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    Last Updated: 10/30/2025

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    MediFind found 8 doctor with experience in Alpha Mannosidosis near Minnesota, US. Of these, 3 are Advanced, 3 are Experienced and 2 are Distinguished.

    Location
    LocationClose
    8 providers found
      Paul J. Orchard
      Distinguished in Alpha Mannosidosis
      Pediatric Hematology Oncology
      Distinguished in Alpha Mannosidosis
      Pediatric Hematology Oncology

      Center For Pediatric Blood And Marrow Transplantation - Pediatric Specialty Care Journey Clinic

      2450 Riverside Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Paul Orchard is a Pediatric Hematologist Oncology provider in Minneapolis, MN. Dr. Orchard is rated as a Distinguished provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Adrenoleukodystrophy (ALD), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Bone Marrow Transplant, and Osteotomy.

      Distinguished in Alpha Mannosidosis
      Pediatric Hematology Oncology
      Distinguished in Alpha Mannosidosis
      Pediatric Hematology Oncology

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Troy Lund is a Pediatric Hematologist Oncology provider in Minneapolis, Minnesota. Dr. Lund is rated as a Distinguished provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Adrenoleukodystrophy (ALD), Alpha Mannosidosis, Glucose-6-Phosphate Dehydrogenase Deficiency, Aspartylglucosaminuria, and Bone Marrow Transplant.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Alpha Mannosidosis
      Nurse Practitioner
      Advanced in Alpha Mannosidosis
      Nurse Practitioner

      Mayo Clinic

      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Kristen Nanke is a Nurse Practitioner in Rochester, Minnesota. Ms. Nanke is rated as an Advanced provider by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Beta-Mannosidosis, Schindler Disease, Alpha Mannosidosis, and Aspartylglucosaminuria. Ms. Nanke is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Alpha Mannosidosis
      Advanced in Alpha Mannosidosis
      200 University Ave E, 
      Saint Paul, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Kevin Walker is an Orthopedics provider in Saint Paul, Minnesota. Dr. Walker is rated as an Advanced provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Beukes Familial Hip Dysplasia, Fucosidosis, and Osteotomy. Dr. Walker is currently accepting new patients.

      Advanced in Alpha Mannosidosis
      Neurology | Pediatric Neurology
      Advanced in Alpha Mannosidosis
      Neurology | Pediatric Neurology
      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Deborah Renaud is a Neurologist and a Pediatric Neurologist in Rochester, Minnesota. Dr. Renaud is rated as an Advanced provider by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Beta-Mannosidosis, Leukodystrophy, CACH Syndrome, and Alpha Mannosidosis. Dr. Renaud is currently accepting new patients.

      Experienced in Alpha Mannosidosis
      Pediatric Pulmonology | Pulmonary Medicine | Pediatrics
      Experienced in Alpha Mannosidosis
      Pediatric Pulmonology | Pulmonary Medicine | Pediatrics

      Fairview Express Care

      717 Delaware St Se, Suite 340, 
      Minneapolis, MN 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Helena Molero-Ramirez is a Pediatric Pulmonologist and a Pulmonary Medicine provider in Minneapolis, Minnesota. Dr. Molero-Ramirez is rated as an Experienced provider by MediFind in the treatment of Alpha Mannosidosis. Her top areas of expertise are Congenital Unilateral Pulmonary Hypoplasia, Cerebral Hypoxia, Mucopolysaccharidoses (MPS), Obstructive Sleep Apnea, and Adenoidectomy. Dr. Molero-Ramirez is currently accepting new patients.

      Experienced in Alpha Mannosidosis
      Experienced in Alpha Mannosidosis

      Fairview Clinics

      14500 99th Ave N, Suite 100, 
      Maple Grove, MN 
      Languages Spoken:
      English

      David Nascene is a Radiologist in Maple Grove, Minnesota. Dr. Nascene is rated as an Experienced provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are CACH Syndrome, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy with Arthrogryposis, Posterior Fossa Decompression, and Osteotomy.

      Experienced in Alpha Mannosidosis
      Pediatric Hematology Oncology
      Experienced in Alpha Mannosidosis
      Pediatric Hematology Oncology
      516 Delaware Street Se, Pwb 5th Floor, Ste 5-100 Clinic 5b, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Jakub Tolar is a Pediatric Hematologist Oncology provider in Minneapolis, Minnesota. Dr. Tolar is rated as an Experienced provider by MediFind in the treatment of Alpha Mannosidosis. His top areas of expertise are Dyskeratosis Congenita, Fanconi Anemia, Congenital Aplastic Anemia, Bone Marrow Transplant, and Osteotomy.

      Showing 1-8 of 8

      Last Updated: 10/30/2025

      What is the definition of Alpha Mannosidosis?

      Alpha-mannosidosis is a rare inherited disorder that causes problems in many organs and tissues of the body. Affected individuals may have intellectual disability, distinctive facial features, and skeletal abnormalities. Characteristic facial features can include a large head, prominent forehead, low hairline, rounded eyebrows, large ears, flattened bridge of the nose, protruding jaw, widely spaced teeth, overgrown gums, and large tongue. The skeletal abnormalities that can occur in this disorder include reduced bone density (osteopenia), thickening of the bones at the top of the skull (calvaria), deformations of the bones in the spine (vertebrae), knock knees, and deterioration of the bones and joints.

      When should I see an Alpha Mannosidosis doctor in Minnesota, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Alpha Mannosidosis doctor in Minnesota, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Alpha Mannosidosis doctors in Minnesota, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Alpha Mannosidosis doctors in Minnesota, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Alpha Mannosidosis doctor in Minnesota, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Alpha Mannosidosis doctor search results page. 

      Why is it important to get a second opinion from a different Alpha Mannosidosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Alpha Mannosidosis doctor in Minnesota, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Alpha Mannosidosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Alpha Mannosidosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Alpha Mannosidosis doctors in Minnesota, US?

      Look for the filter feature on the left side of the Alpha Mannosidosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Alpha Mannosidosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Alpha Mannosidosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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