The 20 Best Tetra-Amelia Syndrome Doctors in The United States

Find the Top Tetra-Amelia Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 29 doctor with experience in Tetra-Amelia Syndrome near The United States. Of these, 23 are Advanced, 5 are Experienced and 1 are Distinguished.

Location
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29 providers found
    Richard W. Hennig
    Advanced in Tetra-Amelia Syndrome
    Cardiology | Internal Medicine
    Advanced in Tetra-Amelia Syndrome
    Cardiology | Internal Medicine

    Brighton Center For Specialty Care

    7500 Challis Rd, Entrance 1, Level 2, 
    Brighton, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Richard Hennig is a Cardiologist and an Internal Medicine provider in Brighton, Michigan. Dr. Hennig is rated as an Advanced provider by MediFind in the treatment of Tetra-Amelia Syndrome. His top areas of expertise are Arrhythmias, Atherosclerosis, Coronary Heart Disease, Pacemaker Implantation, and Heart Bypass Surgery.

    Jennifer M. Ty
    Advanced in Tetra-Amelia Syndrome
    Orthopedics
    Advanced in Tetra-Amelia Syndrome
    Orthopedics

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    5+ years
    Languages Spoken:
    English

    Jennifer Ty is an Orthopedics provider in Wilmington, Delaware. Dr. Ty has been practicing medicine for over 5 years and is rated as an Advanced provider by MediFind in the treatment of Tetra-Amelia Syndrome. Her top areas of expertise are Ganglion Cyst, Hypoplasia of the Tibia with Polydactyly, Brachydactyly Type B, and Brachydactyly Type C.

    Lisa D. Maskill
    Advanced in Tetra-Amelia Syndrome
    Pediatric Orthopedics
    Advanced in Tetra-Amelia Syndrome
    Pediatric Orthopedics

    Corewell Health Pediatric Orthopedics - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 4150, 
    Grand Rapids, MI 
    Experience:
    21+ years
    Languages Spoken:
    English
    Accepting New Patients

    Lisa Maskill is a Pediatric Orthopedics provider in Grand Rapids, Michigan. Dr. Maskill has been practicing medicine for over 21 years and is rated as an Advanced provider by MediFind in the treatment of Tetra-Amelia Syndrome. Her top areas of expertise are Congenital Radioulnar Synostosis, Brachydactyly Type B, Liebenberg Syndrome, and Brachydactyly Type A2. Dr. Maskill is currently accepting new patients.

    Learn about our expert tiers
    Distinguished in Tetra-Amelia Syndrome
    Physician Assistant
    Distinguished in Tetra-Amelia Syndrome
    Physician Assistant

    Comprehensive Care Chiropractic

    2721 Olive Hwy, 
    Oroville, CA 
    Languages Spoken:
    English

    John Stack is a Physician Assistant in Oroville, California. Mr. Stack is rated as a Distinguished provider by MediFind in the treatment of Tetra-Amelia Syndrome. His top areas of expertise are Tetra-Amelia Syndrome, Vitamin B12 Deficiency, Relapsing Multiple Sclerosis (RMS), and Phantom Limb Pain.

    Advanced in Tetra-Amelia Syndrome
    Neonatology | Pediatrics
    Advanced in Tetra-Amelia Syndrome
    Neonatology | Pediatrics

    UT Southwestern - Pediatrics

    5323 Harry Hines Blvd, 
    Dallas, TX 
    Languages Spoken:
    English

    Christina Chan is a Neonatologist and a Pediatrics provider in Dallas, Texas. Dr. Chan is rated as an Advanced provider by MediFind in the treatment of Tetra-Amelia Syndrome. Her top areas of expertise are Tetra-Amelia Syndrome and Infant Respiratory Distress Syndrome.

