The 20 Best Acute Intermittent Porphyria Doctors in The United States

Find the Top Acute Intermittent Porphyria Experts and Specialists

The 20 Best Acute Intermittent Porphyria Doctors in The United States

Last Updated: 02/22/2026

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MediFind found 625 doctor with experience in Acute Intermittent Porphyria near The United States. Of these, 516 are Experienced, 100 are Advanced and 8 are Distinguished.

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625 providers found
    Anush Patel
    Experienced in Acute Intermittent Porphyria
    Hematology
    Experienced in Acute Intermittent Porphyria
    Hematology

    Bassett Medical Center

    1 Atwell Road, 
    Cooperstown, NY 
    Languages Spoken:
    English

    . Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Acute Intermittent Porphyria. His top areas of expertise are Angiosarcoma, Small Cell Lung Cancer (SCLC), Lung Adenocarcinoma, and Iron Deficiency Anemia.

    Anthony T. Desalvo
    Experienced in Acute Intermittent Porphyria
    Oncology | Hematology Oncology | Hematology
    Experienced in Acute Intermittent Porphyria
    Oncology | Hematology Oncology | Hematology

    Abingdon Physician Partners - Regional Cancer Center At Johnston Memorial Hospital

    16000 Johnston Memorial Drive, 
    Abingdon, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Anthony DeSalvo, MD, believes the best care comes from both science and compassion, especially during life's most difficult moments. He chose to specialize in oncology because it's rapidly advancing field that allows him to support patients when they need it most. After an internal medicine rotation, he explored several career paths but felt a strong connection to oncology and the opportunity it provides to make a meaningful difference. Originally from upstate New York, Dr. DeSalvo first came to the Appalachian Highlands to attend Virginia Tech and fell in love with the region. He was drawn back by the honesty and faith of the people here. In his free time, he enjoys restoring his pre-Civil War farmhouse, hiking and swimming. Dr. Desalvo is rated as an Experienced provider by MediFind in the treatment of Acute Intermittent Porphyria. His top areas of expertise are Inflammatory Breast Cancer, Paget Disease of the Breast, Angiosarcoma, and Childhood Iron Deficiency Anemia.

    Shoja S. Rahimian
    Advanced in Acute Intermittent Porphyria
    Hematology | Oncology | Internal Medicine
    Advanced in Acute Intermittent Porphyria
    Hematology | Oncology | Internal Medicine

    McGlinn Cancer Institute - Reading Hospital

    420 S 5th Ave, Bldg N, 
    West Reading, PA 
    Languages Spoken:
    English, Turkish

    . Dr. Rahimian is rated as an Advanced provider by MediFind in the treatment of Acute Intermittent Porphyria. His top areas of expertise are Chronic Familial Neutropenia, Agranulocytosis, Squamous Cell Lung Carcinoma, and Non-Small Cell Lung Cancer (NSCLC).

    Learn about our expert tiers
    Distinguished in Acute Intermittent Porphyria
    Distinguished in Acute Intermittent Porphyria

    Northwest Georgia Oncology Center

    204 Allen Memorial Drive, Ste302B, 
    Bremen, GA 
    Languages Spoken:
    English

    Bradley Larson is an Oncologist in Bremen, Georgia. Dr. Larson is rated as a Distinguished provider by MediFind in the treatment of Acute Intermittent Porphyria. His top areas of expertise are Acute Hepatic Porphyria (AHP), Acute Intermittent Porphyria, Porphyria, Bone Marrow Aspiration, and Endoscopy.

    Distinguished in Acute Intermittent Porphyria
    Hematology Oncology
    Distinguished in Acute Intermittent Porphyria
    Hematology Oncology

    Ochsner Cancer Center Of Acadiana At Ochsner Lafayette General Medical Center

    1211 Coolidge Blvd, 
    Lafayette, LA 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Victoria Panelli is a Hematologist Oncology provider in Lafayette, Louisiana. Dr. Panelli is rated as a Distinguished provider by MediFind in the treatment of Acute Intermittent Porphyria. Her top areas of expertise are Gastroesophageal Junction Cancer, Paget Disease of the Breast, Inflammatory Breast Cancer, and Lung Cancer. Dr. Panelli is currently accepting new patients.

