The 20 Best Opitz G BBB Syndrome Doctors in The United States

Find the Top Opitz G BBB Syndrome Experts and Specialists

Last Updated: 02/22/2026

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MediFind found 91 doctor with experience in Opitz G BBB Syndrome near The United States. Of these, 67 are Experienced, 21 are Advanced, 2 are Distinguished and 1 are Elite.

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91 providers found
    Elite in Opitz G BBB Syndrome
    Medical Genetics | Pediatrics
    Elite in Opitz G BBB Syndrome
    Medical Genetics | Pediatrics
    1500 Highland Ave, 
    Madison, WI 
    Languages Spoken:
    English
    Accepting New Patients

    Robert Steiner is a Medical Genetics specialist and a Pediatrics provider in Madison, Wisconsin. Dr. Steiner is rated as an Elite provider by MediFind in the treatment of Opitz G BBB Syndrome. His top areas of expertise are Smith-Lemli-Opitz Syndrome, Opitz G BBB Syndrome, Osteogenesis Imperfecta, and Maternal Hyperphenylalaninemia. Dr. Steiner is currently accepting new patients.

    Jamil Khatri
    Distinguished in Opitz G BBB Syndrome
    Oncology | Hematology Oncology
    Distinguished in Opitz G BBB Syndrome
    Oncology | Hematology Oncology

    Medical Oncology Hematology Consultants

    651 North Broad Street, Suite 406, 
    Middletown, DE 
    Languages Spoken:
    English

    Jamil Khatri is a Hematologist Oncology specialist and an Oncologist in Middletown, Delaware. Dr. Khatri is rated as a Distinguished provider by MediFind in the treatment of Opitz G BBB Syndrome. His top areas of expertise are Lung Cancer, Pleuropulmonary Blastoma, Familial Colorectal Cancer, Non-Hodgkin Lymphoma, and Bone Marrow Aspiration.

    Cynthia L. Shepherd
    Advanced in Opitz G BBB Syndrome
    Oncology | Hematology
    Advanced in Opitz G BBB Syndrome
    Oncology | Hematology

    University Cancer And Blood Center

    3320 Old Jefferson Road, Building 700, 
    Athens, GA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Cynthia Shepherd is a Hematologist and an Oncologist in Athens, Georgia. Dr. Shepherd is rated as an Advanced provider by MediFind in the treatment of Opitz G BBB Syndrome. Her top areas of expertise are Paget Disease of the Breast, Familial Colorectal Cancer, Colorectal Cancer, and Iron Deficiency Anemia. Dr. Shepherd is currently accepting new patients.

    Learn about our expert tiers
    Lin Soe
    Advanced in Opitz G BBB Syndrome
    Oncology | Internal Medicine
    Advanced in Opitz G BBB Syndrome
    Oncology | Internal Medicine

    Cancer Center - Dignity Health - San Luis Obispo, CA

    715 Tank Farm Rd, Suite C, 
    San Luis Obispo, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Board Certification:Oncology & HematologyFellowship Training:Oncology & Hematology from University California DavisInternal Medicine Residency:Cornell UniversityMedical School:Institute of Medicine I, Ragoon, BurmaEducation:Masters of Public Health and Tropical Medicine Tulane UniversityAreas of Interest: Benign Hematology, Breast Cancer, Gastrointestinal Malignancies, Lung Cancer, Solid Tumors. Dr. Soe is rated as an Advanced provider by MediFind in the treatment of Opitz G BBB Syndrome. His top areas of expertise are Breast Cancer, Paget Disease of the Breast, Myelodysplastic Syndrome (MDS), and Pleuropulmonary Blastoma.

    Lavanya Sundararajan
    Advanced in Opitz G BBB Syndrome
    Advanced in Opitz G BBB Syndrome

    Franciscan Oncology At St. Joseph

    1617 South J Street, 
    Tacoma, WA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Lavanya Sundararajan, MD, is a hematologist and oncologist with a special interest in oncological tumors and benign blood disorders. She loves the challenge that these different diseases pose and staying current with all the treatment options.The nature and complexities of the many kinds of cancer, the cutting-edge research and constantly evolving treatment options, and, most importantly, the chance to make a difference that is life-changing and long-standing for patients is the reason she chose to become an oncologist. The deep bond that the oncologist shares with his or her patients and their families is a very moving and rewarding experience for Dr. Sundararajan.Dr. Sundararajan has a curious, affectionate and adventurous 10-year-old son that is the center of her universe. To stay grounded and to continue to appreciate the beauty of life, she enjoys cooking, traveling, exercising, and travel and food writing in her time outside of the clinic. Dr. Sundararajan is rated as an Advanced provider by MediFind in the treatment of Opitz G BBB Syndrome. Her top areas of expertise are Dehydration, Chronic Familial Neutropenia, Agranulocytosis, and Severe Congenital Neutropenia.

    Jeffrey A. Thomas
    Advanced in Opitz G BBB Syndrome
    Oncology | Hematology
    Advanced in Opitz G BBB Syndrome
    Oncology | Hematology

    University Cancer And Blood Center

    3320 Old Jefferson Road, Building 700, 
    Athens, GA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jeffrey Thomas is a Hematologist and an Oncologist in Athens, Georgia. Dr. Thomas is rated as an Advanced provider by MediFind in the treatment of Opitz G BBB Syndrome. His top areas of expertise are Midline Lethal Granuloma, Iron Deficiency Anemia, Essential Thrombocythemia, and Breast Cancer. Dr. Thomas is currently accepting new patients.

    Distinguished in Opitz G BBB Syndrome
    Distinguished in Opitz G BBB Syndrome

    Baptist Health Lagrange Kresge Pharmacy

    4003 Kresge Way Ste 500, 
    Louisville, KY 
    Languages Spoken:
    English

    Ignacio Montes is an Oncologist in Louisville, Kentucky. Dr. Montes is rated as a Distinguished provider by MediFind in the treatment of Opitz G BBB Syndrome. His top areas of expertise are Opitz G BBB Syndrome, Thrombocytopenia, Chronic Lymphocytic Leukemia (CLL), Paget Disease of the Breast, and Bone Marrow Aspiration.

    Advanced in Opitz G BBB Syndrome
    Advanced in Opitz G BBB Syndrome

    Alliance Cancer Specialists Chalfont

    700 Horizon Drive, Suite 106, 
    Chalfont, PA 
    Languages Spoken:
    English
    Accepting New Patients

    James Spears is an Oncologist in Chalfont, Pennsylvania. Dr. Spears is rated as an Advanced provider by MediFind in the treatment of Opitz G BBB Syndrome. His top areas of expertise are Childhood Iron Deficiency Anemia, Iron Deficiency Anemia, Thrombocytopenia, and Myelodysplastic Syndrome (MDS). Dr. Spears is currently accepting new patients.

    Advanced in Opitz G BBB Syndrome
    Advanced in Opitz G BBB Syndrome

    Riverview Medical Center

    1 Riverview Plaza, Cancer Center, 
    Red Bank, NJ 
    Languages Spoken:
    English

    Raghu Kunamneni is a Hematologist in Red Bank, New Jersey. Dr. Kunamneni is rated as an Advanced provider by MediFind in the treatment of Opitz G BBB Syndrome. His top areas of expertise are Metastatic Pleural Tumor, Small Cell Lung Cancer (SCLC), Lung Cancer, and Pleuropulmonary Blastoma.

    Robert Massingill
    Experienced in Opitz G BBB Syndrome
    Hematology Oncology
    Experienced in Opitz G BBB Syndrome
    Hematology Oncology

    Cancer Center – Highland Medical Center

    1453 E. Bert Kouns Industrial Loop, 
    Shreveport, LA 
    Languages Spoken:
    English

    Robert Massingill is a Hematologist Oncology provider in Shreveport, Louisiana. Dr. Massingill is rated as an Experienced provider by MediFind in the treatment of Opitz G BBB Syndrome. His top areas of expertise are Breast Cancer, Paget Disease of the Breast, Inflammatory Breast Cancer, and Angiosarcoma.

