The 20 Best Alexander Disease Doctors Near Me

Find the Top Alexander Disease Experts and Specialists

The 20 Best Alexander Disease Doctors Near Me

Last Updated: 02/22/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 271 doctor with experience in Alexander Disease. Of these, 191 are Experienced, 77 are Advanced and 3 are Distinguished.

Location
LocationClose
271 providers found
    Advanced in Alexander Disease
    Advanced in Alexander Disease

    Vanderbilt Medical Group- Teleneurology

    1161 21st Ave South, A-0118 Medical Center North, 
    Nashville, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Brown is rated as an Advanced provider by MediFind in the treatment of Alexander Disease. Her top areas of expertise are Movement Disorders, Parkinson's Disease, Hereditary Ataxia, and Huntington Disease.

    Gerald V. Raymond
    Advanced in Alexander Disease
    Pediatrics | Medical Genetics
    Advanced in Alexander Disease
    Pediatrics | Medical Genetics

    Rubenstein Child Health Building

    Baltimore, MD 
    Languages Spoken:
    English

    Dr. Gerald Raymond is a clinical geneticist and neurologist at Johns Hopkins where he is also a professor of genetic medicine and neurology. He obtained his MD at the University of Connecticut and was trained in Pediatrics at Johns Hopkins Hospital and Neurology at the Mass. General Hospital. He received additional training in developmental neuropathology at the Universite Catholique de Louvain in Belgium and clinical genetics at the Harvard Program. Dr. Raymond’s research has been at the overlap of genetics and neurology with specific focus on peroxisomal disorders including adrenoleukodystrophy. He has been actively involved in newborn screening for ALD and in developing clinical follow-up programs. He has extensive experience in clinical management of neurogenetic issues including peroxisomal and lysosomal disorders. He presently serves as the Director of the Lysosomal Storage Disease program in the department of Genetic Medicine. Dr. Raymond is rated as an Advanced provider by MediFind in the treatment of Alexander Disease. His top areas of expertise are Adrenoleukodystrophy (ALD), Leukodystrophy, Pelizaeus-Merzbacher Disease, and Alexander Disease.

    Mary Rensel
    Advanced in Alexander Disease
    Neurology
    Advanced in Alexander Disease
    Neurology

    Cleveland Clinic Main Campus

    1950 East 89th Street, 
    Cleveland, OH 
    Experience:
    38+ years
    Languages Spoken:
    English
    Offers Telehealth

    Mary Rensel is a Neurologist in Cleveland, Ohio. Dr. Rensel has been practicing medicine for over 38 years and is rated as an Advanced provider by MediFind in the treatment of Alexander Disease. Her top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Transverse Myelitis, and Neuromyelitis Optica.

    Learn about our expert tiers
    Keith Mckee
    Advanced in Alexander Disease
    Physiatry
    Advanced in Alexander Disease
    Physiatry

    Avon - Richard E. Jacobs Health Center

    33100 Cleveland Clinic Boulevard, 
    Avon, OH 
    Experience:
    33+ years
    Languages Spoken:
    English
    Offers Telehealth

    Keith Mckee is a Physiatrist in Avon, Ohio. Dr. Mckee has been practicing medicine for over 33 years and is rated as an Advanced provider by MediFind in the treatment of Alexander Disease. His top areas of expertise are Spastic Paraplegia-Epilepsy-Intellectual Disability Syndrome, Spastic Paraplegia Type 5A, Troyer Syndrome, and Spastic Paraplegia Type 2.

    Richard M. Dubinsky
    Advanced in Alexander Disease
    Advanced in Alexander Disease

    Landon Center On Aging

    3599 Rainbow Boulevard, 
    Kansas City, KS 
    Experience:
    44+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Richard Dubinsky is a Neurologist in Kansas City, Kansas. Dr. Dubinsky has been practicing medicine for over 44 years and is rated as an Advanced provider by MediFind in the treatment of Alexander Disease. His top areas of expertise are Huntington Disease, Drug Induced Dyskinesia, Mcleod Neuroacanthocytosis Syndrome, and Tardive Dyskinesia. Dr. Dubinsky is currently accepting new patients.

    Todd Rafferty
    Advanced in Alexander Disease
    Family Medicine
    Advanced in Alexander Disease
    Family Medicine

    Stow-Falls Express And Outpatient Care

    857 Graham Road, 
    Cuyahoga Fls, OH 
    Languages Spoken:
    English

    Todd Rafferty is a primary care provider, practicing in Family Medicine in Cuyahoga Fls, Ohio. Dr. Rafferty is rated as an Advanced provider by MediFind in the treatment of Alexander Disease. His top areas of expertise are Type 2 Diabetes (T2D), Maturity Onset Diabetes of the Young, Farber Lipogranulomatosis, and Canavan Disease.

