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    Last Updated: 10/30/2025

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    MediFind found 534 doctor with experience in Alpha Mannosidosis. Of these, 401 are Experienced, 111 are Advanced, 16 are Distinguished and 6 are Elite.

    Location
    LocationClose
    534 providers found
      Elite in Alpha Mannosidosis
      Elite in Alpha Mannosidosis
      Lyon, FR 

      Nathalie Guffon practices in Lyon, France. Ms. Guffon is rated as an Elite expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Alpha Mannosidosis, Acid Sphingomyelinase Deficiency (ASMD), Mucopolysaccharidoses (MPS), and Niemann-Pick Disease.

      Elite in Alpha Mannosidosis
      Elite in Alpha Mannosidosis
      Cordoba, AN, ES 

      Mercedes Campos-Gil practices in Cordoba, Spain. Ms. Campos-Gil is rated as an Elite expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Alpha Mannosidosis, Congenital Hyperinsulinism, Obesity in Children, Obesity, and Bone Marrow Transplant.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in Alpha Mannosidosis
      Elite in Alpha Mannosidosis
      Hamburg, HH, DE 

      Nicole Muschol practices in Hamburg, Germany. Ms. Muschol is rated as an Elite expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), Alpha Mannosidosis, Osteotomy, and Bone Marrow Transplant.

      Learn about our expert tiers
      Elite in Alpha Mannosidosis
      Elite in Alpha Mannosidosis
      Copenhagen, DK 

      Allan Lund practices in Copenhagen, Denmark. Mr. Lund is rated as an Elite expert by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Primary Carnitine Deficiency, Alpha Mannosidosis, Argininosuccinic Aciduria, Urea Cycle Disorders (UCD), and Bone Marrow Transplant.

      Elite in Alpha Mannosidosis
      Elite in Alpha Mannosidosis
      Copenhagen, DK 

      Line Borgwardt practices in Copenhagen, Denmark. Borgwardt is rated as an Elite expert by MediFind in the treatment of Alpha Mannosidosis. Their top areas of expertise are Alpha Mannosidosis, Familial Hypocalciuric Hypercalcemia Type 1, Immunodeficiency with Hyper IgM Type 1, and Ovarian Hyperstimulation Syndrome.

      Elite in Alpha Mannosidosis
      Elite in Alpha Mannosidosis
      Mainz, RP, DE 

      Julia Hennermann practices in Mainz, Germany. Ms. Hennermann is rated as an Elite expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Gaucher Disease Type 3, Alpha Mannosidosis, Fabry Disease, and Phenylketonuria (PKU).

      Julie A. Biller
      Advanced in Alpha Mannosidosis
      Pulmonary Medicine | Pediatric Pulmonology
      Advanced in Alpha Mannosidosis
      Pulmonary Medicine | Pediatric Pulmonology

      The Medical College Of Wisconsin Inc

      8701 Watertown Plank Rd, Room 4041 Mfrc, 
      Milwaukee, WI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Julie Biller is a Pulmonary Medicine specialist and a Pediatric Pulmonologist in Milwaukee, Wisconsin. Dr. Biller is rated as an Advanced provider by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Cystic Fibrosis, Secondary Immunodeficiency (SID), Newborn Jaundice, and Lung Metastases. Dr. Biller is currently accepting new patients.

      Paul J. Orchard
      Distinguished in Alpha Mannosidosis
      Pediatric Hematology Oncology
      Distinguished in Alpha Mannosidosis
      Pediatric Hematology Oncology

      Center For Pediatric Blood And Marrow Transplantation - Pediatric Specialty Care Journey Clinic

      2450 Riverside Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Paul Orchard is a Pediatric Hematologist Oncology provider in Minneapolis, MN. Dr. Orchard is rated as a Distinguished provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Adrenoleukodystrophy (ALD), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Bone Marrow Transplant, and Osteotomy.

      Distinguished in Alpha Mannosidosis
      Medical Genetics
      Distinguished in Alpha Mannosidosis
      Medical Genetics
      5665 Venture Dr, 
      Dublin, OH 
      Languages Spoken:
      English, Japanese, Somali, Spanish
      Accepting New Patients

      Stephen Kaler is a Medical Genetics provider in Dublin, Ohio. Dr. Kaler is rated as a Distinguished provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Menkes Disease, Occipital Horn Syndrome, Alpha Mannosidosis, and Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome). Dr. Kaler is currently accepting new patients.

      Distinguished in Alpha Mannosidosis
      Distinguished in Alpha Mannosidosis
      Warsaw, MZ, PL 

      Anna Szymanska-Tylki practices in Warsaw, Poland. Ms. Szymanska-Tylki is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Gaucher Disease, Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome), Gaucher Disease Type 1, and Liver Transplant.

      Distinguished in Alpha Mannosidosis
      Distinguished in Alpha Mannosidosis

      Juan A Fernandez MD PA

      5040 Nw 7th St, Suite 370, 
      Miami, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Juan Fernandez is a Nephrologist in Miami, Florida. Dr. Fernandez is rated as a Distinguished provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Schindler Disease, Fucosidosis, Beta-Mannosidosis, Aspartylglucosaminuria, and Gastrostomy. Dr. Fernandez is currently accepting new patients.

