The 20 Best Kearns-Sayre Syndrome Doctors in Germany

Find the Top Kearns-Sayre Syndrome Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 23 doctor with experience in Kearns-Sayre Syndrome near Germany. Of these, 17 are Experienced, 4 are Distinguished and 2 are Advanced.

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23 providers found
    Distinguished in Kearns-Sayre Syndrome

    Sarah C. Grunert
    Distinguished in Kearns-Sayre Syndrome

    Sarah C. Grunert
    Referral may be required
    Freiburg, BW, DE 

    Sarah Grunert practices practicing medicine in Freiburg, Germany. Ms. Grunert is rated as a Distinguished expert by MediFind in the treatment of Kearns-Sayre Syndrome. She is also highly rated in 33 other conditions, according to our data. Her clinical expertise encompasses Mitochondrial Trifunctional Protein Deficiency, Glycogen Storage Disease Type 6, Long-Chain 3-Hydroxyacyl-CoA Dehydrogenase Deficiency, and 3-Hydroxy-3-Methylglutaryl-CoA Lyase Deficiency.

    Distinguished in Kearns-Sayre Syndrome

    Charlotte M. Niemeyer
    Distinguished in Kearns-Sayre Syndrome

    Charlotte M. Niemeyer
    Referral may be required
    Freiburg, BW, DE 

    Charlotte Niemeyer practices practicing medicine in Freiburg, Germany. Ms. Niemeyer is rated as a Distinguished expert by MediFind in the treatment of Kearns-Sayre Syndrome. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Juvenile Myelomonocytic Leukemia (JMML), Pure Red Cell Aplasia, Aase Syndrome, Aplastic Anemia, and Bone Marrow Transplant.

    Distinguished in Kearns-Sayre Syndrome

    Arndt Borkhardt
    Distinguished in Kearns-Sayre Syndrome

    Arndt Borkhardt
    Referral may be required
    Duesseldorf, NW, DE 

    Arndt Borkhardt practices practicing medicine in Duesseldorf, Germany. Borkhardt is rated as a Distinguished expert by MediFind in the treatment of Kearns-Sayre Syndrome. They are also highly rated in 25 other conditions, according to our data. Their clinical expertise encompasses Acute Lymphoblastic Leukemia (ALL), Leukemia, Burkitt Lymphoma, Bone Marrow Transplant, and Bone Marrow Aspiration.

    Learn about our expert tiers
    Distinguished in Kearns-Sayre Syndrome

    Udo Kontny
    Distinguished in Kearns-Sayre Syndrome

    Udo Kontny
    Referral may be required
    Aachen, NW, DE 

    Udo Kontny practices practicing medicine in Aachen, Germany. Kontny is rated as a Distinguished expert by MediFind in the treatment of Kearns-Sayre Syndrome. They are also highly rated in 8 other conditions, according to our data. Their clinical expertise encompasses Kearns-Sayre Syndrome, Ewing Sarcoma, Progressive External Ophthalmoplegia, Nasopharyngeal Carcinoma, and Bone Marrow Transplant.

    Advanced in Kearns-Sayre Syndrome

    Stefan D. Anker
    Advanced in Kearns-Sayre Syndrome

    Stefan D. Anker
    Referral may be required
    Robert Koch Str. 40, 
    Goettingen, NI, DE 

    Stefan Anker practices practicing medicine in Goettingen, Germany. Mr. Anker is rated as an Advanced expert by MediFind in the treatment of Kearns-Sayre Syndrome. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Heart Failure, Heart Failure with Preserved Ejection Fraction (HFpEF), Type 2 Diabetes (T2D), Heart Transplant, and Percutaneous Coronary Intervention (PCI).

    Advanced in Kearns-Sayre Syndrome

    Ayami Yoshimi
    Advanced in Kearns-Sayre Syndrome

    Ayami Yoshimi
    Referral may be required
    Freiburg, BW, DE 

    Ayami Yoshimi practices practicing medicine in Freiburg, Germany. Ms. Yoshimi is rated as an Advanced expert by MediFind in the treatment of Kearns-Sayre Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, RUNX1 Familial Platelet Disorder, Juvenile Myelomonocytic Leukemia (JMML), Bone Marrow Transplant, and Bone Marrow Aspiration.

