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    Last Updated: 10/30/2025

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    MediFind found 4 doctor with experience in Asphyxiating Thoracic Dystrophy near The United States. Of these, 2 are Advanced and 2 are Experienced.

    Location
    LocationClose
    4 providers found
      Daniel Raymond
      Advanced in Asphyxiating Thoracic Dystrophy
      Thoracic Surgery
      Advanced in Asphyxiating Thoracic Dystrophy
      Thoracic Surgery

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
      Experience:
      33+ years
      Languages Spoken:
      English
      Offers Telehealth

      Daniel Raymond is a Thoracic Surgeon in Cleveland, Ohio. Dr. Raymond has been practicing medicine for over 33 years and is rated as an Advanced provider by MediFind in the treatment of Asphyxiating Thoracic Dystrophy. His top areas of expertise are Lung Cancer, Non-Small Cell Lung Cancer (NSCLC), Pleuropulmonary Blastoma, Thymectomy, and Parathyroidectomy.

      Advanced in Asphyxiating Thoracic Dystrophy
      Thoracic Surgery | General Surgery
      Advanced in Asphyxiating Thoracic Dystrophy
      Thoracic Surgery | General Surgery

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Leah Backhus is a Thoracic Surgeon and a General Surgeon in Stanford, California. Dr. Backhus is rated as an Advanced provider by MediFind in the treatment of Asphyxiating Thoracic Dystrophy. Her top areas of expertise are Lung Cancer, Thymic Epithelial Tumor, Lung Nodules, Thymectomy, and Endoscopy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Asphyxiating Thoracic Dystrophy
      Thoracic Surgery | General Surgery
      Experienced in Asphyxiating Thoracic Dystrophy
      Thoracic Surgery | General Surgery

      Wellstar Medical Group LLC

      1120 15th St, 
      Augusta, GA 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Daniel Miller is a Thoracic Surgeon and a General Surgeon in Augusta, Georgia. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of Asphyxiating Thoracic Dystrophy. His top areas of expertise are Metastatic Pleural Tumor, Lung Cancer, Pleuropulmonary Blastoma, Endoscopy, and Thymectomy. Dr. Miller is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Asphyxiating Thoracic Dystrophy
      Thoracic Surgery
      Experienced in Asphyxiating Thoracic Dystrophy
      Thoracic Surgery

      Cardiothoracic Surgeons Inc

      720 Eskenazi Ave, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Karen Rieger is a Thoracic Surgeon in Indianapolis, Indiana. Dr. Rieger is rated as an Experienced provider by MediFind in the treatment of Asphyxiating Thoracic Dystrophy. Her top areas of expertise are Pleuropulmonary Blastoma, Lung Nodules, Lung Cancer, Thymectomy, and Endoscopy. Dr. Rieger is currently accepting new patients.

      Showing 1-4 of 4

      Last Updated: 10/30/2025

      What is the definition of Asphyxiating Thoracic Dystrophy?

      Asphyxiating thoracic dystrophy, also known as Jeune syndrome, is an inherited disorder of bone growth characterized by a narrow chest, short ribs, shortened bones in the arms and legs, short stature, and extra fingers and toes (polydactyly). Additional skeletal abnormalities can include unusually shaped collarbones (clavicles) and pelvic bones, and and cone-shaped ends of the long bones in the arms and legs. Many infants with this condition are born with an extremely narrow, bell-shaped chest that can restrict the growth and expansion of the lungs. Life-threatening problems with breathing result, and people with asphyxiating thoracic dystrophy may live only into infancy or early childhood. However, in people who survive beyond the first few years, the narrow chest and related breathing problems can improve with age.

      When should I see an Asphyxiating Thoracic Dystrophy doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Asphyxiating Thoracic Dystrophy doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Asphyxiating Thoracic Dystrophy doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Asphyxiating Thoracic Dystrophy doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Asphyxiating Thoracic Dystrophy doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Asphyxiating Thoracic Dystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Asphyxiating Thoracic Dystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Asphyxiating Thoracic Dystrophy doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Asphyxiating Thoracic Dystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Asphyxiating Thoracic Dystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Asphyxiating Thoracic Dystrophy doctors in The United States?

      Look for the filter feature on the left side of the Asphyxiating Thoracic Dystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Asphyxiating Thoracic Dystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Asphyxiating Thoracic Dystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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