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    Last Updated: 10/30/2025

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    MediFind found 50 doctor with experience in Barth Syndrome near The United States. Of these, 37 are Experienced, 9 are Advanced, 2 are Distinguished and 2 are Elite.

    Location
    LocationClose
    50 providers found
      Elite in Barth Syndrome
      Pediatric Cardiology | Pediatrics
      Elite in Barth Syndrome
      Pediatric Cardiology | Pediatrics
      1600 Sw Archer Rd, 
      Gainesville, FL 
      Languages Spoken:
      English
      Accepting New Patients

      Barry Byrne is a Pediatric Cardiologist and a Pediatrics provider in Gainesville, Florida. Dr. Byrne is rated as an Elite provider by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Pompe Disease, Barth Syndrome, Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, and Bone Marrow Aspiration. Dr. Byrne is currently accepting new patients in some locations.

      Elite in Barth Syndrome
      Pediatric Cardiology | Pediatrics
      Elite in Barth Syndrome
      Pediatric Cardiology | Pediatrics
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      William Pu is a Pediatric Cardiologist and a Pediatrics provider in Boston, Massachusetts. Dr. Pu is rated as an Elite provider by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Barth Syndrome, Bidirectional Tachycardia, Cardiomyopathy, and Dilated Cardiomyopathy (DCM). Dr. Pu is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Randall M. Bryant
      Advanced in Barth Syndrome
      Cardiac Electrophysiology | Pediatrics | Pediatric Cardiology
      Advanced in Barth Syndrome
      Cardiac Electrophysiology | Pediatrics | Pediatric Cardiology

      Atrium Health Levine Children's HEARTest Yard Congenital Heart Center

      1001 Blythe Blvd., Suite 500, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Randall Bryant is a Pediatrics specialist and a Cardiac Electrophysiologist in Charlotte, North Carolina. Dr. Bryant is rated as an Advanced provider by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Barth Syndrome, Double Discordia, Wolff-Parkinson-White Syndrome, and Arrhythmias. Dr. Bryant is currently accepting new patients.

      Learn about our expert tiers
      Distinguished in Barth Syndrome
      Pediatric Cardiology | Pediatrics | Cardiology
      Distinguished in Barth Syndrome
      Pediatric Cardiology | Pediatrics | Cardiology

      Johns Hopkins University

      1800 Orleans St, 
      Baltimore, MD 
      Languages Spoken:
      English
      Accepting New Patients

      William Thompson is a Pediatric Cardiologist and a Pediatrics provider in Baltimore, Maryland. Dr. Thompson is rated as a Distinguished provider by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Barth Syndrome, Duchenne Muscular Dystrophy, Tetralogy of Fallot, and Ventricular Septal Defects. Dr. Thompson is currently accepting new patients.

      Distinguished in Barth Syndrome
      Pediatric Cardiology
      Distinguished in Barth Syndrome
      Pediatric Cardiology
      3333 Burnet Ave, D 6.24 -- Mlc 3016, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Arnold Strauss is a Pediatric Cardiologist in Cincinnati, Ohio. Dr. Strauss is rated as a Distinguished provider by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, Barth Syndrome, Cardiomyopathy, and Mitochondrial Trifunctional Protein Deficiency. Dr. Strauss is currently accepting new patients.

      Advanced in Barth Syndrome
      Pediatric Cardiology | Pediatrics
      Advanced in Barth Syndrome
      Pediatric Cardiology | Pediatrics

      University Medical Associates Of The Medical University Of South Carol

      171 Ashley Ave, 
      Charleston, SC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Shahryar Chowdhury is a Pediatric Cardiologist and a Pediatrics provider in Charleston, South Carolina. Dr. Chowdhury is rated as an Advanced provider by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Truncus Arteriosus, Patent Ductus Arteriosus, Barth Syndrome, Heart Transplant, and Gastrostomy. Dr. Chowdhury is currently accepting new patients.

      Advanced in Barth Syndrome
      Cardiac Electrophysiology | Pediatrics | Pediatric Cardiology
      Advanced in Barth Syndrome
      Cardiac Electrophysiology | Pediatrics | Pediatric Cardiology

      University Medical Associates Of The Medical University Of South Carol

      171 Ashley Ave, 
      Charleston, SC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Lanier Jackson is a Cardiac Electrophysiologist and a Pediatrics provider in Charleston, South Carolina. Dr. Jackson is rated as an Advanced provider by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Barth Syndrome, Anomalous Left Coronary Artery from the Pulmonary Artery, Coronary Artery Aneurysm, and Congenital Coronary Artery Malformation. Dr. Jackson is currently accepting new patients.

