The 20 Best Acrocephalopolydactyly Doctors Near Me in Boston, MA

Find the Top Acrocephalopolydactyly Experts and Specialists

The 20 Best Acrocephalopolydactyly Doctors near Boston, MA

Last Updated: 02/22/2026

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MediFind found 23 doctor with experience in Acrocephalopolydactyly near Boston, MA. Of these, 15 are Experienced, 6 are Distinguished and 2 are Advanced.

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23 providers found
    Hans S. Kim
    Distinguished in Acrocephalopolydactyly
    Internal Medicine
    Distinguished in Acrocephalopolydactyly
    Internal Medicine

    Healthcare Associates

    330 Brookline Avenue, East Shapiro 6, 
    Boston, MA 
     (2.7 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Hans Kim is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Kim is rated as a Distinguished provider by MediFind in the treatment of Acrocephalopolydactyly. His top areas of expertise are Pfeiffer Syndrome, Orofaciodigital Syndrome 1, Goldenhar Disease, and Carpenter Syndrome.

    Distinguished in Acrocephalopolydactyly
    General Surgery
    Distinguished in Acrocephalopolydactyly
    General Surgery

    Department Of Plastic And Oral Surgery

    319 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Amir Taghinia is a General Surgeon in Boston, Massachusetts. Dr. Taghinia is rated as a Distinguished provider by MediFind in the treatment of Acrocephalopolydactyly. His top areas of expertise are Syndactyly, Apert Syndrome, Acrocephalopolydactyly, Osteotomy, and Tissue Biopsy.

    Distinguished in Acrocephalopolydactyly
    Hand Surgery
    Distinguished in Acrocephalopolydactyly
    Hand Surgery

    Department Of Plastic And Oral Surgery

    319 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Brian Labow is a Hand Surgeon in Boston, Massachusetts. Dr. Labow is rated as a Distinguished provider by MediFind in the treatment of Acrocephalopolydactyly. His top areas of expertise are Breast Enlargement In Males, Syndactyly, Apert Syndrome, Tissue Biopsy, and Osteotomy.

    Learn about our expert tiers
    Distinguished in Acrocephalopolydactyly
    Plastic Surgery
    Distinguished in Acrocephalopolydactyly
    Plastic Surgery

    Department Of Plastic And Oral Surgery

    319 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    John Mulliken is a Plastic Surgeon in Boston, Massachusetts. Dr. Mulliken is rated as a Distinguished provider by MediFind in the treatment of Acrocephalopolydactyly. His top areas of expertise are Vascular Birthmark, Apert Syndrome, Acrocephalopolydactyly, Osteotomy, and Bone Graft.

    Distinguished in Acrocephalopolydactyly
    General Surgery
    Distinguished in Acrocephalopolydactyly
    General Surgery

    Department Of Plastic And Oral Surgery

    319 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    John Meara is a General Surgeon in Boston, Massachusetts. Dr. Meara is rated as a Distinguished provider by MediFind in the treatment of Acrocephalopolydactyly. His top areas of expertise are Craniosynostosis, Metopic Ridge, Cleft Lip and Palate, Craniectomy, and Septoplasty.

    Distinguished in Acrocephalopolydactyly
    General Surgery
    Distinguished in Acrocephalopolydactyly
    General Surgery

    Department Of Neurosurgery

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Mark Proctor is a General Surgeon in Boston, Massachusetts. Dr. Proctor is rated as a Distinguished provider by MediFind in the treatment of Acrocephalopolydactyly. His top areas of expertise are Craniosynostosis, Metopic Ridge, Plagiocephaly, Craniectomy, and Posterior Fossa Decompression.

    Experienced in Acrocephalopolydactyly
    Pediatric Endocrinology
    Experienced in Acrocephalopolydactyly
    Pediatric Endocrinology

    Division Of Endocrinology

    333 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Ingrid Holm is a Pediatric Endocrinologist in Boston, Massachusetts. Dr. Holm is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. Her top areas of expertise are Sudden Infant Death Syndrome (SIDS), Brachydactyly Mononen Type, Cranioectodermal Dysplasia, and Renpenning Syndrome.

    Advanced in Acrocephalopolydactyly
    General Surgery
    Advanced in Acrocephalopolydactyly
    General Surgery

    Department Of Plastic & Oral Surgery

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Carolyn Rogers is a General Surgeon in Boston, Massachusetts. Dr. Rogers is rated as an Advanced provider by MediFind in the treatment of Acrocephalopolydactyly. Her top areas of expertise are Pierre Robin Sequence, Breast Enlargement In Males, Plagiocephaly, Osteotomy, and Myringotomy.

    Advanced in Acrocephalopolydactyly
    General Surgery
    Advanced in Acrocephalopolydactyly
    General Surgery

    Cleft And Craniofacial Center

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Ingrid Ganske is a General Surgeon in Boston, Massachusetts. Dr. Ganske is rated as an Advanced provider by MediFind in the treatment of Acrocephalopolydactyly. Her top areas of expertise are Cleft Lip and Palate, Pierre Robin Sequence, Breast Enlargement In Males, Osteotomy, and Myringotomy.

    Experienced in Acrocephalopolydactyly
    Internal Medicine
    Experienced in Acrocephalopolydactyly
    Internal Medicine

    Tufts Medical Center

    800 Washington St, 
    Boston, MA 
     (0.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Dineli Ahearn is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Ahearn is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. Her top areas of expertise are Postmenopausal Osteoporosis, Osteoporosis, Cellulitis, and Obesity in Children.

