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    Last Updated: 01/09/2026

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    MediFind found 6 doctor with experience in Familial Transthyretin Amyloidosis near Kansas, US. Of these, 4 are Experienced and 2 are Distinguished.

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    6 providers found
      Brett W. Sperry
      Distinguished in Familial Transthyretin Amyloidosis
      Advanced Heart Failure and Transplant Cardiology | Cardiology
      Distinguished in Familial Transthyretin Amyloidosis
      Advanced Heart Failure and Transplant Cardiology | Cardiology

      Saint Lukes Physician Group Inc

      711 Marshall St, 
      Leavenworth, KS 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Brett Sperry is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist in Leavenworth, Kansas. Dr. Sperry is rated as a Distinguished provider by MediFind in the treatment of Familial Transthyretin Amyloidosis. His top areas of expertise are Cardiac Amyloidosis, Primary Amyloidosis, Cardiomyopathy, Heart Transplant, and Tenotomy. Dr. Sperry is currently accepting new patients.

      Zubair I. Shah
      Distinguished in Familial Transthyretin Amyloidosis
      Advanced Heart Failure and Transplant Cardiology | Cardiology
      Distinguished in Familial Transthyretin Amyloidosis
      Advanced Heart Failure and Transplant Cardiology | Cardiology

      Topeka Physician Group LLC

      600 Sw College Ave, 
      Topeka, KS 
      Languages Spoken:
      English, Kashmiri, Urdu
      Accepting New Patients
      Offers Telehealth

      Zubair Shah is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist in Topeka, Kansas. Dr. Shah is rated as a Distinguished provider by MediFind in the treatment of Familial Transthyretin Amyloidosis. His top areas of expertise are Heart Failure, Transthyretin Amyloid Cardiomyopathy, Cardiogenic Shock, Heart Transplant, and Cardiac Ablation. Dr. Shah is currently accepting new patients.

      Experienced in Familial Transthyretin Amyloidosis
      Experienced in Familial Transthyretin Amyloidosis

      Office

      3599 Rainbow Blvd, 
      Kansas City, KS 
      Languages Spoken:
      English
      Offers Telehealth

      Mamatha Pasnoor is a Neurologist in Kansas City, Kansas. Dr. Pasnoor is rated as an Experienced provider by MediFind in the treatment of Familial Transthyretin Amyloidosis. Her top areas of expertise are Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, Peripheral Neuropathy, Thymectomy, and Tissue Biopsy.

      Learn about our expert tiers
      Experienced in Familial Transthyretin Amyloidosis
      Neurology | Hospital Medicine
      Experienced in Familial Transthyretin Amyloidosis
      Neurology | Hospital Medicine

      Kansas University Physicians Inc

      3901 Rainbow Blvd, 
      Kansas City, KS 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Long Davalos-Loo is a Neurologist and a Hospital Medicine provider in Kansas City, Kansas. Dr. Davalos-Loo is rated as an Experienced provider by MediFind in the treatment of Familial Transthyretin Amyloidosis. His top areas of expertise are Chronic Polyradiculoneuritis, Miller-Fisher Syndrome, Guillain-Barre Syndrome, and Myasthenia Gravis. Dr. Davalos-Loo is currently accepting new patients.

      Experienced in Familial Transthyretin Amyloidosis
      Advanced Heart Failure and Transplant Cardiology | Cardiology
      Experienced in Familial Transthyretin Amyloidosis
      Advanced Heart Failure and Transplant Cardiology | Cardiology

      Mid-America Cardiology Associates Inc

      4000 Cambridge St, Suite G600, 
      Kansas City, KS 
      Languages Spoken:
      English, Hindi, Punjabi
      Accepting New Patients
      Offers Telehealth

      Tarun Dalia is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist in Kansas City, Kansas. Dr. Dalia is rated as an Experienced provider by MediFind in the treatment of Familial Transthyretin Amyloidosis. His top areas of expertise are Heart Failure, Cardiogenic Shock, Cardiomyopathy, Heart Transplant, and Tissue Biopsy. Dr. Dalia is currently accepting new patients.

      Experienced in Familial Transthyretin Amyloidosis
      Neurology | Nephrology
      Experienced in Familial Transthyretin Amyloidosis
      Neurology | Nephrology

      Kansas University Physicians Inc

      3901 Rainbow Blvd, 
      Kansas City, KS 
      Languages Spoken:
      English, Arabic
      Accepting New Patients
      Offers Telehealth

      Omar Jawdat is a Neurologist and a Nephrologist in Kansas City, Kansas. Dr. Jawdat is rated as an Experienced provider by MediFind in the treatment of Familial Transthyretin Amyloidosis. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Inclusion Body Myositis, Spinal Muscular Atrophy (SMA), and Gastrostomy. Dr. Jawdat is currently accepting new patients.

      Showing 1-6 of 6

      Last Updated: 01/09/2026

      What is the definition of Familial Transthyretin Amyloidosis?

      Familial transthyretin amyloidosis (FTA) is a rare inherited condition characterized by abnormal build-up of a protein called amyloid in the body's organs and tissues. Signs and symptoms depend on where the amyloid protein is building up. Amyloid build-up in the nerves of the peripheral nervous system causes a loss of sensation in the lower limbs, feet, and hands (peripheral neuropathy). Amyloid build-up can also affect the involuntary body functions, such as blood pressure, heart rate, and digestion. Other areas of the body that may be affected are the heart, kidneys, eyes, and gastrointestinal tract. FTA is caused by changes in the TTR gene. Inheritance is autosomal dominant, but not all people with a TTR genetic change will develop FTA. Diagnosis of FTA is suspected by signs and symptoms and confirmed by tissue biopsy and genetic testing.

      When should I see a Familial Transthyretin Amyloidosis doctor in Kansas, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Familial Transthyretin Amyloidosis doctor in Kansas, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Familial Transthyretin Amyloidosis doctors in Kansas, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Familial Transthyretin Amyloidosis doctors in Kansas, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Familial Transthyretin Amyloidosis doctor in Kansas, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Familial Transthyretin Amyloidosis doctor search results page. 

      Why is it important to get a second opinion from a different Familial Transthyretin Amyloidosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Familial Transthyretin Amyloidosis doctor in Kansas, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Familial Transthyretin Amyloidosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Familial Transthyretin Amyloidosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Familial Transthyretin Amyloidosis doctors in Kansas, US?

      Look for the filter feature on the left side of the Familial Transthyretin Amyloidosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Familial Transthyretin Amyloidosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Familial Transthyretin Amyloidosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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