The 20 Best Acrodysostosis Doctors Near Me in Massachusetts, US

Find the Top Acrodysostosis Experts and Specialists

Last Updated: 09/19/2026

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MediFind found 22 doctor with experience in Acrodysostosis near Massachusetts, US. Of these, 15 are Experienced, 6 are Advanced and 1 are Distinguished.

Location
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22 providers found
    Distinguished in Acrodysostosis
    Distinguished in Acrodysostosis
    Referral may be required

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English

    Harald Jueppner is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Jueppner is rated as a Distinguished provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Dysostosis Peripheral, Aminoaciduria, Acrodysostosis, and Malnutrition.

    Advanced in Acrodysostosis
    Oral and Maxillofacial Surgery
    Advanced in Acrodysostosis
    Oral and Maxillofacial Surgery
    Referral may be required

    Department Of Plastic And Oral Surgery

    319 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Cory Resnick is an Oral and Maxillofacial Surgeon practicing medicine in Boston, Massachusetts. Dr. Resnick is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Acrofacial Dysostosis Nager Type, Temporomandibular Ankylosis, Acrofacial Dysostosis Weyers Type, Osteotomy, and Gastrostomy. Dr. Resnick is currently accepting new patients.

    Advanced in Acrodysostosis
    Advanced in Acrodysostosis
    Referral may be required

    Office

    541 Main St, 
    South Weymouth, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Carolyn Rogers-Vizena is a General Surgeon practicing medicine in South Weymouth, Massachusetts. Dr. Rogers-Vizena is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Breast Enlargement In Males, Cleft Lip and Palate, Velopharyngeal Insufficiency, Mastectomy, and Osteotomy. Dr. Rogers-Vizena is currently accepting new patients.

    Learn about our expert tiers
    Advanced in Acrodysostosis
    Pediatric Otolaryngology
    Advanced in Acrodysostosis
    Pediatric Otolaryngology
    Referral may be required

    Department Of Otolaryngology And Communication Enhancement

    333 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Margaret Kenna is a Pediatric Otolaryngologist practicing medicine in Boston, Massachusetts. Dr. Kenna is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses CHARGE Syndrome, Koolen De Vries Syndrome, Microtia, Adenoidectomy, and Myringotomy. Dr. Kenna is currently accepting new patients.

    Advanced in Acrodysostosis
    Advanced in Acrodysostosis
    Referral may be required

    Mass Eye And Ear, Pediatric Ear, Nose, And Throat Care

    243 Charles Street, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Andrew Scott is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Scott is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Micrognathia, Acrofacial Dysostosis Nager Type, Multiple Epiphyseal Dysplasia, Septoplasty, and Myringotomy. Dr. Scott is board certified in Otolaryngology-Head And Neck Surgery. Dr. Scott is currently accepting new patients.

    Advanced in Acrodysostosis
    Pediatrics
    Advanced in Acrodysostosis
    Pediatrics
    Referral may be required

    Care For Children With Medical Complexity

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Jay Berry is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Berry is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Gorlin-Chaudhry-Moss Syndrome, Multiple Epiphyseal Dysplasia, Sunken Fontanelles, Spinal Fusion, and Bladder Reconstruction.

    Advanced in Acrodysostosis
    Pediatric Otolaryngology
    Advanced in Acrodysostosis
    Pediatric Otolaryngology
    Referral may be required

    Department Of Otolaryngology And Communication Enhancement

    333 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Gi Lee is a Pediatric Otolaryngologist practicing medicine in Boston, Massachusetts. Dr. Lee is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Microtia, Enlarged Adenoids, Stridor, Adenoidectomy, and Myringotomy. Dr. Lee is currently accepting new patients.

    Experienced in Acrodysostosis
    Experienced in Acrodysostosis
    Referral may be required

    Department Of Ophthalmology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Deborah Vanderveen is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Vanderveen is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Retinopathy of Prematurity, Lenz Microphthalmia Syndrome, Micropthalmia Associated with Colobomatous Cyst, Cataract Removal, and Trabeculectomy. Dr. Vanderveen is currently accepting new patients.

    Experienced in Acrodysostosis
    Experienced in Acrodysostosis
    Referral may be required

    Department Of Ophthalmology

    300 Longwood Ave, 
    Boston, MA 
    Experience:
    10+ years
    Languages Spoken:
    English
    Accepting New Patients

    Edith Reshef is a Pediatrics provider practicing medicine in Boston, Massachusetts. She has been practicing medicine for over 10 years. Dr. Reshef is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Thyroid Eye Disease, Eyelid Bump, Micropthalmia Associated with Colobomatous Cyst, Myringotomy, and Turbinectomy. Dr. Reshef is currently accepting new patients.

    Experienced in Acrodysostosis
    Pediatric Otolaryngology
    Experienced in Acrodysostosis
    Pediatric Otolaryngology
    Referral may be required

    Department Of Otolaryngology And Communication Enhancement

    333 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Roger Nuss is a Pediatric Otolaryngologist practicing medicine in Boston, Massachusetts. Dr. Nuss is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Laryngomalacia, Velopharyngeal Insufficiency, Larynx Atresia, Myringotomy, and Adenoidectomy. Dr. Nuss is currently accepting new patients.

    Experienced in Acrodysostosis
    Experienced in Acrodysostosis
    Referral may be required

    Department Of Ophthalmology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Linda Dagi is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Dagi is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Baller-Gerold Syndrome, Gorlin-Chaudhry-Moss Syndrome, Multiple Epiphyseal Dysplasia, Knobloch Syndrome, and Craniectomy. Dr. Dagi is currently accepting new patients.

