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    Last Updated: 10/30/2025

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    MediFind found 119 doctor with experience in Alpha Mannosidosis near The United States. Of these, 66 are Experienced, 48 are Advanced and 5 are Distinguished.

    Location
    LocationClose
    119 providers found
      Julie A. Biller
      Advanced in Alpha Mannosidosis
      Pulmonary Medicine | Pediatric Pulmonology
      Advanced in Alpha Mannosidosis
      Pulmonary Medicine | Pediatric Pulmonology

      The Medical College Of Wisconsin Inc

      8701 Watertown Plank Rd, Room 4041 Mfrc, 
      Milwaukee, WI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Julie Biller is a Pulmonary Medicine specialist and a Pediatric Pulmonologist in Milwaukee, Wisconsin. Dr. Biller is rated as an Advanced provider by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Cystic Fibrosis, Secondary Immunodeficiency (SID), Newborn Jaundice, and Lung Metastases. Dr. Biller is currently accepting new patients.

      Paul J. Orchard
      Distinguished in Alpha Mannosidosis
      Pediatric Hematology Oncology
      Distinguished in Alpha Mannosidosis
      Pediatric Hematology Oncology

      Center For Pediatric Blood And Marrow Transplantation - Pediatric Specialty Care Journey Clinic

      2450 Riverside Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Paul Orchard is a Pediatric Hematologist Oncology provider in Minneapolis, MN. Dr. Orchard is rated as a Distinguished provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Adrenoleukodystrophy (ALD), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Bone Marrow Transplant, and Osteotomy.

      Distinguished in Alpha Mannosidosis
      Medical Genetics
      Distinguished in Alpha Mannosidosis
      Medical Genetics
      5665 Venture Dr, 
      Dublin, OH 
      Languages Spoken:
      English, Japanese, Somali, Spanish
      Accepting New Patients

      Stephen Kaler is a Medical Genetics provider in Dublin, Ohio. Dr. Kaler is rated as a Distinguished provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Menkes Disease, Occipital Horn Syndrome, Alpha Mannosidosis, and Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome). Dr. Kaler is currently accepting new patients.

      Learn about our expert tiers
      Distinguished in Alpha Mannosidosis
      Distinguished in Alpha Mannosidosis

      Juan A Fernandez MD PA

      5040 Nw 7th St, Suite 370, 
      Miami, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Juan Fernandez is a Nephrologist in Miami, Florida. Dr. Fernandez is rated as a Distinguished provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Schindler Disease, Fucosidosis, Beta-Mannosidosis, Aspartylglucosaminuria, and Gastrostomy. Dr. Fernandez is currently accepting new patients.

      Distinguished in Alpha Mannosidosis
      Nephrology | Hospital Medicine
      Distinguished in Alpha Mannosidosis
      Nephrology | Hospital Medicine

      Victor Lopez De Mendoza, MD PLLC

      3661 S Miami Ave, Suite 901, 
      Miami, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Victor Lopez-De is a Nephrologist and a Hospital Medicine provider in Miami, Florida. Dr. Lopez-De is rated as a Distinguished provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are End-Stage Renal Disease (ESRD), Acute Kidney Failure, Beta-Mannosidosis, Knee Replacement, and Endoscopy. Dr. Lopez-De is currently accepting new patients.

      Distinguished in Alpha Mannosidosis
      Pediatric Hematology Oncology
      Distinguished in Alpha Mannosidosis
      Pediatric Hematology Oncology

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Troy Lund is a Pediatric Hematologist Oncology provider in Minneapolis, Minnesota. Dr. Lund is rated as a Distinguished provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Adrenoleukodystrophy (ALD), Alpha Mannosidosis, Glucose-6-Phosphate Dehydrogenase Deficiency, Aspartylglucosaminuria, and Bone Marrow Transplant.

      Sara S. Cathey
      Advanced in Alpha Mannosidosis
      Medical Genetics
      Advanced in Alpha Mannosidosis
      Medical Genetics

      Greenwood Genetic Center– Charleston

      3520 West Montague Avenue, 
      Charleston, SC 
      Languages Spoken:
      English
      Accepting New Patients

      Sara Cathey is a Medical Genetics provider in Charleston, South Carolina. Dr. Cathey is rated as an Advanced provider by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Aspartylglucosaminuria, Mucolipidosis Type 4, Sialidosis, and Mucolipidosis 3. Dr. Cathey is currently accepting new patients.

