The 20 Best Ataxia-Telangiectasia Doctors in The United States

Find the Top Ataxia-Telangiectasia Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 389 doctor with experience in Ataxia-Telangiectasia near The United States. Of these, 317 are Experienced, 61 are Advanced and 10 are Distinguished.

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389 providers found
    Advanced in Ataxia-Telangiectasia
    Advanced in Ataxia-Telangiectasia

    Avera Acute Care — O’Neill

    300 N 2nd St, 
    O'neill, NE 
    Languages Spoken:
    English

    Matthew Winkelbauer is a primary care provider, practicing in Family Medicine in O'neill, Nebraska. Dr. Winkelbauer is rated as an Advanced provider by MediFind in the treatment of Ataxia-Telangiectasia. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Maturity Onset Diabetes of the Young, Acute Cystitis, Ataxia-Telangiectasia, and Familial Hypertension. Dr. Winkelbauer is board certified in American Board Of Family Medicine.

    Experienced in Ataxia-Telangiectasia
    Internal Medicine
    Experienced in Ataxia-Telangiectasia
    Internal Medicine

    Avera Medical Group Internal Medicine — Aberdeen

    105 S State St, Suite 202, 
    Aberdeen, SD 
    Languages Spoken:
    English

    Dr. Myrmoe is an internal medicine physician at Avera Medical Group Internal Medicine Aberdeen. Dr. Myrmoe is rated as an Experienced provider by MediFind in the treatment of Ataxia-Telangiectasia. He is also highly rated in 44 other conditions, according to our data. His clinical expertise encompasses Renovascular Hypertension, Maturity Onset Diabetes of the Young, Type 2 Diabetes (T2D), and Familial Hypertension. Dr. Myrmoe is board certified in American Board Of Internal Medicine.

    Experienced in Ataxia-Telangiectasia
    Internal Medicine
    Experienced in Ataxia-Telangiectasia
    Internal Medicine

    Ballad Health Rural Health Clinic

    364 Hospital Drive, 
    Clintwood, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Maurice Nida is a primary care provider, practicing in Internal Medicine in Clintwood, Virginia. Dr. Nida is rated as an Experienced provider by MediFind in the treatment of Ataxia-Telangiectasia. His clinical expertise encompasses Empyema, Sinusitis, Subacute Combined Degeneration, and Vitamin B12 Deficiency Anemia. Dr. Nida is board certified in American Osteopathic Board Of Internal Medicine.

    Learn about our expert tiers
    Distinguished in Ataxia-Telangiectasia
    Distinguished in Ataxia-Telangiectasia
    Referral may be required

    East Ann Arbor Health & Geriatrics Center

    4260 Plymouth Rd, Level 1, 
    Ann Arbor, MI 
    Experience:
    10+ years
    Languages Spoken:
    English
    Offers Telehealth

    Sharan Srinivasan is a Neurologist practicing medicine in Ann Arbor, Michigan. He has been practicing medicine for over 10 years. Dr. Srinivasan is rated as a Distinguished provider by MediFind in the treatment of Ataxia-Telangiectasia. He is also highly rated in 107 other conditions, according to our data. His clinical expertise encompasses Hereditary Ataxia, Olivopontocerebellar Atrophy, Spinocerebellar Ataxia Type 1, and Spinocerebellar Ataxia Type 4. Dr. Srinivasan is board certified in Neurology.

    Advanced in Ataxia-Telangiectasia
    Otolaryngology
    Advanced in Ataxia-Telangiectasia
    Otolaryngology
    Referral may be required

    Emory University Hospital Midtown Campus

    550 Peachtree Street Northeast, MedicalOfficeTower, 
    Atlanta, GA 
    Languages Spoken:
    English
    Offers Telehealth

    George Wilmot is an Otolaryngologist practicing medicine in Atlanta, Georgia. Dr. Wilmot is rated as an Advanced provider by MediFind in the treatment of Ataxia-Telangiectasia. He is also highly rated in 37 other conditions, according to our data. His clinical expertise encompasses Cataract Ataxia Deafness, Spinocerebellar Ataxia Type 6, Spinocerebellar Ataxia Type 12, and Spinocerebellar Ataxia Type 20. Dr. Wilmot is board certified in National Commission On Certification Of Physician Assistants, 2024.

    Advanced in Ataxia-Telangiectasia
    Advanced in Ataxia-Telangiectasia
    Referral required

    Brigham And Women's Hospital, Neurosciences Center

    60 Fenwood Road, 1st Floor Hale Building For Transformative Medicine, 
    Boston, MA 
    Languages Spoken:
    English

    Christopher Stephen is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Stephen is rated as an Advanced provider by MediFind in the treatment of Ataxia-Telangiectasia. He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Drug Induced Dyskinesia, Spinocerebellar Ataxia Type 27, Movement Disorders, and Tay-Sachs Disease. Dr. Stephen is board certified in Neurology.

