The 20 Best Adrenoleukodystrophy (ALD) Doctors in The United States

Joshua Bonkowsky is a Neurologist practicing medicine in Salt Lake City, Utah. Dr. Bonkowsky is rated as an Elite provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses CACH Syndrome, Adrenoleukodystrophy (ALD), Leukodystrophy, Krabbe Disease, and Gastrostomy. Dr. Bonkowsky is board certified in American Board Of Psychiatry And Neurology. Dr. Bonkowsky is currently accepting new patients.

Eric Mallack is a Pediatric Neurologist and a Neurologist practicing medicine in Baltimore, Maryland. Dr. Mallack is rated as an Elite provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), CACH Syndrome, Early Infantile Epileptic Encephalopathy, and Leukodystrophy. Dr. Mallack is board certified in American Board Of Psychiatry And Neurology.

Paul Orchard is a Hematologist and an Oncologist practicing medicine in Minneapolis, Minnesota. Dr. Orchard is rated as an Elite provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Bone Marrow Transplant, and Osteotomy. Dr. Orchard is board certified in Pediatrics.

Florian Eichler is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Eichler is rated as an Elite provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), CACH Syndrome, Tay-Sachs Disease, Gangliosidosis, and Gastrostomy.

Troy Lund is a Hematologist and an Oncologist practicing medicine in Minneapolis, Minnesota. Dr. Lund is rated as an Elite provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), Alpha Mannosidosis, Aspartylglucosaminuria, Glucose-6-Phosphate Dehydrogenase Deficiency, and Bone Marrow Transplant.

Patricia Musolino is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Musolino is rated as an Elite provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Adrenoleukodystrophy (ALD), CACH Syndrome, Stroke, Thrombectomy, and Embolectomy.

Christine Duncan is a Hematologist and an Oncologist practicing medicine in Boston, Massachusetts. Dr. Duncan is rated as an Elite provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Adrenoleukodystrophy (ALD), Hepatic Venoocclusive Disease with Immunodeficiency, Graft Versus Host Disease (GvHD), Bone Marrow Transplant, and Tissue Biopsy.

Ashish Gupta is a Hematologist and an Oncologist practicing medicine in Minneapolis, Minnesota. Dr. Gupta is rated as an Elite provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), Hepatic Venoocclusive Disease with Immunodeficiency, Anemia, Hemoglobinopathy, and Bone Marrow Transplant.

Christopher Stephen is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Stephen is rated as a Distinguished provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Drug Induced Dyskinesia, Spinocerebellar Ataxia Type 27, Movement Disorders, and Tay-Sachs Disease. Dr. Stephen is board certified in Neurology.

Dr. Fatemi received his medical degree from the Medical University of Vienna, Austria in 1999. After graduation, he served as a researcher and lecturer at the Institute for Medical Chemistry in Vienna and at the Department of Pediatrics at the Vienna General Hospital. He then moved to the United States to pursue a postdoctoral fellowship in neurogenetics and neuroimaging at Johns Hopkins University School of Medicine in 2001. During this initial period, Dr. Fatemi collaborated with a team of scientists and developed new imaging methods in patients with leukodystrophies (rare genetic diseases that affect the brain's white matter) and coordinated an internet-2 based imaging network for these diseases. He then left Kennedy Krieger Institute to train in general pediatrics and then completed a child neurology residency at the Massachusetts General Hospital, an affiliate of Harvard Medical School. Dr. Fatemi returned to the Kennedy Krieger Institute in 2008 as faculty. He is a member of the Child Neurology Society, the International Child Neurology Association, the Society for Neuroscience, the American Academy of Neurology and the International Society for Magnetic Resonance in Medicine. He has served as ad hoc reviewer for the Journals Child Development and American Journal of Neuroradiology. Dr. Fatemi is rated as a Distinguished provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), CACH Syndrome, Canavan Disease, and Pelizaeus-Merzbacher Disease. Dr. Fatemi is board certified in American Board Of Psychiatry And Neurology.

Richard Chang is a Medical Genetics provider practicing medicine in Orange, California. Dr. Chang is rated as a Distinguished provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). He is also highly rated in 156 other conditions, according to our data. His clinical expertise encompasses Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Arginase Deficiency, and Urea Cycle Disorders (UCD). Dr. Chang is currently accepting new patients.