    Experienced in Acrocephalopolydactyly
    Medical Genetics | Pediatrics
    Experienced in Acrocephalopolydactyly
    Medical Genetics | Pediatrics

    The General Hospital Corporation

    55 Fruit St, 
    Boston, MA 
     (0.8 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Catherine Nowak is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Nowak is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. Her top areas of expertise are Autosomal Cleft Palate, Prognathism, Syndactyly Type 1, and Syndactyly.

    Experienced in Acrocephalopolydactyly
    General Surgery
    Experienced in Acrocephalopolydactyly
    General Surgery

    Massachusetts Eye And Ear

    243 Charles St, 
    Boston, MA 
     (0.9 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English

    Caroline Banks is a General Surgeon in Boston, Massachusetts. Dr. Banks has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. Her top areas of expertise are Facial Paralysis, Recurrent Peripheral Facial Palsy, Bell's Palsy, Stiff Skin Syndrome, and Thyroidectomy.

    Experienced in Acrocephalopolydactyly
    General Surgery
    Experienced in Acrocephalopolydactyly
    General Surgery

    Massachusetts Eye And Ear

    243 Charles St, 
    Boston, MA 
     (0.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Jennifer Kim is a General Surgeon in Boston, Massachusetts. Dr. Kim is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. Her top areas of expertise are Progressive Hemifacial Atrophy, Facial Paralysis, Bell's Palsy, and Recurrent Peripheral Facial Palsy.

    Experienced in Acrocephalopolydactyly
    Medical Genetics | Pediatrics
    Experienced in Acrocephalopolydactyly
    Medical Genetics | Pediatrics
    850 Harrison Ave Fl 6, 
    Boston, MA 
     (1.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Aya Abu-El is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Abu-El is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. Her top areas of expertise are Coffin-Lowry Syndrome, Kabuki Syndrome, Stickler Syndrome, and 3MC Syndrome. Dr. Abu-El is currently accepting new patients.

    Experienced in Acrocephalopolydactyly
    Plastic Surgery
    Experienced in Acrocephalopolydactyly
    Plastic Surgery

    Department Of Plastic And Oral Surgery

    319 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Daniel Balkin is a Plastic Surgeon in Boston, Massachusetts. Dr. Balkin is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. His top areas of expertise are Aseptic and Alopecic Nodules of Scalp (AANS), Arteriovenous Malformation, Congenital Athymia, Tissue Biopsy, and Osteotomy.

    Experienced in Acrocephalopolydactyly
    Medical Genetics | Pediatrics
    Experienced in Acrocephalopolydactyly
    Medical Genetics | Pediatrics

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Joan Stoler is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Stoler is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. Her top areas of expertise are Craniosynostosis, Brachydactyly Mononen Type, Microcephaly, and Achalasia Microcephaly Syndrome. Dr. Stoler is currently accepting new patients.

    Experienced in Acrocephalopolydactyly
    Medical Genetics | Pediatrics
    Experienced in Acrocephalopolydactyly
    Medical Genetics | Pediatrics

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Stephanie Sacharow is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Sacharow is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. Her top areas of expertise are Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Cat Eye Syndrome, and Dihydropteridine Reductase Deficiency. Dr. Sacharow is currently accepting new patients.

    Experienced in Acrocephalopolydactyly
    Medical Genetics
    Experienced in Acrocephalopolydactyly
    Medical Genetics

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Lance Rodan is a Medical Genetics provider in Boston, Massachusetts. Dr. Rodan is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. His top areas of expertise are Hennekam Syndrome, Increased Head Circumference, Polymicrogyria, Retinopathy Pigmentary Mental Retardation, and Deep Brain Stimulation.

    Experienced in Acrocephalopolydactyly
    Plastic Surgery
    Experienced in Acrocephalopolydactyly
    Plastic Surgery

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Joseph Firriolo is a Plastic Surgeon in Boston, Massachusetts. Dr. Firriolo is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. His top areas of expertise are Breast Enlargement In Males, Micrognathia, Polydactyly, Abdominal Wall Surgery, and Osteotomy.

    Experienced in Acrocephalopolydactyly
    Medical Genetics
    Experienced in Acrocephalopolydactyly
    Medical Genetics

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Olaf Bodamer is a Medical Genetics provider in Boston, Massachusetts. Dr. Bodamer is rated as an Experienced provider by MediFind in the treatment of Acrocephalopolydactyly. His top areas of expertise are Kabuki Syndrome, Niemann-Pick Disease, Classic Galactosemia, and Mucopolysaccharidoses (MPS). Dr. Bodamer is currently accepting new patients.

    Showing 1-20 of 23

    Last Updated: 02/22/2026

    What is the definition of Acrocephalopolydactyly?

    Acrocephalopolydactyly, also known as Elejalde syndrome, is an extremely rare genetic (autosomal recessive) disorder characterized by excessive birth weight and facial, body, organ, limb, and finger abnormalities. Fewer than twelve cases have been identified.

    When should I see an Acrocephalopolydactyly doctor near Boston, MA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Acrocephalopolydactyly doctor near Boston, MA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Acrocephalopolydactyly doctors near Boston, MA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Acrocephalopolydactyly doctors near Boston, MA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Acrocephalopolydactyly doctor near Boston, MA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Acrocephalopolydactyly doctor search results page. 

    Why is it important to get a second opinion from a different Acrocephalopolydactyly doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Acrocephalopolydactyly doctor near Boston, MA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Acrocephalopolydactyly doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Acrocephalopolydactyly doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Acrocephalopolydactyly doctors near Boston, MA?

    Look for the filter feature on the left side of the Acrocephalopolydactyly doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Acrocephalopolydactyly doctor that offers video calls?

    Look for the filter feature on the left-side of the Acrocephalopolydactyly doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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