    Experienced in Acrodysostosis
    Physician Assistant
    Experienced in Acrodysostosis
    Physician Assistant
    Referral may be required

    Continuity Clinic

    800 Washington St Fl 12, 
    Boston, MA 
    Languages Spoken:
    English

    Nazia Shaikh is a Physician Assistant practicing medicine in Boston, Massachusetts. Shaikh, PA is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. Her clinical expertise encompasses Acrofacial Dysostosis Nager Type, Acrofacial Dysostosis Weyers Type, Acrodysostosis, and Microtia.

    Experienced in Acrodysostosis
    Pediatric Pulmonology
    Experienced in Acrodysostosis
    Pediatric Pulmonology
    Referral may be required

    Division Of Pulmonary Medicine

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Dennis Rosen is a Pediatric Pulmonologist practicing medicine in Boston, Massachusetts. Dr. Rosen is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses PIK3CA-Related Overgrowth Spectrum, Periodic Limb Movement Disorder, Ciliary Dyskinesia-Bronchiectasis, Primary Ciliary Dyskinesia (PCD), and Hormone Replacement Therapy (HRT).

    Experienced in Acrodysostosis
    Child and Adolescent Psychiatry | Psychiatry
    Experienced in Acrodysostosis
    Child and Adolescent Psychiatry | Psychiatry
    Referral may be required
    32 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English

    David Adams is a Child and Adolescent Psychiatrist and a Psychiatrist practicing medicine in Boston, Massachusetts. Dr. Adams is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Autism Spectrum Disorder, GM1 Gangliosidosis, Aphantasia, Trabeculectomy, and Vitrectomy.

    Experienced in Acrodysostosis
    Pediatrics
    Experienced in Acrodysostosis
    Pediatrics
    Referral may be required

    Boston Medical Center

    1 Boston Medical Ctr Pl, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Kate Madden is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Madden is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. Her clinical expertise encompasses 15q11.2 Microdeletion, Distal 18q Deletion Syndrome, Jacobsen Syndrome, and Acrofacial Dysostosis Nager Type. Dr. Madden is currently accepting new patients.

    Experienced in Acrodysostosis
    Experienced in Acrodysostosis
    Referral may be required

    Massgeneral For Children At Newton-Wellesley Hospital

    2000 Washington St, 
    Newton, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Kenneth Grundfast is an Otolaryngologist practicing medicine in Newton, Massachusetts. Dr. Grundfast is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Tinnitus, Infant Hearing Loss, Familial Deafness, Mastoidectomy, and Myringotomy. Dr. Grundfast is currently accepting new patients.

    Experienced in Acrodysostosis
    Pediatric Endocrinology
    Experienced in Acrodysostosis
    Pediatric Endocrinology
    Referral may be required

    Division Of Endocrinology

    333 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Jessica Smith is a Pediatric Endocrinologist practicing medicine in Boston, Massachusetts. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Congenital Hypothyroidism, Multiple Endocrine Neoplasia Type 2, Short Stature (Growth Disorders), and Familial Short Stature (FSS). Dr. Smith is currently accepting new patients.

    Experienced in Acrodysostosis
    Pediatric Otolaryngology
    Experienced in Acrodysostosis
    Pediatric Otolaryngology
    Referral may be required

    Department Of Otolaryngology And Communication Enhancement

    333 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Karen Watters is a Pediatric Otolaryngologist practicing medicine in Boston, Massachusetts. Dr. Watters is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Laryngomalacia, Laryngeal Cleft, Stridor, Myringotomy, and Adenoidectomy. Dr. Watters is currently accepting new patients.

    Experienced in Acrodysostosis
    Pediatric Otolaryngology | Otolaryngology
    Experienced in Acrodysostosis
    Pediatric Otolaryngology | Otolaryngology
    Referral may be required

    Massachusetts Eye And Ear

    243 Charles St, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Michael Cohen is a Pediatric Otolaryngologist and an Otolaryngologist practicing medicine in Boston, Massachusetts. Dr. Cohen is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Hearing Loss, Microtia, Enlarged Adenoids, and Infant Hearing Loss. Dr. Cohen is currently accepting new patients.

    Experienced in Acrodysostosis
    Pediatric Pulmonology
    Experienced in Acrodysostosis
    Pediatric Pulmonology
    Referral may be required

    Division Of Pulmonary Medicine

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Umakanth Khatwa is a Pediatric Pulmonologist practicing medicine in Boston, Massachusetts. Dr. Khatwa is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Congenital Central Hypoventilation Syndrome, Mosaic Trisomy 7, Trisomy 12 Mosaicism, and Trisomy 2 Mosaicism. Dr. Khatwa is currently accepting new patients.

    Showing 1-20 of 22

    Last Updated: 09/19/2026

    What is the definition of Acrodysostosis?

    Acrodysostosis is an extremely rare disorder that is present at birth (congenital). It leads to problems with the bones of the hands, feet, and nose, and intellectual disability.

    When should I see an Acrodysostosis doctor in Massachusetts, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Acrodysostosis doctor in Massachusetts, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Acrodysostosis doctors in Massachusetts, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Acrodysostosis doctors in Massachusetts, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Acrodysostosis doctor in Massachusetts, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Acrodysostosis doctor search results page. 

    Why is it important to get a second opinion from a different Acrodysostosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Acrodysostosis doctor in Massachusetts, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Acrodysostosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Acrodysostosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Acrodysostosis doctors in Massachusetts, US?

    Look for the filter feature on the left side of the Acrodysostosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Acrodysostosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Acrodysostosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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