      Advanced in Barth Syndrome
      Pediatric Cardiology | Pediatrics
      Advanced in Barth Syndrome
      Pediatric Cardiology | Pediatrics
      1468 Madison Ave Fl 3, 
      New York, NY 
      Languages Spoken:
      English

      Jacqueline Lamour is a Pediatric Cardiologist and a Pediatrics provider in New York, New York. Dr. Lamour is rated as an Advanced provider by MediFind in the treatment of Barth Syndrome. Her top areas of expertise are Dilated Cardiomyopathy (DCM), Cardiomyopathy, Barth Syndrome, Dextrocardia with Situs Inversus, and Heart Transplant.

      Advanced in Barth Syndrome
      Pediatric Cardiology | Cardiology | Pediatrics
      Advanced in Barth Syndrome
      Pediatric Cardiology | Cardiology | Pediatrics

      University Pediatric Associates Inc

      705 Riley Hospital Dr, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      John Parent is a Pediatric Cardiologist and a Cardiologist in Indianapolis, Indiana. Dr. Parent is rated as an Advanced provider by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Cardiomyopathy, Pulmonary Valve Stenosis, RASopathies, Noonan Syndrome, and Heart Transplant. Dr. Parent is currently accepting new patients.

      Advanced in Barth Syndrome
      Pediatric Cardiology | Pediatrics
      Advanced in Barth Syndrome
      Pediatric Cardiology | Pediatrics
      3601 The Vanderbilt Clinic, 
      Nashville, TN 
      Languages Spoken:
      English

      Justin Godown is a Pediatric Cardiologist and a Pediatrics provider in Nashville, Tennessee. Dr. Godown is rated as an Advanced provider by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Cardiomyopathy, Pediatric Myocarditis, Heart Failure, Dilated Cardiomyopathy (DCM), and Heart Transplant.

      Advanced in Barth Syndrome
      Pediatric Cardiology | Pediatrics
      Advanced in Barth Syndrome
      Pediatric Cardiology | Pediatrics
      1800 Orleans St, 
      Baltimore, MD 
      Languages Spoken:
      English

      Shelby Kutty is a Pediatric Cardiologist and a Pediatrics provider in Baltimore, Maryland. Dr. Kutty is rated as an Advanced provider by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Tetralogy of Fallot, Congenital Heart Disease (CHD), Heart Transplant, and Percutaneous Coronary Intervention (PCI).

      Advanced in Barth Syndrome
      Pediatric Cardiology | Cardiology | Pediatrics
      Advanced in Barth Syndrome
      Pediatric Cardiology | Cardiology | Pediatrics

      Pediatric Academic Association, Inc.

      700 Children's Dr, 
      Columbus, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Jessie Yester is a Pediatric Cardiologist and a Cardiologist in Columbus, Ohio. Dr. Yester is rated as an Advanced provider by MediFind in the treatment of Barth Syndrome. Her top areas of expertise are Barth Syndrome, Tetralogy of Fallot, Carnitine Palmitoyltransferase 2 Deficiency, Carnitine Palmitoyltransferase 1 Deficiency, and Heart Transplant. Dr. Yester is currently accepting new patients.

      Advanced in Barth Syndrome
      Pediatric Cardiology | Pediatrics
      Advanced in Barth Syndrome
      Pediatric Cardiology | Pediatrics
      525 East 68th Street, F677, Pediatric Cardiology, 
      New York City, NY 
      Languages Spoken:
      English

      Bernhard Kuhn is a Pediatric Cardiologist and a Pediatrics provider in New York City, New York. Dr. Kuhn is rated as an Advanced provider by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Barth Syndrome, Tetralogy of Fallot, Pulmonary Valve Stenosis, and Heart Failure.

