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    Last Updated: 10/30/2025

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    MediFind found 20 doctor with experience in Acrodysostosis near Boston, MA. Of these, 13 are Experienced, 6 are Advanced and 1 are Distinguished.

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    20 providers found
      Distinguished in Acrodysostosis
      Pediatrics | Nephrology | Pediatric Endocrinology
      Distinguished in Acrodysostosis
      Pediatrics | Nephrology | Pediatric Endocrinology
      55 Fruit Street Yaw 6, Pediatric Medicine, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English

      Harald Jueppner is a Pediatrics specialist and a Nephrologist in Boston, Massachusetts. Dr. Jueppner is rated as a Distinguished provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Pseudohypoparathyroidism, Albright's Hereditary Osteodystrophy, Nephrocalcinosis, Milk-Alkali Syndrome, and Kidney Transplant.

      Advanced in Acrodysostosis
      Pediatric Otolaryngology | Otolaryngology
      Advanced in Acrodysostosis
      Pediatric Otolaryngology | Otolaryngology

      Pratt Otolaryngology- Head And Neck Surgery Associates Inc.

      800 Washigton St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Andrew Scott is a Pediatric Otolaryngologist and an Otolaryngologist in Boston, Massachusetts. Dr. Scott is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Pierre Robin Sequence, Deafness Craniofacial Syndrome, Dry Mouth, and Autosomal Cleft Palate. Dr. Scott is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Acrodysostosis
      Oral and Maxillofacial Surgery
      Advanced in Acrodysostosis
      Oral and Maxillofacial Surgery

      Boston Plastic And Oral Surgery

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Cory Resnick is an Oral and Maxillofacial Surgeon in Boston, Massachusetts. Dr. Resnick is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Acrofacial Dysostosis Nager Type, Temporomandibular Ankylosis, Acrofacial Dysostosis Weyers Type, Osteotomy, and Gastrostomy. Dr. Resnick is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Acrodysostosis
      Advanced in Acrodysostosis
      300 Longwood Ave, Children's Hospital Boston, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Carolyn Rogers-Vizena is a Plastic Surgeon in Boston, Massachusetts. Dr. Rogers-Vizena is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. Her top areas of expertise are Pierre Robin Sequence, Breast Enlargement In Males, Plagiocephaly, Osteotomy, and Myringotomy. Dr. Rogers-Vizena is currently accepting new patients.

      Advanced in Acrodysostosis
      Otolaryngology
      Advanced in Acrodysostosis
      Otolaryngology
      300 Longwood Ave, Lo-367, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Margaret Kenna is an Otolaryngologist in Boston, Massachusetts. Dr. Kenna is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. Her top areas of expertise are Infant Hearing Loss, Hearing Loss, Familial Deafness, Adenoidectomy, and Myringotomy. Dr. Kenna is currently accepting new patients.

      Advanced in Acrodysostosis
      Pediatrics
      Advanced in Acrodysostosis
      Pediatrics
      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Jay Berry is a Pediatrics provider in Boston, Massachusetts. Dr. Berry is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Gorlin-Chaudhry-Moss Syndrome, Multiple Epiphyseal Dysplasia, Sunken Fontanelles, Spinal Fusion, and Bladder Reconstruction.

      Advanced in Acrodysostosis
      Pediatric Otolaryngology | Otolaryngology
      Advanced in Acrodysostosis
      Pediatric Otolaryngology | Otolaryngology

      Chmc Otolaryngologic Foundation, Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Gi-soo Lee is a Pediatric Otolaryngologist and an Otolaryngologist in Boston, Massachusetts. Dr. Lee is rated as an Advanced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Microtia, Enlarged Adenoids, Male Pattern Baldness, Adenoidectomy, and Myringotomy. Dr. Lee is currently accepting new patients.

      Experienced in Acrodysostosis
      Physician Assistant
      Experienced in Acrodysostosis
      Physician Assistant
      800 Washington St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English

      Nazia Shaikh is a Physician Assistant in Boston, Massachusetts. Ms. Shaikh is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. Her top areas of expertise are Acrodysostosis, Acrofacial Dysostosis Weyers Type, Acrofacial Dysostosis Nager Type, and Microtia.

      Experienced in Acrodysostosis
      Pediatric Otolaryngology | Otolaryngology
      Experienced in Acrodysostosis
      Pediatric Otolaryngology | Otolaryngology

      Massachusetts Eye And Ear Associates, Inc

      243 Charles St, 
      Boston, MA 
       (0.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Michael Cohen is a Pediatric Otolaryngologist and an Otolaryngologist in Boston, Massachusetts. Dr. Cohen is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Hearing Loss, Microtia, Enlarged Adenoids, and Infant Hearing Loss. Dr. Cohen is currently accepting new patients.

      Experienced in Acrodysostosis
      Pediatric Gastroenterology | Gastroenterology
      Experienced in Acrodysostosis
      Pediatric Gastroenterology | Gastroenterology
      1 Boston Medical Ctr Pl, Menino Building, Dowling 3 South Resident Mailboxes, 
      Boston, MA 
       (1.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Yanjia Zhang is a Pediatric Gastroenterologist and a Gastroenterologist in Boston, Massachusetts. Dr. Zhang is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Chronic Idiopathic Constipation (CIC), Crohn's Disease, Esophageal Atresia, Colonoscopy, and Myringotomy. Dr. Zhang is currently accepting new patients.

