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    Last Updated: 01/09/2026

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    MediFind found 23 doctor with experience in Alpha Mannosidosis near Germany. Of these, 15 are Experienced, 5 are Advanced, 2 are Elite and 1 are Distinguished.

    Location
    LocationClose
    23 providers found
      Elite in Alpha Mannosidosis
      Elite in Alpha Mannosidosis
      Hamburg, HH, DE 

      Nicole Muschol practices in Hamburg, Germany. Ms. Muschol is rated as an Elite expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), Alpha Mannosidosis, Osteotomy, and Bone Marrow Transplant.

      Elite in Alpha Mannosidosis
      Elite in Alpha Mannosidosis
      Mainz, RP, DE 

      Julia Hennermann practices in Mainz, Germany. Ms. Hennermann is rated as an Elite expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Gaucher Disease Type 3, Alpha Mannosidosis, Fabry Disease, and Phenylketonuria (PKU).

      Distinguished in Alpha Mannosidosis
      Distinguished in Alpha Mannosidosis
      Hochheim, TH, DE 

      Yasmina Amraoui practices in Hochheim, Germany. Ms. Amraoui is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Alpha Mannosidosis, Niemann-Pick Disease, Visceromegaly, and Gangliosidosis.

      Learn about our expert tiers
      Advanced in Alpha Mannosidosis
      Advanced in Alpha Mannosidosis
      Giessen, HE, DE 

      Christina Lampe practices in Giessen, Germany. Ms. Lampe is rated as an Advanced expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome), Mucopolysaccharidoses (MPS), Lipogranulomatosis, and Farber Lipogranulomatosis.

      Advanced in Alpha Mannosidosis
      Advanced in Alpha Mannosidosis
      Kiel, SH, DE 

      Paul Saftig practices in Kiel, Germany. Mr. Saftig is rated as an Advanced expert by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Batten Disease, CLN4 Disease, CLN1 Disease, and CLN5 Disease.

      Advanced in Alpha Mannosidosis
      Advanced in Alpha Mannosidosis
      Kiel, SH, DE 

      Markus Damme practices in Kiel, Germany. Mr. Damme is rated as an Advanced expert by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Usher Syndrome, Batten Disease, CLN5 Disease, and CLN3 Disease.

      Advanced in Alpha Mannosidosis
      Advanced in Alpha Mannosidosis
      Kiel, SH, DE 

      Judith Blanz practices in Kiel, Germany. Ms. Blanz is rated as an Advanced expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Alpha Mannosidosis, Adrenoleukodystrophy (ALD), Peripheral Neuropathy, and Niemann-Pick Disease.

      Advanced in Alpha Mannosidosis
      Advanced in Alpha Mannosidosis
      Berlin, BE, DE 

      Arndt Rolfs practices in Berlin, Germany. Rolfs is rated as an Advanced expert by MediFind in the treatment of Alpha Mannosidosis. Their top areas of expertise are Niemann-Pick Disease, Fabry Disease, Gaucher Disease, and Non-Langerhans-Cell Histiocytosis.

      Sabine Tischer
      Experienced in Alpha Mannosidosis
      Experienced in Alpha Mannosidosis
      Hannover, NI, DE 

      Sabine Tischer practices in Hannover, Germany. Ms. Tischer is rated as an Experienced expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Cytomegalovirus Infection, Cytomegalic Inclusion Disease, Mononucleosis, Kidney Transplant, and Liver Transplant.

      Ansgar S. Schulz
      Experienced in Alpha Mannosidosis
      Experienced in Alpha Mannosidosis
      Marburger Str. 85, 
      Kassel, HE, DE 

      Ansgar Schulz practices in Kassel, Germany. Schulz is rated as an Experienced expert by MediFind in the treatment of Alpha Mannosidosis. Their top areas of expertise are Osteopetrosis, Severe Combined Immunodeficiency (SCID), CLN2 Disease, Bone Marrow Transplant, and Splenectomy.

      Experienced in Alpha Mannosidosis
      Experienced in Alpha Mannosidosis
      Heidelberg, BW, DE 

      Matthias Zielonka practices in Heidelberg, Germany. Mr. Zielonka is rated as an Experienced expert by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Argininosuccinic Aciduria, Urea Cycle Disorders (UCD), Citrullinemia, Visceromegaly, and Liver Transplant.

      Experienced in Alpha Mannosidosis
      Experienced in Alpha Mannosidosis
      Josef Schneider Str. 11, 
      Wuerzburg, BY, DE 

      Juliane Matlach practices in Wuerzburg, Germany. Ms. Matlach is rated as an Experienced expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Glaucoma, Ocular Hypertension (OHT), Pigment-Dispersion Syndrome, Trabeculectomy, and Vitrectomy.

