The 20 Best Adrenoleukodystrophy (ALD) Doctors in The United States

Find the Top Adrenoleukodystrophy (ALD) Experts and Specialists

Last Updated: 06/30/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 374 doctor with experience in Adrenoleukodystrophy (ALD) near The United States. Of these, 299 are Experienced, 56 are Advanced, 11 are Distinguished and 8 are Elite.

Location
LocationClose
374 providers found
    Elite in Adrenoleukodystrophy (ALD)
    Elite in Adrenoleukodystrophy (ALD)
    Referral may be required

    Pediatric Nephrology - University Of Utah Hospital

    50 N Medical Dr, 
    Salt Lake City, UT 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Joshua Bonkowsky is a Neurologist practicing medicine in Salt Lake City, Utah. Dr. Bonkowsky is rated as an Elite provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses CACH Syndrome, Adrenoleukodystrophy (ALD), Leukodystrophy, Krabbe Disease, and Gastrostomy. Dr. Bonkowsky is board certified in American Board Of Psychiatry And Neurology. Dr. Bonkowsky is currently accepting new patients.

    Elite in Adrenoleukodystrophy (ALD)
    Pediatric Neurology | Neurology | Pediatrics
    Elite in Adrenoleukodystrophy (ALD)
    Pediatric Neurology | Neurology | Pediatrics
    Referral may be required

    Kennedy Krieger Institute

    707 North Broadway, 
    Baltimore, MD 
    Languages Spoken:
    English

    Eric Mallack is a Pediatric Neurologist and a Neurologist practicing medicine in Baltimore, Maryland. Dr. Mallack is rated as an Elite provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), CACH Syndrome, Early Infantile Epileptic Encephalopathy, and Leukodystrophy. Dr. Mallack is board certified in American Board Of Psychiatry And Neurology.

    Elite in Adrenoleukodystrophy (ALD)
    Pediatric Neurology
    Elite in Adrenoleukodystrophy (ALD)
    Pediatric Neurology
    Referral may be required

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English

    Florian Eichler is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Eichler is rated as an Elite provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), CACH Syndrome, Tay-Sachs Disease, Gangliosidosis, and Gastrostomy.

    Learn about our expert tiers
    Elite in Adrenoleukodystrophy (ALD)
    Hematology | Oncology
    Elite in Adrenoleukodystrophy (ALD)
    Hematology | Oncology
    Referral may be required

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Paul Orchard is a Hematologist and an Oncologist practicing medicine in Minneapolis, Minnesota. Dr. Orchard is rated as an Elite provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), Adrenal Insufficiency Pediatric, Metachromatic Leukodystrophy, Bone Marrow Transplant, and Osteotomy.

    Elite in Adrenoleukodystrophy (ALD)
    Hematology | Oncology
    Elite in Adrenoleukodystrophy (ALD)
    Hematology | Oncology
    Referral may be required

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Troy Lund is a Hematologist and an Oncologist practicing medicine in Minneapolis, Minnesota. Dr. Lund is rated as an Elite provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), Alpha Mannosidosis, Aspartylglucosaminuria, Glucose-6-Phosphate Dehydrogenase Deficiency, and Bone Marrow Transplant.

    Elite in Adrenoleukodystrophy (ALD)
    Pediatric Neurology
    Elite in Adrenoleukodystrophy (ALD)
    Pediatric Neurology
    Referral may be required

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English

    Patricia Musolino is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Musolino is rated as an Elite provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Adrenoleukodystrophy (ALD), CACH Syndrome, Stroke, Thrombectomy, and Embolectomy.

    Elite in Adrenoleukodystrophy (ALD)
    Hematology | Oncology
    Elite in Adrenoleukodystrophy (ALD)
    Hematology | Oncology
    Referral may be required

    Katie Hageboeck Children's Cancer Research Fund Clinic

    2450 Riverside Ave Fl 9, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Ashish Gupta is a Hematologist and an Oncologist practicing medicine in Minneapolis, Minnesota. Dr. Gupta is rated as an Elite provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), Schindler Disease, Adrenal Insufficiency Pediatric, Anemia, and Bone Marrow Transplant.

    Elite in Adrenoleukodystrophy (ALD)
    Hematology | Oncology
    Elite in Adrenoleukodystrophy (ALD)
    Hematology | Oncology
    Referral may be required

    Dana-Farber Cancer Institute

    450 Brookline Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Christine Duncan is a Hematologist and an Oncologist practicing medicine in Boston, Massachusetts. Dr. Duncan is rated as an Elite provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Adrenoleukodystrophy (ALD), Hepatic Venoocclusive Disease with Immunodeficiency, Hemophagocytic Lymphohistiocytosis, Bone Marrow Transplant, and Tissue Biopsy.

    Distinguished in Adrenoleukodystrophy (ALD)
    Distinguished in Adrenoleukodystrophy (ALD)
    Referral required

    Brigham And Women's Hospital, Neurosciences Center

    60 Fenwood Road, 1st Floor Hale Building For Transformative Medicine, 
    Boston, MA 
    Languages Spoken:
    English

    Christopher Stephen is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Stephen is rated as a Distinguished provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Drug Induced Dyskinesia, Spinocerebellar Ataxia Type 27, Movement Disorders, and Tay-Sachs Disease. Dr. Stephen is board certified in Neurology.

