Learn About Ileostomy

What is the definition of Ileostomy?

An ileostomy is used to move waste out of the body. This surgery is done when the colon or rectum is not working properly.

The word "ileostomy" comes from the words "ileum" and "stoma." Your ileum is the lowest part of your small intestine. "Stoma" means "opening." To make an ileostomy, the surgeon makes an opening in your belly wall and brings the end of the ileum through the opening. The ileum is then attached to the skin.

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What are the alternative names for Ileostomy?


What happens during a Ileostomy?

Before you have surgery to create an ileostomy, you may have surgery to remove all of your colon and rectum, or just part of your small intestine.

These surgeries include:

  • Small bowel resection
  • Total abdominal colectomy
  • Total proctocolectomy

An ileostomy may be used for a short or long time.

When your ileostomy is temporary, it most often means all of your large intestine was removed. However, you still have at least part of your rectum. If you have surgery on part of your large intestine, your health care provider may want the remainder of your intestine to rest for a while. You will use the ileostomy while you recover from this surgery. When you do not need it anymore, you will have another surgery. This surgery will be done to reattach the ends of the small intestine. You will no longer need the ileostomy after this.

You will need to use it long-term if all of your large intestine and rectum have been removed.

To create the ileostomy, the surgeon makes a small surgical cut in the wall of your belly. Part of your small intestine that is farthest from your stomach is brought up and used to make an opening. This is called a stoma. When you look at your stoma, you are actually looking at the lining of your intestine. It looks a lot like the inside of your cheek.

Sometimes, an ileostomy is done as the first step in forming an ileal anal reservoir (called a J-pouch).

Why would someone need a Ileostomy?

Ileostomy is done when problems with your large intestine can only be treated with surgery.

There are many problems that may lead to the need for this surgery. Some are:

  • Inflammatory bowel disease (ulcerative colitis or Crohn disease). This is the most common reason for this surgery.
  • Colon or rectal cancer
  • Familial polyposis
  • Birth defects that involve your intestines
  • An accident that damages your intestines or another intestinal emergency
What are the risks?

Talk with your provider about these possible risks and complications.

Risks of anesthesia and surgery in general are:

  • Reactions to medicines
  • Breathing problems
  • Bleeding, blood clots
  • Infection

Risks of this surgery are:

  • Bleeding inside your belly
  • Damage to nearby organs
  • Dehydration (not having enough fluid in your body) if there is a lot of watery drainage from your ileostomy
  • Difficulty absorbing needed nutrients from food
  • Infection, including in the lungs, urinary tract, or belly
  • Poor healing of the wound in your perineum (if your rectum was removed)
  • Scar tissue in your belly that causes a blockage of the small intestine
  • Wound breaking open
How to prepare for a Ileostomy

Always tell your provider what medicines you are taking, even medicines, supplements, or herbs you bought without a prescription.

Before your surgery, talk with your provider about the following things:

  • Intimacy and sexuality
  • Pregnancy
  • Sports
  • Work

During the 2 weeks before your surgery:

  • Two weeks before surgery, you may be asked to stop taking drugs that make it harder for your blood to clot. These include aspirin, ibuprofen (Advil, Motrin), Naprosyn (Aleve, Naproxen), and others.
  • Ask your provider which drugs you should still take on the day of your surgery.
  • If you smoke, try to stop. Ask your provider for help.
  • Always let your provider know about any cold, flu, fever, herpes breakout, or other illness you may have before your surgery.

The day before your surgery:

  • You may be asked to drink only clear liquids such as broth, clear juice, and water after some point.
  • Your provider will tell you when to stop eating and drinking.
  • Your provider may ask you to use enemas or laxatives to clear out your intestines.

On the day of your surgery:

  • Take the drugs you were told to take with a small sip of water.
  • You will be told when to arrive at the hospital.
What to expect after a Ileostomy

You will be in the hospital for 3 to 7 days. You may have to stay longer if your ileostomy was an emergency operation.

You may be able to suck on ice chips on the same day as your surgery to ease your thirst. By the next day, you will probably be allowed to drink clear liquids. You will slowly add thicker fluids and then soft foods to your diet as your bowels begin to work again. You may be eating again 2 days after your surgery.

What is the outlook (prognosis) for Ileostomy?

Most people who have an ileostomy are able to do most of the activities they were doing before their surgery. This includes most sports, travel, gardening, hiking, and other outdoor activities, and most types of work.

If you have a chronic condition, such as Crohn disease or ulcerative colitis, you may need ongoing medical treatment.

Ileostomy - stoma and pouch
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What are the latest Ileostomy Clinical Trials?
The Cascade Feasibility Pilot (Ileostomy): Improving Care Processes for New Ileostomy Patients Using Continuous Remote Patient Monitoring and a Cascading Alert System

Summary: Existing interventions including improving communication and self-care to improve readmission of patients undergoing high risk colorectal surgery involving new ileostomy formation has shown limited results. Our proposal is to deploy a wearable solution that predicts physiological perturbation with continuous remote patient monitoring and advanced machine learning algorithms which will be connected...

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Norwegian Stoma Trial - Open-label, Multicenter Trial

Summary: The Norwegian Stoma Trial is an open-label multicenter trial investigating the use of stomas, both diveriting and permanent, in the surgical treatment of rectal cancer. The objective is to compare the chosen strategy to surgical complications, health realted quality of life and length of stay.

What are the Latest Advances for Ileostomy?
Comparison of robotic-assisted resection alone and with natural orifice specimen extraction for rectal cancer by using Da Vinci Xi.
Burden of Colovesical Fistula and Changing Treatment Pathways: A Systematic Literature Review.
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Transanal ileal pouch-anal anastomosis for ulcerative colitis: a single-center comparative study.
Who are the sources who wrote this article ?

Published Date: September 28, 2020
Published By: Debra G. Wechter, MD, FACS, general surgery practice specializing in breast cancer, Virginia Mason Medical Center, Seattle, WA. Also reviewed by David Zieve, MD, MHA, Medical Director, Brenda Conaway, Editorial Director, and the A.D.A.M. Editorial team.

What are the references for this article ?

Mahmoud NN, Bleier JIS, Aarons CB, Paulson EC, Shanmugan S, Fry RD. Colon and rectum. In: Townsend CM, Beauchamp RD, Evers BM, Mattox KL, eds. Sabiston Textbook of Surgery. 20th ed. Philadelphia, PA: Elsevier; 2017:chap 51.

Raza A, Araghizadeh F. Ileostomies, colostomies, pouches, and anastomoses. In: Feldman M, Friedman LS, Brandt LJ, eds. Sleisenger and Fordtran's Gastrointestinal and Liver Disease. 11th ed. Philadelphia, PA: Elsevier; 2021:chap 117.

Reddy VB, Longo WE. Ileostomy. In: Yeo CJ, ed. Shackelford's Surgery of the Alimentary Tract. 8th ed. Philadelphia, PA: Elsevier; 2019:chap 84.