    Advanced in Tetra-Amelia Syndrome
    Pediatric Cardiology
    Advanced in Tetra-Amelia Syndrome
    Pediatric Cardiology

    University Of Texas Medical Branch

    301 University Blvd, 
    Galveston,, TX 
    Languages Spoken:
    English

    Amyn Jiwani is a Pediatric Cardiologist in Galveston,, Texas. Dr. Jiwani is rated as an Advanced provider by MediFind in the treatment of Tetra-Amelia Syndrome. His top areas of expertise are Patent Ductus Arteriosus, Pulmonary Supravalvular Stenosis, Pulmonary Valve Stenosis, and Heart Murmurs.

    Advanced in Tetra-Amelia Syndrome
    Podiatric Medicine
    Advanced in Tetra-Amelia Syndrome
    Podiatric Medicine

    Winston F Burke

    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Winston Burke is a Podiatric Medicine provider in Chicago, Illinois. Dr. Burke is rated as an Advanced provider by MediFind in the treatment of Tetra-Amelia Syndrome. His top areas of expertise are Tetra-Amelia Syndrome, Corns and Calluses, Bunions, and Fungal Nail Infection.

    Advanced in Tetra-Amelia Syndrome
    Radiology
    Advanced in Tetra-Amelia Syndrome
    Radiology

    Winchester Medical Center

    1840 Amherst St, 
    Winchester, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Paul Hill is a Radiologist in Winchester, Virginia. Dr. Hill is rated as an Advanced provider by MediFind in the treatment of Tetra-Amelia Syndrome. His top areas of expertise are Ascites, Visceromegaly, Emphysema, and Gallbladder Disease.

    Emily Z. Stucken
    Advanced in Tetra-Amelia Syndrome
    Otolaryngology | Plastic Surgery
    Advanced in Tetra-Amelia Syndrome
    Otolaryngology | Plastic Surgery

    Taubman Center

    1500 E Medical Center Dr, Floor 1 Reception A, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Emily Stucken is an associate professor in the Department of Otolaryngology-Head and Neck Surgery at the University of Michigan. She specializes in diseases of the ear and skull base. Dr. Stucken completed a residency in Otolaryngology-Head and Neck Surgery at New York Presbyterian Hospital, the University Hospital of Columbia and Cornell. During this time, she also performed skull base operations at Memorial Sloan Kettering Cancer Center and trained in pediatric otolaryngology at the Children’s Hospital of New York. Dr. Stucken completed advanced fellowship training in otology and neurotology at the Michigan Ear Institute. Dr. Stucken has received awards for excellence in clinical care, teaching, and research. She has published numerous scholarly articles and book chapters in peer-reviewed journals and otolaryngology texts. She is an active member of the American Academy of Otolaryngology–Head and Neck Surgery and the American Neurotology Society and serves on national committees for these organizations. Dr. Stucken is also involved in humanitarian outreach work and has traveled to Cambodia to perform ear surgery on underserved patients. She is proficient in Spanish and French.Dr. Stucken is the director of the Cochlear Implant Center at the University of Michigan. In addition to her clinical practice, Dr. Stucken is invested in the advancement of knowledge and is an NIH-funded researcher in hearing sciences. She is a clinical faculty member at the Kresge Hearing Research Institute and has led international research collaboration. Dr. Stucken also runs the Temporal Bone Dissection Lab at the University of Michigan and directs the Temporal Bone Dissection Course.Dr. Stucken’s approach to otolaryngology and otology-neurotology combines a strong background of clinical and academic expertise with a dedicated personal approach to patient care. Through this personal approach, she works to help patients understand their disease process and treatment options. The ear represents one of the most complex and intricate organs in the human body; just as diseases of the ear and skull base can be debilitating to a person’s interactions with the everyday world, the treatment for these diseases can restore a patient’s quality of life. Dr. Stucken works diligently toward providing specialized care to every patient on an individual basis to achieve the best possible outcomes. Dr. Stucken is rated as an Advanced provider by MediFind in the treatment of Tetra-Amelia Syndrome. Her top areas of expertise are Acoustic Neuroma, Schwannoma, Glomus Tympanum Tumor, Glomus Jugulare Tumor, and Myringotomy.

