The 20 Best Alexander Disease Doctors Near Me

Find the Top Alexander Disease Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 275 doctor with experience in Alexander Disease. Of these, 193 are Experienced, 79 are Advanced and 3 are Distinguished.

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275 providers found
    Advanced in Alexander Disease
    Advanced in Alexander Disease

    Vanderbilt Medical Group- Teleneurology

    1161 21st Ave South, A-0118 Medical Center North, 
    Nashville, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Brown is rated as an Advanced provider by MediFind in the treatment of Alexander Disease. She is also highly rated in 36 other conditions, according to our data. Her clinical expertise encompasses Movement Disorders, Parkinson's Disease, Huntington Disease, and Hereditary Ataxia. Dr. Brown is board certified in  .

    Advanced in Alexander Disease
    Advanced in Alexander Disease

    Corewell Health Advanced Primary Care - Alpine

    2332 Alpine Avenue Northwest, 
    Grand Rapids, MI 
    Experience:
    27+ years
    Languages Spoken:
    English
    Accepting New Patients

    Christopher Barnes is a primary care provider, practicing in Geriatrics in Grand Rapids, Michigan. He has been practicing medicine for over 27 years. Dr. Barnes is rated as an Advanced provider by MediFind in the treatment of Alexander Disease. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Alexander Disease, Canavan Disease, Farber Lipogranulomatosis, and Pelizaeus-Merzbacher Disease. Dr. Barnes is board certified in American Board Of Family Medicine. Dr. Barnes is currently accepting new patients.

    Advanced in Alexander Disease
    Pediatrics | Medical Genetics
    Advanced in Alexander Disease
    Pediatrics | Medical Genetics

    Rubenstein Child Health Building

    Baltimore, MD 
    Languages Spoken:
    English

    Dr. Gerald Raymond is a clinical geneticist and neurologist at Johns Hopkins where he is also a professor of genetic medicine and neurology. He obtained his MD at the University of Connecticut and was trained in Pediatrics at Johns Hopkins Hospital and Neurology at the Mass. General Hospital. He received additional training in developmental neuropathology at the Universite Catholique de Louvain in Belgium and clinical genetics at the Harvard Program. Dr. Raymond’s research has been at the overlap of genetics and neurology with specific focus on peroxisomal disorders including adrenoleukodystrophy. He has been actively involved in newborn screening for ALD and in developing clinical follow-up programs. He has extensive experience in clinical management of neurogenetic issues including peroxisomal and lysosomal disorders. He presently serves as the Director of the Lysosomal Storage Disease program in the department of Genetic Medicine. Dr. Raymond is rated as an Advanced provider by MediFind in the treatment of Alexander Disease. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), Metachromatic Leukodystrophy, Farber Lipogranulomatosis, and CACH Syndrome. Dr. Raymond is board certified in American Board Of Medical Genetics And Genomics and American Board Of Psychiatry And Neurology.

    Learn about our expert tiers
    Advanced in Alexander Disease
    Advanced in Alexander Disease

    University Of Pittsburgh Physicians, Department Of Neurology

    3471 5th Avenue, Suite 810, 
    Pittsburgh, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mary A. O'Neal, MD, specializes in neurology and is board-certified in neurology by the American Board of Psychiatry and Neurology. Dr. O'Neal completed her fellowship and residency at Boston University Medical Center and medical degree at Oregon Health & Science University. Dr. O'neal is rated as an Advanced provider by MediFind in the treatment of Alexander Disease. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Migraine with Brainstem Aura, Conversion Disorder, Migraine, and Headache. Dr. O'neal is board certified in American Board Of Psychiatry And Neurology. Dr. O'neal is currently accepting new patients.

    Advanced in Alexander Disease
    Pediatric Neurology
    Advanced in Alexander Disease
    Pediatric Neurology

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    32+ years
    Languages Spoken:
    English
    Offers Telehealth

    Sumit Parikh is a Pediatric Neurologist practicing medicine in Cleveland, Ohio. He has been practicing medicine for over 32 years. Dr. Parikh is rated as an Advanced provider by MediFind in the treatment of Alexander Disease. He is also highly rated in 168 other conditions, according to our data. His clinical expertise encompasses Kearns-Sayre Syndrome, Maternally Inherited Leigh Syndrome, Leigh Syndrome, and MELAS Syndrome. Dr. Parikh is board certified in American Board Of Psychiatry And Neurology, 2006.

    Advanced in Alexander Disease
    Neurology
    Advanced in Alexander Disease
    Neurology

    Cleveland Clinic Main Campus

    1950 East 89th Street, 
    Cleveland, OH 
    Experience:
    38+ years
    Languages Spoken:
    English
    Offers Telehealth

    Mary Rensel is a Neurologist practicing medicine in Cleveland, Ohio. She has been practicing medicine for over 38 years. Dr. Rensel is rated as an Advanced provider by MediFind in the treatment of Alexander Disease. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Transverse Myelitis, and Neuromyelitis Optica. Dr. Rensel is board certified in American Board Of Psychiatry And Neurology, 1997.