    Distinguished in Alexander Disease
    Family Medicine
    Distinguished in Alexander Disease
    Family Medicine

    University Of Illinois Hospital

    1331 W 75th St, 
    Naperville, IL 
    Languages Spoken:
    English

    Masahito Jimbo is a primary care provider, practicing in Family Medicine in Naperville, Illinois. Dr. Jimbo is rated as a Distinguished provider by MediFind in the treatment of Alexander Disease. His top areas of expertise are Pelizaeus-Merzbacher Disease, Canavan Disease, Alexander Disease, and Farber Lipogranulomatosis.

    Distinguished in Alexander Disease
    Distinguished in Alexander Disease

    Outpatient Neurologic Rehabilitation Program

    213 Quarry Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Jacinda Sampson is a Neurologist in Palo Alto, California. Dr. Sampson is rated as a Distinguished provider by MediFind in the treatment of Alexander Disease. Her top areas of expertise are Oculodentodigital Dysplasia, Myotonic Dystrophy Type 2, Myotonic Dystrophy, Paramyotonia Congenita, and Thymectomy.

    Distinguished in Alexander Disease
    Distinguished in Alexander Disease

    Regents Of The Univ. Of Michigan

    4260 Plymouth Rd, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Vikram Shakkottai is a Neurologist in Ann Arbor, Michigan. Dr. Shakkottai is rated as a Distinguished provider by MediFind in the treatment of Alexander Disease. His top areas of expertise are Olivopontocerebellar Atrophy, Spinocerebellar Ataxia, Spinocerebellar Ataxia Type 1, and Drug Induced Dyskinesia.

    Advanced in Alexander Disease
    Advanced in Alexander Disease

    Office

    4 Glen Cove Dr Ste 102, 
    Rockport, ME 
    Languages Spoken:
    English
    Offers Telehealth

    Robert Stein is a Neurologist in Rockport, Maine. Dr. Stein is rated as an Advanced provider by MediFind in the treatment of Alexander Disease. His top areas of expertise are Autosomal Dominant Nocturnal Frontal Lobe Epilepsy (ADNFLE), Stroke, Seizures, and Myasthenia Gravis.

    Advanced in Alexander Disease
    Family Medicine
    Advanced in Alexander Disease
    Family Medicine

    Mu General Pediatrics Clinic

    551 Veterans United Dr, 
    Columbia, MO 
    Languages Spoken:
    English

    Christine Wilson is a primary care provider, practicing in Family Medicine in Columbia, Missouri. Dr. Wilson is rated as an Advanced provider by MediFind in the treatment of Alexander Disease. Her top areas of expertise are Leukodystrophy, Farber Lipogranulomatosis, CACH Syndrome, and Pelizaeus-Merzbacher Disease.

    Advanced in Alexander Disease
    Family Medicine
    Advanced in Alexander Disease
    Family Medicine

    Mfi Recovery Center

    1455 3rd Ave, 
    San Bernardino, CA 
    Languages Spoken:
    English

    Hugo Leon is a primary care provider, practicing in Family Medicine in San Bernardino, California. Dr. Leon is rated as an Advanced provider by MediFind in the treatment of Alexander Disease. His top areas of expertise are Tracheitis, Diskitis, CACH Syndrome, and Canavan Disease.

    Bruce Coull
    Experienced in Alexander Disease
    Neurology
    Experienced in Alexander Disease
    Neurology

    Banner - University Medicine North

    3838 North Campbell Avenue, Building 2, 
    Tucson, AZ 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    I like to hike, bird watch and walk my dog. Dr. Coull is rated as an Experienced provider by MediFind in the treatment of Alexander Disease. His top areas of expertise are Pulmonary Arteriovenous Fistula, Stroke, Relapsing Multiple Sclerosis (RMS), Stent Placement, and Transmyocardial Revascularization.

    Justin Abbatemarco
    Experienced in Alexander Disease
    Experienced in Alexander Disease

    Cleveland Clinic Main Campus

    1950 East 89th Street, 
    Cleveland, OH 
    Languages Spoken:
    English
    Offers Telehealth

    Justin Abbatemarco is a Neurologist in Cleveland, Ohio. Dr. Abbatemarco is rated as an Experienced provider by MediFind in the treatment of Alexander Disease. His top areas of expertise are Encephalitis, Multiple Sclerosis (MS), Stiff Person Syndrome, and Optic Neuritis.