    Sayani Tewari
    Advanced in Tetra-Amelia Syndrome
    Pediatric Hematology Oncology
    Advanced in Tetra-Amelia Syndrome
    Pediatric Hematology Oncology

    Nemours Children's Health, Dover

    201 Towne Centre Drive, Suite 500, 
    Dover, DE 
    Experience:
    4+ years
    Languages Spoken:
    English

    Sayani Tewari is a Pediatric Hematologist Oncology provider in Dover, Delaware. Dr. Tewari has been practicing medicine for over 4 years and is rated as an Advanced provider by MediFind in the treatment of Tetra-Amelia Syndrome. Her top areas of expertise are Tetra-Amelia Syndrome, Alpha Thalassemia, Eyelid Bump, and Thalassemia.

    Marielle A. Amoli
    Advanced in Tetra-Amelia Syndrome
    Advanced in Tetra-Amelia Syndrome

    Nemours Children's Health, Jacksonville

    807 Children's Way, 
    Jacksonville, FL 
    Experience:
    16+ years
    Languages Spoken:
    English

    Marielle Amoli is an Orthopedics provider in Jacksonville, Florida. Dr. Amoli has been practicing medicine for over 16 years and is rated as an Advanced provider by MediFind in the treatment of Tetra-Amelia Syndrome. Her top areas of expertise are Symphalangism Distal, Hypoplasia of the Tibia with Polydactyly, Syndactyly Type 1, and Proximal Symphalangism.

    Advanced in Tetra-Amelia Syndrome
    Pediatric Orthopedics
    Advanced in Tetra-Amelia Syndrome
    Pediatric Orthopedics

    U Of M Health Clinics And Surgery Center Inc.

    909 Fulton St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Anna Van Heest is a Pediatric Orthopedics provider in Minneapolis, Minnesota. Dr. Van Heest is rated as an Advanced provider by MediFind in the treatment of Tetra-Amelia Syndrome. Her top areas of expertise are Syndactyly, Hereditary Multiple Osteochondromas, Symphalangism Distal, and Acromicric Dysplasia.

    Advanced in Tetra-Amelia Syndrome
    Hand Surgery
    Advanced in Tetra-Amelia Syndrome
    Hand Surgery

    Children's Hospital Los Angeles

    4650 W Sunset Blvd, 
    Los Angeles, CA 
    Languages Spoken:
    English

    Nina Lightdale is a Hand Surgeon in Los Angeles, California. Dr. Lightdale is rated as an Advanced provider by MediFind in the treatment of Tetra-Amelia Syndrome. Her top areas of expertise are Brachydactyly Type C, Brachydactyly Type A2, Liebenberg Syndrome, and Brachydactyly Type B.

    Advanced in Tetra-Amelia Syndrome
    Emergency Medicine
    Advanced in Tetra-Amelia Syndrome
    Emergency Medicine

    Oroville Hospital

    2767 Olive Hwy, 
    Oroville, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Mark Heinrich is a primary care provider, practicing in Emergency Medicine in Oroville, California. Dr. Heinrich is rated as an Advanced provider by MediFind in the treatment of Tetra-Amelia Syndrome. His top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Hypertension, Familial Hypertension, and Maturity Onset Diabetes of the Young.

    Advanced in Tetra-Amelia Syndrome
    Sleep Medicine
    Advanced in Tetra-Amelia Syndrome
    Sleep Medicine

    Syed A A Zaidi MD PLLC

    868 Highway 51 S, 
    Ripley, TN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Syed Zaidi is a Sleep Medicine provider in Ripley, Tennessee. Dr. Zaidi is rated as an Advanced provider by MediFind in the treatment of Tetra-Amelia Syndrome. His top areas of expertise are Irregular Sleep-Wake Syndrome, Chronic Obstructive Pulmonary Disease (COPD), Lung Metastases, Obstructive Sleep Apnea, and Gastrostomy. Dr. Zaidi is currently accepting new patients.

