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    Last Updated: 10/30/2025

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    MediFind found 418 doctor with experience in Barth Syndrome. Of these, 298 are Experienced, 99 are Advanced, 16 are Distinguished and 5 are Elite.

    Location
    LocationClose
    418 providers found
      Elite in Barth Syndrome
      Elite in Barth Syndrome
      Amsterdam, NH, NL 

      Frederic Vaz practices in Amsterdam, Netherlands. Mr. Vaz is rated as an Elite expert by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Barth Syndrome, Primary Carnitine Deficiency, Zellweger Syndrome, Cerebrotendinous Xanthomatosis, and Laryngectomy.

      Elite in Barth Syndrome
      Pediatric Cardiology | Pediatrics
      Elite in Barth Syndrome
      Pediatric Cardiology | Pediatrics
      1600 Sw Archer Rd, 
      Gainesville, FL 
      Languages Spoken:
      English
      Accepting New Patients

      Barry Byrne is a Pediatric Cardiologist and a Pediatrics provider in Gainesville, Florida. Dr. Byrne is rated as an Elite provider by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Pompe Disease, Barth Syndrome, Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, and Bone Marrow Aspiration. Dr. Byrne is currently accepting new patients in some locations.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in Barth Syndrome
      Elite in Barth Syndrome
      Upper Maudlin St, 
      Bristol, ENG, GB 

      Colin Steward practices in Bristol, United Kingdom. Mr. Steward is rated as an Elite expert by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Barth Syndrome, Osteopetrosis, Delayed Growth, Infantile Neutropenia, and Bone Marrow Transplant.

      Learn about our expert tiers
      Elite in Barth Syndrome
      Pediatric Cardiology | Pediatrics
      Elite in Barth Syndrome
      Pediatric Cardiology | Pediatrics
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      William Pu is a Pediatric Cardiologist and a Pediatrics provider in Boston, Massachusetts. Dr. Pu is rated as an Elite provider by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Barth Syndrome, Bidirectional Tachycardia, Cardiomyopathy, and Dilated Cardiomyopathy (DCM). Dr. Pu is currently accepting new patients.

      Elite in Barth Syndrome
      Elite in Barth Syndrome
      Oberdürrbacher Str. 6, 
      Wuerzburg, BY, DE 

      Jan Dudek practices in Wuerzburg, Germany. Dudek is rated as an Elite expert by MediFind in the treatment of Barth Syndrome. Their top areas of expertise are Barth Syndrome, Sengers Syndrome, Cardiomyopathy, and Cerebral Hypoxia.

      Randall M. Bryant
      Advanced in Barth Syndrome
      Cardiac Electrophysiology | Pediatrics | Pediatric Cardiology
      Advanced in Barth Syndrome
      Cardiac Electrophysiology | Pediatrics | Pediatric Cardiology

      Atrium Health Levine Children's HEARTest Yard Congenital Heart Center

      1001 Blythe Blvd., Suite 500, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Randall Bryant is a Pediatrics specialist and a Cardiac Electrophysiologist in Charlotte, North Carolina. Dr. Bryant is rated as an Advanced provider by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Barth Syndrome, Double Discordia, Wolff-Parkinson-White Syndrome, and Arrhythmias. Dr. Bryant is currently accepting new patients.

      Distinguished in Barth Syndrome
      Distinguished in Barth Syndrome
      501C-715 McDermot Avenue, R3E 3P4, 
      Winnipeg, MB, CA 

      Grant Hatch practices in Winnipeg, Canada. Mr. Hatch is rated as a Distinguished expert by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Barth Syndrome, Sitosterolemia, Gestational Diabetes, and Agranulocytosis.

      Distinguished in Barth Syndrome
      Distinguished in Barth Syndrome
      Amsterdam, NH, NL 

      Riekelt Houtkooper practices in Amsterdam, Netherlands. Houtkooper is rated as a Distinguished expert by MediFind in the treatment of Barth Syndrome. Their top areas of expertise are Gyrate Atrophy of the Choroid and Retina, Barth Syndrome, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, and Rhabdomyolysis.

      Distinguished in Barth Syndrome
      Distinguished in Barth Syndrome
      Queen Victoria Road, 
      Newcastle Upon Tyne, ENG, GB 

      Ann Bowron practices in Newcastle Upon Tyne, United Kingdom. Ms. Bowron is rated as a Distinguished expert by MediFind in the treatment of Barth Syndrome. Her top areas of expertise are Barth Syndrome, Delayed Growth, Infantile Neutropenia, and Classic Galactosemia.

      Distinguished in Barth Syndrome
      Distinguished in Barth Syndrome
      Winnipeg, MB, CA 

      Hana Zegallai practices in Winnipeg, Canada. Ms. Zegallai is rated as a Distinguished expert by MediFind in the treatment of Barth Syndrome. Her top areas of expertise are Barth Syndrome, Agranulocytosis, and Mononucleosis.

