The 20 Best FG Syndrome Doctors in The United States

Find the Top FG Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 23 doctor with experience in FG Syndrome near The United States. Of these, 20 are Advanced and 3 are Experienced.

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23 providers found
    Advanced in FG Syndrome
    Medical Genetics | Pediatrics
    Advanced in FG Syndrome
    Medical Genetics | Pediatrics
    Referral may be required
    2201 Henderson Mill Rd Ne, Suite 160 C/o Esession, 
    Atlanta, GA 
    Languages Spoken:
    English, Japanese
    Accepting New Patients

    Mari Mori is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Atlanta, Georgia. Dr. Mori is rated as an Advanced provider by MediFind in the treatment of FG Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses FG Syndrome, Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Von Gierke Disease, and Ornithine Transcarbamylase Deficiency. Dr. Mori is currently accepting new patients.

    Advanced in FG Syndrome
    Medical Genetics
    Advanced in FG Syndrome
    Medical Genetics
    Referral may be required

    Greenwood Genetic Center– Greenwood

    106 Gregor Mendel Circle, 
    Greenwood, SC 
    Languages Spoken:
    English
    Accepting New Patients

    Roger Stevenson is a Medical Genetics provider practicing medicine in Greenwood, South Carolina. Dr. Stevenson is rated as an Advanced provider by MediFind in the treatment of FG Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses VACTERL Association, Micrognathia, Phocomelia, and FG Syndrome. Dr. Stevenson is currently accepting new patients.

    Advanced in FG Syndrome
    Ophthalmology
    Advanced in FG Syndrome
    Ophthalmology
    Referral may be required

    Howard County Medical Pavilion

    10710 Charter Drive, Suite 310, Suite 310, 
    Columbia, MD 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Couser obtained his bachelor’s degree from the University of Virginia and his Medical Doctorate from the Virginia Commonwealth University School of Medicine (VCU SOM). Dr. Couser’s ophthalmology residency was completed at Howard University where he served as co-chief resident in the last year of his residency. He received fellowship training in pediatric ophthalmology and adult strabismus at Emory University. Dr. Couser received a master’s degree in biotechnology from the Johns Hopkins University and completed a residency in clinical genetics at the University of North Carolina at Chapel Hill. He is one of only a few individuals currently board-certified by both the American Board of Ophthalmology and the American Board of Medical Genetics and Genomics. CV https://www.hopkinsmedicine.org/-/media/wilmer/documents/cvs/couser-cv Research Summary My primary research focus involves the identification and management of genetic eye diseases including rare inherited disorders affecting the eyes. Research and scholarly activities have been an integral component of my career path. I have been the principal investigator on 10 clinical trial/IRB studies and a co-investigator on others, participated with several committees or advisory panels related to research activities. I have been credited with over 120 book chapter, journal article and abstract publications. In addition, I served as the primary author/sole editor for a textbook titled Ophthalmic Genetic Diseases: A Quick Reference Guide to the Eye and External Ocular Adnexa Abnormalities, 1st Edition, published by Elsevier in 2018, which is one of only a few textbooks published in this subject area. I also served as a grant review panelist for the National Eye Institute Career Development Awards. Selected Publications *Couser NL, Masood MM, Strande NT, Foreman AKM, Crooks K, Weck KE, Lu M, Wilhelmsen KC, Roche M, Evans JP, Berg JS, Powell CM. 2015. The phenotype of multiple congenital anomalies- hypotonia-seizures syndrome 1: Report and review. Am J Med Genet Part A 9999A:1–6 *Couser NL, Lambert SR. Botulinum toxin: A treatment of consecutive esotropia in children. Strabismus 2012; 20(4):158-161 Couser NL, Lenhart PD, Hutchinson AK. Augmented Hummelsheim procedure to treat complete abducens nerve palsy. J AAPOS 2012;16(4):331-5 *Natario L. Couser, Maheer M. Masood, Arthur S. Aylsworth, and Roger E. Stevenson. Ocular manifestations in the X-linked intellectual disability syndromes. Ophthalmic Genet. 2017, Jan 23:1-12 *Couser NL, Brooks BP, Drack AV, Shankar SP. The evolving role of genetics in ophthalmology. Ophthalmic Genet. 2021 Jan 12:1-4. doi: 10.1080/13816810.2020.1868011. Dr. Couser is rated as an Advanced provider by MediFind in the treatment of FG Syndrome. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Epicanthal Folds, Strabismus, Hypotonia, and Brown Syndrome. Dr. Couser is board certified in American Board Of Medical Genetics And Genomics and American Board Of Ophthalmology.