    Advanced in Alexander Disease
    Physiatry
    Advanced in Alexander Disease
    Physiatry

    Avon - Richard E. Jacobs Health Center

    33100 Cleveland Clinic Boulevard, 
    Avon, OH 
    Experience:
    33+ years
    Languages Spoken:
    English
    Offers Telehealth

    Keith Mckee is a Physiatrist practicing medicine in Avon, Ohio. He has been practicing medicine for over 33 years. Dr. Mckee is rated as an Advanced provider by MediFind in the treatment of Alexander Disease. He is also highly rated in 36 other conditions, according to our data. His clinical expertise encompasses Spastic Paraplegia Type 2, Troyer Syndrome, Spastic Paraplegia-Epilepsy-Intellectual Disability Syndrome, and Spastic Paraplegia Type 5A.

    Advanced in Alexander Disease
    Advanced in Alexander Disease

    Landon Center On Aging

    3599 Rainbow Boulevard, 
    Kansas City, KS 
    Experience:
    44+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Richard Dubinsky is a Neurologist practicing medicine in Kansas City, Kansas. He has been practicing medicine for over 44 years. Dr. Dubinsky is rated as an Advanced provider by MediFind in the treatment of Alexander Disease. He is also highly rated in 47 other conditions, according to our data. His clinical expertise encompasses Huntington Disease, Drug Induced Dyskinesia, Mcleod Neuroacanthocytosis Syndrome, and Tardive Dyskinesia. Dr. Dubinsky is board certified in American Board Of Psychiatry And Neurology, Clinical Neurophysiology - 1992 , American Board Of Electrodiagnostic Medicine, - - 1991 , and American Board Of Psychiatry And Neurology, Neurology - 1988. Dr. Dubinsky is currently accepting new patients.

    Advanced in Alexander Disease
    Pediatric Neurology
    Advanced in Alexander Disease
    Pediatric Neurology

    Kennedy Krieger Institute

    707 North Broadway, Neurology Department, Neurology Department, 
    Baltimore, MD 
    Languages Spoken:
    English, Arabic, Farsi, German

    Dr. Fatemi received his medical degree from the Medical University of Vienna, Austria in 1999. After graduation, he served as a researcher and lecturer at the Institute for Medical Chemistry in Vienna and at the Department of Pediatrics at the Vienna General Hospital. He then moved to the United States to pursue a postdoctoral fellowship in neurogenetics and neuroimaging at Johns Hopkins University School of Medicine in 2001. During this initial period, Dr. Fatemi collaborated with a team of scientists and developed new imaging methods in patients with leukodystrophies (rare genetic diseases that affect the brain's white matter) and coordinated an internet-2 based imaging network for these diseases. He then left Kennedy Krieger Institute to train in general pediatrics and then completed a child neurology residency at the Massachusetts General Hospital, an affiliate of Harvard Medical School. Dr. Fatemi returned to the Kennedy Krieger Institute in 2008 as faculty. He is a member of the Child Neurology Society, the International Child Neurology Association, the Society for Neuroscience, the American Academy of Neurology and the International Society for Magnetic Resonance in Medicine. He has served as ad hoc reviewer for the Journals Child Development and American Journal of Neuroradiology. Dr. Fatemi is rated as an Advanced provider by MediFind in the treatment of Alexander Disease. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), CACH Syndrome, Canavan Disease, and Pelizaeus-Merzbacher Disease. Dr. Fatemi is board certified in American Board Of Psychiatry And Neurology.

    Distinguished in Alexander Disease
    Family Medicine
    Distinguished in Alexander Disease
    Family Medicine

    University Of Illinois Hospital

    1331 W 75th St, 
    Naperville, IL 
    Languages Spoken:
    English

    Masahito Jimbo is a primary care provider, practicing in Family Medicine in Naperville, Illinois. Dr. Jimbo is rated as a Distinguished provider by MediFind in the treatment of Alexander Disease. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Leukodystrophy, Alexander Disease, CACH Syndrome, and Canavan Disease.

    Distinguished in Alexander Disease
    Distinguished in Alexander Disease

    Outpatient Neurologic Rehabilitation Program

    213 Quarry Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Jacinda Sampson is a Neurologist practicing medicine in Palo Alto, California. Dr. Sampson is rated as a Distinguished provider by MediFind in the treatment of Alexander Disease. She is also highly rated in 73 other conditions, according to our data. Her clinical expertise encompasses Paramyotonia Congenita, Myotonic Dystrophy, Myotonic Dystrophy Type 2, Oculodentodigital Dysplasia, and Thymectomy.

