Registry for Patients With Desmoplastic Small Round Cell Tumor
Status: Recruiting
Location: See location...
Study Type: Observational
SUMMARY
This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease. The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.
Eligibility
Participation Requirements
Sex: All
Healthy Volunteers: f
View:
• Participants must have a diagnosis of desmoplastic small round cell tumor
• Participants may be of any age as long as the appropriate consent and assent may be obtained
• Willing to provide historical and longitudinal clinical data
Locations
United States
New York
Memorial Sloan Kettering Cancer Center (All Protocol Activities)
RECRUITING
New York
Contact Information
Primary
Emily Slotkin, MD
slotkine@mskcc.org
1-833-675-5437
Backup
Shakeel Modak, MD
1-833-675-5437
Time Frame
Start Date: 2020-12-22
Estimated Completion Date: 2027-12
Participants
Target number of participants: 250
Treatments
Desmoplastic small round cell tumor (DSRCT)
Collect historical/longitudinal clinical, radiographic and molecular features of DSRCT patients as documented in medical records to improve knowledge about DSRCT
Related Therapeutic Areas
Sponsors
Leads: Memorial Sloan Kettering Cancer Center