    Distinguished in Adrenoleukodystrophy (ALD)
    Pediatric Neurology
    Distinguished in Adrenoleukodystrophy (ALD)
    Pediatric Neurology
    Referral may be required

    Kennedy Krieger Institute

    707 North Broadway, Neurology Department, Neurology Department, 
    Baltimore, MD 
    Languages Spoken:
    English, Arabic, Farsi, German

    Dr. Fatemi received his medical degree from the Medical University of Vienna, Austria in 1999. After graduation, he served as a researcher and lecturer at the Institute for Medical Chemistry in Vienna and at the Department of Pediatrics at the Vienna General Hospital. He then moved to the United States to pursue a postdoctoral fellowship in neurogenetics and neuroimaging at Johns Hopkins University School of Medicine in 2001. During this initial period, Dr. Fatemi collaborated with a team of scientists and developed new imaging methods in patients with leukodystrophies (rare genetic diseases that affect the brain's white matter) and coordinated an internet-2 based imaging network for these diseases. He then left Kennedy Krieger Institute to train in general pediatrics and then completed a child neurology residency at the Massachusetts General Hospital, an affiliate of Harvard Medical School. Dr. Fatemi returned to the Kennedy Krieger Institute in 2008 as faculty. He is a member of the Child Neurology Society, the International Child Neurology Association, the Society for Neuroscience, the American Academy of Neurology and the International Society for Magnetic Resonance in Medicine. He has served as ad hoc reviewer for the Journals Child Development and American Journal of Neuroradiology. Dr. Fatemi is rated as a Distinguished provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), CACH Syndrome, Leukodystrophy, and Farber Lipogranulomatosis. Dr. Fatemi is board certified in American Board Of Psychiatry And Neurology.

    Experienced in Adrenoleukodystrophy (ALD)
    Family Medicine
    Experienced in Adrenoleukodystrophy (ALD)
    Family Medicine

    Texas Health Family Care

    700 West Oak St, 
    Denton, TX 
    Languages Spoken:
    English
    Offers Telehealth

    Scott Simms is a primary care provider, practicing in Family Medicine in Denton, Texas. Dr. Simms is rated as an Experienced provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses High Cholesterol, Sciatica, Sitosterolemia, and Glucocorticoid-Remediable Aldosteronism.

    Advanced in Adrenoleukodystrophy (ALD)
    Advanced in Adrenoleukodystrophy (ALD)
    Referral may be required

    Duke Children's Health Center Bone Marrow Transplant Clinic

    2301 Erwin Rd, 
    Durham, NC 
    Experience:
    50+ years
    Languages Spoken:
    English
    Offers Telehealth

    I’m a pediatric blood and bone marrow transplant specialist. I see patients from all over the world, many of whom have very rare diseases. I take care of patients with leukodystrophies, leukemias and other blood disorders that are resistant to standard treatment, and children with brain injuries like cerebral palsy. It’s rewarding to make a difference when treating challenging diseases. I’ve been fortunate over my career to be able to develop new treatments in the laboratory that I take into the clinic to help patients. In fact, here at Duke I was involved in the first cord-blood transplant anywhere in the world. When meeting with patients, I focus on making their experience more than just the medicine. We have a family support program for things beyond medical needs, which is especially helpful for families that are far from home. Outside of work, I like to knit, bike and spend time with my family. Dr. Kurtzberg is rated as an Advanced provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Metachromatic Leukodystrophy, Graft Versus Host Disease (GvHD), Leukodystrophy, Congenital Athymia, and Bone Marrow Transplant. Dr. Kurtzberg is board certified in American Board Of Pediatrics, General Pediatrics and American Board Of Pediatrics, Pediatric Hematology-Oncology.

    Advanced in Adrenoleukodystrophy (ALD)
    Advanced in Adrenoleukodystrophy (ALD)
    Referral may be required

    The Children's Hospital At Montefiore

    3415 Bainbridge Avenue, 
    Bronx, NY 
    Languages Spoken:
    English

    Melissa Wasserstein is a Pediatrics provider practicing medicine in Bronx, New York. Dr. Wasserstein is rated as an Advanced provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Acid Sphingomyelinase Deficiency (ASMD), Niemann-Pick Disease, Reticulohistiocytoma, and Splenomegaly.

    Advanced in Adrenoleukodystrophy (ALD)
    Endocrinology
    Advanced in Adrenoleukodystrophy (ALD)
    Endocrinology
    Referral may be required

    Cooper Care Alliance At Marlton

    63 Route 70 E, 
    Marlton, NJ 
    Experience:
    19+ years
    Languages Spoken:
    English
    Offers Telehealth

    Patricia Luceri is an Endocrinologist practicing medicine in Marlton, New Jersey. She has been practicing medicine for over 19 years. Dr. Luceri is rated as an Advanced provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Type 2 Diabetes (T2D), Adrenoleukodystrophy (ALD), Maturity Onset Diabetes of the Young, and Type 1 Diabetes (T1D). Dr. Luceri is board certified in American Osteopathic Board Of Internal Medicine,Endocrinology , 2012.