    Distinguished in Alexander Disease
    Distinguished in Alexander Disease

    Regents Of The Univ. Of Michigan

    4260 Plymouth Rd, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Vikram Shakkottai is a Neurologist practicing medicine in Ann Arbor, Michigan. Dr. Shakkottai is rated as a Distinguished provider by MediFind in the treatment of Alexander Disease. He is also highly rated in 72 other conditions, according to our data. His clinical expertise encompasses Olivopontocerebellar Atrophy, Spinocerebellar Ataxia, Spinocerebellar Ataxia Type 1, and Drug Induced Dyskinesia.

    Advanced in Alexander Disease
    Advanced in Alexander Disease

    Office

    4 Glen Cove Dr Ste 102, 
    Rockport, ME 
    Languages Spoken:
    English

    Robert Stein is a Neurologist practicing medicine in Rockport, Maine. Dr. Stein is rated as an Advanced provider by MediFind in the treatment of Alexander Disease. He is also highly rated in 46 other conditions, according to our data. His clinical expertise encompasses Autosomal Dominant Nocturnal Frontal Lobe Epilepsy (ADNFLE), Seizures, Stroke, and Myasthenia Gravis.

    Experienced in Alexander Disease
    Neurology
    Experienced in Alexander Disease
    Neurology

    Banner - University Medicine North

    3838 North Campbell Avenue, Building 2, 
    Tucson, AZ 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    I like to hike, bird watch and walk my dog. Dr. Coull is rated as an Experienced provider by MediFind in the treatment of Alexander Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Pulmonary Arteriovenous Fistula, Stroke, Multiple Sclerosis (MS), Transmyocardial Revascularization, and Stent Placement. Dr. Coull is board certified in American Board Of Psychiatry & Neurology-Vascular Neurology and American Board Of Psychiatry & Neurology. Dr. Coull is currently accepting new patients.

    Experienced in Alexander Disease
    Neurology | Pediatric Neurology
    Experienced in Alexander Disease
    Neurology | Pediatric Neurology

    Johns Hopkins All Children's Hospital

    501 6th Avenue South, 
    Saint Petersburg, FL 
    Languages Spoken:
    English, Hungarian
    Offers Telehealth

    Dr. Huszar specializes in care for hospitalized pediatric neurology patients in the Johns Hopkins All Children’s Institute for Brain Protection Sciences in St. Petersburg, Florida. He rejoined the medical staff in 2023 after a previous stint from 2014-19. Dr. Huszar’s clinical and research interests include neonatal and childhood cerebrovascular disorders and childhood primary headaches. Dr. Huszar received his medical degree from Albert Szent-Gyorgyi Medical University (SZOTE) in Szeged, Hungary. Dr. Huszar trained in pediatrics at Erzsebet Hospital in Hodmezovasarhely, Hungary and SUNY Downstate Medical Center in Brooklyn, New York. He then completed a pediatric neurology residency/fellowship at SUNY Downstate Medical Center. Dr. Huszar is rated as an Experienced provider by MediFind in the treatment of Alexander Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), and Microcephaly with Spastic Quadriplegia. Dr. Huszar is board certified in American Board Of Psychiatry And Neurology.

    Experienced in Alexander Disease
    Experienced in Alexander Disease

    Cleveland Clinic Main Campus

    1950 East 89th Street, 
    Cleveland, OH 
    Languages Spoken:
    English
    Offers Telehealth

    Justin Abbatemarco is a Neurologist practicing medicine in Cleveland, Ohio. Dr. Abbatemarco is rated as an Experienced provider by MediFind in the treatment of Alexander Disease. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Encephalitis, Multiple Sclerosis (MS), Stiff Person Syndrome, and Optic Neuritis. Dr. Abbatemarco is board certified in American Board Of Psychiatry And Neurology, 2019.

    Experienced in Alexander Disease
    Experienced in Alexander Disease

    Geisinger Wilkes Barre - Neurology

    620 Baltimore Drive, 
    Wilkes Barre, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. Finney is a behavioral neurologist board certified by the American Board of Psychiatry and Neurology and in behavioral neurology and neuropsychiatry by the United Council for Neurologic Subspecialties. His clinical interests include Alzheimer’s disease, dementia, Lewy body dementia, mild cognitive impairment, vascular dementia and disorders of memory, thinking and cognition. He earned his medical degree from Temple University School of Medicine in Philadelphia, PA, completed his neurology residency at Jackson Memorial Hospital/University of Miami in Miami, FL, and his behavioral neurology fellowship at University of Florida in Gainsville, FL. Dr. Finney is director of the Geisinger Memory and Cognition Program.|His personal interests include reading and writing science fiction, alternate history (the fan fiction of history), and fantasy as well as watching television and movies in these genres, especially the long-running British science fiction television show, Doctor Who. He loves karaoke, dancing, and going to concerts spanning artists from the 1950s to the present day. One of Dr. Finney's passions is neurology advocacy and he has been active in engaging policymakers on critical healthcare issues since medical school. Dr. Finney is rated as an Experienced provider by MediFind in the treatment of Alexander Disease. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Memory Loss, Cerebellar Degeneration, Dementia, and Lewy Body Dementia (LBD). Dr. Finney is currently accepting new patients.

