The 20 Best Congenital Central Hypoventilation Syndrome Doctors in The United Kingdom

Find the Top Congenital Central Hypoventilation Syndrome Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 15 doctor with experience in Congenital Central Hypoventilation Syndrome near The United Kingdom. Of these, 14 are Experienced and 1 are Advanced.

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15 providers found
    Advanced in Congenital Central Hypoventilation Syndrome

    Martin P. Samuels
    Advanced in Congenital Central Hypoventilation Syndrome

    Martin P. Samuels
    Referral may be required

    Great Ormond Street Hospital

    London, ENG, GB 

    Martin Samuels practices practicing medicine in London, United Kingdom. Mr. Samuels is rated as an Advanced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Congenital Central Hypoventilation Syndrome, Bartter Syndrome, Craniofrontonasal Dysplasia, Central Sleep Apnea, and Gastrostomy.

    Experienced in Congenital Central Hypoventilation Syndrome

    Stefan A. Unger
    Experienced in Congenital Central Hypoventilation Syndrome

    Stefan A. Unger
    Referral may be required
    Edinburgh, SCT, GB 

    Stefan Unger practices practicing medicine in Edinburgh, United Kingdom. Mr. Unger is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Common Cold, Common Variable Immune Deficiency, Bronchitis, and Bronchiectasis.

    Experienced in Congenital Central Hypoventilation Syndrome

    Schaida Schirwani
    Experienced in Congenital Central Hypoventilation Syndrome

    Schaida Schirwani
    Referral may be required
    Southampton, ENG, GB 

    Schaida Schirwani practices practicing medicine in Southampton, United Kingdom. Schirwani is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Multiple Pterygium Syndrome, Bazex Syndrome, Amniotic Band Syndrome, and Simpson-Golabi-Behmel Syndrome.

    Learn about our expert tiers
    Experienced in Congenital Central Hypoventilation Syndrome

    Karen S. Pysden
    Experienced in Congenital Central Hypoventilation Syndrome

    Karen S. Pysden
    Referral may be required

    Leeds General Infirmary

    Leeds, ENG, GB 

    Karen Pysden practices practicing medicine in Leeds, United Kingdom. Ms. Pysden is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Congenital Contractures, Arthrogryposis Multiplex Congenita, VLDLR-Associated Cerebellar Hypoplasia, Multiple Pterygium Syndrome, and Thrombectomy.

    Experienced in Congenital Central Hypoventilation Syndrome

    Daphne Yau
    Experienced in Congenital Central Hypoventilation Syndrome

    Daphne Yau
    Referral may be required
    Manchester, ENG, GB 

    Daphne Yau practices practicing medicine in Manchester, United Kingdom. Ms. Yau is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Congenital Hyperinsulinism, Low Blood Sugar, Newborn Low Blood Sugar, Gastrostomy, and Pancreatectomy.

    Experienced in Congenital Central Hypoventilation Syndrome

    Kate F. Morgan
    Experienced in Congenital Central Hypoventilation Syndrome

    Kate F. Morgan
    Referral may be required
    Feltham, ENG, GB 

    Kate Morgan practices practicing medicine in Feltham, United Kingdom. Ms. Morgan is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Congenital Hyperinsulinism, Low Blood Sugar, Newborn Low Blood Sugar, Type A Insulin Resistance Syndrome, and Gastrostomy.

    Experienced in Congenital Central Hypoventilation Syndrome

    Antonia Dastamani
    Experienced in Congenital Central Hypoventilation Syndrome

    Antonia Dastamani
    Referral may be required

    Great Ormond Street Hospital For Children

    London, ENG, GB 

    Antonia Dastamani practices practicing medicine in London, United Kingdom. Ms. Dastamani is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Congenital Hyperinsulinism, Low Blood Sugar, Newborn Low Blood Sugar, Gastrostomy, and Pancreatectomy.

    Experienced in Congenital Central Hypoventilation Syndrome

    Clare E. Gilbert
    Experienced in Congenital Central Hypoventilation Syndrome

    Clare E. Gilbert
    Referral may be required
    Keppel Street, 
    London, ENG, GB 

    Clare Gilbert practices practicing medicine in London, United Kingdom. Ms. Gilbert is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Congenital Hyperinsulinism, Retinopathy of Prematurity, Low Blood Sugar, Cataract Removal, and Trabeculectomy.

    Experienced in Congenital Central Hypoventilation Syndrome

    Jonathan Cusack
    Experienced in Congenital Central Hypoventilation Syndrome

    Jonathan Cusack
    Referral may be required
    Leicester, ENG, GB 

    Jonathan Cusack practices practicing medicine in Leicester, United Kingdom. Mr. Cusack is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. His clinical expertise encompasses Charlie M Syndrome, Moebius Syndrome, Congenital Central Hypoventilation Syndrome, and Congenital Cytomegalovirus.

