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    Last Updated: 01/09/2026

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    MediFind found 17 doctor with experience in Congenital Central Hypoventilation Syndrome near The United Kingdom. Of these, 16 are Experienced and 1 are Advanced.

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    17 providers found
      Advanced in Congenital Central Hypoventilation Syndrome

      Martin P. Samuels
      Advanced in Congenital Central Hypoventilation Syndrome

      Martin P. Samuels
      Stoke-on-trent, ENG, GB 

      Martin Samuels practices in Stoke-on-trent, United Kingdom. Mr. Samuels is rated as an Advanced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. His top areas of expertise are Congenital Central Hypoventilation Syndrome, Bartter Syndrome, Craniofrontonasal Dysplasia, Central Sleep Apnea, and Gastrostomy.

      Experienced in Congenital Central Hypoventilation Syndrome

      Stefan A. Unger
      Experienced in Congenital Central Hypoventilation Syndrome

      Stefan A. Unger
      Edinburgh, SCT, GB 

      Stefan Unger practices in Edinburgh, United Kingdom. Mr. Unger is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. His top areas of expertise are Spondyloenchondrodysplasia, Common Variable Immune Deficiency, Common Cold, and Bronchitis.

      Experienced in Congenital Central Hypoventilation Syndrome

      Schaida Schirwani
      Experienced in Congenital Central Hypoventilation Syndrome

      Schaida Schirwani
      Southampton, ENG, GB 

      Schaida Schirwani practices in Southampton, United Kingdom. Schirwani is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. Their top areas of expertise are Multiple Pterygium Syndrome, Amniotic Band Syndrome, Bazex Syndrome, and Ehlers-Danlos Syndrome (EDS).

      Learn about our expert tiers
      Experienced in Congenital Central Hypoventilation Syndrome

      Shaney L. Barratt
      Experienced in Congenital Central Hypoventilation Syndrome

      Shaney L. Barratt
      Upper Maudlin Street, 
      Bristol, ENG, GB 

      Shaney Barratt practices in Bristol, United Kingdom. Ms. Barratt is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. Her top areas of expertise are Interstitial Lung Disease, Acute Interstitial Pneumonia, Pulmonary Fibrosis, and Idiopathic Pulmonary Fibrosis.

      Experienced in Congenital Central Hypoventilation Syndrome

      Karen A. Pysden
      Experienced in Congenital Central Hypoventilation Syndrome

      Karen A. Pysden

      Leeds General Infirmary

      Leeds, ENG, GB 

      Karen Pysden practices in Leeds, United Kingdom. Ms. Pysden is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. Her top areas of expertise are Arthrogryposis Multiplex Congenita, Congenital Contractures, VLDLR-Associated Cerebellar Hypoplasia, Multiple Pterygium Syndrome, and Thrombectomy.

      Experienced in Congenital Central Hypoventilation Syndrome

      Adrian H. Kendrick
      Experienced in Congenital Central Hypoventilation Syndrome

      Adrian H. Kendrick
      Upper Maudlin Street, 
      Bristol, ENG, GB 

      Adrian Kendrick practices in Bristol, United Kingdom. Mr. Kendrick is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. His top areas of expertise are Congenital Central Hypoventilation Syndrome, Central Sleep Apnea, and Hyperventilation.

      Experienced in Congenital Central Hypoventilation Syndrome

      Clare E. Gilbert
      Experienced in Congenital Central Hypoventilation Syndrome

      Clare E. Gilbert
      Keppel Street, 
      London, ENG, GB 

      Clare Gilbert practices in London, United Kingdom. Ms. Gilbert is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. Her top areas of expertise are Congenital Hyperinsulinism, Retinopathy of Prematurity, Low Blood Sugar, Cataract Removal, and Trabeculectomy.

      Experienced in Congenital Central Hypoventilation Syndrome

      Daphne Yau
      Experienced in Congenital Central Hypoventilation Syndrome

      Daphne Yau
      Manchester, ENG, GB 

      Daphne Yau practices in Manchester, United Kingdom. Ms. Yau is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. Her top areas of expertise are Congenital Hyperinsulinism, Newborn Low Blood Sugar, Low Blood Sugar, Gastrostomy, and Pancreatectomy.

      Experienced in Congenital Central Hypoventilation Syndrome

      Wendy D. Jones
      Experienced in Congenital Central Hypoventilation Syndrome

      Wendy D. Jones
      Ashby Road, 
      Loughborough, ENG, GB 

      Wendy Jones practices in Loughborough, United Kingdom. Ms. Jones is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. Her top areas of expertise are Wiedemann-Steiner Syndrome, Hirsutism in Women, Arthrogryposis Multiplex Congenita, Congenital Contractures, and Gastrostomy.

      Experienced in Congenital Central Hypoventilation Syndrome

      Antonia Dastamani
      Experienced in Congenital Central Hypoventilation Syndrome

      Antonia Dastamani
      Great Ormond Street Hospital For Children, 
      London, ENG, GB 

      Antonia Dastamani practices in London, United Kingdom. Ms. Dastamani is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. Her top areas of expertise are Congenital Hyperinsulinism, Low Blood Sugar, Newborn Low Blood Sugar, Gastrostomy, and Pancreatectomy.