    Learn about our expert tiers
    Advanced in FG Syndrome
    Pediatric Endocrinology
    Advanced in FG Syndrome
    Pediatric Endocrinology
    Referral may be required

    Division Of Endocrinology

    333 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Ingrid Holm is a Pediatric Endocrinologist practicing medicine in Boston, Massachusetts. Dr. Holm is rated as an Advanced provider by MediFind in the treatment of FG Syndrome. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Sudden Infant Death Syndrome (SIDS), Brachydactyly Mononen Type, Renpenning Syndrome, and FG Syndrome.

    Advanced in FG Syndrome
    Medical Genetics | Pediatrics
    Advanced in FG Syndrome
    Medical Genetics | Pediatrics
    Referral may be required

    Nationwide Children's Hospital Toledo-Genetics

    2222 Cherry Street, Suite 2600, 
    Toledo, OH 
    Languages Spoken:
    English
    Accepting New Patients

    Scott Hickey is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Toledo, Ohio. Dr. Hickey is rated as an Advanced provider by MediFind in the treatment of FG Syndrome. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Cerebellar Hypoplasia, Micrognathia, Mosaicism, and Hypotonia. Dr. Hickey is board certified in American Board Of Pediatrics and American Board Of Medical Genetics & Genomics. Dr. Hickey is currently accepting new patients.

    Experienced in FG Syndrome
    Medical Genetics
    Experienced in FG Syndrome
    Medical Genetics
    Referral may be required

    Geisinger Danville - Genetics

    15 Wesner Lane, Floor 1, 
    Danville, PA 
    Languages Spoken:
    English

    Dr. Bellus is a board-certified and fellowship-trained specialist in clinical genetics. His clinical interests include skeletal dysplasia and genetic skin disorders. Dr. Bellus attended the University of Colorado, where he received his medical degree. He completed his residency at St. Louis Children's Hospital, a fellowship at Johns Hopkins University School of Medicine and another fellowship at the University of Colorado Health Sciences Center. Dr. Bellus is certified by the American Board of Medical Genetics and Genomics and by the American Board of Pediatrics.|In his personal life, Dr. Bellus enjoys woodworking and playing guitar. He earned his bachelor's degree in biology from Columbia College in New York City, and his PhD in molecular biology from the University of Connecticut Health Sciences Center in Farmington, Conn. Dr. Bellus likes to volunteer at patient support group camps. Dr. Bellus is rated as an Experienced provider by MediFind in the treatment of FG Syndrome. His clinical expertise encompasses Uncombable Hair Syndrome, Cortical Dysplasia, Neurofibromatosis, and Neurofibromatosis Type 1 (NF1). Dr. Bellus is board certified in The American Board Of Medical Genetics And Genomics And By The American Board Of Pediatrics.

    Advanced in FG Syndrome
    Medical Genetics | Pediatrics
    Advanced in FG Syndrome
    Medical Genetics | Pediatrics
    Referral may be required

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Stephanie Sacharow is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Sacharow is rated as an Advanced provider by MediFind in the treatment of FG Syndrome. She is also highly rated in 158 other conditions, according to our data. Her clinical expertise encompasses Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Cat Eye Syndrome, and Dihydropteridine Reductase Deficiency. Dr. Sacharow is currently accepting new patients.

    Advanced in FG Syndrome
    Medical Genetics | Pediatrics
    Advanced in FG Syndrome
    Medical Genetics | Pediatrics
    Referral may be required
    Childrens Hospital, 300 Longwood Ave./genetics, Feg, 
    Boston, MA 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Wen-hann Tan is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Tan is rated as an Advanced provider by MediFind in the treatment of FG Syndrome. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Incontinentia Pigmenti, Congenital Athymia, Clouston Syndrome, and Ectodermal Dysplasias. Dr. Tan is currently accepting new patients.