    Andrew C. Rettew
    Experienced in Acute Intermittent Porphyria
    Hematology | Oncology | Internal Medicine
    Experienced in Acute Intermittent Porphyria
    Hematology | Oncology | Internal Medicine

    McGlinn Cancer Institute - Reading Hospital

    420 S 5th Ave, Bldg N, 
    West Reading, PA 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Rettew is rated as an Experienced provider by MediFind in the treatment of Acute Intermittent Porphyria. His top areas of expertise are Agranulocytosis, Chronic Familial Neutropenia, Large-Cell Immunoblastic Lymphoma, Diffuse Large B-Cell Lymphoma (DLBCL), and Bone Marrow Aspiration.

    Susie D. Huffman
    Experienced in Acute Intermittent Porphyria
    Internal Medicine
    Experienced in Acute Intermittent Porphyria
    Internal Medicine

    Bassett Prime Care Cooperstown

    1 Atwell Road, Clinic Building, 
    Cooperstown, NY 
    Languages Spoken:
    English

    . Dr. Huffman is rated as an Experienced provider by MediFind in the treatment of Acute Intermittent Porphyria. Her top areas of expertise are Psoriatic Arthritis, Type 1 Diabetes (T1D), Migraine, Viral Gastroenteritis, and Endoscopy.

    Maria C. Frank
    Experienced in Acute Intermittent Porphyria
    Internal Medicine
    Experienced in Acute Intermittent Porphyria
    Internal Medicine

    Tower Health Medical Group Internal Medicine - Wyomissing 1st Floor

    950A N Wyomissing Blvd F1, 
    Wyomissing, PA 
    Languages Spoken:
    English

    . Dr. Frank is rated as an Experienced provider by MediFind in the treatment of Acute Intermittent Porphyria. Her top areas of expertise are End-Stage Renal Disease (ESRD), Familial Hypertension, Hypertension, and Glucocorticoid-Remediable Aldosteronism.

    Dronacharya Lamichhane
    Experienced in Acute Intermittent Porphyria
    Experienced in Acute Intermittent Porphyria

    Reading Hospital Neurology Suite 104

    2603 Keiser Blvd, Ste 104, 
    Wyomissing, PA 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Lamichhane is rated as an Experienced provider by MediFind in the treatment of Acute Intermittent Porphyria. His top areas of expertise are Movement Disorders, Parkinson's Disease, Secondary Parkinsonism, and Supranuclear Ophthalmoplegia.

    Hemant Kumar
    Experienced in Acute Intermittent Porphyria
    Internal Medicine
    Experienced in Acute Intermittent Porphyria
    Internal Medicine

    Reading Hospital

    420 South 5th Avenue, 
    West Reading, PA 
    Languages Spoken:
    English, Hindi

    . Dr. Kumar is rated as an Experienced provider by MediFind in the treatment of Acute Intermittent Porphyria. His top areas of expertise are Sepsis, Pneumonia, Heart Failure with Preserved Ejection Fraction (HFpEF), and Heart Failure.

    Robin L. Obenchain
    Advanced in Acute Intermittent Porphyria
    Advanced in Acute Intermittent Porphyria

    Arizona Center For Hematology And Oncology

    1110 South Dobson Rd, Ste 1, 
    Chandler, AZ 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Robin Obenchain is a Hematologist in Chandler, Arizona. Dr. Obenchain is rated as an Advanced provider by MediFind in the treatment of Acute Intermittent Porphyria. Her top areas of expertise are Breast Cancer, Paget Disease of the Breast, Inflammatory Breast Cancer, and Angiosarcoma. Dr. Obenchain is currently accepting new patients.