      Experienced in Congenital Central Hypoventilation Syndrome

      Donald S. Urquhart
      Experienced in Congenital Central Hypoventilation Syndrome

      Donald S. Urquhart
      Edinburgh, SCT, GB 

      Donald Urquhart practices in Edinburgh, United Kingdom. Mr. Urquhart is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. His top areas of expertise are Micrognathia, Cystic Fibrosis, Central Sleep Apnea, and Congenital Central Hypoventilation Syndrome.

      Experienced in Congenital Central Hypoventilation Syndrome

      Jonathan Cusack
      Experienced in Congenital Central Hypoventilation Syndrome

      Jonathan Cusack
      Leicester, ENG, GB 

      Jonathan Cusack practices in Leicester, United Kingdom. Mr. Cusack is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. His top areas of expertise are Charlie M Syndrome, Moebius Syndrome, Congenital Central Hypoventilation Syndrome, and Congenital Cytomegalovirus.

      Experienced in Congenital Central Hypoventilation Syndrome

      Emma L. Wakeling
      Experienced in Congenital Central Hypoventilation Syndrome

      Emma L. Wakeling
      Great Ormond Street Hospital For Children NHS Foundation Trust, 
      London, ENG, GB 

      Emma Wakeling practices in London, United Kingdom. Ms. Wakeling is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. Her top areas of expertise are Russell-Silver Dwarfism, PEHO Syndrome, Acrofacial Dysostosis Catania Type, Spondyloepiphyseal Dysplasia Congenita, and Gastrostomy.

      Experienced in Congenital Central Hypoventilation Syndrome

      Kate F. Morgan
      Experienced in Congenital Central Hypoventilation Syndrome

      Kate F. Morgan

      Great Ormond Street Hospital For Children NHS Foundation Trust

      London, ENG, GB 

      Kate Morgan practices in London, United Kingdom. Ms. Morgan is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. Her top areas of expertise are Congenital Hyperinsulinism, Low Blood Sugar, Newborn Low Blood Sugar, Aminoaciduria, and Gastrostomy.

      Experienced in Congenital Central Hypoventilation Syndrome

      Thia Hanania
      Experienced in Congenital Central Hypoventilation Syndrome

      Thia Hanania
      Birmingham, ENG, GB 

      Thia Hanania practices in Birmingham, United Kingdom. Ms. Hanania is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. Her top areas of expertise are Congenital Central Hypoventilation Syndrome, Severe Acute Respiratory Syndrome (SARS), COVID-19, and Gastrostomy.

      Experienced in Congenital Central Hypoventilation Syndrome

      Moira C. Blyth
      Experienced in Congenital Central Hypoventilation Syndrome

      Moira C. Blyth
      Chapeltown Road, 
      Leeds, ENG, GB 

      Moira Blyth practices in Leeds, United Kingdom. Ms. Blyth is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. Her top areas of expertise are Miller Syndrome, Micrognathia, Increased Head Circumference, Coffin-Siris Syndrome, and Knee Replacement.

      Experienced in Congenital Central Hypoventilation Syndrome

      Philip J. Chetcuti
      Experienced in Congenital Central Hypoventilation Syndrome

      Philip J. Chetcuti
      Leeds, ENG, GB 

      Philip Chetcuti practices in Leeds, United Kingdom. Mr. Chetcuti is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. His top areas of expertise are Ciliary Dyskinesia-Bronchiectasis, Drug Induced Dyskinesia, Bronchiectasis, and Situs Inversus.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-17 of 17

      Last Updated: 01/09/2026

      What is the definition of Congenital Central Hypoventilation Syndrome?

      Congenital central hypoventilation syndrome (CCHS) is a disorder that affects normal breathing. People with this disorder take shallow breaths (hypoventilate), especially during sleep, resulting in a shortage of oxygen and a buildup of carbon dioxide in the blood. Ordinarily, the part of the nervous system that controls involuntary body processes (autonomic nervous system) would react to such an imbalance by stimulating the individual to breathe more deeply or wake up. This nervous system reaction is impaired in people with CCHS. They must be supported with a machine to help them breathe (mechanical ventilation) or a device that stimulates a normal breathing pattern (diaphragm pacemaker). Some affected individuals need this support 24 hours a day, while others need it only at night.

      When should I see a Congenital Central Hypoventilation Syndrome doctor in The United Kingdom?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Congenital Central Hypoventilation Syndrome doctor in The United Kingdom?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Congenital Central Hypoventilation Syndrome doctor in The United Kingdom?

      You can find a Congenital Central Hypoventilation Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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      Congenital Central Hypoventilation Syndrome doctor near Boston, MA
      Congenital Central Hypoventilation Syndrome doctor near Dallas, TX
      Congenital Central Hypoventilation Syndrome doctor near San Jose, CA

      How does MediFind rank Congenital Central Hypoventilation Syndrome doctors in The United Kingdom?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Congenital Central Hypoventilation Syndrome doctors in The United Kingdom?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Congenital Central Hypoventilation Syndrome doctor in The United Kingdom?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Congenital Central Hypoventilation Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Congenital Central Hypoventilation Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Congenital Central Hypoventilation Syndrome doctor in The United Kingdom?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Congenital Central Hypoventilation Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Congenital Central Hypoventilation Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Congenital Central Hypoventilation Syndrome doctors in The United Kingdom?

      Look for the filter feature on the left side of the Congenital Central Hypoventilation Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Congenital Central Hypoventilation Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Congenital Central Hypoventilation Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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