      Raymond Y. Wang
      Advanced in Alpha Mannosidosis
      Medical Genetics
      Advanced in Alpha Mannosidosis
      Medical Genetics
      1201 West La Veta Avenue, 
      Orange, CA 
      Languages Spoken:
      English

      Raymond Wang is a Medical Genetics provider in Orange, California. Dr. Wang is rated as an Advanced provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Pompe Disease, and Adenoidectomy.

      Paul R. Harmatz
      Advanced in Alpha Mannosidosis
      Pediatric Gastroenterology | Gastroenterology
      Advanced in Alpha Mannosidosis
      Pediatric Gastroenterology | Gastroenterology

      UCSF Benioff Children's Hospital Gastroenterology Clinic

      744 52nd St, 5th Floor, 
      Oakland, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Paul Harmatz is a Gastroenterologist and a Pediatric Gastroenterologist in Oakland, CA. Dr. Harmatz is rated as an Advanced provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome), Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), and Mucopolysaccharidosis Type 4 (MPS IV, Morquio Syndrome).

      Experienced in Alpha Mannosidosis
      Cardiology | Medical Genetics
      Experienced in Alpha Mannosidosis
      Cardiology | Medical Genetics

      Penn Heart And Vascular Center

      3400 Civic Center Boulevard, East Pavilion, 2nd Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Daniel Rader is a Cardiologist and a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Rader is rated as an Experienced provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Homozygous Familial Hypercholesterolemia (HoFH), High Cholesterol, Coronary Heart Disease, Atherosclerosis, and Heart Transplant. Dr. Rader is currently accepting new patients.

      Advanced in Alpha Mannosidosis
      Advanced in Alpha Mannosidosis

      Orlando Kidney Care LLC

      14355 Us Hwy 1, 
      Sebastian, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Pablo Puello-Diaz is a Nephrologist in Sebastian, Florida. Dr. Puello-Diaz is rated as an Advanced provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Chronic Kidney Disease, End-Stage Renal Disease (ESRD), Nephrosclerosis, and Renovascular Hypertension. Dr. Puello-Diaz is currently accepting new patients.

      Advanced in Alpha Mannosidosis
      Addiction Medicine | Anesthesiology
      Advanced in Alpha Mannosidosis
      Addiction Medicine | Anesthesiology

      Mymichigan Medical Center Clare

      602 Beech St, Suite 1170, 
      Clare, MI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Abid Khan is an Addiction Medicine specialist and an Anesthesiologist in Clare, Michigan. Dr. Khan is rated as an Advanced provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Aspartylglucosaminuria, Schindler Disease, Fucosidosis, and Beta-Mannosidosis. Dr. Khan is currently accepting new patients.

      Advanced in Alpha Mannosidosis
      Geriatrics | Internal Medicine
      Advanced in Alpha Mannosidosis
      Geriatrics | Internal Medicine

      Geriatric And Palliative Specialist PC

      Oswego, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Renante Ignacio is a primary care provider, practicing in Geriatrics and Internal Medicine in Oswego, New York. Dr. Ignacio is rated as an Advanced provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Dementia, Anemia, Pericarditis, and Aspartylglucosaminuria.

      Advanced in Alpha Mannosidosis
      Neurology
      Advanced in Alpha Mannosidosis
      Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Offers Telehealth

      John Fink is a Neurologist in Ann Arbor, Michigan. Dr. Fink is rated as an Advanced provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Spastic Paraplegia Type 7, Spastic Paraplegia Type 2, Primary Lateral Sclerosis, and CACH Syndrome.

      Advanced in Alpha Mannosidosis
      Advanced in Alpha Mannosidosis
      1450 Raleigh Rd, Suite 100, 
      Chapel Hill, NC 
      Languages Spoken:
      English

      Maria Escolar is a Pediatrics provider in Chapel Hill, North Carolina. Dr. Escolar is rated as an Advanced provider by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), and Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome).