    Jay D. Walls
    Advanced in Acute Intermittent Porphyria
    Oncology | Hematology Oncology
    Advanced in Acute Intermittent Porphyria
    Oncology | Hematology Oncology

    Prisma Health Cancer Institute – Grove Commons

    3 Butternut Drive, Suite B, 
    Greenville, SC 
    Languages Spoken:
    English
    Accepting New Patients

    Jay Walls is a Hematologist Oncology specialist and an Oncologist in Greenville, South Carolina. Dr. Walls is rated as an Advanced provider by MediFind in the treatment of Acute Intermittent Porphyria. His top areas of expertise are Essential Thrombocythemia, Childhood Iron Deficiency Anemia, Sickle Cell Disease, Hemoglobin SC Disease, and Bone Marrow Aspiration. Dr. Walls is currently accepting new patients.

    Danielle Nance
    Advanced in Acute Intermittent Porphyria
    Advanced in Acute Intermittent Porphyria

    Banner Gateway Medical Center-Banner MD Anderson Cancer Center At Gateway Medical Pavilion

    1920 North Higley Road, Suite 108, 
    Gilbert, AZ 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    My family likes being outdoors; hiking, biking and exploring nature. I enjoy reading SciFi, biographies and baking cookies. Dr. Nance is rated as an Advanced provider by MediFind in the treatment of Acute Intermittent Porphyria. Her top areas of expertise are Acute Hepatic Porphyria (AHP), Porphyria, Von Willebrand Disease (VWD), and Heyde Syndrome.

    M H. Gilbert
    Advanced in Acute Intermittent Porphyria
    Hematology Oncology
    Advanced in Acute Intermittent Porphyria
    Hematology Oncology

    Intermountain Cancer Center - St George

    600 South Medical Center Drive, Building 7, 
    Saint George, UT 
    Experience:
    25+ years
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Michelle Heather Gilbert is a Medical/Hematology Oncologist practicing in St. George with over 23 years of diverse experience. Dr. Heather Gilbert has been with Intermountain Cancer Center in St. George, Medical Oncology since January 2012. She recieved her Doctor of Medicine from the University of Utah Medical Center in 2001. When she is not working you can usually find her riding trails from all over. She is an enthusiastic mountain biker, trail hiker, and white-water river rafter. She has coached the Dixie High School mountain biking team for 12 years. She loves to travel with her husband, has two children, and the most adorable grandson in the whole history of the world. Dr. Gilbert is rated as an Advanced provider by MediFind in the treatment of Acute Intermittent Porphyria. Her top areas of expertise are Chronic Lymphocytic Leukemia (CLL), Inflammatory Breast Cancer, Paget Disease of the Breast, Philadelphia-Negative Chronic Myeloid Leukemia, and Bone Marrow Aspiration.

    Jay D. Varrato
    Advanced in Acute Intermittent Porphyria
    Advanced in Acute Intermittent Porphyria

    LVH Neurology-1250 Cedar Crest

    1250 S Cedar Crest Blvd, Suite 405, 
    Allentown, PA 
    Languages Spoken:
    English

    Jay Varrato is a Neurologist in Allentown, Pennsylvania. Dr. Varrato is rated as an Advanced provider by MediFind in the treatment of Acute Intermittent Porphyria. His top areas of expertise are Danon Disease, Pompe Disease, Epilepsy, and Myasthenia Gravis.

    Richard L. Gordon
    Advanced in Acute Intermittent Porphyria
    Hematology | Hematology Oncology
    Advanced in Acute Intermittent Porphyria
    Hematology | Hematology Oncology
    705 White Horse Road, Suite D105, 
    Voorhees, NJ 
    Languages Spoken:
    English
    Accepting New Patients

    Richard Gordon is a Hematologist and a Hematologist Oncology provider in Voorhees, New Jersey. Dr. Gordon is rated as an Advanced provider by MediFind in the treatment of Acute Intermittent Porphyria. His top areas of expertise are Severe Congenital Neutropenia, B-Cell Lymphoma, Non-Hodgkin Lymphoma, and Agranulocytosis. Dr. Gordon is currently accepting new patients.

