Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry
Status: Recruiting
Location: See all (14) locations...
Study Type: Observational
SUMMARY
Patients are being asked to be in this research study because medical researchers hope that by gathering information about a large number of children with pulmonary hypertension over time, their understanding of the disease process will increase and lead to better treatment. Investigators believe that pulmonary hypertension in children is different than pulmonary hypertension in adults and this study will help us understand those differences.
Eligibility
Participation Requirements
Sex: All
Minimum Age: 1 day
Maximum Age: 21
Healthy Volunteers: f
View:
• The subject's age of onset of pulmonary hypertension must be prior to age 18 years
• The person providing consent must be able to read either Spanish or English.
• The subject (and/or parent/legal guardian) must be able to provide informed consent
Locations
United States
California
Stanford University Medical Center
RECRUITING
Palo Alto
University California San Francisco
RECRUITING
San Francisco
Colorado
Children's Hospital Colorado
RECRUITING
Aurora
Florida
Johns Hopkins All Children's Heart Institute
RECRUITING
St. Petersburg
Massachusetts
Boston Children's Hospital
RECRUITING
Boston
Maryland
Johns Hopkins Children's Center
RECRUITING
Baltimore
New York
Columbia University Medical Center
RECRUITING
New York
Maria Fareri Children's Hospital at WMC Health/Westchester Medical Center
NOT_YET_RECRUITING
New York
Ohio
Cincinnati Children's Hospital Medical Center
RECRUITING
Cincinnati
Pennsylvania
Children's Hospital of Philadelphia
RECRUITING
Philadelphia
Tennessee
Vanderbilt University Medical Center
RECRUITING
Nashville
Texas
Texas Children's
NOT_YET_RECRUITING
Houston
Washington
Seattle Children's Hospital
RECRUITING
Seattle
Other Locations
Canada
University of Alberta Edmonton
RECRUITING
Edmonton
Contact Information
Primary
Erika B Rosenzweig, MD
Erika.BermanRosenzweig@wmchealth.org
914-493-6160
Backup
Robin Mascotti
robin.mascotti@childrenscolorado.org
303-724-6513
Time Frame
Start Date: 2014-10
Estimated Completion Date: 2031-12
Participants
Target number of participants: 2500
Treatments
Pulmonary Arterial Hypertension
Authors
Erika Rosenzweig, Jeffrey Fineman, Steven H Abman, Jeffrey Feinstein, Brian Hanna, Eric Austin, Ian Adatia, Mary Mullen
Related Therapeutic Areas
Sponsors
Leads: New York Medical College
Collaborators: Janssen Pharmaceuticals, National Heart, Lung, and Blood Institute (NHLBI)