    Gary Hsich
    Experienced in Alexander Disease
    Pediatric Neurology
    Experienced in Alexander Disease
    Pediatric Neurology

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    35+ years
    Languages Spoken:
    English

    Gary Hsich is a Pediatric Neurologist in Cleveland, Ohio. Dr. Hsich has been practicing medicine for over 35 years and is rated as an Experienced provider by MediFind in the treatment of Alexander Disease. His top areas of expertise are Ruvalcaba Syndrome, Lhermitte-Duclos Disease, Tension Headache, and Spasmus Nutans.

    Cassandra L. Tunis
    Experienced in Alexander Disease
    Family Medicine
    Experienced in Alexander Disease
    Family Medicine

    Geisinger Pittston - Community Medicine

    42 North Main Street, 
    Pittston, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Dr. Tunis is a board-certified physician specializing in family medicine. She attended Philadelphia College of Osteopathic Medicine, where she earned her medical degree. She completed her residency at Geisinger Wyoming Valley Medical Center. Dr. Tunis is certified by the American Board of Family Medicine. Dr. Tunis is rated as an Experienced provider by MediFind in the treatment of Alexander Disease. Her top areas of expertise are Colorectal Cancer, Familial Colorectal Cancer, Vitamin D Deficiency, and Hypothyroidism.

    James Liao
    Experienced in Alexander Disease
    Neurology
    Experienced in Alexander Disease
    Neurology

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    21+ years
    Languages Spoken:
    English
    Offers Telehealth

    James Liao is a Neurologist in Cleveland, Ohio. Dr. Liao has been practicing medicine for over 21 years and is rated as an Experienced provider by MediFind in the treatment of Alexander Disease. His top areas of expertise are Chorea, Movement Disorders, Parkinson's Disease, Drug Induced Dyskinesia, and Deep Brain Stimulation.

    Daniel Ontaneda
    Experienced in Alexander Disease
    Experienced in Alexander Disease

    Cleveland Clinic Main Campus

    1950 East 89th Street, 
    Cleveland, OH 
    Languages Spoken:
    English, Spanish

    Daniel Ontaneda is a Neurologist in Cleveland, Ohio. Dr. Ontaneda is rated as an Experienced provider by MediFind in the treatment of Alexander Disease. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), CACH Syndrome, and Encephalitis.

    Alise Carlson
    Experienced in Alexander Disease
    Experienced in Alexander Disease

    Cleveland Clinic Main Campus

    1950 East 89th Street, 
    Cleveland, OH 
    Experience:
    15+ years
    Languages Spoken:
    English
    Offers Telehealth

    Alise Carlson is a Neurologist in Cleveland, Ohio. Dr. Carlson has been practicing medicine for over 15 years and is rated as an Experienced provider by MediFind in the treatment of Alexander Disease. Her top areas of expertise are Multiple Sclerosis (MS), Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, Relapsing Multiple Sclerosis (RMS), and Rasmussen Encephalitis.

    Mary-louise J. Ferris
    Experienced in Alexander Disease
    Experienced in Alexander Disease

    San Carlos Center Urgent Care

    301 Industrial Road, Level 1, 
    San Carlos, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Mary-louise Ferris is a primary care provider, practicing in Family Medicine in San Carlos, California. Dr. Ferris is rated as an Experienced provider by MediFind in the treatment of Alexander Disease. Her top areas of expertise are Gastrointestinal Stromal Tumor, Milk-Alkali Syndrome, Familial Hypocalciuric Hypercalcemia Type 1, and Hypercalcemia. Dr. Ferris is currently accepting new patients.

    Showing 1-20 of 271

    Last Updated: 02/22/2026

    What is the definition of Alexander Disease?

    Alexander disease is a rare disorder of the nervous system. It is one of a group of disorders, called leukodystrophies, that involve the destruction of myelin. Myelin is the fatty covering that insulates nerve fibers and promotes the rapid transmission of nerve impulses. If myelin is not properly maintained, the transmission of nerve impulses could be disrupted. As myelin deteriorates in leukodystrophies such as Alexander disease, nervous system functions are impaired.

    When should I see an Alexander Disease doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Alexander Disease doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Alexander Disease doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Alexander Disease doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Alexander Disease doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Alexander Disease doctor search results page. 

    Why is it important to get a second opinion from a different Alexander Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Alexander Disease doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Alexander Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Alexander Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Alexander Disease doctors near me?

    Look for the filter feature on the left side of the Alexander Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Alexander Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Alexander Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy

    More Alexander Disease Doctors by state