      Experienced in Acrodysostosis
      Experienced in Acrodysostosis
      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Deborah Vanderveen is an Ophthalmologist in Boston, Massachusetts. Dr. Vanderveen is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. Her top areas of expertise are Congenital Cataract, Strabismus, Retinopathy of Prematurity, Cataract Removal, and Trabeculectomy. Dr. Vanderveen is currently accepting new patients.

      Experienced in Acrodysostosis
      Ophthalmology
      Experienced in Acrodysostosis
      Ophthalmology

      Childrens Hospital Ophthalmology Foundation Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Edith Reshef is an Ophthalmologist in Boston, Massachusetts. Dr. Reshef is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. Her top areas of expertise are Entropion, Thyroid Eye Disease, Blocked Tear Duct, Myringotomy, and Turbinectomy. Dr. Reshef is currently accepting new patients.

      Experienced in Acrodysostosis
      Otolaryngology
      Experienced in Acrodysostosis
      Otolaryngology

      Chmc Otolaryngologic Foundation, Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Roger Nuss is an Otolaryngologist in Boston, Massachusetts. Dr. Nuss is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Spasmodic Dysphonia, Laryngomalacia, Velopharyngeal Insufficiency, Myringotomy, and Adenoidectomy. Dr. Nuss is currently accepting new patients.

      Experienced in Acrodysostosis
      Ophthalmology
      Experienced in Acrodysostosis
      Ophthalmology

      Childrens Hospital Ophthalmology Foundation Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Linda Dagi is an Ophthalmologist in Boston, Massachusetts. Dr. Dagi is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. Her top areas of expertise are Strabismus, Brown Syndrome, Isolated Duane Retraction Syndrome, Esotropia, and Craniectomy.

      Experienced in Acrodysostosis
      Pediatric Pulmonology | Pulmonary Medicine | Pediatrics
      Experienced in Acrodysostosis
      Pediatric Pulmonology | Pulmonary Medicine | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Dennis Rosen is a Pediatric Pulmonologist and a Pulmonary Medicine provider in Boston, Massachusetts. Dr. Rosen is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Chemical Pneumonitis, Ciliary Dyskinesia-Bronchiectasis, Primary Ciliary Dyskinesia (PCD), and Kartagener Syndrome.

      Experienced in Acrodysostosis
      Intensive Care Medicine | Pediatrics
      Experienced in Acrodysostosis
      Intensive Care Medicine | Pediatrics

      Chmc Anesthesia Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Kate Madden is an Intensive Care Medicine specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Madden is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. Her top areas of expertise are Jacobsen Syndrome, 15q11.2 Microdeletion, Distal 18q Deletion Syndrome, and Acrodysostosis.

      Experienced in Acrodysostosis
      Pediatric Endocrinology
      Experienced in Acrodysostosis
      Pediatric Endocrinology
      300 Longwood Ave, Karp 4, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Jessica Smith is a Pediatric Endocrinologist in Boston, Massachusetts. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. Her top areas of expertise are Congenital Hypothyroidism, Multiple Endocrine Neoplasia Type 2, Short Stature (Growth Disorders), and Familial Short Stature (FSS).

      Experienced in Acrodysostosis
      Anesthesiology | Pain Medicine
      Experienced in Acrodysostosis
      Anesthesiology | Pain Medicine

      Chmc Anesthesia Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Maria Hernandez-Malaquina is an Anesthesiologist and a Pain Medicine provider in Boston, Massachusetts. Dr. Hernandez-Malaquina is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. Her top areas of expertise are Acute Pain, Esophageal Atresia Coloboma Talipes, Acrofacial Dysostosis Nager Type, and Acrofacial Dysostosis Weyers Type.

      Experienced in Acrodysostosis
      Pediatrics | Pulmonary Medicine | Pediatric Pulmonology
      Experienced in Acrodysostosis
      Pediatrics | Pulmonary Medicine | Pediatric Pulmonology

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Umakanth Katwa is a Pediatrics specialist and a Pulmonary Medicine provider in Boston, Massachusetts. Dr. Katwa is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. His top areas of expertise are Central Sleep Apnea, Micrognathia, Congenital Central Hypoventilation Syndrome, Glossectomy, and Posterior Fossa Decompression. Dr. Katwa is currently accepting new patients.

      Experienced in Acrodysostosis
      Pediatric Otolaryngology | Otolaryngology
      Experienced in Acrodysostosis
      Pediatric Otolaryngology | Otolaryngology
      300 Longwood Avenue, Department Of Otolaryngology, Childrens Hospital Boston, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Karen Watters is a Pediatric Otolaryngologist and an Otolaryngologist in Boston, Massachusetts. Dr. Watters is rated as an Experienced provider by MediFind in the treatment of Acrodysostosis. Her top areas of expertise are Laryngomalacia, Laryngeal Cleft, Stridor, Myringotomy, and Adenoidectomy. Dr. Watters is currently accepting new patients.

      Showing 1-20 of 20

      Last Updated: 10/30/2025

      What is the definition of Acrodysostosis?

      Acrodysostosis is an extremely rare disorder that is present at birth (congenital). It leads to problems with the bones of the hands, feet, and nose, and intellectual disability.

      When should I see an Acrodysostosis doctor near Boston, MA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Acrodysostosis doctor near Boston, MA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Acrodysostosis doctors near Boston, MA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Acrodysostosis doctors near Boston, MA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Acrodysostosis doctor near Boston, MA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Acrodysostosis doctor search results page. 

      Why is it important to get a second opinion from a different Acrodysostosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Acrodysostosis doctor near Boston, MA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Acrodysostosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Acrodysostosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Acrodysostosis doctors near Boston, MA?

      Look for the filter feature on the left side of the Acrodysostosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Acrodysostosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Acrodysostosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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