      Advanced in Alpha Mannosidosis
      Geriatrics | Internal Medicine
      Advanced in Alpha Mannosidosis
      Geriatrics | Internal Medicine
      6400 W College Dr, Suite 600, 
      Palos Heights, IL 
      Languages Spoken:
      English

      Michael Beck is a primary care provider, practicing in Geriatrics and Internal Medicine in Palos Heights, Illinois. Dr. Beck is rated as an Advanced provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Fabry Disease, Mucopolysaccharidoses (MPS), Gastrostomy, and Carotid Artery Surgery.

      Advanced in Alpha Mannosidosis
      Advanced in Alpha Mannosidosis

      Kidney Care Plus, Inc

      703 N Flamingo Rd, 
      Pembroke Pines, FL 
      Languages Spoken:
      English, French, Spanish
      Accepting New Patients
      Offers Telehealth

      Pedro Hernandez-Lopez is a Nephrologist in Pembroke Pines, Florida. Dr. Hernandez-Lopez is rated as an Advanced provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are End-Stage Renal Disease (ESRD), Chronic Kidney Disease, Nephrosclerosis, and Renovascular Hypertension. Dr. Hernandez-Lopez is currently accepting new patients.

      Advanced in Alpha Mannosidosis
      Advanced in Alpha Mannosidosis

      Florida Kidney Physicians LLC

      5503 S Congress Ave, Suite 205, 
      Atlantis, FL 
      Languages Spoken:
      English, Hindi, Spanish
      Accepting New Patients
      Offers Telehealth

      Hitesh Kapupara is a Nephrologist in Atlantis, Florida. Dr. Kapupara is rated as an Advanced provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are End-Stage Renal Disease (ESRD), Acute Kidney Failure, Chronic Kidney Disease, and Acute Tubular Necrosis. Dr. Kapupara is currently accepting new patients.

      Advanced in Alpha Mannosidosis
      Advanced in Alpha Mannosidosis
      5323 Harry Hines Blvd, 
      Dallas, TX 
      Languages Spoken:
      English

      Rachel St. John is a Pediatrics provider in Dallas, Texas. Dr. St. John is rated as an Advanced provider by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Microtia, Aspartylglucosaminuria, Schindler Disease, Alpha Mannosidosis, and Myringotomy.

      Advanced in Alpha Mannosidosis
      Nurse Practitioner
      Advanced in Alpha Mannosidosis
      Nurse Practitioner

      Mayo Clinic

      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Kristen Nanke is a Nurse Practitioner in Rochester, Minnesota. Ms. Nanke is rated as an Advanced provider by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Beta-Mannosidosis, Schindler Disease, Alpha Mannosidosis, and Aspartylglucosaminuria. Ms. Nanke is currently accepting new patients.

      Showing 1-20 of 119

      Last Updated: 10/30/2025

      What is the definition of Alpha Mannosidosis?

      Alpha-mannosidosis is a rare inherited disorder that causes problems in many organs and tissues of the body. Affected individuals may have intellectual disability, distinctive facial features, and skeletal abnormalities. Characteristic facial features can include a large head, prominent forehead, low hairline, rounded eyebrows, large ears, flattened bridge of the nose, protruding jaw, widely spaced teeth, overgrown gums, and large tongue. The skeletal abnormalities that can occur in this disorder include reduced bone density (osteopenia), thickening of the bones at the top of the skull (calvaria), deformations of the bones in the spine (vertebrae), knock knees, and deterioration of the bones and joints.

      When should I see an Alpha Mannosidosis doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Alpha Mannosidosis doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Alpha Mannosidosis doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Alpha Mannosidosis doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Alpha Mannosidosis doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Alpha Mannosidosis doctor search results page. 

      Why is it important to get a second opinion from a different Alpha Mannosidosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Alpha Mannosidosis doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Alpha Mannosidosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Alpha Mannosidosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Alpha Mannosidosis doctors in The United States?

      Look for the filter feature on the left side of the Alpha Mannosidosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Alpha Mannosidosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Alpha Mannosidosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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