    Experienced in Kearns-Sayre Syndrome

    Burkert M. Pieske
    Experienced in Kearns-Sayre Syndrome

    Burkert M. Pieske
    Referral may be required
    Hessische Str. 3-4, 
    Berlin, BE, DE 

    Burkert Pieske practices practicing medicine in Berlin, Germany. Pieske is rated as an Experienced expert by MediFind in the treatment of Kearns-Sayre Syndrome. They are also highly rated in 28 other conditions, according to our data. Their clinical expertise encompasses Heart Failure with Preserved Ejection Fraction (HFpEF), Heart Failure, Hypertensive Heart Disease, Cardiac Ablation, and Transcatheter Aortic Valve Replacement (TAVR).

    Experienced in Kearns-Sayre Syndrome

    Susann Kummer
    Experienced in Kearns-Sayre Syndrome

    Susann Kummer
    Referral may be required
    Berlin, BE, DE 

    Susann Kummer practices practicing medicine in Berlin, Germany. Ms. Kummer is rated as an Experienced expert by MediFind in the treatment of Kearns-Sayre Syndrome. Her clinical expertise encompasses Kearns-Sayre Syndrome, Progressive External Ophthalmoplegia, H1N1 Influenza, and Niemann-Pick Disease.

    Experienced in Kearns-Sayre Syndrome

    Sofia Ahola
    Experienced in Kearns-Sayre Syndrome

    Sofia Ahola
    Referral may be required
    Koeln, NW, DE 

    Sofia Ahola practices practicing medicine in Koeln, Germany. Ms. Ahola is rated as an Experienced expert by MediFind in the treatment of Kearns-Sayre Syndrome. Her clinical expertise encompasses Kearns-Sayre Syndrome, Progressive External Ophthalmoplegia, Cardiomyopathy, and Microphthalmia.

    Experienced in Kearns-Sayre Syndrome

    Can E. Kurt-Bekircan
    Experienced in Kearns-Sayre Syndrome

    Can E. Kurt-Bekircan
    Referral may be required
    Josef Schneider Str. 11, 
    Wuerzburg, BY, DE 

    Can Kurt-Bekircan practices practicing medicine in Wuerzburg, Germany. Mr. Kurt-Bekircan is rated as an Experienced expert by MediFind in the treatment of Kearns-Sayre Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Neuralgia.

    Experienced in Kearns-Sayre Syndrome

    Thomas Z. Hummel
    Experienced in Kearns-Sayre Syndrome

    Thomas Z. Hummel
    Referral may be required
    St. Josef Hospital, 
    Bochum, NW, DE 

    Thomas Hummel practices practicing medicine in Bochum, Germany. Mr. Hummel is rated as an Experienced expert by MediFind in the treatment of Kearns-Sayre Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Anosmia, Sinusitis, Severe Acute Respiratory Syndrome (SARS), Septoplasty, and Endoscopy.

    Experienced in Kearns-Sayre Syndrome

    Ekkehard Wilichowski
    Experienced in Kearns-Sayre Syndrome

    Ekkehard Wilichowski
    Referral may be required
    Robert Koch Str. 40, 
    Goettingen, NI, DE 

    Ekkehard Wilichowski practices practicing medicine in Goettingen, Germany. Wilichowski is rated as an Experienced expert by MediFind in the treatment of Kearns-Sayre Syndrome. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Spinal Muscular Atrophy (SMA), Lethal Congenital Contracture Syndrome, Primary Lateral Sclerosis, and Spinal Muscular Atrophy Type 2.

    Experienced in Kearns-Sayre Syndrome

    Dominik J. Grieb
    Experienced in Kearns-Sayre Syndrome

    Dominik J. Grieb
    Referral may be required
    Hannover, NI, DE 

    Dominik Grieb practices practicing medicine in Hannover, Germany. Mr. Grieb is rated as an Experienced expert by MediFind in the treatment of Kearns-Sayre Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Vein of Galen Aneurysm, Brain Aneurysm, Cerebral Arteriovenous Malformation, Arteriovenous Malformation, and Thrombectomy.

    Experienced in Kearns-Sayre Syndrome

    Udo Sechtem
    Experienced in Kearns-Sayre Syndrome

    Udo Sechtem
    Referral may be required
    Stuttgart, BW, DE 

    Udo Sechtem practices practicing medicine in Stuttgart, Germany. Sechtem is rated as an Experienced expert by MediFind in the treatment of Kearns-Sayre Syndrome. They are also highly rated in 12 other conditions, according to our data. Their clinical expertise encompasses Angina, Cardiomyopathy, Myocarditis, Percutaneous Coronary Intervention (PCI), and Heart Bypass Surgery.

