The 20 Best Alpha Mannosidosis Doctors Near Me

Find the Top Alpha Mannosidosis Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 570 doctor with experience in Alpha Mannosidosis. Of these, 452 are Experienced, 98 are Advanced, 14 are Distinguished and 6 are Elite.

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570 providers found
    Elite in Alpha Mannosidosis
    Elite in Alpha Mannosidosis
    Referral may be required
    Lyon, FR 

    Nathalie Guffon practices practicing medicine in Lyon, France. Ms. Guffon is rated as an Elite expert by MediFind in the treatment of Alpha Mannosidosis. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Alpha Mannosidosis, Acid Sphingomyelinase Deficiency (ASMD), Mucopolysaccharidoses (MPS), and Niemann-Pick Disease.

    Elite in Alpha Mannosidosis
    Elite in Alpha Mannosidosis
    Referral may be required
    Hamburg, HH, DE 

    Nicole Muschol practices practicing medicine in Hamburg, Germany. Ms. Muschol is rated as an Elite expert by MediFind in the treatment of Alpha Mannosidosis. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), Alpha Mannosidosis, Osteotomy, and Bone Marrow Transplant.

    Elite in Alpha Mannosidosis
    Elite in Alpha Mannosidosis
    Referral may be required
    Cordoba, AN, ES 

    Mercedes Campos-Gil practices practicing medicine in Cordoba, Spain. Ms. Campos-Gil is rated as an Elite expert by MediFind in the treatment of Alpha Mannosidosis. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Alpha Mannosidosis, Obesity in Children, Congenital Hyperinsulinism, and Obesity.

    Learn about our expert tiers
    Elite in Alpha Mannosidosis
    Elite in Alpha Mannosidosis
    Referral may be required
    Copenhagen, DK 

    Allan Lund practices practicing medicine in Copenhagen, Denmark. Mr. Lund is rated as an Elite expert by MediFind in the treatment of Alpha Mannosidosis. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Primary Carnitine Deficiency, Alpha Mannosidosis, Argininosuccinic Aciduria, Urea Cycle Disorders (UCD), and Bone Marrow Transplant.

    Elite in Alpha Mannosidosis
    Elite in Alpha Mannosidosis
    Referral may be required
    Mainz, RP, DE 

    Julia Hennermann practices practicing medicine in Mainz, Germany. Ms. Hennermann is rated as an Elite expert by MediFind in the treatment of Alpha Mannosidosis. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Alpha Mannosidosis, Gaucher Disease Type 3, Fabry Disease, and Phenylketonuria (PKU).

    Elite in Alpha Mannosidosis
    Elite in Alpha Mannosidosis
    Referral may be required
    Copenhagen, DK 

    Line Borgwardt practices practicing medicine in Copenhagen, Denmark. Borgwardt is rated as an Elite expert by MediFind in the treatment of Alpha Mannosidosis. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Alpha Mannosidosis, Familial Hypocalciuric Hypercalcemia Type 1, Immunodeficiency with Hyper IgM Type 1, and Ovarian Hyperstimulation Syndrome.

    Advanced in Alpha Mannosidosis

    Dr. Julie A. Biller
    Pulmonary Medicine
    Advanced in Alpha Mannosidosis

    Dr. Julie A. Biller
    Pulmonary Medicine
    Referral may be required

    Pulmonary Medicine - Center For Advanced Care - Froedtert Hospital

    8900 W. Doyne Ave., 
    Milwaukee, WI 
    414-805-9400
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients
    Offers Telehealth

    Julie Biller is a Pulmonary Medicine provider practicing medicine in Milwaukee, Wisconsin. Dr. Biller is rated as an Advanced provider by MediFind in the treatment of Alpha Mannosidosis. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Cystic Fibrosis, Secondary Immunodeficiency (SID), Newborn Jaundice, and Lung Metastases. Dr. Biller is board certified in Pulmonary Disease and Internal Medicine. Dr. Biller is currently accepting new patients.

