Filters

Specialty
Additional Specialty
Distance
    Gender
    Availability
    Language
    Insurance
    Years of Experience
    Level of Expertise

    Last Updated: 05/01/2025

    Save doctors for later
    Sign Up
    Not sure about your diagnosis?
    Check Your Symptoms
    Already have a doctor?
    Find A Second Opinion

    MediFind found 445 doctor with experience in Alpha Mannosidosis. Of these, 350 are Experienced, 75 are Advanced, 15 are Distinguished and 5 are Elite.

    Location
    LocationClose
    445 providers found
      Paul J. Orchard
      Distinguished in Alpha Mannosidosis
      Pediatric Hematology Oncology | Pediatrics | Hematology
      Distinguished in Alpha Mannosidosis
      Pediatric Hematology Oncology | Pediatrics | Hematology

      Center For Pediatric Blood And Marrow Transplantation - Pediatric Specialty Care Journey Clinic

      2450 Riverside Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Paul Orchard is a Pediatric Hematologist Oncology specialist and a Pediatrics provider in Minneapolis, MN. Dr. Orchard and is rated as a Distinguished provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Adrenoleukodystrophy (ALD), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Bone Marrow Transplant, and Osteotomy.

      Elite in Alpha Mannosidosis
      Elite in Alpha Mannosidosis
      Lyon, FR 

      Nathalie Guffon practices in Lyon, France. Guffon and is rated as an Elite expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Alpha Mannosidosis, Acid Sphingomyelinase Deficiency (ASMD), Mucopolysaccharidoses (MPS), and Niemann-Pick Disease.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in Alpha Mannosidosis
      Elite in Alpha Mannosidosis
      Madrid, MD, ES 

      Mercedes Campos-Gil practices in Madrid, Spain. Campos-Gil and is rated as an Elite expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Alpha Mannosidosis, Congenital Hyperinsulinism, Obesity in Children, Obesity, and Bone Marrow Transplant.

      Learn about our expert tiers
      Elite in Alpha Mannosidosis
      Elite in Alpha Mannosidosis
      Horsholm, DK 

      Allan Lund practices in Horsholm, Denmark. Lund and is rated as an Elite expert by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Primary Carnitine Deficiency, Alpha Mannosidosis, Argininosuccinic Aciduria, and Urea Cycle Disorders (UCD).

      Elite in Alpha Mannosidosis
      Elite in Alpha Mannosidosis
      Hamburg, HH, DE 

      Nicole Muschol practices in Hamburg, Germany. Muschol and is rated as an Elite expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), Alpha Mannosidosis, Osteotomy, and Bone Marrow Transplant.

      Elite in Alpha Mannosidosis
      Elite in Alpha Mannosidosis
      Copenhagen, DK 

      Line Borgwardt practices in Copenhagen, Denmark. Borgwardt and is rated as an Elite expert by MediFind in the treatment of Alpha Mannosidosis. Their top areas of expertise are Alpha Mannosidosis, Familial Hypocalciuric Hypercalcemia Type 1, Immunodeficiency with Hyper IgM Type 1, and Ovarian Hyperstimulation Syndrome.

      Julie A. Biller
      Advanced in Alpha Mannosidosis
      Pulmonary Medicine | Pediatric Pulmonology
      Advanced in Alpha Mannosidosis
      Pulmonary Medicine | Pediatric Pulmonology

      The Medical College Of Wisconsin Inc

      Milwaukee, WI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Julie Biller is a Pulmonary Medicine specialist and a Pediatric Pulmonologist in Milwaukee, Wisconsin. Dr. Biller and is rated as an Advanced provider by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Cystic Fibrosis, Secondary Immunodeficiency (SID), Newborn Jaundice, and Lung Metastases. Dr. Biller is currently accepting new patients.

      Experienced in Alpha Mannosidosis
      Pediatric Hematology Oncology | Hematology Oncology | Pediatrics
      Experienced in Alpha Mannosidosis
      Pediatric Hematology Oncology | Hematology Oncology | Pediatrics

      Duke Health Integrated Practice Inc

      2351 Erwin Rd, 
      Durham, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Joanne Kurtzberg is a Pediatric Hematologist Oncology specialist and a Hematologist Oncology provider in Durham, North Carolina. Dr. Kurtzberg and is rated as an Experienced provider by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Metachromatic Leukodystrophy, Graft Versus Host Disease (GvHD), Leukodystrophy, Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), and Bone Marrow Transplant. Dr. Kurtzberg is currently accepting new patients.

      Distinguished in Alpha Mannosidosis
      Medical Genetics
      Distinguished in Alpha Mannosidosis
      Medical Genetics
      5665 Venture Dr, 
      Dublin, OH 
      Languages Spoken:
      English, Japanese, Somali, Spanish
      Accepting New Patients

      Stephen Kaler is a Medical Genetics provider in Dublin, Ohio. Dr. Kaler and is rated as a Distinguished provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Occipital Horn Syndrome, Menkes Disease, Alpha Mannosidosis, and Chromosome 20 Trisomy. Dr. Kaler is currently accepting new patients.