    Distinguished in Ataxia-Telangiectasia
    Distinguished in Ataxia-Telangiectasia
    Referral may be required

    Butler Hospital

    345 Blackstone Blvd, 
    Providence, RI 
    Languages Spoken:
    English
    Offers Telehealth

    Joseph Friedman is a Neurologist practicing medicine in Providence, Rhode Island. Dr. Friedman is rated as a Distinguished provider by MediFind in the treatment of Ataxia-Telangiectasia. He is also highly rated in 53 other conditions, according to our data. His clinical expertise encompasses Movement Disorders, Parkinson's Disease, Secondary Parkinsonism, Tardive Dyskinesia, and Gastrostomy.

    Distinguished in Ataxia-Telangiectasia
    Distinguished in Ataxia-Telangiectasia
    Referral may be required

    Office

    300 Medical Plz, 
    Los Angeles, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Susan Perlman is a Neurologist practicing medicine in Los Angeles, California. Dr. Perlman is rated as a Distinguished provider by MediFind in the treatment of Ataxia-Telangiectasia. She is also highly rated in 53 other conditions, according to our data. Her clinical expertise encompasses Spinocerebellar Ataxia, Friedreich Ataxia, Drug Induced Dyskinesia, and Olivopontocerebellar Atrophy.

    Distinguished in Ataxia-Telangiectasia
    Hematology | Oncology
    Distinguished in Ataxia-Telangiectasia
    Hematology | Oncology
    Referral may be required

    Dana-Farber Cancer Institute

    450 Brookline Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Peter Manley is a Hematologist and an Oncologist practicing medicine in Boston, Massachusetts. Dr. Manley is rated as a Distinguished provider by MediFind in the treatment of Ataxia-Telangiectasia. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Ataxia-Telangiectasia, Glioma, Medulloblastoma, and Embryonal Tumor with Multilayered Rosettes.

    Distinguished in Ataxia-Telangiectasia
    Radiation Oncology
    Distinguished in Ataxia-Telangiectasia
    Radiation Oncology
    Referral may be required

    Mayo Clinic-Rochester

    5716 Cleveland St Ste 200, 
    Virginia Beach, VA 
    Languages Spoken:
    English

    Jann Sarkaria is a Radiation Oncologist practicing medicine in Virginia Beach, Virginia. Dr. Sarkaria is rated as a Distinguished provider by MediFind in the treatment of Ataxia-Telangiectasia. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Glioblastoma, Astrocytoma, Glioma, and Gliomatosis Cerebri.

    Distinguished in Ataxia-Telangiectasia
    Distinguished in Ataxia-Telangiectasia
    Referral may be required

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Experience:
    18+ years
    Languages Spoken:
    English

    Franziska Hoche is a Pediatrics provider practicing medicine in Boston, Massachusetts. She has been practicing medicine for over 18 years. Dr. Hoche is rated as a Distinguished provider by MediFind in the treatment of Ataxia-Telangiectasia. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Ataxia-Telangiectasia, Myotonia Congenita, Amyotonia Congenita, and Drug Induced Dyskinesia.

    Distinguished in Ataxia-Telangiectasia
    Distinguished in Ataxia-Telangiectasia
    Referral may be required

    Regents Of The Univ. Of Michigan

    4260 Plymouth Rd, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Vikram Shakkottai is a Neurologist practicing medicine in Ann Arbor, Michigan. Dr. Shakkottai is rated as a Distinguished provider by MediFind in the treatment of Ataxia-Telangiectasia. He is also highly rated in 72 other conditions, according to our data. His clinical expertise encompasses Olivopontocerebellar Atrophy, Spinocerebellar Ataxia, Spinocerebellar Ataxia Type 1, and Drug Induced Dyskinesia.

    Distinguished in Ataxia-Telangiectasia
    Distinguished in Ataxia-Telangiectasia
    Referral may be required

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Jeremy Schmahmann is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Schmahmann is rated as a Distinguished provider by MediFind in the treatment of Ataxia-Telangiectasia. He is also highly rated in 76 other conditions, according to our data. His clinical expertise encompasses Spinocerebellar Ataxia, Acute Cerebellar Ataxia, Olivopontocerebellar Atrophy, Drug Induced Dyskinesia, and Gastrostomy.

    Distinguished in Ataxia-Telangiectasia
    Distinguished in Ataxia-Telangiectasia
    Referral may be required

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Anoopum Gupta is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Gupta is rated as a Distinguished provider by MediFind in the treatment of Ataxia-Telangiectasia. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Hereditary Ataxia, Spinocerebellar Ataxia Type 27, Drug Induced Dyskinesia, and Acute Cerebellar Ataxia.

    Distinguished in Ataxia-Telangiectasia
    Distinguished in Ataxia-Telangiectasia
    Referral may be required

    Granny Nannies Of North America LLC

    510 County Road 466 Ste 207, 
    Lady Lake, FL 
    Languages Spoken:
    English

    William Hammesfahr is a Neurologist practicing medicine in Lady Lake, Florida. Dr. Hammesfahr is rated as a Distinguished provider by MediFind in the treatment of Ataxia-Telangiectasia. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Ataxia-Telangiectasia, Hereditary Ataxia, Transient Ischemic Attack (TIA), and Dementia.

