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    Last Updated: 10/30/2025

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    MediFind found 17 doctor with experience in ALG1-CDG near The United States. Of these, 16 are Experienced and 1 are Advanced.

    Location
    LocationClose
    17 providers found
      Advanced in ALG1-CDG
      Medical Genetics | Neonatology | Pediatrics
      Advanced in ALG1-CDG
      Medical Genetics | Neonatology | Pediatrics

      University Of Wisconsin Medical Foundation Inc

      1500 Highland Ave, 
      Madison, WI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Philip James is a Medical Genetics specialist and a Neonatologist in Madison, Wisconsin. Dr. James is rated as an Advanced provider by MediFind in the treatment of ALG1-CDG. His top areas of expertise are ALG1-CDG, 1p36 Deletion Syndrome, Hyperlysinemia, and Glutaric Acidemia Type 1. Dr. James is currently accepting new patients.

      Raymond Y. Wang
      Experienced in ALG1-CDG
      Medical Genetics
      Experienced in ALG1-CDG
      Medical Genetics
      1201 West La Veta Avenue, 
      Orange, CA 
      Languages Spoken:
      English

      Raymond Wang is a Medical Genetics provider in Orange, California. Dr. Wang is rated as an Experienced provider by MediFind in the treatment of ALG1-CDG. His top areas of expertise are Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Pompe Disease, and Adenoidectomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in ALG1-CDG
      Pediatrics | Medical Genetics
      Experienced in ALG1-CDG
      Pediatrics | Medical Genetics
      4800 Sand Point Way Ne, M/s Mb.8.632, 
      Seattle, WA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Christina Lam is a Pediatrics specialist and a Medical Genetics provider in Seattle, Washington. Dr. Lam is rated as an Experienced provider by MediFind in the treatment of ALG1-CDG. Her top areas of expertise are Argininosuccinic Aciduria, 3-Hydroxy-3-Methylglutaryl-CoA Lyase Deficiency, ALG3-CDG, and Carnitine-Acylcarnitine Translocase Deficiency. Dr. Lam is currently accepting new patients.

      Learn about our expert tiers
      Experienced in ALG1-CDG
      Experienced in ALG1-CDG

      University Medical Service Association Inc

      800 6th S St, 
      Saint Petersburg, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Amarilis Sanchez-Valle is a Medical Genetics provider in Saint Petersburg, Florida. Dr. Sanchez-Valle is rated as an Experienced provider by MediFind in the treatment of ALG1-CDG. Her top areas of expertise are Phenylketonuria (PKU), Early Infantile Epileptic Encephalopathy, Dihydropteridine Reductase Deficiency, and Maternal Hyperphenylalaninemia. Dr. Sanchez-Valle is currently accepting new patients.

      Experienced in ALG1-CDG
      Medical Genetics | Pediatrics
      Experienced in ALG1-CDG
      Medical Genetics | Pediatrics
      10 Center Drive Msc 1851, Bldg. 10, Room 10c-103, Nhgri, Nih, 
      Bethesda, MD 
      Languages Spoken:
      English

      William Gahl is a Medical Genetics specialist and a Pediatrics provider in Bethesda, Maryland. Dr. Gahl is rated as an Experienced provider by MediFind in the treatment of ALG1-CDG. His top areas of expertise are Oculocutaneous Albinism Type 2, Hermansky-Pudlak Syndrome, Oculocutaneous Albinism Type 1, Oculocutaneous Albinism, and Deep Brain Stimulation.

      Experienced in ALG1-CDG
      Medical Genetics | Pediatrics | Physiatry
      Experienced in ALG1-CDG
      Medical Genetics | Pediatrics | Physiatry

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Can Ficicioglu is a Medical Genetics specialist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Ficicioglu is rated as an Experienced provider by MediFind in the treatment of ALG1-CDG. His top areas of expertise are Classic Galactosemia, Urea Cycle Disorders (UCD), Galactose Epimerase Deficiency, and Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome).

      Experienced in ALG1-CDG
      Medical Genetics | Pediatrics
      Experienced in ALG1-CDG
      Medical Genetics | Pediatrics
      4800 Sand Point Way Ne, 
      Seattle, WA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Michael Bamshad is a Medical Genetics specialist and a Pediatrics provider in Seattle, Washington. Dr. Bamshad is rated as an Experienced provider by MediFind in the treatment of ALG1-CDG. His top areas of expertise are Distal Arthrogryposis Type 6, Distal Arthrogryposis, Arthrogryposis Multiplex Congenita, and Congenital Contractures. Dr. Bamshad is currently accepting new patients.

      Experienced in ALG1-CDG
      Medical Genetics
      Experienced in ALG1-CDG
      Medical Genetics
      1201 West La Veta Avenue, 
      Orange, CA 
      Languages Spoken:
      English
      Accepting New Patients

      Jose Abdenur is a Medical Genetics provider in Orange, California. Dr. Abdenur is rated as an Experienced provider by MediFind in the treatment of ALG1-CDG. His top areas of expertise are Adrenoleukodystrophy (ALD), Von Gierke Disease, Glycogen Storage Disease Type 3, and Hyperlysinemia. Dr. Abdenur is currently accepting new patients.

      Experienced in ALG1-CDG
      Medical Genetics | Pediatrics
      Experienced in ALG1-CDG
      Medical Genetics | Pediatrics
      1000 Blythe Blvd, 
      Charlotte, NC 
      Languages Spoken:
      English

      Susan Sparks is a Medical Genetics specialist and a Pediatrics provider in Charlotte, North Carolina. Dr. Sparks is rated as an Experienced provider by MediFind in the treatment of ALG1-CDG. Her top areas of expertise are Pompe Disease, Smith-Lemli-Opitz Syndrome, ALG1-CDG, and Danon Disease.