    Distinguished in Alpha Mannosidosis

    Dr. Troy C. Lund
    Pediatrics | Pediatric Hematology Oncology
    Distinguished in Alpha Mannosidosis

    Dr. Troy C. Lund
    Pediatrics | Pediatric Hematology Oncology
    Referral may be required

    M Health Fairview Journey Pediatric Specialty Clinic

    2450 Riverside Avenue, Building 9 EAST, 
    Minneapolis, MN 
    612-365-8100
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients

    Troy Lund is a Pediatrics specialist and a Pediatric Hematologist Oncology provider practicing medicine in Minneapolis, Minnesota. Dr. Lund is rated as a Distinguished provider by MediFind in the treatment of Alpha Mannosidosis. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Alpha Mannosidosis, and Bone Marrow Transplant. Dr. Lund is board certified in Pediatrics: American Board Of Pediatrics, 2007 and Pediatric Hematology-Oncology: American Board Of Pediatrics, 2011. Dr. Lund is currently accepting new patients.

    Distinguished in Alpha Mannosidosis

    Dr. Paul J. Orchard
    Transplant Surgery | Pediatrics | Pediatric Hematology Oncology
    Distinguished in Alpha Mannosidosis

    Dr. Paul J. Orchard
    Transplant Surgery | Pediatrics | Pediatric Hematology Oncology
    Referral may be required

    M Health Fairview Center For Pediatric Blood And Marrow Transplant And Celluar Therapy

    Journey Clinic Riverside East 9th, Floor 2450 Riverside Ave, 
    Minneapolis, MN 
    612-365-8100
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients

    Paul Orchard is a Transplant Surgeon and a Pediatrics provider practicing medicine in Minneapolis, Minnesota. Dr. Orchard is rated as a Distinguished provider by MediFind in the treatment of Alpha Mannosidosis. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Bone Marrow Transplant, and Osteotomy. Dr. Orchard is currently accepting new patients.

    Distinguished in Alpha Mannosidosis

    Dr. Stephen G. Kaler
    Medical Genetics
    Distinguished in Alpha Mannosidosis

    Dr. Stephen G. Kaler
    Medical Genetics
    Referral may be required

    Trustees Of Columbia University In The City Of New York

    622 W 168th St, 
    New York, NY 
    212-305-9876
    Languages Spoken:
    English, Japanese, Somali, Spanish
    See accepted insurances
    Accepting New Patients

    Stephen Kaler is a Medical Genetics provider practicing medicine in New York, New York. Dr. Kaler is rated as a Distinguished provider by MediFind in the treatment of Alpha Mannosidosis. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Occipital Horn Syndrome, Menkes Disease, Alpha Mannosidosis, and Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome). Dr. Kaler is currently accepting new patients.

    Distinguished in Alpha Mannosidosis
    Distinguished in Alpha Mannosidosis
    Referral may be required

    Office

    835 SW 37th Ave, 
    Miami, FL 
    305-648-1087
    Languages Spoken:
    English, Spanish
    See accepted insurances
    Accepting New Patients

    Juan Fernandez is a Nephrologist practicing medicine in Miami, Florida. Dr. Fernandez is rated as a Distinguished provider by MediFind in the treatment of Alpha Mannosidosis. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Beta-Mannosidosis, Aspartylglucosaminuria, Schindler Disease, Fucosidosis, and Gastrostomy. Dr. Fernandez is currently accepting new patients.

    Distinguished in Alpha Mannosidosis
    Distinguished in Alpha Mannosidosis
    Referral may be required
    Warsaw, MZ, PL 

    Anna Szymanska-Tylki practices practicing medicine in Warsaw, Poland. Ms. Szymanska-Tylki is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. She is also highly rated in 33 other conditions, according to our data. Her clinical expertise encompasses Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Gaucher Disease, Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome), Liver Transplant, and Bone Marrow Transplant.

    Distinguished in Alpha Mannosidosis
    Distinguished in Alpha Mannosidosis
    Referral may be required
    Ancona, IT 

    Lucia Santoro practices practicing medicine in Ancona, Italy. Ms. Santoro is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Alpha Mannosidosis, Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Niemann-Pick Disease, and Bone Marrow Transplant.

    Distinguished in Alpha Mannosidosis
    Distinguished in Alpha Mannosidosis
    Referral may be required

    Office

    3661 S Miami Ave Ste 901, 
    Miami, FL 
    786-717-8003
    Languages Spoken:
    English, Spanish
    See accepted insurances
    Accepting New Patients
    Offers Telehealth

    Victor Lopez-De is a Nephrologist practicing medicine in Miami, Florida. Dr. Lopez-De is rated as a Distinguished provider by MediFind in the treatment of Alpha Mannosidosis. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses End-Stage Renal Disease (ESRD), Acute Kidney Failure, Alpha Mannosidosis, Knee Replacement, and Endoscopy. Dr. Lopez-De is currently accepting new patients.