    Distinguished in Adrenoleukodystrophy (ALD)
    Pediatric Neurology
    Distinguished in Adrenoleukodystrophy (ALD)
    Pediatric Neurology
    Referral may be required

    Office

    730 Welch Rd Ste 206, 
    Palo Alto, CA 
    Languages Spoken:
    English

    Isha Srivastava is a Pediatric Neurologist practicing medicine in Palo Alto, California. Dr. Srivastava is rated as a Distinguished provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Adrenoleukodystrophy (ALD), CACH Syndrome, Metachromatic Leukodystrophy, and Leukodystrophy.

    Distinguished in Adrenoleukodystrophy (ALD)
    Hematology | Oncology
    Distinguished in Adrenoleukodystrophy (ALD)
    Hematology | Oncology
    Referral may be required

    Lucile Packard Children's Hospital Stanford

    725 Welch Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English

    Ami Shah is a Hematologist and an Oncologist practicing medicine in Palo Alto, California. Dr. Shah is rated as a Distinguished provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). She is also highly rated in 26 other conditions, according to our data. Her clinical expertise encompasses Adrenoleukodystrophy (ALD), Severe Combined Immunodeficiency (SCID), Pyruvate Kinase Deficiency, Bone Marrow Transplant, and Splenectomy.

    Distinguished in Adrenoleukodystrophy (ALD)
    Neurology
    Distinguished in Adrenoleukodystrophy (ALD)
    Neurology
    Referral may be required

    Carney Hospital

    2100 Dorchester Ave, 
    Dorchester, MA 
    Languages Spoken:
    English

    Asif Paker is a Neurologist practicing medicine in Dorchester, Massachusetts. Dr. Paker is rated as a Distinguished provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), CACH Syndrome, and Increased Intracranial Pressure.

    Distinguished in Adrenoleukodystrophy (ALD)
    Hematology | Oncology
    Distinguished in Adrenoleukodystrophy (ALD)
    Hematology | Oncology
    Referral may be required

    Dana-Farber Cancer Institute

    450 Brookline Ave, 
    Boston, MA 
    Languages Spoken:
    English

    David Williams is a Hematologist and an Oncologist practicing medicine in Boston, Massachusetts. Dr. Williams is rated as a Distinguished provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses X-Linked Severe Combined Immunodeficiency, Anemia, Sickle Cell Disease, Hemoglobinopathy, and Bone Marrow Transplant.

    Distinguished in Adrenoleukodystrophy (ALD)
    Distinguished in Adrenoleukodystrophy (ALD)
    Referral may be required
    2201 Henderson Mill Rd Ne, Suite 160 C/o Esession, 
    Atlanta, GA 
    Languages Spoken:
    English
    Accepting New Patients

    Fiza Laheji is a Neurologist practicing medicine in Atlanta, Georgia. Dr. Laheji is rated as a Distinguished provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Adrenoleukodystrophy (ALD), CACH Syndrome, Adrenal Insufficiency Pediatric, and Spasticity. Dr. Laheji is currently accepting new patients.

    Distinguished in Adrenoleukodystrophy (ALD)
    Pediatric Neurology
    Distinguished in Adrenoleukodystrophy (ALD)
    Pediatric Neurology
    Referral may be required

    Office

    3401 Civic Center Blvd, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Laura Adang is a Pediatric Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Adang is rated as a Distinguished provider by MediFind in the treatment of Adrenoleukodystrophy (ALD). She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Aicardi-Goutieres Syndrome, Leukodystrophy, Metachromatic Leukodystrophy, CACH Syndrome, and Gastrostomy.

    Showing 1-20 of 374

    Last Updated: 06/30/2026

    What is the definition of Adrenoleukodystrophy (ALD)?

    Adrenoleukodystrophy (ALD) describes several closely related disorders that disrupt the breakdown of certain fats. These disorders are often passed down (inherited) in families.

    When should I see an Adrenoleukodystrophy (ALD) doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Adrenoleukodystrophy (ALD) doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Adrenoleukodystrophy (ALD) doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Adrenoleukodystrophy (ALD) doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Adrenoleukodystrophy (ALD) doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Adrenoleukodystrophy (ALD) doctor search results page. 

    Why is it important to get a second opinion from a different Adrenoleukodystrophy (ALD) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Adrenoleukodystrophy (ALD) doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Adrenoleukodystrophy (ALD) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Adrenoleukodystrophy (ALD) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Adrenoleukodystrophy (ALD) doctors in The United States?

    Look for the filter feature on the left side of the Adrenoleukodystrophy (ALD) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Adrenoleukodystrophy (ALD) doctor that offers video calls?

    Look for the filter feature on the left-side of the Adrenoleukodystrophy (ALD) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy