The 20 Best Spondylocarpotarsal Synostosis Syndrome Doctors in Netherlands

Find the Top Spondylocarpotarsal Synostosis Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 4 doctor with experience in Spondylocarpotarsal Synostosis Syndrome near Netherlands. Of these, 3 are Distinguished and 1 are Experienced.

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4 providers found
    Distinguished in Spondylocarpotarsal Synostosis Syndrome

    Hermine E. Knol-Veenstra
    Distinguished in Spondylocarpotarsal Synostosis Syndrome

    Hermine E. Knol-Veenstra
    Groningen, GR, NL 

    Hermine Knol-Veenstra practices practicing medicine in Groningen, Netherlands. Ms. Knol-Veenstra is rated as a Distinguished expert by MediFind in the treatment of Spondylocarpotarsal Synostosis Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Spondylocarpotarsal Synostosis Syndrome, Autosomal Cleft Palate, Coffin-Siris Syndrome, and Frontometaphyseal Dysplasia.

    Distinguished in Spondylocarpotarsal Synostosis Syndrome

    Marja W. Wessels
    Distinguished in Spondylocarpotarsal Synostosis Syndrome

    Marja W. Wessels

    Erasmus MC

    Rotterdam, ZH, NL 

    Marja Wessels practices practicing medicine in Rotterdam, Netherlands. Ms. Wessels is rated as a Distinguished expert by MediFind in the treatment of Spondylocarpotarsal Synostosis Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Spondylocarpotarsal Synostosis Syndrome, Cardiomyopathy, Thoracic Aortic Aneurysm, and Marshall-Smith Syndrome.

    Distinguished in Spondylocarpotarsal Synostosis Syndrome

    Marleen H. Simon
    Distinguished in Spondylocarpotarsal Synostosis Syndrome

    Marleen H. Simon
    Utrecht, UT, NL 

    Marleen Simon practices practicing medicine in Utrecht, Netherlands. Ms. Simon is rated as a Distinguished expert by MediFind in the treatment of Spondylocarpotarsal Synostosis Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Spondylocarpotarsal Synostosis Syndrome, Schwartz-Jampel Syndrome, X-Linked Spondyloepiphyseal Dysplasia Tarda, and Acrodysostosis.

    Learn about our expert tiers
    Experienced in Spondylocarpotarsal Synostosis Syndrome

    Tjitske Kleefstra
    Experienced in Spondylocarpotarsal Synostosis Syndrome

    Tjitske Kleefstra

    Erasmus MC

    Rotterdam, ZH, NL 

    Tjitske Kleefstra practices practicing medicine in Rotterdam, Netherlands. Kleefstra is rated as an Experienced expert by MediFind in the treatment of Spondylocarpotarsal Synostosis Syndrome. They are also highly rated in 17 other conditions, according to our data. Their clinical expertise encompasses KBG Syndrome, Hypotonia, Increased Head Circumference, and Autism Spectrum Disorder.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-4 of 4

    Last Updated: 04/28/2026

    What is the definition of Spondylocarpotarsal Synostosis Syndrome?

    Spondylocarpotarsal synostosis (SCT) syndrome is an inherited syndrome characterized by disproportionate short stature, abnormalities of the vertebrae in the spine, scoliosis and lordosis, carpal and tarsal fusion (fusion of the bones in the hands and feet), clubfoot, and facial abnormalities such as round face, large forehead, and up-turned nostrils. Other features can include cleft palate, deafness, loose joints, and poor formation of tooth enamel. SCT syndrome has been associated with retinal anomalies and cataracts. However, these eye problems are usually not severe enough to impair vision. This condition is caused by genetic changes in the FLNB gene. It is inherited in an autosomal recessive manner in families, which means that parents are usually unaffected and children have to have inherited a genetic change from each parent.

    When should I see a Spondylocarpotarsal Synostosis Syndrome doctor in Netherlands?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Spondylocarpotarsal Synostosis Syndrome doctor in Netherlands?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Spondylocarpotarsal Synostosis Syndrome doctor in Netherlands?

    You can find a Spondylocarpotarsal Synostosis Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Spondylocarpotarsal Synostosis Syndrome doctors in Netherlands?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Spondylocarpotarsal Synostosis Syndrome doctors in Netherlands?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Spondylocarpotarsal Synostosis Syndrome doctor in Netherlands?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Spondylocarpotarsal Synostosis Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Spondylocarpotarsal Synostosis Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Spondylocarpotarsal Synostosis Syndrome doctor in Netherlands?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Spondylocarpotarsal Synostosis Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Spondylocarpotarsal Synostosis Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Spondylocarpotarsal Synostosis Syndrome doctors in Netherlands?

    Look for the filter feature on the left side of the Spondylocarpotarsal Synostosis Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Spondylocarpotarsal Synostosis Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Spondylocarpotarsal Synostosis Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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