      Distinguished in Barth Syndrome
      Distinguished in Barth Syndrome
      Wuerzburg, BY, DE 

      Christoph Maack practices in Wuerzburg, Germany. Mr. Maack is rated as a Distinguished expert by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Heart Failure, Cardiomyopathy, Barth Syndrome, Hypertrophic Cardiomyopathy (HCM), and Embolectomy.

      Distinguished in Barth Syndrome
      Distinguished in Barth Syndrome
      Garscube Estate, 
      Glasgow, SCT, GB 

      Douglas Strathdee practices in Glasgow, United Kingdom. Mr. Strathdee is rated as a Distinguished expert by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Barth Syndrome, Cyclic Neutropenia, Fucosidosis, and Delayed Growth.

      Distinguished in Barth Syndrome
      Distinguished in Barth Syndrome
      Winnipeg, MB, CA 

      Edgard Mejia practices in Winnipeg, Canada. Mr. Mejia is rated as a Distinguished expert by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Barth Syndrome, Chronic Lymphocytic Leukemia (CLL), Chronic B-Cell Leukemia (CBCL), and Infantile Neutropenia.

      Distinguished in Barth Syndrome
      Distinguished in Barth Syndrome
      Amsterdam, NH, NL 

      Ronald Wanders practices in Amsterdam, Netherlands. Mr. Wanders is rated as a Distinguished expert by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Zellweger Syndrome, Refsum Disease, Barth Syndrome, and Infantile Refsum Disease.

      Distinguished in Barth Syndrome
      Distinguished in Barth Syndrome
      Amsterdam, NH, NL 

      Iliana Chatzispyrou practices in Amsterdam, Netherlands. Ms. Chatzispyrou is rated as a Distinguished expert by MediFind in the treatment of Barth Syndrome. Her top areas of expertise are Barth Syndrome, Perrault Syndrome, Turner Syndrome, and Intersex.

      Distinguished in Barth Syndrome
      Distinguished in Barth Syndrome
      Sapporo, JP 

      Atsuhito Takeda practices in Sapporo, Japan. Takeda is rated as a Distinguished expert by MediFind in the treatment of Barth Syndrome. Their top areas of expertise are Barth Syndrome, Cardiomyopathy, Coarctation of the Aorta, Osteotomy, and Cardiac Ablation.

      Distinguished in Barth Syndrome
      Distinguished in Barth Syndrome
      Wuerzburg, BY, DE 

      Edoardo Bertero practices in Wuerzburg, Germany. Mr. Bertero is rated as a Distinguished expert by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Barth Syndrome, Familial Dilated Cardiomyopathy, Heart Failure, Cardiomyopathy, and Thrombectomy.

      Distinguished in Barth Syndrome
      Pediatric Cardiology | Pediatrics | Cardiology
      Distinguished in Barth Syndrome
      Pediatric Cardiology | Pediatrics | Cardiology

      Johns Hopkins University

      1800 Orleans St, 
      Baltimore, MD 
      Languages Spoken:
      English
      Accepting New Patients

      William Thompson is a Pediatric Cardiologist and a Pediatrics provider in Baltimore, Maryland. Dr. Thompson is rated as a Distinguished provider by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Barth Syndrome, Duchenne Muscular Dystrophy, Tetralogy of Fallot, and Ventricular Septal Defects. Dr. Thompson is currently accepting new patients.

      Distinguished in Barth Syndrome
      Distinguished in Barth Syndrome
      Bari, IT 

      Simona Lobasso practices in Bari, Italy. Ms. Lobasso is rated as a Distinguished expert by MediFind in the treatment of Barth Syndrome. Her top areas of expertise are Barth Syndrome, Infantile Neutropenia, and Delayed Growth.

      Distinguished in Barth Syndrome
      Pediatric Cardiology
      Distinguished in Barth Syndrome
      Pediatric Cardiology
      3333 Burnet Ave, D 6.24 -- Mlc 3016, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Arnold Strauss is a Pediatric Cardiologist in Cincinnati, Ohio. Dr. Strauss is rated as a Distinguished provider by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, Barth Syndrome, Cardiomyopathy, and Mitochondrial Trifunctional Protein Deficiency. Dr. Strauss is currently accepting new patients.

      Showing 1-20 of 418

      Last Updated: 10/30/2025

      What is the definition of Barth Syndrome?

      Barth syndrome is a rare condition characterized by an enlarged and weakened heart (dilated cardiomyopathy), weakness in muscles used for movement (skeletal myopathy), recurrent infections due to small numbers of white blood cells (neutropenia), and short stature. Barth syndrome occurs almost exclusively in males.

      When should I see a Barth Syndrome doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Barth Syndrome doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Barth Syndrome doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Barth Syndrome doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Barth Syndrome doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Barth Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Barth Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Barth Syndrome doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Barth Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Barth Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Barth Syndrome doctors near me?

      Look for the filter feature on the left side of the Barth Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Barth Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Barth Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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