      Experienced in Alpha Mannosidosis
      Experienced in Alpha Mannosidosis
      Hannover, NI, DE 

      Rebecca Florey-Schultze practices in Hannover, Germany. Ms. Florey-Schultze is rated as an Experienced expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Alpha Mannosidosis and Bone Marrow Transplant.

      Experienced in Alpha Mannosidosis
      Experienced in Alpha Mannosidosis
      Heidelberg, BW, DE 

      Stefan Kolker practices in Heidelberg, Germany. Mr. Kolker is rated as an Experienced expert by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Methylmalonyl Coenzyme A Mutase Deficiency, Argininosuccinic Aciduria, Urea Cycle Disorders (UCD), Liver Transplant, and Kidney Transplant.

      Experienced in Alpha Mannosidosis
      Experienced in Alpha Mannosidosis
      Heidelberg, BW, DE 

      Sven Garbade practices in Heidelberg, Germany. Mr. Garbade is rated as an Experienced expert by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Argininosuccinic Aciduria, Isovaleric Acidemia, Glutaric Acidemia Type 1, Urea Cycle Disorders (UCD), and Liver Transplant.

      Experienced in Alpha Mannosidosis
      Experienced in Alpha Mannosidosis
      Hochheim, TH, DE 

      Laila Kaps-Arash practices in Hochheim, Germany. Ms. Kaps-Arash is rated as an Experienced expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Niemann-Pick Disease, Visceromegaly, Acid Sphingomyelinase Deficiency (ASMD), and Non-Langerhans-Cell Histiocytosis.

      Experienced in Alpha Mannosidosis
      Experienced in Alpha Mannosidosis
      Prof. Ernst Nathan Str. 1, 
      Nuernberg, BY, DE 

      Markus Ries practices in Nuernberg, Germany. Mr. Ries is rated as an Experienced expert by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Galactosialidosis, Molybdenum Cofactor Deficiency (MoCD), Visceromegaly, and West Syndrome.

      Experienced in Alpha Mannosidosis
      Experienced in Alpha Mannosidosis
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Albert Heim practices in Hannover, Germany. Mr. Heim is rated as an Experienced expert by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Cytomegalovirus Infection, Hepatitis E, Conjunctivitis (Pink Eye), Bone Marrow Transplant, and Kidney Transplant.

      Experienced in Alpha Mannosidosis
      Experienced in Alpha Mannosidosis
      Im Neuenheimer Field 669, 
      Heidelberg, BW, DE 

      Georg Hoffmann practices in Heidelberg, Germany. Mr. Hoffmann is rated as an Experienced expert by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Isovaleric Acidemia, Urea Cycle Disorders (UCD), Glutaric Acidemia Type 1, Propionic Acidemia, and Liver Transplant.

      Experienced in Alpha Mannosidosis
      Experienced in Alpha Mannosidosis
      Frankfurt Am Main, HE, DE 

      Susanne Pitz practices in Frankfurt Am Main, Germany. Ms. Pitz is rated as an Experienced expert by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Graves Disease, Hyperthyroidism, Orbital Pseudotumor, Gaucher Disease Type 3, and Trabeculectomy.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 23

      Last Updated: 01/09/2026

      What is the definition of Alpha Mannosidosis?

      Alpha-mannosidosis is a rare inherited disorder that causes problems in many organs and tissues of the body. Affected individuals may have intellectual disability, distinctive facial features, and skeletal abnormalities. Characteristic facial features can include a large head, prominent forehead, low hairline, rounded eyebrows, large ears, flattened bridge of the nose, protruding jaw, widely spaced teeth, overgrown gums, and large tongue. The skeletal abnormalities that can occur in this disorder include reduced bone density (osteopenia), thickening of the bones at the top of the skull (calvaria), deformations of the bones in the spine (vertebrae), knock knees, and deterioration of the bones and joints.

      When should I see an Alpha Mannosidosis doctor in Germany?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Alpha Mannosidosis doctor in Germany?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Alpha Mannosidosis doctors in Germany?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Alpha Mannosidosis doctors in Germany?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Alpha Mannosidosis doctor in Germany?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Alpha Mannosidosis doctor search results page. 

      Why is it important to get a second opinion from a different Alpha Mannosidosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Alpha Mannosidosis doctor in Germany?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Alpha Mannosidosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Alpha Mannosidosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Alpha Mannosidosis doctors in Germany?

      Look for the filter feature on the left side of the Alpha Mannosidosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Alpha Mannosidosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Alpha Mannosidosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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