      Distinguished in Alpha Mannosidosis
      Distinguished in Alpha Mannosidosis
      Mainz, RP, DE 

      Julia Hennermann practices in Mainz, Germany. Hennermann and is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Gaucher Disease Type 3, Alpha Mannosidosis, Fabry Disease, and Phenylketonuria (PKU).

      Distinguished in Alpha Mannosidosis
      Distinguished in Alpha Mannosidosis
      Warsaw, MZ, PL 

      Anna Szymanska-Tylki practices in Warsaw, Poland. Szymanska-Tylki and is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Gaucher Disease, Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome), Gaucher Disease Type 1, and Liver Transplant.

      Distinguished in Alpha Mannosidosis
      Distinguished in Alpha Mannosidosis
      Lynge, DK 

      Jens Fogh practices in Lynge, Denmark. Fogh and is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Alpha Mannosidosis, CLN2 Disease, CLN3 Disease, and CLN1 Disease.

      Distinguished in Alpha Mannosidosis
      Distinguished in Alpha Mannosidosis

      Rigshospitalet

      Copenhagen, DK 

      Christine Dali practices in Copenhagen, Denmark. Dali and is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Metachromatic Leukodystrophy, Alpha Mannosidosis, Leukodystrophy, and Spinocerebellar Ataxia Type 11.

      Distinguished in Alpha Mannosidosis
      Distinguished in Alpha Mannosidosis
      Tromso, NO 

      Dag Malm practices in Tromso, Norway. Malm and is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. His top area of expertise is Alpha Mannosidosis.

      Distinguished in Alpha Mannosidosis
      Distinguished in Alpha Mannosidosis
      Hochheim, TH, DE 

      Yasmina Amraoui practices in Hochheim, Germany. Amraoui and is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Alpha Mannosidosis, Niemann-Pick Disease, Gangliosidosis, and Visceromegaly.

      Distinguished in Alpha Mannosidosis
      Distinguished in Alpha Mannosidosis
      Ancona, IT 

      Lucia Santoro practices in Ancona, Italy. Santoro and is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Alpha Mannosidosis, Mucopolysaccharidoses (MPS), Multiple Sulfatase Deficiency, and Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome).

      Distinguished in Alpha Mannosidosis
      Distinguished in Alpha Mannosidosis
      Copenhagen, DK 

      Lise Borgwardt practices in Copenhagen, Denmark. Borgwardt and is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Alpha Mannosidosis, Eosinophilic Cystitis, Neuroblastoma, Biliary Atresia, and Liver Transplant.

      Distinguished in Alpha Mannosidosis
      Distinguished in Alpha Mannosidosis
      Tromso, NO 

      Oivind Nilssen practices in Tromso, Norway. Nilssen and is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. Their top areas of expertise are Alpha Mannosidosis, Limb-Girdle Muscular Dystrophy Type 2I, CHARGE Syndrome, and Primary Lateral Sclerosis.

      Distinguished in Alpha Mannosidosis
      Distinguished in Alpha Mannosidosis
      Tromso, NO 

      Hilde Stensland-Riise practices in Tromso, Norway. Stensland-Riise and is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. Their top areas of expertise are Alpha Mannosidosis and Beta-Mannosidosis.

      Distinguished in Alpha Mannosidosis
      Distinguished in Alpha Mannosidosis
      Parma, IT 

      Diego Ardigo practices in Parma, Italy. Ardigo and is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. His top area of expertise is Alpha Mannosidosis.

      Showing 1-20 of 445

      Last Updated: 05/01/2025

      What is the definition of Alpha Mannosidosis?

      Alpha-mannosidosis is a rare inherited disorder that causes problems in many organs and tissues of the body. Affected individuals may have intellectual disability, distinctive facial features, and skeletal abnormalities. Characteristic facial features can include a large head, prominent forehead, low hairline, rounded eyebrows, large ears, flattened bridge of the nose, protruding jaw, widely spaced teeth, overgrown gums, and large tongue. The skeletal abnormalities that can occur in this disorder include reduced bone density (osteopenia), thickening of the bones at the top of the skull (calvaria), deformations of the bones in the spine (vertebrae), knock knees, and deterioration of the bones and joints.

      When should I see an Alpha Mannosidosis doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Alpha Mannosidosis doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Alpha Mannosidosis doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Alpha Mannosidosis doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Alpha Mannosidosis doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Alpha Mannosidosis doctor search results page. 

      Why is it important to get a second opinion from a different Alpha Mannosidosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Alpha Mannosidosis doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Alpha Mannosidosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Alpha Mannosidosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Alpha Mannosidosis doctors near me?

      Look for the filter feature on the left side of the Alpha Mannosidosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Alpha Mannosidosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Alpha Mannosidosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy

      More Alpha Mannosidosis Doctors by state