    Advanced in Tetra-Amelia Syndrome
    Internal Medicine
    Advanced in Tetra-Amelia Syndrome
    Internal Medicine

    Ascension Medical Group Via Christi On Murdock-Internal Medicine

    3311 E Murdock St Fl 2, 
    Wichita, KS 
    Languages Spoken:
    English
    Offers Telehealth

    Ranjini Madhavan is a primary care provider, practicing in Internal Medicine in Wichita, Kansas. Dr. Madhavan is rated as an Advanced provider by MediFind in the treatment of Tetra-Amelia Syndrome. Her top areas of expertise are Tetra-Amelia Syndrome, Winchester Syndrome, Microcephalic Osteodysplastic Primordial Dwarfism Type 2 (MOPD2), and Seckel Syndrome.

    Advanced in Tetra-Amelia Syndrome
    Pediatric Gastroenterology
    Advanced in Tetra-Amelia Syndrome
    Pediatric Gastroenterology

    Memorial Division Of Pediatric Complex Gastroenterology

    3377 S State Road 7 Ste 100, 
    Wellington, FL 
    Languages Spoken:
    English
    Offers Telehealth

    John E Stephens is a Pediatric Gastroenterologist in Wellington, Florida. Dr. E Stephens is rated as an Advanced provider by MediFind in the treatment of Tetra-Amelia Syndrome. His top areas of expertise are Encopresis, Bowel Incontinence, Chronic Pain, and Delayed Growth.

    Advanced in Tetra-Amelia Syndrome
    Advanced in Tetra-Amelia Syndrome

    Office

    15398 Main St Ste B, 
    Hesperia, CA 
    Languages Spoken:
    English

    Aparna Sharma is a Pediatrics provider in Hesperia, California. Dr. Sharma is rated as an Advanced provider by MediFind in the treatment of Tetra-Amelia Syndrome. Her top areas of expertise are Obesity in Children, Autism Spectrum Disorder, Asthma in Children, and Delayed Growth.

    Advanced in Tetra-Amelia Syndrome
    Family Medicine
    Advanced in Tetra-Amelia Syndrome
    Family Medicine

    Ascension Medical Group Via Christi On East 31ST

    4815 E 31st St S, 
    Wichita, KS 
    Languages Spoken:
    English

    Chantel Long is a primary care provider, practicing in Family Medicine in Wichita, Kansas. Dr. Long is rated as an Advanced provider by MediFind in the treatment of Tetra-Amelia Syndrome. Her top areas of expertise are End-Stage Renal Disease (ESRD), Tetra-Amelia Syndrome, Chronic Obstructive Pulmonary Disease (COPD), and Type 2 Diabetes (T2D).

    Advanced in Tetra-Amelia Syndrome
    Nurse Practitioner
    Advanced in Tetra-Amelia Syndrome
    Nurse Practitioner

    Office

    3525 Ensign Rd NE, 
    Olympia, WA 
    Languages Spoken:
    English

    Theresa Duggan is a Nurse Practitioner in Olympia, Washington. Ms. Duggan is rated as an Advanced provider by MediFind in the treatment of Tetra-Amelia Syndrome. Her top area of expertise is Tetra-Amelia Syndrome.

    Showing 1-20 of 29

    Last Updated: 04/28/2026

    What is the definition of Tetra-Amelia Syndrome?

    Tetra-amelia syndrome (sometimes known as TETAMS) is a very rare disorder characterized by the absence of all four limbs. ("Tetra" is the Greek word for "four," and "amelia" refers to the failure of an arm or leg to develop before birth.)

    When should I see a Tetra-Amelia Syndrome doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Tetra-Amelia Syndrome doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Tetra-Amelia Syndrome doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Tetra-Amelia Syndrome doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Tetra-Amelia Syndrome doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Tetra-Amelia Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Tetra-Amelia Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Tetra-Amelia Syndrome doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Tetra-Amelia Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Tetra-Amelia Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Tetra-Amelia Syndrome doctors in The United States?

    Look for the filter feature on the left side of the Tetra-Amelia Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Tetra-Amelia Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Tetra-Amelia Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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