KRANIOPHARYNGEOM Registry 2019 Multicenter Registry for Patients With Childhood-onset Craniopharyngioma, Xanthogranuloma, Cysts of Rathke's Pouch, Meningioma, Pituitary Adenoma, Arachnoid Cysts
Status: Recruiting
Location: See location...
Study Type: Observational
SUMMARY
KRANIOPHARYNGEOM Registry 2019 will prospectively collect and descriptively analyse data on diagnostics, treatment, and follow-up of patients with craniopharyngioma. In continuation of preceding studies also patients with xanthogranuloma, meningioma, pituitary adenoma, prolactinoma and cystic intracranial malformations will be registered.
Eligibility
Participation Requirements
Sex: All
Minimum Age: 1 day
Maximum Age: 18
Healthy Volunteers: f
View:
• Diagnosed with craniopharyngioma for the first time
• Age at diagnosis 18 years or less of age
• Agreement from patient's parents or legal guardian as well as the patient
Locations
Other Locations
Germany
Klinikum Oldenburg
RECRUITING
Oldenburg
Contact Information
Primary
Hermann L Mueller, MD
mueller.hermann@klinikum-oldenburg.de
+49 441 403
Backup
Svenja Boekhoff
boekhoff.svenja@klinikum-oldenburg.de
+49 441 403
Time Frame
Start Date: 2019-10-01
Estimated Completion Date: 2024-06-30
Participants
Target number of participants: 90
Related Therapeutic Areas
Sponsors
Collaborators: Deutsche Gesellschaft für Endokrinologie (DGE), German Society for Pediatric Oncology and Hematology GPOH gGmbH, Arbeitsgemeinschaft Pädiatrische Radioonkologie (APRO), Deutschen Gesellschaft für Radioonkologie (DEGRO), Deutsche Gesellschaft für Kinderendokrinologie und Diabetologie (DGKED)
Leads: Klinikum Oldenburg gGmbH