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    Last Updated: 01/09/2026

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    MediFind found 18 doctor with experience in Tietz Syndrome near Germany. Of these, 18 are Experienced.

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    LocationClose
    18 providers found
      Experienced in Tietz Syndrome
      Experienced in Tietz Syndrome
      Juelich, NW, DE 

      Kathrin Giehl practices in Juelich, Germany. Ms. Giehl is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. Her top areas of expertise are Punctate Palmoplantar Keratoderma Type 1, Chanarin-Dorfman Syndrome, Nonbullous Congenital Ichthyosiform Erythroderma, and Acrokeratoelastoidosis of Costa.

      Experienced in Tietz Syndrome
      Experienced in Tietz Syndrome
      Berlin, BE, DE 

      Monika Reissmann practices in Berlin, Germany. Ms. Reissmann is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. Her top areas of expertise are Melasma and Tietz Syndrome.

      Experienced in Tietz Syndrome
      Experienced in Tietz Syndrome
      Hannover, NI, DE 

      Ute Philipp practices in Hannover, Germany. Ms. Philipp is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. Her top areas of expertise are Congenital Sucrase-Isomaltase Deficiency and Tietz Syndrome.

      Learn about our expert tiers
      Experienced in Tietz Syndrome
      Experienced in Tietz Syndrome
      Munich, BY, DE 

      Markus Suckfull practices in Munich, Germany. Mr. Suckfull is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. His top areas of expertise are Hearing Loss, Tinnitus, and Tietz Syndrome.

      Experienced in Tietz Syndrome
      Experienced in Tietz Syndrome
      Hannover, NI, DE 

      Ottmar Distl practices in Hannover, Germany. Mr. Distl is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. His top areas of expertise are Achondrogenesis, Acromesomelic Dysplasia Maroteaux Type, Acromesomelic Dysplasia Hunter Thompson Type, and Acromesomelic Dysplasia Campailla Martinelli Type.

      Experienced in Tietz Syndrome
      Experienced in Tietz Syndrome
      Mainz, RP, DE 

      Oliver Bartsch practices in Mainz, Germany. Mr. Bartsch is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. His top areas of expertise are Rubinstein-Taybi Syndrome, EEC Syndrome, Borjeson-Forssman-Lehmann Syndrome, and Coffin-Siris Syndrome.

      Experienced in Tietz Syndrome
      Experienced in Tietz Syndrome
      Stuttgart, BW, DE 

      Birgit Zirn practices in Stuttgart, Germany. Ms. Zirn is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. Her top areas of expertise are FOXG1 Syndrome, Ring Chromosome 4, KBG Syndrome, and Rothmund-Thomson Syndrome.

      Experienced in Tietz Syndrome
      Experienced in Tietz Syndrome
      Albert Einstein Allee 11, 
      Ulm, BW, DE 

      Christian Kubisch practices in Ulm, Germany. Mr. Kubisch is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. His top areas of expertise are Werner Syndrome, Progeria, Mandibuloacral Dysplasia, and Acrorenal Mandibular Syndrome.

      Experienced in Tietz Syndrome
      Experienced in Tietz Syndrome
      Hamburg, HH, DE 

      Matthias Wilmanns practices in Hamburg, Germany. Mr. Wilmanns is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. His top areas of expertise are Waardenburg Syndrome, Zellweger Syndrome, Von Willebrand Disease (VWD), and Endocardial Fibroelastosis.

      Experienced in Tietz Syndrome
      Experienced in Tietz Syndrome
      Berlin, BE, DE 

      Luitgard Neumann-Graul practices in Berlin, Germany. Neumann-Graul is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. Their top areas of expertise are Borjeson-Forssman-Lehmann Syndrome, Toriello-Carey Syndrome, Split Hand Foot Malformation, and Coloboma of Iris.

      Experienced in Tietz Syndrome
      Experienced in Tietz Syndrome
      Muenster, NW, DE 

      Axel Bohring practices in Muenster, Germany. Mr. Bohring is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. His top areas of expertise are Frontometaphyseal Dysplasia, Autosomal Cleft Palate, Hyperelastic Skin, and Schwannomatosis.

      Experienced in Tietz Syndrome
      Experienced in Tietz Syndrome
      Berlin, BE, DE 

      Johanna Eule practices in Berlin, Germany. Ms. Eule is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. Her top areas of expertise are Chemosis, Conjunctivitis (Pink Eye), Blepharitis, and Sunburn.

      Experienced in Tietz Syndrome
      Experienced in Tietz Syndrome
      Ulm, BW, DE 

      Gertrud Wildemann-Strobl practices in Ulm, Germany. Ms. Wildemann-Strobl is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. Her top areas of expertise are Mohr-Tranebjaerg Syndrome, Temple Syndrome, Optic Nerve Atrophy, and Mosaicism.

      Experienced in Tietz Syndrome
      Experienced in Tietz Syndrome
      Hamburg, HH, DE 

      Vivian Pogenberg practices in Hamburg, Germany. Ms. Pogenberg is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. Her top areas of expertise are Waardenburg Syndrome, Waardenburg Syndrome Type 1, Melanoma, and Legionnaire Disease.

      Experienced in Tietz Syndrome
      Experienced in Tietz Syndrome
      Hannover, NI, DE 

      Andrea Tipold practices in Hannover, Germany. Ms. Tipold is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. Her top areas of expertise are Herniated Disk, Meningitis, Spinal Shock, Laminectomy, and Herniated Disc Surgery.

      Experienced in Tietz Syndrome
      Experienced in Tietz Syndrome
      Wuerzburg, BY, DE 

      Clarisse Baumann practices in Wuerzburg, Germany. Ms. Baumann is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. Her top areas of expertise are Keratosis Pilaris, Kabuki Syndrome, RASopathies, and Noonan Syndrome.

      Experienced in Tietz Syndrome
      Experienced in Tietz Syndrome
      Frankfurt Am Main, HE, DE 

      Daniela Steinberger practices in Frankfurt Am Main, Germany. Ms. Steinberger is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. Her top area of expertise is Tietz Syndrome.

      Experienced in Tietz Syndrome
      Experienced in Tietz Syndrome
      Hannover, NI, DE 

      Jurgen Rehage practices in Hannover, Germany. Rehage is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. Their top areas of expertise are Split Spinal Cord Malformation, Caudal Duplication, Babesiosis, Septic Arthritis, and Tissue Biopsy.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-18 of 18

      Last Updated: 01/09/2026

      What is the definition of Tietz Syndrome?

      Tietz syndrome is a disorder characterized by profound hearing loss from birth, fair skin, and light-colored hair. The hearing loss in affected individuals is caused by abnormalities of the inner ear (sensorineural hearing loss) and is present from birth. Although people with Tietz syndrome are born with white hair and very pale skin, their hair color often darkens over time to blond or red. The skin of affected individuals, which sunburns very easily, may tan slightly or develop reddish freckles with limited sun exposure; however, their skin and hair color remain lighter than those of other members of their family.

      When should I see a Tietz Syndrome doctor in Germany?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Tietz Syndrome doctor in Germany?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Tietz Syndrome doctors in Germany?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Tietz Syndrome doctors in Germany?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Tietz Syndrome doctor in Germany?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Tietz Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Tietz Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Tietz Syndrome doctor in Germany?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Tietz Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Tietz Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Tietz Syndrome doctors in Germany?

      Look for the filter feature on the left side of the Tietz Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Tietz Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Tietz Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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