The 20 Best Tietz Syndrome Doctors in Germany

Find the Top Tietz Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 18 doctor with experience in Tietz Syndrome near Germany. Of these, 18 are Experienced.

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18 providers found
    Experienced in Tietz Syndrome
    Experienced in Tietz Syndrome
    Juelich, NW, DE 

    Kathrin Giehl practices practicing medicine in Juelich, Germany. Ms. Giehl is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Chanarin-Dorfman Syndrome, Nonbullous Congenital Ichthyosiform Erythroderma, Punctate Palmoplantar Keratoderma Type 1, and Acrokeratoelastoidosis of Costa.

    Experienced in Tietz Syndrome
    Experienced in Tietz Syndrome
    Berlin, BE, DE 

    Monika Reissmann practices practicing medicine in Berlin, Germany. Ms. Reissmann is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. Her clinical expertise encompasses Melasma and Tietz Syndrome.

    Experienced in Tietz Syndrome
    Experienced in Tietz Syndrome
    Hannover, NI, DE 

    Ute Philipp practices practicing medicine in Hannover, Germany. Ms. Philipp is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. Her clinical expertise encompasses Congenital Sucrase-Isomaltase Deficiency and Tietz Syndrome.

    Learn about our expert tiers
    Experienced in Tietz Syndrome
    Experienced in Tietz Syndrome
    Mainz, RP, DE 

    Oliver Bartsch practices practicing medicine in Mainz, Germany. Mr. Bartsch is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Rubinstein-Taybi Syndrome, Borjeson-Forssman-Lehmann Syndrome, EEC Syndrome, and Coffin-Siris Syndrome.

    Experienced in Tietz Syndrome
    Experienced in Tietz Syndrome
    Munich, BY, DE 

    Markus Suckfull practices practicing medicine in Munich, Germany. Mr. Suckfull is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. His clinical expertise encompasses Hearing Loss, Tinnitus, and Tietz Syndrome.

    Experienced in Tietz Syndrome
    Experienced in Tietz Syndrome
    Berlin, BE, DE 

    Johanna Eule practices practicing medicine in Berlin, Germany. Ms. Eule is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Chemosis, Conjunctivitis (Pink Eye), Sunburn, and Blepharitis.

    Experienced in Tietz Syndrome
    Experienced in Tietz Syndrome
    Hannover, NI, DE 

    Ottmar Distl practices practicing medicine in Hannover, Germany. Mr. Distl is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Osgood-Schlatter Disease, Achondrogenesis, Split Spinal Cord Malformation, and Caudal Duplication.

    Experienced in Tietz Syndrome
    Experienced in Tietz Syndrome
    Albert Einstein Allee 11, 
    Ulm, BW, DE 

    Christian Kubisch practices practicing medicine in Ulm, Germany. Mr. Kubisch is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Werner Syndrome, Progeria, Acrorenal Mandibular Syndrome, and Mandibuloacral Dysplasia.

    Experienced in Tietz Syndrome
    Experienced in Tietz Syndrome
    Stuttgart, BW, DE 

    Birgit Zirn practices practicing medicine in Stuttgart, Germany. Ms. Zirn is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses FOXG1 Syndrome, Ring Chromosome 4, Rothmund-Thomson Syndrome, and Frontonasal Dysplasia.

    Experienced in Tietz Syndrome
    Experienced in Tietz Syndrome

    MVZ Humangenetik Ulm

    Ulm, BW, DE 

    Gertrud Wildemann-Strobl practices practicing medicine in Ulm, Germany. Ms. Wildemann-Strobl is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Mohr-Tranebjaerg Syndrome, Temple Syndrome, Optic Nerve Atrophy, and Mosaicism.

    Experienced in Tietz Syndrome
    Experienced in Tietz Syndrome
    Hamburg, HH, DE 

    Matthias Wilmanns practices practicing medicine in Hamburg, Germany. Mr. Wilmanns is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Waardenburg Syndrome, Zellweger Syndrome, Von Willebrand Disease (VWD), and Endocardial Fibroelastosis.

    Experienced in Tietz Syndrome
    Experienced in Tietz Syndrome
    Muenster, NW, DE 

    Axel Bohring practices practicing medicine in Muenster, Germany. Mr. Bohring is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Frontometaphyseal Dysplasia, Autosomal Cleft Palate, Hyperelastic Skin, and Early Infantile Epileptic Encephalopathy.

    Experienced in Tietz Syndrome
    Experienced in Tietz Syndrome
    Berlin, BE, DE 

    Luitgard Neumann-Graul practices practicing medicine in Berlin, Germany. Neumann-Graul is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. They are also highly rated in 6 other conditions, according to our data. Their clinical expertise encompasses Toriello-Carey Syndrome, Split Hand Foot Malformation, Coloboma of Iris, and Wiedemann-Rautenstrauch Syndrome.

    Experienced in Tietz Syndrome
    Experienced in Tietz Syndrome
    Hamburg, HH, DE 

    Vivian Pogenberg practices practicing medicine in Hamburg, Germany. Ms. Pogenberg is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Waardenburg Syndrome, Waardenburg Syndrome Type 1, Melanoma, and Legionnaire Disease.

    Experienced in Tietz Syndrome
    Experienced in Tietz Syndrome
    Hannover, NI, DE 

    Andrea Tipold practices practicing medicine in Hannover, Germany. Ms. Tipold is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Herniated Disk, Meningitis, Spinal Shock, Laminectomy, and Herniated Disc Surgery.

    Experienced in Tietz Syndrome
    Experienced in Tietz Syndrome
    Frankfurt Am Main, HE, DE 

    Daniela Steinberger practices practicing medicine in Frankfurt Am Main, Germany. Ms. Steinberger is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. Her clinical expertise encompasses Tietz Syndrome.

    Experienced in Tietz Syndrome
    Experienced in Tietz Syndrome
    Wuerzburg, BY, DE 

    Clarisse Baumann practices practicing medicine in Wuerzburg, Germany. Ms. Baumann is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Keratosis Pilaris, Kabuki Syndrome, RASopathies, and Noonan Syndrome.

    Experienced in Tietz Syndrome
    Experienced in Tietz Syndrome
    Hannover, NI, DE 

    Jurgen Rehage practices practicing medicine in Hannover, Germany. Rehage is rated as an Experienced expert by MediFind in the treatment of Tietz Syndrome. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Split Spinal Cord Malformation, Caudal Duplication, Babesiosis, Septic Arthritis, and Tissue Biopsy.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-18 of 18

    Last Updated: 04/28/2026

    What is the definition of Tietz Syndrome?

    Tietz syndrome is a disorder characterized by profound hearing loss from birth, fair skin, and light-colored hair. The hearing loss in affected individuals is caused by abnormalities of the inner ear (sensorineural hearing loss) and is present from birth. Although people with Tietz syndrome are born with white hair and very pale skin, their hair color often darkens over time to blond or red. The skin of affected individuals, which sunburns very easily, may tan slightly or develop reddish freckles with limited sun exposure; however, their skin and hair color remain lighter than those of other members of their family.

    When should I see a Tietz Syndrome doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Tietz Syndrome doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Tietz Syndrome doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Tietz Syndrome doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Tietz Syndrome doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Tietz Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Tietz Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Tietz Syndrome doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Tietz Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Tietz Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Tietz Syndrome doctors in Germany?

    Look for the filter feature on the left side of the Tietz Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Tietz Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Tietz Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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