    Advanced in Ataxia-Telangiectasia
    Advanced in Ataxia-Telangiectasia
    Referral may be required

    Penn Neurology Pennsylvania Hospital

    330 South 9th Street, 3rd Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Meredith Spindler is a Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Spindler is rated as an Advanced provider by MediFind in the treatment of Ataxia-Telangiectasia. She is also highly rated in 29 other conditions, according to our data. Her clinical expertise encompasses Movement Disorders, Parkinson's Disease, Drug Induced Dyskinesia, Aromatic L-Amino Acid Decarboxylase (AADC) Deficiency, and Deep Brain Stimulation. Dr. Spindler is board certified in Neurology, 2010. Dr. Spindler is currently accepting new patients.

    Advanced in Ataxia-Telangiectasia
    Pediatric Neurology
    Advanced in Ataxia-Telangiectasia
    Pediatric Neurology
    Referral may be required
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Allison Przekop is a Pediatric Neurologist practicing medicine in Orange, California. Dr. Przekop is rated as an Advanced provider by MediFind in the treatment of Ataxia-Telangiectasia. She is also highly rated in 41 other conditions, according to our data. Her clinical expertise encompasses Transient Tic Disorder, Tourette Syndrome, Spasmus Nutans, and Stereotypic Movement Disorder. Dr. Przekop is currently accepting new patients.

    Advanced in Ataxia-Telangiectasia
    Radiation Oncology
    Advanced in Ataxia-Telangiectasia
    Radiation Oncology
    Referral may be required

    Duke Cancer Center

    20 Duke Medicine Cir, 
    Durham, NC 
    Experience:
    12+ years
    Languages Spoken:
    English
    Offers Telehealth

    I am a radiation oncologist, and I primarily focus on radiation treatments for brain tumors and other central nervous system conditions. My interest in brain tumor research began during my MD/PhD research training at the Preston Robert Tisch Brain Tumor Center at Duke. I am proud to be at Duke Health now to provide radiation oncology care for patients with brain tumors and other central nervous system conditions. Dr. Reitman is rated as an Advanced provider by MediFind in the treatment of Ataxia-Telangiectasia. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Brain Tumor, Glioma, Posterior Fossa Tumor, and Astrocytoma. Dr. Reitman is board certified in American Board Of Radiology, Radiation Oncology.

    Experienced in Ataxia-Telangiectasia
    Pediatric Neurology
    Experienced in Ataxia-Telangiectasia
    Pediatric Neurology
    Referral may be required

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    32+ years
    Languages Spoken:
    English
    Offers Telehealth

    Sumit Parikh is a Pediatric Neurologist practicing medicine in Cleveland, Ohio. He has been practicing medicine for over 32 years. Dr. Parikh is rated as an Experienced provider by MediFind in the treatment of Ataxia-Telangiectasia. He is also highly rated in 168 other conditions, according to our data. His clinical expertise encompasses Leigh Syndrome, Maternally Inherited Leigh Syndrome, Kearns-Sayre Syndrome, and MELAS Syndrome. Dr. Parikh is board certified in American Board Of Psychiatry And Neurology, 2006.

    Experienced in Ataxia-Telangiectasia
    Radiation Oncology
    Experienced in Ataxia-Telangiectasia
    Radiation Oncology
    Referral may be required

    Duke Cancer Center

    20 Duke Medicine Cir, 
    Durham, NC 
    Experience:
    24+ years
    Languages Spoken:
    English
    Offers Telehealth

    Above all, I value relationships with family and friends. I have seen the devastation that brain tumors cause to ruin these vital relationships. Therefore, I strive to eradicate brain tumors with the best patient care I can and hard work in the laboratory. It is my hope that we will effectively fight brain tumors and preserve relationships. Dr. Floyd is rated as an Experienced provider by MediFind in the treatment of Ataxia-Telangiectasia. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Brain Tumor, Glioblastoma, Astrocytoma, and Metastatic Brain Tumor. Dr. Floyd is board certified in American Board Of Radiology, Radiation Oncology.

    Showing 1-20 of 389

    Last Updated: 06/30/2026

    What is the definition of Ataxia-Telangiectasia?

    Ataxia-telangiectasia is a rare childhood disease. It affects the brain and other parts of the body.

    Ataxia refers to uncoordinated movements, such as walking. Telangiectasias are enlarged blood vessels (capillaries) just below the surface of the skin. Telangiectasias appear as tiny, red, spider-like blood vessels.

    When should I see an Ataxia-Telangiectasia doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Ataxia-Telangiectasia doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Ataxia-Telangiectasia doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Ataxia-Telangiectasia doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Ataxia-Telangiectasia doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ataxia-Telangiectasia doctor search results page. 

    Why is it important to get a second opinion from a different Ataxia-Telangiectasia doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Ataxia-Telangiectasia doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Ataxia-Telangiectasia doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Ataxia-Telangiectasia doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Ataxia-Telangiectasia doctors in The United States?

    Look for the filter feature on the left side of the Ataxia-Telangiectasia doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Ataxia-Telangiectasia doctor that offers video calls?

    Look for the filter feature on the left-side of the Ataxia-Telangiectasia doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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