The 20 Best Barth Syndrome Doctors in France

Find the Top Barth Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 23 doctor with experience in Barth Syndrome near France. Of these, 22 are Experienced and 1 are Advanced.

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23 providers found
    Advanced in Barth Syndrome
    Advanced in Barth Syndrome
    Paris, FR 

    Patrice Petit practices practicing medicine in Paris, France. Ms. Petit is rated as an Advanced expert by MediFind in the treatment of Barth Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Barth Syndrome, Hemochromatosis, and Burkitt Lymphoma.

    Experienced in Barth Syndrome
    Experienced in Barth Syndrome
    Paris, FR 

    Nathan Rainey practices practicing medicine in Paris, France. Mr. Rainey is rated as an Experienced expert by MediFind in the treatment of Barth Syndrome. His clinical expertise encompasses Barth Syndrome, Burkitt Lymphoma, Hemochromatosis, and Mononucleosis.

    Experienced in Barth Syndrome
    Experienced in Barth Syndrome
    Tours, FR 

    Laure Cosson practices practicing medicine in Tours, France. Ms. Cosson is rated as an Experienced expert by MediFind in the treatment of Barth Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Cystic Fibrosis, Barth Syndrome, and Lung Transplant.

    Learn about our expert tiers
    Experienced in Barth Syndrome
    Experienced in Barth Syndrome
    Tours, FR 

    Alain Chantepie practices practicing medicine in Tours, France. Mr. Chantepie is rated as an Experienced expert by MediFind in the treatment of Barth Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Heart Murmurs, Pulmonary Atresia, Barth Syndrome, and Mediastinitis.

    Experienced in Barth Syndrome
    Experienced in Barth Syndrome

    CHU Toulouse

    Toulouse, FR 

    Cedric Le Caignec practices practicing medicine in Toulouse, France. Mr. Le Caignec is rated as an Experienced expert by MediFind in the treatment of Barth Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Achalasia Microcephaly Syndrome, Microcephaly, Early Infantile Epileptic Encephalopathy, and Cortical Dysplasia.

    Experienced in Barth Syndrome
    Experienced in Barth Syndrome
    Angers, FR 

    Agnes Guichet practices practicing medicine in Angers, France. Ms. Guichet is rated as an Experienced expert by MediFind in the treatment of Barth Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Brachydactyly Mononen Type, Cortical Dysplasia, Desbuquois Syndrome, and Thrombocytopenia-Absent Radius Syndrome.

    Experienced in Barth Syndrome
    Experienced in Barth Syndrome
    Angers, FR 

    Gilles Simard practices practicing medicine in Angers, France. Mr. Simard is rated as an Experienced expert by MediFind in the treatment of Barth Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Optic Nerve Atrophy, Adenosine Monophosphate Deaminase Deficiency, Primary Lateral Sclerosis, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

    Experienced in Barth Syndrome
    Experienced in Barth Syndrome
    Tours, FR 

    Zoha Vermesse-Maakaroun practices practicing medicine in Tours, France. Ms. Vermesse-Maakaroun is rated as an Experienced expert by MediFind in the treatment of Barth Syndrome. Her clinical expertise encompasses Lymphadenitis, Barth Syndrome, Osteomyelitis in Children, and Cat Scratch Disease.

    Experienced in Barth Syndrome
    Experienced in Barth Syndrome
    Tours, FR 

    Francois Labarthe practices practicing medicine in Tours, France. Mr. Labarthe is rated as an Experienced expert by MediFind in the treatment of Barth Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Primary Carnitine Deficiency, Phenylketonuria (PKU), Pompe Disease, and Beta-Ketothiolase Deficiency.

    Experienced in Barth Syndrome
    Experienced in Barth Syndrome
    Tours, FR 

    Helene Blasco practices practicing medicine in Tours, France. Ms. Blasco is rated as an Experienced expert by MediFind in the treatment of Barth Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Trimethylaminuria, Mastoidectomy, and Gastrostomy.

    Experienced in Barth Syndrome
    Experienced in Barth Syndrome

    Gustave Roussy

    Villejuif, FR 

    Charlotte Rigaud practices practicing medicine in Villejuif, France. Ms. Rigaud is rated as an Experienced expert by MediFind in the treatment of Barth Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Anaplastic Large Cell Lymphoma, Classical Hodgkin Lymphoma, Non-Hodgkin Lymphoma, and T-Cell Lymphoma.