    Brett T. Brinker
    Advanced in Acute Intermittent Porphyria
    Hematology Oncology
    Advanced in Acute Intermittent Porphyria
    Hematology Oncology

    The Cancer & Hematology Centers

    145 Michigan Street Northeast, Suite 3100, 
    Grand Rapids, MI 
    Experience:
    26+ years
    Languages Spoken:
    English
    Accepting New Patients

    Brett Brinker is a Hematologist Oncology provider in Grand Rapids, Michigan. Dr. Brinker has been practicing medicine for over 26 years and is rated as an Advanced provider by MediFind in the treatment of Acute Intermittent Porphyria. His top areas of expertise are B-Cell Lymphoma, Acute Myeloid Leukemia (AML), Non-Hodgkin Lymphoma, Acute Myeloblastic Leukemia without Maturation, and Bone Marrow Aspiration. Dr. Brinker is currently accepting new patients.

    Zahid Dar
    Advanced in Acute Intermittent Porphyria
    Hematology | Oncology
    Advanced in Acute Intermittent Porphyria
    Hematology | Oncology

    Vince Lombardi Cancer Clinic

    855 N Westhaven Dr, 
    Oshkosh, WI 
    Languages Spoken:
    English, Hindi, Urdu

    Zahid Dar is a Hematologist and an Oncologist in Oshkosh, Wisconsin. Dr. Dar is rated as an Advanced provider by MediFind in the treatment of Acute Intermittent Porphyria. His top areas of expertise are Metastatic Pleural Tumor, Paget Disease of the Breast, Familial Pancreatic Cancer, and Pleuropulmonary Blastoma.

    Johann H. Hsu
    Advanced in Acute Intermittent Porphyria
    Hematology | Oncology
    Advanced in Acute Intermittent Porphyria
    Hematology | Oncology

    Atrium Health Levine Cancer Institute (Rare & Complex Sarcoma)

    1021 Morehead Medical Drive, Suite 3200, 
    Charlotte, NC 
    Experience:
    10+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Johann Hsu is a Hematologist and an Oncologist in Charlotte, North Carolina. Dr. Hsu has been practicing medicine for over 10 years and is rated as an Advanced provider by MediFind in the treatment of Acute Intermittent Porphyria. His top areas of expertise are Hemochromatosis, Bone Tumor, Mesenchymoma, and Undifferentiated Pleomorphic Sarcoma. Dr. Hsu is currently accepting new patients.

    Raymond Thertulien
    Advanced in Acute Intermittent Porphyria
    Advanced in Acute Intermittent Porphyria

    Novant Health Cancer Institute - Elizabeth (Hematology)

    125 Queens Road, Suite 610, 
    Charlotte, NC 
    Languages Spoken:
    English, Creole, French, Spanish
    Offers Telehealth

    Raymond Thertulien is a Hematologist in Charlotte, North Carolina. Dr. Thertulien is rated as an Advanced provider by MediFind in the treatment of Acute Intermittent Porphyria. His top areas of expertise are Multiple Myeloma, Chronic Lymphocytic Leukemia (CLL), Myeloproliferative Neoplasms (MPN), Relapsed Refractory Multiple Myeloma (RRMM), and Bone Marrow Aspiration.

    Showing 1-20 of 625

    Last Updated: 02/22/2026

    What is the definition of Acute Intermittent Porphyria?

    Acute intermittent porphyria (AIP) is one of the liver (hepatic) porphyrias. AIP is caused by low levels of porphobilinogen deaminase (PBGD), an enzyme also often called hydroxymethylbilane synthase. The low levels of PBGD are generally not sufficient to cause symptoms; however, activating factors such as hormones, drugs, and dietary changes may trigger symptoms. Although most individuals with AIP never develop symptoms, symptomatic individuals typically present with abdominal pain with nausea.

    When should I see an Acute Intermittent Porphyria doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Acute Intermittent Porphyria doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Acute Intermittent Porphyria doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Acute Intermittent Porphyria doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Acute Intermittent Porphyria doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Acute Intermittent Porphyria doctor search results page. 

    Why is it important to get a second opinion from a different Acute Intermittent Porphyria doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Acute Intermittent Porphyria doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Acute Intermittent Porphyria doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Acute Intermittent Porphyria doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Acute Intermittent Porphyria doctors in The United States?

    Look for the filter feature on the left side of the Acute Intermittent Porphyria doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Acute Intermittent Porphyria doctor that offers video calls?

    Look for the filter feature on the left-side of the Acute Intermittent Porphyria doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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