    Distinguished in Alpha Mannosidosis
    Distinguished in Alpha Mannosidosis
    Referral may be required
    Lynge, DK 

    Jens Fogh practices practicing medicine in Lynge, Denmark. Mr. Fogh is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Alpha Mannosidosis, Batten Disease, CLN3 Disease, and CLN4 Disease.

    Distinguished in Alpha Mannosidosis
    Distinguished in Alpha Mannosidosis
    Referral may be required
    Copenhagen, DK 

    Christine Dali practices practicing medicine in Copenhagen, Denmark. Ms. Dali is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Metachromatic Leukodystrophy, Alpha Mannosidosis, Leukodystrophy, and CACH Syndrome.

    Distinguished in Alpha Mannosidosis
    Distinguished in Alpha Mannosidosis
    Referral may be required
    Liverpool, ENG, GB 

    Harish Poptani practices practicing medicine in Liverpool, United Kingdom. Mr. Poptani is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Alpha Mannosidosis, Brain Tumor, Astrocytoma, and Glioblastoma.

    Distinguished in Alpha Mannosidosis
    Distinguished in Alpha Mannosidosis
    Referral may be required
    Prague, PR, CZ 

    Martin Magner practices practicing medicine in Prague, Czech Republic. Mr. Magner is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Mucopolysaccharidosis Type 4 (MPS IV, Morquio Syndrome), Brachydactyly Mononen Type, Alpha Mannosidosis, and Mucopolysaccharidoses (MPS).

    Distinguished in Alpha Mannosidosis
    Distinguished in Alpha Mannosidosis
    Referral may be required
    Copenhagen, DK 

    Lise Borgwardt practices practicing medicine in Copenhagen, Denmark. Ms. Borgwardt is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Alpha Mannosidosis, Eosinophilic Cystitis, Neuroblastoma, Rhabdomyosarcoma, and Liver Transplant.

    Distinguished in Alpha Mannosidosis
    Distinguished in Alpha Mannosidosis
    Referral may be required
    Giessen, HE, DE 

    Christina Lampe practices practicing medicine in Giessen, Germany. Ms. Lampe is rated as a Distinguished expert by MediFind in the treatment of Alpha Mannosidosis. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome), Lipogranulomatosis, and Farber Lipogranulomatosis.

    Showing 1-20 of 570

    Last Updated: 09/26/2026

    What is the definition of Alpha Mannosidosis?

    Alpha-mannosidosis is a rare inherited disorder that causes problems in many organs and tissues of the body. Affected individuals may have intellectual disability, distinctive facial features, and skeletal abnormalities. Characteristic facial features can include a large head, prominent forehead, low hairline, rounded eyebrows, large ears, flattened bridge of the nose, protruding jaw, widely spaced teeth, overgrown gums, and large tongue. The skeletal abnormalities that can occur in this disorder include reduced bone density (osteopenia), thickening of the bones at the top of the skull (calvaria), deformations of the bones in the spine (vertebrae), knock knees, and deterioration of the bones and joints.

    When should I see an Alpha Mannosidosis doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Alpha Mannosidosis doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Alpha Mannosidosis doctor near me?

    You can find an Alpha Mannosidosis doctor in any of the 10 largest U.S. cities by clicking below:

    Alpha Mannosidosis doctor near New York, NY
    Alpha Mannosidosis doctor near Los Angeles, CA
    Alpha Mannosidosis doctor near Chicago, IL
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    Alpha Mannosidosis doctor near Philadelphia, PA
    Alpha Mannosidosis doctor near Atlanta, GA
    Alpha Mannosidosis doctor near Boston, MA
    Alpha Mannosidosis doctor near Dallas, TX
    Alpha Mannosidosis doctor near San Jose, CA

    How does MediFind rank Alpha Mannosidosis doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Alpha Mannosidosis doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Alpha Mannosidosis doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Alpha Mannosidosis doctor search results page. 

    Why is it important to get a second opinion from a different Alpha Mannosidosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Alpha Mannosidosis doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Alpha Mannosidosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Alpha Mannosidosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Alpha Mannosidosis doctors near me?

    Look for the filter feature on the left side of the Alpha Mannosidosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Alpha Mannosidosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Alpha Mannosidosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy. 

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