The 20 Best Acrocephalopolydactyly Doctors Near Me in Delaware, US

Find the Top Acrocephalopolydactyly Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 9 doctor with experience in Acrocephalopolydactyly near Delaware, US. Of these, 8 are Experienced and 1 are Advanced.

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9 providers found
    Nina N. Powell
    Experienced in Acrocephalopolydactyly
    Medical Genetics
    Experienced in Acrocephalopolydactyly
    Medical Genetics

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    30+ years
    Languages Spoken:
    English
    Offers Telehealth

    Nina Powell is a Medical Genetics provider in Wilmington, Delaware. Dr. Powell has been practicing medicine for over 30 years and is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. Her top areas of expertise are Microcephaly, PIK3CA-Related Overgrowth Spectrum, Chromosome 13q Deletion, and Increased Head Circumference.

    Joseph H. Piatt
    Experienced in Acrocephalopolydactyly
    Neurosurgery
    Experienced in Acrocephalopolydactyly
    Neurosurgery

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    25+ years
    Languages Spoken:
    English

    Dr. Joseph Piatt is the chief of the Division of Pediatric Neurosurgery, and a current professor of neurological surgery and pediatrics at the Sidney Kimmel Medical College of Thomas Jefferson University. Born in Pittsburgh, Dr. Piatt obtained his undergraduate degree from Swarthmore College. He went to medical school at the University of Pennsylvania; residency at Duke University in North Carolina; and fellowship at The Hospital for Sick Children in Toronto while he was on active duty for the U.S. Army. After 2 more years in uniform at Madigan Army Medical Center, Dr. Piatt took his first academic position at the Oregon Health Science University in Portland, Oregon. At the end of the millennium, he returned to the East to work at St. Christopher’s in Philadelphia and then at Nemours Children’s Hospital, Delaware. He has been at Nemours for 14 years. I enjoy working with the family dynamics of children and their parents/guardians. I love being able to help children and bring joy to their families. I am passionate about providing clarity and understanding in issues surrounding a child’s health. My goals are to employ all the resources of medical science and my own personal experience to provide the best quality care to children with neurological conditions that require surgical intervention. I strive to continue to help advance the medical science of pediatric neurosurgery for all patients and families. I take advantage of 35 years of experience in finding the right word to communicate with patients and parents with respect and clarity. Dr. Piatt is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. His top areas of expertise are Increased Head Circumference, Hydrocephalus, Moyamoya Disease, and Plagiocephaly.

    Jeffrey W. Campbell
    Experienced in Acrocephalopolydactyly
    Experienced in Acrocephalopolydactyly

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    3+ years
    Languages Spoken:
    English

    Dr. Jeffery Campbell has been a pediatric neurosurgeon at Nemours for 20 years. His most notable work is with kids that have skeletal dysplasia and he acts as the neurosurgical component of our larger skeletal dysplasia program at Nemours. Most of his research has been in dwarfism and osteogenesis imperfecta (OI). Prior to Nemours, he worked in a private practice in Charleston, SC. When I was in medical school, I knew that I wanted to do something “brain-related.” During my fourth year, I did a neurology rotation and thoroughly enjoyed the immediate feedback of surgery. I split my residency time between pediatric and adult hospitals, but quickly realized that I loved working with kids. I was able to see kids get better and found the impact I had on them gratifying. My goal as a doctor is to have a long-term impact on someone’s life and treating kids was my path to do just that. I am passionate about providing the best possible care for all children. I enjoy being on the cutting edge of treating rare problems on the skeletal dysplasia spectrum and I take pride in people traveling to Nemours from all over the country to seek such treatment. I love that I can do things that can’t be done anywhere else. I believe that health care should be a team sport. I always advocate for team approaches, especially with complicated cases. I actively create multidisciplinary teams for many of my patients to give them the very best care. Dr. Campbell is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. His top areas of expertise are Achondroplasia, Increased Head Circumference, Syringomyelia, Bone Graft, and Adenoidectomy.

    Learn about our expert tiers
    Edward J. Caterson
    Advanced in Acrocephalopolydactyly
    Plastic Surgery
    Advanced in Acrocephalopolydactyly
    Plastic Surgery

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    20+ years
    Languages Spoken:
    English

    Dr. Caterson works with Nemours, so he can provide personalized care at the highest level of excellence and pursue the highest level of care for his patients. I work with children due to having a child of my own with a congenital facial difference. This inspired my career and the work that I continue to do. I’m passionate about achieving excellence in all my results, specifically in work with the cleft lip and palate. I make a difference by working with my patients and their families through an acute crisis of a medical intervention from start to finish. I believe it is important to do so with precision and efficiency, as well as treating each child as if they are my own. Dr. Caterson is rated as an Advanced provider by MediFind in the treatment of Acrocephalopolydactyly. His top areas of expertise are Bifid Nose, Branchial Cleft Cyst, Autosomal Cleft Palate, Osteotomy, and Bone Graft.