    Experienced in Kearns-Sayre Syndrome

    Sabine Rosch
    Experienced in Kearns-Sayre Syndrome

    Sabine Rosch
    Referral may be required
    Stuttgart, BW, DE 

    Sabine Rosch practices practicing medicine in Stuttgart, Germany. Ms. Rosch is rated as an Experienced expert by MediFind in the treatment of Kearns-Sayre Syndrome. Her clinical expertise encompasses Cardiomyopathy, Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, and Kearns-Sayre Syndrome.

    Experienced in Kearns-Sayre Syndrome

    Anca R. Florian
    Experienced in Kearns-Sayre Syndrome

    Anca R. Florian
    Referral may be required
    Muenster, NW, DE 

    Anca Florian practices practicing medicine in Muenster, Germany. Florian is rated as an Experienced expert by MediFind in the treatment of Kearns-Sayre Syndrome. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Cardiomyopathy, Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, and Cardiac Amyloidosis.

    Experienced in Kearns-Sayre Syndrome

    Miriam Erlacher
    Experienced in Kearns-Sayre Syndrome

    Miriam Erlacher
    Referral may be required
    Ulm, BW, DE 

    Miriam Erlacher practices practicing medicine in Ulm, Germany. Ms. Erlacher is rated as an Experienced expert by MediFind in the treatment of Kearns-Sayre Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Juvenile Myelomonocytic Leukemia (JMML), Chromosome 7p Deletion, RUNX1 Familial Platelet Disorder, Aplastic Anemia, and Bone Marrow Transplant.

    Experienced in Kearns-Sayre Syndrome

    Stephan Lobitz
    Experienced in Kearns-Sayre Syndrome

    Stephan Lobitz
    Referral may be required
    Koblenz, RP, DE 

    Stephan Lobitz practices practicing medicine in Koblenz, Germany. Mr. Lobitz is rated as an Experienced expert by MediFind in the treatment of Kearns-Sayre Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Sickle Cell Disease, Hemoglobinopathy, Congenital Hemolytic Anemia, and Hemolytic Anemia.

    Experienced in Kearns-Sayre Syndrome

    Jean Krutmann
    Experienced in Kearns-Sayre Syndrome

    Jean Krutmann
    Referral may be required
    Duesseldorf, NW, DE 

    Jean Krutmann practices practicing medicine in Duesseldorf, Germany. Ms. Krutmann is rated as an Experienced expert by MediFind in the treatment of Kearns-Sayre Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Melasma, Cockayne Syndrome, Cockayne Syndrome Type 1, and Sunburn.

    Experienced in Kearns-Sayre Syndrome

    Stefan S. Bielack
    Experienced in Kearns-Sayre Syndrome

    Stefan S. Bielack
    Referral may be required
    Muenster, NW, DE 

    Stefan Bielack practices practicing medicine in Muenster, Germany. Mr. Bielack is rated as an Experienced expert by MediFind in the treatment of Kearns-Sayre Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Osteosarcoma, Adult Soft Tissue Sarcoma, Bone Tumor, Osteotomy, and Bone Marrow Transplant.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
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    Last Updated: 06/30/2026

    What is the definition of Kearns-Sayre Syndrome?

    Kearns-Sayre syndrome is a condition that affects many parts of the body, especially the eyes. The features of Kearns-Sayre syndrome usually appear before age 20, and the condition is diagnosed by a few characteristic signs and symptoms. People with Kearns-Sayre syndrome have progressive external ophthalmoplegia, which is weakness or paralysis of the eye muscles that impairs eye movement and causes drooping eyelids (ptosis). Affected individuals also have an eye condition called pigmentary retinopathy, which results from breakdown (degeneration) of the light-sensing tissue at the back of the eye (the retina) that gives it a speckled and streaked appearance. The retinopathy may cause loss of vision. In addition, people with Kearns-Sayre syndrome have at least one of the following signs or symptoms: abnormalities of the electrical signals that control the heartbeat (cardiac conduction defects), problems with coordination and balance that cause unsteadiness while walking (ataxia), or abnormally high levels of protein in the fluid that surrounds and protects the brain and spinal cord (the cerebrospinal fluid or CSF).

    When should I see a Kearns-Sayre Syndrome doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Kearns-Sayre Syndrome doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Kearns-Sayre Syndrome doctor in Germany?

    You can find a Kearns-Sayre Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Kearns-Sayre Syndrome doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Kearns-Sayre Syndrome doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Kearns-Sayre Syndrome doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Kearns-Sayre Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Kearns-Sayre Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Kearns-Sayre Syndrome doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Kearns-Sayre Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Kearns-Sayre Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Kearns-Sayre Syndrome doctors in Germany?

    Look for the filter feature on the left side of the Kearns-Sayre Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Kearns-Sayre Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Kearns-Sayre Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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