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    Last Updated: 10/30/2025

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    MediFind found 5 doctor with experience in Myoclonic Epilepsy Associated With Ragged Red Fibers near Netherlands. Of these, 5 are Experienced.

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    5 providers found
      Experienced in Myoclonic Epilepsy Associated With Ragged Red Fibers

      Paul B. De Laat
      Experienced in Myoclonic Epilepsy Associated With Ragged Red Fibers

      Paul B. De Laat
      Nijmegen, GE, NL 

      Paul De Laat practices in Nijmegen, Netherlands. Mr. De Laat is rated as an Experienced expert by MediFind in the treatment of Myoclonic Epilepsy Associated With Ragged Red Fibers. His top areas of expertise are MELAS Syndrome, Ballinger-Wallace Syndrome, Lactic Acidosis, and Myoclonic Epilepsy Associated With Ragged Red Fibers.

      Experienced in Myoclonic Epilepsy Associated With Ragged Red Fibers

      Rick Kamps
      Experienced in Myoclonic Epilepsy Associated With Ragged Red Fibers

      Rick Kamps
      Maastricht, LI, NL 

      Rick Kamps practices in Maastricht, Netherlands. Mr. Kamps is rated as an Experienced expert by MediFind in the treatment of Myoclonic Epilepsy Associated With Ragged Red Fibers. His top areas of expertise are Myoclonic Epilepsy Associated With Ragged Red Fibers, Kearns-Sayre Syndrome, Leigh Syndrome, and Progressive External Ophthalmoplegia.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Myoclonic Epilepsy Associated With Ragged Red Fibers

      Mirian C. Janssen
      Experienced in Myoclonic Epilepsy Associated With Ragged Red Fibers

      Mirian C. Janssen
      Nijmegen, GE, NL 

      Mirian Janssen practices in Nijmegen, Netherlands. Ms. Janssen is rated as an Experienced expert by MediFind in the treatment of Myoclonic Epilepsy Associated With Ragged Red Fibers. Her top areas of expertise are Classic Galactosemia, Ballinger-Wallace Syndrome, MELAS Syndrome, Galactose Epimerase Deficiency, and Kidney Transplant.

      Learn about our expert tiers
      Experienced in Myoclonic Epilepsy Associated With Ragged Red Fibers

      Richard J. Rodenburg
      Experienced in Myoclonic Epilepsy Associated With Ragged Red Fibers

      Richard J. Rodenburg
      Nijmegen, GE, NL 

      Richard Rodenburg practices in Nijmegen, Netherlands. Mr. Rodenburg is rated as an Experienced expert by MediFind in the treatment of Myoclonic Epilepsy Associated With Ragged Red Fibers. His top areas of expertise are Mitochondrial Complex 1 Deficiency, Lactic Acidosis, Cytochrome C Oxidase Deficiency, Leigh Syndrome, and Gamma Knife Radiosurgery.

      Experienced in Myoclonic Epilepsy Associated With Ragged Red Fibers

      Jan A. Smeitink
      Experienced in Myoclonic Epilepsy Associated With Ragged Red Fibers

      Jan A. Smeitink
      Nijmegen, GE, NL 

      Jan Smeitink practices in Nijmegen, Netherlands. Smeitink is rated as an Experienced expert by MediFind in the treatment of Myoclonic Epilepsy Associated With Ragged Red Fibers. Their top areas of expertise are Mitochondrial Complex 1 Deficiency, MELAS Syndrome, Leigh Syndrome, and Mitochondrial Complex V Deficiency.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-5 of 5

      Last Updated: 10/30/2025

      What is the definition of Myoclonic Epilepsy Associated With Ragged Red Fibers?

      Myoclonic epilepsy with ragged red fibers (MERRF) is a multisystem disorder characterized by myoclonus, which is often the first symptom, followed by generalized epilepsy, ataxia, weakness, and dementia. Symptoms usually first appear in childhood or adolescence after normal early development. The features of MERRF vary widely from individual to individual, even within families. Other common findings include hearing loss, short stature, optic atrophy, and cardiomyopathy with Wolff-Parkinson-White (WPW) syndrome. The diagnosis is based on clinical features and a muscle biopsy finding of ragged red fibers (RRF). In over 80% of cases, MERRF is caused by genetic changes in the mitochondrial gene called MT-TK. Several other mitochondrial genes have also been reported to cause MERRF, but many of the individuals with genetic changes in these other genes have additional signs and symptoms. Coenzyme Q10 and L-carnitine are often used with the hope of improving mitochondrial function.

      When should I see a Myoclonic Epilepsy Associated With Ragged Red Fibers doctor in Netherlands?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Myoclonic Epilepsy Associated With Ragged Red Fibers doctor in Netherlands?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Myoclonic Epilepsy Associated With Ragged Red Fibers doctor in Netherlands?

      You can find a Myoclonic Epilepsy Associated With Ragged Red Fibers doctor in any of the 10 largest U.S. cities by clicking below:

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      Myoclonic Epilepsy Associated With Ragged Red Fibers doctor near Dallas, TX
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      How does MediFind rank Myoclonic Epilepsy Associated With Ragged Red Fibers doctors in Netherlands?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Myoclonic Epilepsy Associated With Ragged Red Fibers doctors in Netherlands?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Myoclonic Epilepsy Associated With Ragged Red Fibers doctor in Netherlands?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Myoclonic Epilepsy Associated With Ragged Red Fibers doctor search results page. 

      Why is it important to get a second opinion from a different Myoclonic Epilepsy Associated With Ragged Red Fibers doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Myoclonic Epilepsy Associated With Ragged Red Fibers doctor in Netherlands?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Myoclonic Epilepsy Associated With Ragged Red Fibers doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Myoclonic Epilepsy Associated With Ragged Red Fibers doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Myoclonic Epilepsy Associated With Ragged Red Fibers doctors in Netherlands?

      Look for the filter feature on the left side of the Myoclonic Epilepsy Associated With Ragged Red Fibers doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Myoclonic Epilepsy Associated With Ragged Red Fibers doctor that offers video calls?

      Look for the filter feature on the left-side of the Myoclonic Epilepsy Associated With Ragged Red Fibers doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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