      Distinguished in Alpha Mannosidosis
      Distinguished in Alpha Mannosidosis
      Ancona, IT 

      Lucia Santoro practices in Ancona, Italy. Ms. Santoro is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Alpha Mannosidosis, Mucopolysaccharidoses (MPS), Multiple Sulfatase Deficiency, Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), and Bone Marrow Transplant.

      Distinguished in Alpha Mannosidosis
      Distinguished in Alpha Mannosidosis
      Lynge, DK 

      Jens Fogh practices in Lynge, Denmark. Mr. Fogh is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Alpha Mannosidosis, CLN2 Disease, CLN3 Disease, and CLN5 Disease.

      Distinguished in Alpha Mannosidosis
      Nephrology | Hospital Medicine
      Distinguished in Alpha Mannosidosis
      Nephrology | Hospital Medicine

      Victor Lopez De Mendoza, MD PLLC

      3661 S Miami Ave, Suite 901, 
      Miami, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Victor Lopez-De is a Nephrologist and a Hospital Medicine provider in Miami, Florida. Dr. Lopez-De is rated as a Distinguished provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are End-Stage Renal Disease (ESRD), Acute Kidney Failure, Beta-Mannosidosis, Knee Replacement, and Endoscopy. Dr. Lopez-De is currently accepting new patients.

      Distinguished in Alpha Mannosidosis
      Distinguished in Alpha Mannosidosis
      Copenhagen, DK 

      Christine Dali practices in Copenhagen, Denmark. Ms. Dali is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Alpha Mannosidosis, Metachromatic Leukodystrophy, Leukodystrophy, and Spinocerebellar Ataxia Type 11.

      Distinguished in Alpha Mannosidosis
      Distinguished in Alpha Mannosidosis
      Tromso, NO 

      Dag Malm practices in Tromso, Norway. Mr. Malm is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. His top area of expertise is Alpha Mannosidosis.

      Distinguished in Alpha Mannosidosis
      Distinguished in Alpha Mannosidosis
      Hochheim, TH, DE 

      Yasmina Amraoui practices in Hochheim, Germany. Ms. Amraoui is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Alpha Mannosidosis, Niemann-Pick Disease, Visceromegaly, and Gangliosidosis.

      Distinguished in Alpha Mannosidosis
      Pediatric Hematology Oncology
      Distinguished in Alpha Mannosidosis
      Pediatric Hematology Oncology

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Troy Lund is a Pediatric Hematologist Oncology provider in Minneapolis, Minnesota. Dr. Lund is rated as a Distinguished provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Adrenoleukodystrophy (ALD), Alpha Mannosidosis, Glucose-6-Phosphate Dehydrogenase Deficiency, Aspartylglucosaminuria, and Bone Marrow Transplant.

      Distinguished in Alpha Mannosidosis
      Distinguished in Alpha Mannosidosis
      Prague, PR, CZ 

      Martin Magner practices in Prague, Czech Republic. Mr. Magner is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Mucopolysaccharidosis Type 4 (MPS IV, Morquio Syndrome), Alpha Mannosidosis, Tay-Sachs Disease, and Brachydactyly Mononen Type.

      Distinguished in Alpha Mannosidosis
      Distinguished in Alpha Mannosidosis
      Copenhagen, DK 

      Lise Borgwardt practices in Copenhagen, Denmark. Ms. Borgwardt is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Alpha Mannosidosis, Eosinophilic Cystitis, Neuroblastoma, Embryonal Tumor with Multilayered Rosettes, and Liver Transplant.

      Showing 1-20 of 534

      Last Updated: 10/30/2025

      What is the definition of Alpha Mannosidosis?

      Alpha-mannosidosis is a rare inherited disorder that causes problems in many organs and tissues of the body. Affected individuals may have intellectual disability, distinctive facial features, and skeletal abnormalities. Characteristic facial features can include a large head, prominent forehead, low hairline, rounded eyebrows, large ears, flattened bridge of the nose, protruding jaw, widely spaced teeth, overgrown gums, and large tongue. The skeletal abnormalities that can occur in this disorder include reduced bone density (osteopenia), thickening of the bones at the top of the skull (calvaria), deformations of the bones in the spine (vertebrae), knock knees, and deterioration of the bones and joints.

      When should I see an Alpha Mannosidosis doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Alpha Mannosidosis doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Alpha Mannosidosis doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Alpha Mannosidosis doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Alpha Mannosidosis doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Alpha Mannosidosis doctor search results page. 

      Why is it important to get a second opinion from a different Alpha Mannosidosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Alpha Mannosidosis doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Alpha Mannosidosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Alpha Mannosidosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Alpha Mannosidosis doctors near me?

      Look for the filter feature on the left side of the Alpha Mannosidosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Alpha Mannosidosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Alpha Mannosidosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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