    John A. Lech
    Experienced in Opitz G BBB Syndrome
    Hematology Oncology
    Experienced in Opitz G BBB Syndrome
    Hematology Oncology

    UPMC Hillman Cancer Center

    200 Delafield Road, 
    Pittsburgh, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    John Lech, DO, is a hematologist/medical oncologist at UPMC Hillman Cancer Center. He specializes in the treatment of gastrointestinal malignancies and peritoneal carcinomas. Dr. Lech is rated as an Experienced provider by MediFind in the treatment of Opitz G BBB Syndrome. His top areas of expertise are Inflammatory Breast Cancer, Paget Disease of the Breast, Angiosarcoma, and Pleuropulmonary Blastoma.

    Andrea Veatch
    Experienced in Opitz G BBB Syndrome
    Experienced in Opitz G BBB Syndrome

    Northwest Medical Specialties - Puyallup

    Puyallup, WA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Andrea Veatch is an Oncologist in Puyallup, Washington. Dr. Veatch is rated as an Experienced provider by MediFind in the treatment of Opitz G BBB Syndrome. Her top areas of expertise are Lung Cancer, Pleuropulmonary Blastoma, Dehydration, and Testicular Yolk Sac Tumor. Dr. Veatch is currently accepting new patients.

    Joseph L. Potz
    Experienced in Opitz G BBB Syndrome
    Hematology Oncology | Hematology | Oncology
    Experienced in Opitz G BBB Syndrome
    Hematology Oncology | Hematology | Oncology
    201 Gibraltar Road, Suite 120, 
    Horsham, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Joseph Potz is a Hematologist and an Oncologist in Horsham, Pennsylvania. Dr. Potz is rated as an Experienced provider by MediFind in the treatment of Opitz G BBB Syndrome. His top areas of expertise are Blood Clots, Venous Thromboembolism (VTE), Cor Pulmonale, and Pulmonary Embolism. Dr. Potz is currently accepting new patients.

    Damian Laber
    Advanced in Opitz G BBB Syndrome
    Hematology | Oncology
    Advanced in Opitz G BBB Syndrome
    Hematology | Oncology

    Moffitt Cancer Center At International Plaza

    4101 Jim Walter Blvd, 
    Tampa, FL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Damian Laber is a Hematologist and an Oncologist in Tampa, Florida. Dr. Laber is rated as an Advanced provider by MediFind in the treatment of Opitz G BBB Syndrome. His top areas of expertise are Thrombocytopenia, D-Plus Hemolytic Uremic Syndrome, Hemolytic-Uremic Syndrome, Atypical Hemolytic Uremic Syndrome (aHUS), and Splenectomy. Dr. Laber is currently accepting new patients.

    Experienced in Opitz G BBB Syndrome
    Experienced in Opitz G BBB Syndrome

    Northwest Medical Specialties - Bonney Lake

    10004 204th Avenue E, Suite 3400, 
    Bonney Lake, WA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Ndegwa Njuguna is an Oncologist in Bonney Lake, Washington. Dr. Njuguna is rated as an Experienced provider by MediFind in the treatment of Opitz G BBB Syndrome. His top areas of expertise are Dehydration, Chronic B-Cell Leukemia (CBCL), Pleuropulmonary Blastoma, and Acute Mountain Sickness. Dr. Njuguna is currently accepting new patients.

    Experienced in Opitz G BBB Syndrome
    Hematology Oncology
    Experienced in Opitz G BBB Syndrome
    Hematology Oncology

    Regional Cancer Care Associates, LLC

    57 Kent Road, 
    Howell, NJ 
    Languages Spoken:
    English
    Offers Telehealth

    Kenneth Nahum is a Hematologist Oncology provider in Howell, New Jersey. Dr. Nahum is rated as an Experienced provider by MediFind in the treatment of Opitz G BBB Syndrome. His top areas of expertise are Colorectal Cancer, Familial Colorectal Cancer, Lynch Syndrome, Bone Marrow Aspiration, and Fasciotomy.