    Advanced in FG Syndrome
    Pediatrics | Medical Genetics
    Advanced in FG Syndrome
    Pediatrics | Medical Genetics
    Referral may be required

    Rubenstein Child Health Building

    Baltimore, MD 
    Languages Spoken:
    English

    Dr. Tao Wang is an associate professor of pediatrics at the Johns Hopkins University School of Medicine. His areas of clinical expertise include global developmental delays and intellectual disability neurobehavioral disorders in children, and genetic and genomic syndromes and inborn errors of metabolism. Dr. Wang earned his M.D. from Zhongshan Medical University in China and a Ph.D. in human genetics from Johns Hopkins University. He completed his residency in pediatrics at Tufts -New England Medical Center Hospitals and performed fellowships in clinical genetics at Johns Hopkins University School of Medicine and clinical biochemical genetics at Kennedy Krieger Institute. His research interests include x-linked intellectual disabilities (XLID), autism spectrum disorders (ASDs) and inborn errors of metabolism of the central nervous system. Dr. Wang is the associate director of the Medical Genetics Residency and Fellowship Program and a preceptor in the Predoctoral Training Program in Human Genetics. Dr. Wang is rated as an Advanced provider by MediFind in the treatment of FG Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses FG Syndrome, Isovaleric Acidemia, Hypoplasia of the Tibia with Polydactyly, and Polydactyly. Dr. Wang is board certified in American Board Of Pediatrics and American Board Of Medical Genetics And Genomics.

    Advanced in FG Syndrome
    Pediatrics | Medical Genetics
    Advanced in FG Syndrome
    Pediatrics | Medical Genetics
    Referral may be required

    Texas Childrens Physician Group

    6651 Main St, 
    Houston, TX 
    Languages Spoken:
    English
    Accepting New Patients

    Carlos Bacino is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Houston, Texas. Dr. Bacino is rated as an Advanced provider by MediFind in the treatment of FG Syndrome. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Achondroplasia, Angelman Syndrome, Miller-Dieker Syndrome, and Lissencephaly 1. Dr. Bacino is currently accepting new patients.

    Advanced in FG Syndrome
    Medical Genetics | Pediatrics
    Advanced in FG Syndrome
    Medical Genetics | Pediatrics
    Referral may be required
    4800 Sand Point Way Ne, 
    Seattle, WA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Anne Hing is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Seattle, Washington. Dr. Hing is rated as an Advanced provider by MediFind in the treatment of FG Syndrome. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Craniosynostosis, Deafness Craniofacial Syndrome, Micrognathia, and Acrofrontofacionasal Dysostosis Syndrome. Dr. Hing is currently accepting new patients.

    Advanced in FG Syndrome
    Pediatrics | Medical Genetics
    Advanced in FG Syndrome
    Pediatrics | Medical Genetics
    Referral may be required
    34th St. & Civic Center Blvd, The Children's Hospital Of Philadelphia, Room 9nw55, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Elizabeth Bhoj is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Philadelphia, Pennsylvania. Dr. Bhoj is rated as an Advanced provider by MediFind in the treatment of FG Syndrome. She is also highly rated in 34 other conditions, according to our data. Her clinical expertise encompasses Hardikar Syndrome, Coffin-Siris Syndrome, Acheiropody, Hypotonia, and Myringotomy.

    Advanced in FG Syndrome
    Pediatrics | Medical Genetics
    Advanced in FG Syndrome
    Pediatrics | Medical Genetics
    Referral may be required
    1504 Taub Loop, 
    Houston, TX 
    Languages Spoken:
    English
    Accepting New Patients

    Daryl Scott is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Houston, Texas. Dr. Scott is rated as an Advanced provider by MediFind in the treatment of FG Syndrome. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses 1p36 Deletion Syndrome, Hernia, Coffin-Siris Syndrome, and Hypotonia. Dr. Scott is currently accepting new patients.