    Experienced in Barth Syndrome
    Experienced in Barth Syndrome
    Paris, FR 

    Pascale De Lonlay practices practicing medicine in Paris, France. Ms. De Lonlay is rated as an Experienced expert by MediFind in the treatment of Barth Syndrome. She is also highly rated in 44 other conditions, according to our data. Her clinical expertise encompasses Rhabdomyolysis, Maple Syrup Urine Disease, Argininosuccinic Aciduria, Liver Transplant, and Kidney Transplant.

    Experienced in Barth Syndrome
    Experienced in Barth Syndrome
    Paris, FR 

    Chris Ottolenghi practices practicing medicine in Paris, France. Mr. Ottolenghi is rated as an Experienced expert by MediFind in the treatment of Barth Syndrome. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Maple Syrup Urine Disease, Dihydrolipoamide Dehydrogenase Deficiency, Lysinuric Protein Intolerance, Gastrostomy, and Kidney Transplant.

    Experienced in Barth Syndrome
    Experienced in Barth Syndrome
    Paris, FR 

    Damien Bonnet practices practicing medicine in Paris, France. Mr. Bonnet is rated as an Experienced expert by MediFind in the treatment of Barth Syndrome. He is also highly rated in 45 other conditions, according to our data. His clinical expertise encompasses Transposition of the Great Arteries, Ventricular Septal Defects, Pulmonary Valve Stenosis, Heart Transplant, and Lung Transplant.

    Experienced in Barth Syndrome
    Experienced in Barth Syndrome
    Paris, FR 

    Blandine Beaupain practices practicing medicine in Paris, France. Ms. Beaupain is rated as an Experienced expert by MediFind in the treatment of Barth Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Chronic Familial Neutropenia, Agranulocytosis, Severe Congenital Neutropenia, Shwachman-Diamond Syndrome, and Bone Marrow Transplant.

    Experienced in Barth Syndrome
    Experienced in Barth Syndrome
    Le Bourget, FR 

    Allel Chabli practices practicing medicine in Le Bourget, France. Chabli is rated as an Experienced expert by MediFind in the treatment of Barth Syndrome. Their clinical expertise encompasses 3-Hydroxy-3-Methylglutaryl-CoA Lyase Deficiency and Barth Syndrome.

    Experienced in Barth Syndrome
    Experienced in Barth Syndrome
    Paris, FR 

    Jean Donadieu practices practicing medicine in Paris, France. Ms. Donadieu is rated as an Experienced expert by MediFind in the treatment of Barth Syndrome. She is also highly rated in 26 other conditions, according to our data. Her clinical expertise encompasses Severe Congenital Neutropenia, Agranulocytosis, Reticulohistiocytoma, Bone Marrow Transplant, and Lung Transplant.

    Experienced in Barth Syndrome
    Experienced in Barth Syndrome
    Bordeaux, FR 

    Jean-paul Di Rago practices practicing medicine in Bordeaux, France. Mr. Di Rago is rated as an Experienced expert by MediFind in the treatment of Barth Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Maternally Inherited Leigh Syndrome, Mitochondrial Complex V Deficiency, Leigh Syndrome, and Cytochrome C Oxidase Deficiency.

    Experienced in Barth Syndrome
    Experienced in Barth Syndrome
    CNRS UMR 5095, 1 Rue Camille Saint Saëns, 
    Bordeaux, FR 

    Jean-paul Lasserre practices practicing medicine in Bordeaux, France. Mr. Lasserre is rated as an Experienced expert by MediFind in the treatment of Barth Syndrome. His clinical expertise encompasses Mitochondrial Complex V Deficiency and Barth Syndrome.

    Experienced in Barth Syndrome
    Experienced in Barth Syndrome
    Bordeaux, FR 

    Deborah Tanvier-Tribouillard practices practicing medicine in Bordeaux, France. Ms. Tanvier-Tribouillard is rated as an Experienced expert by MediFind in the treatment of Barth Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Mitochondrial Complex V Deficiency, Maternally Inherited Leigh Syndrome, Coenzyme Q Cytochrome C Reductase Deficiency, and Leigh Syndrome.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 23

    Last Updated: 04/28/2026

    What is the definition of Barth Syndrome?

    Barth syndrome is a rare condition characterized by an enlarged and weakened heart (dilated cardiomyopathy), weakness in muscles used for movement (skeletal myopathy), recurrent infections due to small numbers of white blood cells (neutropenia), and short stature. Barth syndrome occurs almost exclusively in males.

    When should I see a Barth Syndrome doctor in France?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Barth Syndrome doctor in France?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Barth Syndrome doctors in France?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Barth Syndrome doctors in France?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Barth Syndrome doctor in France?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Barth Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Barth Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Barth Syndrome doctor in France?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Barth Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Barth Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Barth Syndrome doctors in France?

    Look for the filter feature on the left side of the Barth Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Barth Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Barth Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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