    Experienced in Acrocephalopolydactyly
    Medical Genetics
    Experienced in Acrocephalopolydactyly
    Medical Genetics

    Nemours DuPont Hospital For Children

    1600 Rockland Road, Department Of General Pediatrics, 
    Wilmington, DE 
    Languages Spoken:
    English

    Karen Gripp is a Medical Genetics provider in Wilmington, Delaware. Dr. Gripp is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. Her top areas of expertise are Costello Syndrome, RASopathies, Noonan Syndrome, and Gingival Fibromatosis with Hypertrichosis.

    Mario A. Aycart
    Experienced in Acrocephalopolydactyly
    Plastic Surgery
    Experienced in Acrocephalopolydactyly
    Plastic Surgery

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    18+ years
    Languages Spoken:
    English, Spanish

    Dr. Mario Andres Aycart is a pediatric plastic surgeon at Nemours Children's Hospital, Delaware. He was born in Guayaquil, Ecuador and raised in Miami, Florida. He is a graduate of Cornell University and received a MD from Tufts University School of Medicine where he was inducted into the Alpha Omega Alpha Medical Honor Society. He completed a residency in general surgery at Brigham and Women’s Hospital/Harvard Medical School and a plastic and reconstructive surgery residency at the Harvard Plastic Surgery Program. During his training, he completed a two-year research fellowship. Prior to joining Nemours, he completed his pediatric craniofacial surgery fellowship at the world-renowned Hospital for Sick Children (SickKids) and University of Toronto. I enjoy the dynamics of children and their parents. I love to be able to help children and see the smile on the families’ faces. Joseph E. Murray MD, the Nobel laureate and pioneering plastic surgeon, probably said it best: “Service to society is the rent we pay for living on this planet.” I consider myself incredibly fortunate to help children with facial differences. Children are our most precious resource and our hope for a brighter future. Helping to be a small part of that is a true privilege and source of a daily sense of wonder. Medicine is a service-oriented profession and as plastic surgeons, we are uniquely positioned and privileged to care for the afflicted in all walks of life. Most importantly, I’ve come to realize and appreciate the critical measures of a successful operation: quality of life, functional restoration, and social well-being of the child and family. My patient care philosophy involves providing the best care possible tailored to each individual’s situation with a focus on clear communication, patient and parent education, and shared decision making. Working with families during these challenging times provides an opportunity to create a genuine connection to better understand the patient/family perspective and optimize surgical outcomes. Dr. Aycart is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. His top areas of expertise are Hypoplasia of the Tibia with Polydactyly, Polydactyly, Branchial Cleft Cyst, and Autosomal Cleft Palate.

    Patricia A. Baile
    Experienced in Acrocephalopolydactyly
    Pediatrics | General Practice
    Experienced in Acrocephalopolydactyly
    Pediatrics | General Practice

    Nemours Children's Health, Becks Woods

    141 Becks Woods Drive, 
    Bear, DE 
    Experience:
    35+ years
    Languages Spoken:
    English, Filipino

    Patricia Baile is a primary care provider, a Pediatrics specialist and a General Practice provider in Bear, Delaware. Dr. Baile has been practicing medicine for over 35 years and is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. Her top areas of expertise are Acanthosis Nigricans, Type A Insulin Resistance Syndrome, Obesity in Children, and Food Allergy.

    Jennifer L. Bleznak
    Experienced in Acrocephalopolydactyly
    Experienced in Acrocephalopolydactyly

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    17+ years
    Languages Spoken:
    English

    Jennifer Bleznak is a primary care provider, practicing in Pediatrics in Wilmington, Delaware. Dr. Bleznak has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. Her top areas of expertise are Cerebral Palsy, Familial Dysautonomia, Dry Mouth, and Lennox-Gastaut Syndrome (LGS).

    Experienced in Acrocephalopolydactyly
    Plastic Surgery
    Experienced in Acrocephalopolydactyly
    Plastic Surgery

    Nemours Children's Hospital Delaware

    1600 Rockland Rd, 
    Wilmington, DE 
    Languages Spoken:
    English

    Joseph Napoli is a Plastic Surgeon in Wilmington, Delaware. Dr. Napoli is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. His top areas of expertise are Cleft Lip and Palate, Micrognathia, Autosomal Cleft Palate, Velopharyngeal Insufficiency, and Osteotomy.

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    Last Updated: 04/28/2026

    What is the definition of Acrocephalopolydactyly?

    Acrocephalopolydactyly, also known as Elejalde syndrome, is an extremely rare genetic (autosomal recessive) disorder characterized by excessive birth weight and facial, body, organ, limb, and finger abnormalities. Fewer than twelve cases have been identified.

    When should I see an Acrocephalopolydactyly doctor in Delaware, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Acrocephalopolydactyly doctor in Delaware, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Acrocephalopolydactyly doctors in Delaware, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Acrocephalopolydactyly doctors in Delaware, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Acrocephalopolydactyly doctor in Delaware, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Acrocephalopolydactyly doctor search results page. 

    Why is it important to get a second opinion from a different Acrocephalopolydactyly doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Acrocephalopolydactyly doctor in Delaware, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Acrocephalopolydactyly doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Acrocephalopolydactyly doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Acrocephalopolydactyly doctors in Delaware, US?

    Look for the filter feature on the left side of the Acrocephalopolydactyly doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Acrocephalopolydactyly doctor that offers video calls?

    Look for the filter feature on the left-side of the Acrocephalopolydactyly doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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