    Experienced in Alexander Disease
    Experienced in Alexander Disease

    UT Southwestern - Neurology

    5323 Harry Hines Blvd., 
    Dallas, TX 
    Languages Spoken:
    English

    Jennifer Thomas is a Neurologist practicing medicine in Dallas, Texas. Dr. Thomas is rated as an Experienced provider by MediFind in the treatment of Alexander Disease. She is also highly rated in 112 other conditions, according to our data. Her clinical expertise encompasses Aphantasia, GAPO Syndrome, Lissencephaly, and Joubert Syndrome.

    Experienced in Alexander Disease
    Experienced in Alexander Disease

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 5, Floor 5, 
    Baltimore, MD 
    Languages Spoken:
    English, Spanish
    Offers Telehealth

    Dr. Ankur Butala specializes in the care of persons with complex neuropsychiatric conditions, including persons with advanced Parkinson Disease or other movement or neurodegenerative disorders. Upon graduating from a selective Physician-Scientist program at Albany Medical College, he joined the University of Massachusetts in an uncommon residency in both Neurology and Psychiatry. Dual-trained neuropsychiatrists such as Dr. Butala have experience with: Parkinson Disease and atypical Parkinsonism, Huntington Disease, Ataxia, Dystonia, early-onset dementia, traumatic brain injury and chronic traumatic encephalopathy, autism spectrum disorders, medication refractory mood and psychotic disorders, epilepsy and functional neurological disorders. In residency, he developed an interest in circuit models of brain function and how non-pharmacological approaches such as Neuromodulation and brain stimulation may be used to address treatment-resistant conditions. Consequently, he joined Johns Hopkins University School of Medicine as a Clinical and Research Fellow from 2015 to 2018, where he developed a skill set including deep brain stimulation, non-invasive brain stimulation (tDCS), and measurement of eye movements. Currently, Dr. Butala's clinical and research interests are in diagnosing and managing persons with advanced Parkinson's Disease, movement disorders, and neuropsychiatric conditions using neuromodulation, cannabinoids, and entheogens. He has ongoing multidisciplinary collaborations with colleagues at the Whiting School of Engineering - Center of Speech & Language Processing in using Machine-Learning Models and Artificial Intelligence to improve the detection and diagnosis of Movement and Neuropsychiatric disorders. LinkedIn https://www.linkedin.com/in/ankurbutalamd Videos Neurology: Junior Faculty Spotlight. Dr. Butala is rated as an Experienced provider by MediFind in the treatment of Alexander Disease. He is also highly rated in 42 other conditions, according to our data. His clinical expertise encompasses Parkinson's Disease, Corticobasal Degeneration, Movement Disorders, Drug Induced Dyskinesia, and Deep Brain Stimulation. Dr. Butala is board certified in American Board Of Psychiatry And Neurology.

    Experienced in Alexander Disease
    Experienced in Alexander Disease

    Prisma Health Neurology–Greenville

    200 Patewood Drive, Suite B350, 
    Greenville, SC 
    Languages Spoken:
    English
    Offers Telehealth

    Joseph Hanna is a Neurologist practicing medicine in Greenville, South Carolina. Dr. Hanna is rated as an Experienced provider by MediFind in the treatment of Alexander Disease. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Memory Loss, Seizures, Stroke, Gastrostomy, and Transmyocardial Revascularization. Dr. Hanna is board certified in American Board Of Psychiatry And Neurology.

    Showing 1-20 of 275

    Last Updated: 04/28/2026

    What is the definition of Alexander Disease?

    Alexander disease is a rare disorder of the nervous system. It is one of a group of disorders, called leukodystrophies, that involve the destruction of myelin. Myelin is the fatty covering that insulates nerve fibers and promotes the rapid transmission of nerve impulses. If myelin is not properly maintained, the transmission of nerve impulses could be disrupted. As myelin deteriorates in leukodystrophies such as Alexander disease, nervous system functions are impaired.

    When should I see an Alexander Disease doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Alexander Disease doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Alexander Disease doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Alexander Disease doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Alexander Disease doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Alexander Disease doctor search results page. 

    Why is it important to get a second opinion from a different Alexander Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Alexander Disease doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Alexander Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Alexander Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Alexander Disease doctors near me?

    Look for the filter feature on the left side of the Alexander Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Alexander Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Alexander Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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