Scott Simms is a primary care provider, practicing in Family Medicine in Denton, Texas. Dr. Simms is rated as an Experienced provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses High Cholesterol, Sciatica, Sitosterolemia, and Glucocorticoid-Remediable Aldosteronism.

Dr. Gerald Raymond is a clinical geneticist and neurologist at Johns Hopkins where he is also a professor of genetic medicine and neurology. He obtained his MD at the University of Connecticut and was trained in Pediatrics at Johns Hopkins Hospital and Neurology at the Mass. General Hospital. He received additional training in developmental neuropathology at the Universite Catholique de Louvain in Belgium and clinical genetics at the Harvard Program. Dr. Raymond’s research has been at the overlap of genetics and neurology with specific focus on peroxisomal disorders including adrenoleukodystrophy. He has been actively involved in newborn screening for ALD and in developing clinical follow-up programs. He has extensive experience in clinical management of neurogenetic issues including peroxisomal and lysosomal disorders. He presently serves as the Director of the Lysosomal Storage Disease program in the department of Genetic Medicine. Dr. Raymond is rated as an Advanced provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), Metachromatic Leukodystrophy, Farber Lipogranulomatosis, and CACH Syndrome. Dr. Raymond is board certified in American Board Of Medical Genetics And Genomics and American Board Of Psychiatry And Neurology.

Melissa Wasserstein is a Pediatrics provider practicing medicine in Bronx, New York. Dr. Wasserstein is rated as an Advanced provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Acid Sphingomyelinase Deficiency (ASMD), Niemann-Pick Disease, Reticulohistiocytoma, and Splenomegaly.

Patricia Luceri is an Endocrinologist practicing medicine in Marlton, New Jersey. She has been practicing medicine for over 19 years. Dr. Luceri is rated as an Advanced provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Type 2 Diabetes (T2D), Adrenoleukodystrophy (ALD), Maturity Onset Diabetes of the Young, and Type 1 Diabetes (T1D). Dr. Luceri is board certified in American Osteopathic Board Of Internal Medicine,Endocrinology , 2012.

I’m a pediatric blood and bone marrow transplant specialist. I see patients from all over the world, many of whom have very rare diseases. I take care of patients with leukodystrophies, leukemias and other blood disorders that are resistant to standard treatment, and children with brain injuries like cerebral palsy. It’s rewarding to make a difference when treating challenging diseases. I’ve been fortunate over my career to be able to develop new treatments in the laboratory that I take into the clinic to help patients. In fact, here at Duke I was involved in the first cord-blood transplant anywhere in the world. When meeting with patients, I focus on making their experience more than just the medicine. We have a family support program for things beyond medical needs, which is especially helpful for families that are far from home. Outside of work, I like to knit, bike and spend time with my family. Dr. Kurtzberg is rated as an Advanced provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Metachromatic Leukodystrophy, Graft Versus Host Disease (GvHD), Leukodystrophy, Congenital Athymia, and Bone Marrow Transplant. Dr. Kurtzberg is board certified in American Board Of Pediatrics, General Pediatrics and American Board Of Pediatrics, Pediatric Hematology-Oncology.

Isha Srivastava is a Pediatric Neurologist practicing medicine in Palo Alto, California. Dr. Srivastava is rated as a Distinguished provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Adrenoleukodystrophy (ALD), CACH Syndrome, Metachromatic Leukodystrophy, and Leukodystrophy.

Asif Paker is a Neurologist practicing medicine in Dorchester, Massachusetts. Dr. Paker is rated as a Distinguished provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), CACH Syndrome, and Increased Intracranial Pressure.

Fiza Laheji is a Neurologist practicing medicine in Dallas, Texas. Dr. Laheji is rated as a Distinguished provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Adrenoleukodystrophy (ALD), CACH Syndrome, Adrenal Insufficiency Pediatric, and Spasticity. Dr. Laheji is currently accepting new patients.

Laura Adang is a Pediatric Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Adang is rated as a Distinguished provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Aicardi-Goutieres Syndrome, Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, and Gastrostomy.