertise are Interstitial Keratitis, Cataract, Nearsightedness, and Glaucoma. Dr. Krafsig is currently accepting new patients.

      Advanced in Zellweger Syndrome
      Advanced in Zellweger Syndrome

      Iu Health Medical Group LLC

      1701 N Senate Blvd, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Meredith Ventura is a Rheumatologist in Indianapolis, Indiana. Dr. Ventura is rated as an Advanced provider by MediFind in the treatment of Zellweger Syndrome. Her top areas of expertise are Zellweger Syndrome, Reactive Arthritis, Raynaud Phenomenon, and Fibromyalgia. Dr. Ventura is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Zellweger Syndrome
      Medical Genetics
      Advanced in Zellweger Syndrome
      Medical Genetics
      315 Lehman Ave, #c, 
      Topeka, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Zineb Ammous is a Medical Genetics provider in Topeka, Indiana. Dr. Ammous is rated as an Advanced provider by MediFind in the treatment of Zellweger Syndrome. Her top areas of expertise are Propionic Acidemia, Zellweger Syndrome, Argininosuccinic Aciduria, and Phenylketonuria (PKU). Dr. Ammous is currently accepting new patients.

      Learn about our expert tiers
      Anna E. Thomas
      Experienced in Zellweger Syndrome
      Neonatology | Pediatrics
      Experienced in Zellweger Syndrome
      Neonatology | Pediatrics
      705 Riley Hospital Dr, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Anna Thomas is a Neonatologist and a Pediatrics provider in Indianapolis, Indiana. Dr. Thomas is rated as an Experienced provider by MediFind in the treatment of Zellweger Syndrome. Her top areas of expertise are Gastroschisis, Omphalocele, Zellweger Syndrome, Atresia of Small Intestine, and Gastrostomy. Dr. Thomas is currently accepting new patients.

      Experienced in Zellweger Syndrome
      Neonatology | Pediatrics
      Experienced in Zellweger Syndrome
      Neonatology | Pediatrics
      705 Riley Hospital Dr, Rr 208, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Jayme Allen is a Neonatologist and a Pediatrics provider in Indianapolis, Indiana. Dr. Allen is rated as an Experienced provider by MediFind in the treatment of Zellweger Syndrome. Her top areas of expertise are Gastroschisis, Atresia of Small Intestine, Omphalocele, and Colonic Atresia. Dr. Allen is currently accepting new patients.

      Experienced in Zellweger Syndrome
      Experienced in Zellweger Syndrome
      705 Riley Hospital Dr, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Lauren Jacobs is a Pediatrics provider in Indianapolis, Indiana. Dr. Jacobs is rated as an Experienced provider by MediFind in the treatment of Zellweger Syndrome. Her top areas of expertise are Zellweger Syndrome, Trisomy 13, and Omphalocele. Dr. Jacobs is currently accepting new patients.

      Experienced in Zellweger Syndrome
      Pediatrics | Palliative Medicine
      Experienced in Zellweger Syndrome
      Pediatrics | Palliative Medicine

      University Pediatric Associates Inc

      705 Riley Hospital Dr, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Jessica Zavadil is a Pediatrics specialist and a Palliative Medicine provider in Indianapolis, Indiana. Dr. Zavadil is rated as an Experienced provider by MediFind in the treatment of Zellweger Syndrome. Her top areas of expertise are Trisomy 13, Omphalocele, Zellweger Syndrome, and Pediatric Low-Grade Glioma (pLGG). Dr. Zavadil is currently accepting new patients.

      Experienced in Zellweger Syndrome
      Gastroenterology
      Experienced in Zellweger Syndrome
      Gastroenterology
      705 Riley Hospital Dr, Roc 4210, 
      Indianapolis, IN 
      Languages Spoken:
      English

      Eugenia Molleston is a Gastroenterologist in Indianapolis, Indiana. Dr. Molleston is rated as an Experienced provider by MediFind in the treatment of Zellweger Syndrome. Her top areas of expertise are Biliary Atresia, Bile Duct Cysts, Alpha-1 Antitrypsin Deficiency (AATD), and Wilson Disease.

      Experienced in Zellweger Syndrome
      Pediatric Gastroenterology | Gastroenterology
      Experienced in Zellweger Syndrome
      Pediatric Gastroenterology | Gastroenterology
      705 Riley Hospital Dr, 
      Indianapolis, IN 
      Languages Spoken:
      English

      Kyla Tolliver is a Pediatric Gastroenterologist and a Gastroenterologist in Indianapolis, Indiana. Dr. Tolliver is rated as an Experienced provider by MediFind in the treatment of Zellweger Syndrome. Her top areas of expertise are Gilbert Syndrome, Biliary Atresia, Wilson Disease, and Menkes Disease.

      Showing 1-9 of 9

      Last Updated: 10/30/2025

      What is the definition of Zellweger Syndrome?

      Zellweger syndrome is the most severe form of a spectrum of conditions called Zellweger spectrum. The signs and symptoms of Zellweger syndrome typically appear during the newborn period and may include poor muscle tone (hypotonia), poor feeding, seizures, hearing loss, vision loss, distinctive facial features, and skeletal abnormalities. Affected children also develop life-threatening problems in other organs and tissues, such as the liver, heart, and kidneys. Zellweger syndrome is caused by genetic changes in any one of at least 12 genes; genetic changes in the PEX1 gene are the most common cause. It is inherited in an autosomal recessive manner.

      When should I see a Zellweger Syndrome doctor in Indiana, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Zellweger Syndrome doctor in Indiana, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Zellweger Syndrome doctors in Indiana, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Zellweger Syndrome doctors in Indiana, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Zellweger Syndrome doctor in Indiana, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Zellweger Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Zellweger Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Zellweger Syndrome doctor in Indiana, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Zellweger Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Zellweger Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Zellweger Syndrome doctors in Indiana, US?

      Look for the filter feature on the left side of the Zellweger Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Zellweger Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Zellweger Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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