    Advanced in FG Syndrome
    Medical Genetics | Pediatrics
    Advanced in FG Syndrome
    Medical Genetics | Pediatrics
    Referral may be required
    3401 Civic Center Blvd, Division Of Genetics, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Alanna Strong is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Philadelphia, Pennsylvania. Dr. Strong is rated as an Advanced provider by MediFind in the treatment of FG Syndrome. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Hardikar Syndrome, Clouston Syndrome, Aplasia Cutis Congenita, and Ectodermal Dysplasias.

    Advanced in FG Syndrome
    Pediatrics | Medical Genetics
    Advanced in FG Syndrome
    Pediatrics | Medical Genetics
    Referral may be required

    The Board Of Trustees Of The University Of Illinois

    840 S Wood St, 
    Chicago, IL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Philip Giampietro is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Chicago, Illinois. Dr. Giampietro is rated as an Advanced provider by MediFind in the treatment of FG Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Arthrogryposis Multiplex Congenita, Congenital Contractures, VACTERL Association, and FG Syndrome. Dr. Giampietro is currently accepting new patients.

    Advanced in FG Syndrome
    Pediatrics
    Advanced in FG Syndrome
    Pediatrics
    Referral may be required
    410 W 10th Ave, 
    Columbus, OH 
    Languages Spoken:
    English

    April Lehman is a Pediatrics provider practicing medicine in Columbus, Ohio. Dr. Lehman is rated as an Advanced provider by MediFind in the treatment of FG Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Pyruvate Decarboxylase Deficiency, Pyruvate Dehydrogenase Deficiency, FG Syndrome, and Pyruvate Carboxylase Deficiency. Dr. Lehman is board certified in American Board Of Pediatrics and American Board Of Medical Genetics & Genomics.

    Advanced in FG Syndrome
    Medical Genetics | Pediatrics
    Advanced in FG Syndrome
    Medical Genetics | Pediatrics
    Referral may be required
    3401 Civic Center Blvd, Children's Hospital Of Philadelphia - Genetics, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Elaine Zackai is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Philadelphia, Pennsylvania. Dr. Zackai is rated as an Advanced provider by MediFind in the treatment of FG Syndrome. She is also highly rated in 102 other conditions, according to our data. Her clinical expertise encompasses Micrognathia, DiGeorge Syndrome, Hardikar Syndrome, Myringotomy, and Gastrostomy.

    Advanced in FG Syndrome
    Medical Genetics
    Advanced in FG Syndrome
    Medical Genetics
    Referral may be required
    3620 Hamilton Walk, 415 Anatomy And Chemistry Bldg, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Arupa Ganguly is a Medical Genetics provider practicing medicine in Philadelphia, Pennsylvania. Dr. Ganguly is rated as an Advanced provider by MediFind in the treatment of FG Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Beckwith-Wiedemann Syndrome, Macroglossia, Mosaicism, Pancreatectomy, and Tissue Biopsy.

    Advanced in FG Syndrome
    Medical Genetics
    Advanced in FG Syndrome
    Medical Genetics
    Referral may be required
    2000 Vivigen Way, 
    Santa Fe, NM 
    Languages Spoken:
    English

    Gurbax Sekhon is a Medical Genetics provider practicing medicine in Santa Fe, New Mexico. Dr. Sekhon is rated as an Advanced provider by MediFind in the treatment of FG Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses FG Syndrome.

    Advanced in FG Syndrome
    Medical Genetics | Pediatrics
    Advanced in FG Syndrome
    Medical Genetics | Pediatrics
    Referral may be required

    University Physicians Incorporated

    13123 E 16th Ave, 
    Aurora, CO 
    Languages Spoken:
    English
    Accepting New Patients

    Ellen Elias is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Aurora, Colorado. Dr. Elias is rated as an Advanced provider by MediFind in the treatment of FG Syndrome. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Smith-Lemli-Opitz Syndrome, Ehlers-Danlos Syndrome (EDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Delayed Growth. Dr. Elias is currently accepting new patients.

    Showing 1-20 of 23

    Last Updated: 04/28/2026

    When should I see a FG Syndrome doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a FG Syndrome doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank FG Syndrome doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by FG Syndrome doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a FG Syndrome doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the FG Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different FG Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a FG Syndrome doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my FG Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my FG Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female FG Syndrome doctors in The United States?

    Look for the filter feature on the left side of the FG Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a FG Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the FG Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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