      Experienced in ALG1-CDG
      Medical Genetics | Pediatrics
      Experienced in ALG1-CDG
      Medical Genetics | Pediatrics
      111 Michigan Ave Nw, W3.5, 600, 
      Washington, DC 
      Languages Spoken:
      English

      Seth Berger is a Medical Genetics specialist and a Pediatrics provider in Washington, Washington, D.c.. Dr. Berger is rated as an Experienced provider by MediFind in the treatment of ALG1-CDG. His top areas of expertise are Fetal Edema, Hydrops Fetalis, Hemolytic Disease of the Newborn, and Alpha Thalassemia.

      Experienced in ALG1-CDG
      Medical Genetics | Pediatrics
      Experienced in ALG1-CDG
      Medical Genetics | Pediatrics

      University Professional Services

      901 E 18th Ave, 
      Eugene, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Amy Yang is a Medical Genetics specialist and a Pediatrics provider in Eugene, Oregon. Dr. Yang is rated as an Experienced provider by MediFind in the treatment of ALG1-CDG. Her top areas of expertise are Gaucher Disease Type 1, Fabry Disease, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Multiple Sulfatase Deficiency. Dr. Yang is currently accepting new patients.

      Experienced in ALG1-CDG
      Pediatrics | Medical Genetics
      Experienced in ALG1-CDG
      Pediatrics | Medical Genetics
      3401 Civic Center Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Naiga Cottingham is a Pediatrics specialist and a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Cottingham is rated as an Experienced provider by MediFind in the treatment of ALG1-CDG. Her top areas of expertise are ALG9-CDG, ALG1-CDG, Fetal Edema, and Hydrops Fetalis.

      Experienced in ALG1-CDG
      Medical Genetics
      Experienced in ALG1-CDG
      Medical Genetics
      1201 West La Veta Avenue, 
      Orange, CA 
      Languages Spoken:
      English
      Accepting New Patients

      Eric Vilain is a Medical Genetics provider in Orange, California. Dr. Vilain is rated as an Experienced provider by MediFind in the treatment of ALG1-CDG. His top areas of expertise are Pyle Disease, Intersex, Beckwith-Wiedemann Syndrome, Hypospadias, and Orchiectomy. Dr. Vilain is currently accepting new patients.

      Experienced in ALG1-CDG
      Medical Genetics | Pediatrics
      Experienced in ALG1-CDG
      Medical Genetics | Pediatrics
      1001 Blythe Blvd, Medical Center Plaza Suite 200, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients

      Laurie Demmer is a Medical Genetics specialist and a Pediatrics provider in Charlotte, North Carolina. Dr. Demmer is rated as an Experienced provider by MediFind in the treatment of ALG1-CDG. Her top areas of expertise are Hypotonia, Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome), and Micrognathia. Dr. Demmer is currently accepting new patients.

      Experienced in ALG1-CDG
      Medical Genetics | Pediatrics
      Experienced in ALG1-CDG
      Medical Genetics | Pediatrics

      University Of Florida Jacksonville Physicians, Inc.

      655 W 8th St, 
      Jacksonville, FL 
      Languages Spoken:
      English

      Pamela Trapane is a Medical Genetics specialist and a Pediatrics provider in Jacksonville, Florida. Dr. Trapane is rated as an Experienced provider by MediFind in the treatment of ALG1-CDG. Her top areas of expertise are Vascular Ehlers-Danlos Syndrome (VEDS), Brittle Cornea Syndrome, Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Neurofibromatosis.

      Experienced in ALG1-CDG
      Medical Genetics
      Experienced in ALG1-CDG
      Medical Genetics
      1201 W La Veta Ave, 
      Orange, CA 
      Languages Spoken:
      English
      Accepting New Patients

      Walla Al-Hertani is a Medical Genetics provider in Orange, California. Dr. Al-Hertani is rated as an Experienced provider by MediFind in the treatment of ALG1-CDG. Her top areas of expertise are Von Gierke Disease, Classic Galactosemia, Phosphoglycerate Mutase Deficiency, and Andersen Disease. Dr. Al-Hertani is currently accepting new patients.

      Experienced in ALG1-CDG
      Medical Genetics
      Experienced in ALG1-CDG
      Medical Genetics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Olaf Bodamer is a Medical Genetics provider in Boston, Massachusetts. Dr. Bodamer is rated as an Experienced provider by MediFind in the treatment of ALG1-CDG. His top areas of expertise are Kabuki Syndrome, Classic Galactosemia, Niemann-Pick Disease, and Mucopolysaccharidoses (MPS). Dr. Bodamer is currently accepting new patients.

      Showing 1-17 of 17

      Last Updated: 10/30/2025

      When should I see an ALG1-CDG doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an ALG1-CDG doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank ALG1-CDG doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by ALG1-CDG doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an ALG1-CDG doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the ALG1-CDG doctor search results page. 

      Why is it important to get a second opinion from a different ALG1-CDG doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an ALG1-CDG doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my ALG1-CDG doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my ALG1-CDG doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female ALG1-CDG doctors in The United States?

      Look for the filter feature on the left side of the ALG1-CDG doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an ALG1-CDG doctor that offers video calls?

      Look for the filter feature on the left-side of the ALG1-CDG doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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