    Experienced in Congenital Central Hypoventilation Syndrome

    Donald S. Urquhart
    Experienced in Congenital Central Hypoventilation Syndrome

    Donald S. Urquhart
    Referral may be required
    Edinburgh, SCT, GB 

    Donald Urquhart practices practicing medicine in Edinburgh, United Kingdom. Mr. Urquhart is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Micrognathia, Cystic Fibrosis, Central Sleep Apnea, and Congenital Central Hypoventilation Syndrome.

    Experienced in Congenital Central Hypoventilation Syndrome

    Wendy D. Jones
    Experienced in Congenital Central Hypoventilation Syndrome

    Wendy D. Jones
    Referral may be required
    Ashby Road, 
    Loughborough, ENG, GB 

    Wendy Jones practices practicing medicine in Loughborough, United Kingdom. Ms. Jones is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Erythromelalgia, Congenital Contractures, Arthrogryposis Multiplex Congenita, L1 Syndrome, and Gastrostomy.

    Experienced in Congenital Central Hypoventilation Syndrome

    Emma L. Wakeling
    Experienced in Congenital Central Hypoventilation Syndrome

    Emma L. Wakeling
    Referral may be required
    Great Ormond Street Hospital For Children NHS Foundation Trust, 
    London, ENG, GB 

    Emma Wakeling practices practicing medicine in London, United Kingdom. Ms. Wakeling is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Russell-Silver Dwarfism, PEHO Syndrome, Spondyloepiphyseal Dysplasia Congenita, Coffin-Siris Syndrome, and Gastrostomy.

    Experienced in Congenital Central Hypoventilation Syndrome

    Thia Hanania
    Experienced in Congenital Central Hypoventilation Syndrome

    Thia Hanania
    Referral may be required
    Birmingham, ENG, GB 

    Thia Hanania practices practicing medicine in Birmingham, United Kingdom. Ms. Hanania is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. Her clinical expertise encompasses Congenital Central Hypoventilation Syndrome, Severe Acute Respiratory Syndrome (SARS), COVID-19, and Gastrostomy.

    Experienced in Congenital Central Hypoventilation Syndrome

    Philip A. Chetcuti
    Experienced in Congenital Central Hypoventilation Syndrome

    Philip A. Chetcuti
    Referral may be required
    Leeds, ENG, GB 

    Philip Chetcuti practices practicing medicine in Leeds, United Kingdom. Mr. Chetcuti is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Ciliary Dyskinesia-Bronchiectasis, Drug Induced Dyskinesia, Bronchiectasis, and Dextrocardia with Situs Inversus.

    Experienced in Congenital Central Hypoventilation Syndrome

    Moira C. Blyth
    Experienced in Congenital Central Hypoventilation Syndrome

    Moira C. Blyth
    Referral may be required
    Chapeltown Road, 
    Leeds, ENG, GB 

    Moira Blyth practices practicing medicine in Leeds, United Kingdom. Ms. Blyth is rated as an Experienced expert by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Miller Syndrome, Increased Head Circumference, Micrognathia, Coffin-Siris Syndrome, and Knee Replacement.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-15 of 15

    Last Updated: 06/30/2026

    What is the definition of Congenital Central Hypoventilation Syndrome?

    Congenital central hypoventilation syndrome (CCHS) is a disorder that affects normal breathing. People with this disorder take shallow breaths (hypoventilate), especially during sleep, resulting in a shortage of oxygen and a buildup of carbon dioxide in the blood. Ordinarily, the part of the nervous system that controls involuntary body processes (autonomic nervous system) would react to such an imbalance by stimulating the individual to breathe more deeply or wake up. This nervous system reaction is impaired in people with CCHS. They must be supported with a machine to help them breathe (mechanical ventilation) or a device that stimulates a normal breathing pattern (diaphragm pacemaker). Some affected individuals need this support 24 hours a day, while others need it only at night.

    When should I see a Congenital Central Hypoventilation Syndrome doctor in The United Kingdom?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Congenital Central Hypoventilation Syndrome doctor in The United Kingdom?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Congenital Central Hypoventilation Syndrome doctor in The United Kingdom?

    You can find a Congenital Central Hypoventilation Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Congenital Central Hypoventilation Syndrome doctors in The United Kingdom?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Congenital Central Hypoventilation Syndrome doctors in The United Kingdom?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Congenital Central Hypoventilation Syndrome doctor in The United Kingdom?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Congenital Central Hypoventilation Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Congenital Central Hypoventilation Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Congenital Central Hypoventilation Syndrome doctor in The United Kingdom?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Congenital Central Hypoventilation Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Congenital Central Hypoventilation Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Congenital Central Hypoventilation Syndrome doctors in The United Kingdom?

    Look for the filter feature on the left side of the Congenital Central Hypoventilation Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Congenital Central Hypoventilation Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Congenital Central Hypoventilation Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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