    Experienced in Opitz G BBB Syndrome
    Experienced in Opitz G BBB Syndrome

    Northwest Medical Specialties - Bonney Lake

    10004 204th Avenue E, Suite 3400, 
    Bonney Lake, WA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mohammed Kanaan is an Oncologist in Bonney Lake, Washington. Dr. Kanaan is rated as an Experienced provider by MediFind in the treatment of Opitz G BBB Syndrome. His top areas of expertise are Agranulocytosis, Dehydration, Hemochromatosis, and Hodgkin Lymphoma. Dr. Kanaan is currently accepting new patients.

    Experienced in Opitz G BBB Syndrome
    Oncology | Hematology
    Experienced in Opitz G BBB Syndrome
    Oncology | Hematology

    Georgia Cancer Specialists

    1045 Southcrest Drive, Suite 200, 
    Stockbridge, GA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Rao Moravineni is a Hematologist and an Oncologist in Stockbridge, Georgia. Dr. Moravineni is rated as an Experienced provider by MediFind in the treatment of Opitz G BBB Syndrome. His top areas of expertise are Iron Deficiency Anemia, Childhood Iron Deficiency Anemia, Thrombocytopenia, and Lung Cancer. Dr. Moravineni is currently accepting new patients.

    Experienced in Opitz G BBB Syndrome
    Hematology | Oncology
    Experienced in Opitz G BBB Syndrome
    Hematology | Oncology

    Regional Medical Laboratory #7

    11212 E 48th St, 
    Tulsa, OK 
    Languages Spoken:
    English

    John Eckenrode is a Hematologist and an Oncologist in Tulsa, Oklahoma. Dr. Eckenrode is rated as an Experienced provider by MediFind in the treatment of Opitz G BBB Syndrome. His top areas of expertise are Pleuropulmonary Blastoma, Paget Disease of the Breast, Breast Cancer, and Gastric Lymphoma.

    Experienced in Opitz G BBB Syndrome
    Hematology | Oncology
    Experienced in Opitz G BBB Syndrome
    Hematology | Oncology

    Georgia Cancer Specialists

    1501 Milstead Avenue, Suite 110, 
    Conyers, GA 
    Languages Spoken:
    English
    Accepting New Patients

    Sherine Thomas is a Hematologist and an Oncologist in Conyers, Georgia. Dr. Thomas is rated as an Experienced provider by MediFind in the treatment of Opitz G BBB Syndrome. His top areas of expertise are Childhood Iron Deficiency Anemia, Familial Colorectal Cancer, Colorectal Cancer, and Iron Deficiency Anemia. Dr. Thomas is currently accepting new patients.

    Showing 1-20 of 91

    Last Updated: 02/22/2026

    What is the definition of Opitz G BBB Syndrome?

    Opitz G/BBB syndrome is a genetic condition that causes several abnormalities along the midline of the body. "G/BBB" represents the first letters of the last names of the families first diagnosed with this disorder and "Opitz" is the last name of the doctor who first described the signs and symptoms. There are two forms of Opitz G/BBB syndrome, X-linked Opitz G/BBB syndrome and autosomal dominant Opitz G/BBB syndrome. The two forms are distinguished by their genetic causes and patterns of inheritance. The signs and symptoms of the two forms are generally the same.

    When should I see an Opitz G BBB Syndrome doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Opitz G BBB Syndrome doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Opitz G BBB Syndrome doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Opitz G BBB Syndrome doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Opitz G BBB Syndrome doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Opitz G BBB Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Opitz G BBB Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Opitz G BBB Syndrome doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Opitz G BBB Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Opitz G BBB Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Opitz G BBB Syndrome doctors in The United States?

    Look for the filter feature on the left side of the Opitz G BBB Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Opitz G BBB Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Opitz G BBB Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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