      Brian D. Feingold
      Experienced in Barth Syndrome
      Transplant Surgery
      Experienced in Barth Syndrome
      Transplant Surgery

      Pediatric Cardiology In Lawrenceville

      4401 Penn Avenue, 
      Pittsburgh, PA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Brian Feingold, MD, MS, FAHA, is medical director of the Heart Failure and Transplantation Programs at UPMC Children's Hospital of Pittsburgh and is board-certified in pediatric cardiology. He is also a professor of pediatrics and clinical and translational science at the University of Pittsburgh School of Medicine. Dr. Feingold earned his medical degree from the University of Pittsburgh. He completed an internship and residency in pediatrics at the University of Massachusetts Memorial Medical Center before returning to Pittsburgh to complete a fellowship in pediatric cardiology (serving as chief fellow in his final year) and in pediatric cardiac transplantation, heart failure, and pulmonary hypertension at UPMC Children’s Hospital. Dr. Feingold has extensive experience in outpatient and inpatient management of heart failure, pulmonary hypertension, and pre- and post-transplant care, including use of mechanical circulatory support. His research interests include care of the allosensitized patient, renal dysfunction after transplantation, cardiac involvement in Barth Syndrome, factors influencing progression to chronic allograft dysfunction/loss, and non-invasive assessment of acute rejection. Dr. Feingold has volunteered on councils/committees for the American Heart Association, International Society for Heart and Lung Transplantation, and the Organ Procurement and Transplant Network. He also has served on the Scientific and Medical Advisory Boards of the Barth Syndrome Foundation and Enduring Hearts Foundation. View the full list of Dr. Feingold’s publications on PubMed. Dr. Feingold is rated as an Experienced provider by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Multisystem Inflammatory Syndrome in Children (MIS-C) and Barth Syndrome.

      Experienced in Barth Syndrome
      Pediatric Cardiology | Advanced Heart Failure and Transplant Cardiology | Medical Genetics
      Experienced in Barth Syndrome
      Pediatric Cardiology | Advanced Heart Failure and Transplant Cardiology | Medical Genetics
      13123 E 16th Ave, 
      Aurora, CO 
      Languages Spoken:
      English
      Accepting New Patients

      Kathryn Chatfield is a Pediatric Cardiologist and an Advanced Heart Failure and Transplant Cardiologist in Aurora, Colorado. Dr. Chatfield is rated as an Experienced provider by MediFind in the treatment of Barth Syndrome. Her top areas of expertise are Noonan Syndrome, RASopathies, Costello Syndrome, Cardiomyopathic Lentiginosis, and Heart Transplant. Dr. Chatfield is currently accepting new patients.

      Experienced in Barth Syndrome
      Pediatric Cardiology | Pediatrics | Emergency Medicine
      Experienced in Barth Syndrome
      Pediatric Cardiology | Pediatrics | Emergency Medicine

      Icahn School Of Medicine At Mount Sinai

      5 E 98th St, Fl 8, 
      New York, NY 
      Languages Spoken:
      English

      David Ezon is a Pediatric Cardiologist and a Pediatrics provider in New York, New York. Dr. Ezon is rated as an Experienced provider by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Ventricular Septal Defects, Coarctation of the Aorta, Premature Infant, and Transposition of the Great Arteries.

      Experienced in Barth Syndrome
      Cardiac Electrophysiology | Pediatrics | Pediatric Cardiology
      Experienced in Barth Syndrome
      Cardiac Electrophysiology | Pediatrics | Pediatric Cardiology

      Lpch Medical Group Div Of Lucile

      725 Welch Rd, 
      Palo Alto, CA 
      Languages Spoken:
      English

      Heather Giacone is a Cardiac Electrophysiologist and a Pediatrics provider in Palo Alto, California. Dr. Giacone is rated as an Experienced provider by MediFind in the treatment of Barth Syndrome. Her top areas of expertise are Williams Syndrome, Tetralogy of Fallot, Wolff-Parkinson-White Syndrome, Situs Inversus, and Pacemaker Implantation.

      Experienced in Barth Syndrome
      Pediatric Cardiology | Cardiology | Public Health and Preventive Medicine
      Experienced in Barth Syndrome
      Pediatric Cardiology | Cardiology | Public Health and Preventive Medicine

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English, Romanian
      Accepting New Patients

      Jonathan Johnson is a Pediatric Cardiologist and a Cardiologist in Rochester, Minnesota. Dr. Johnson is rated as an Experienced provider by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Ebstein's Anomaly, Tetralogy of Fallot, Congenital Contractural Arachnodactyly, and Arachnodactyly. Dr. Johnson is currently accepting new patients.

      Experienced in Barth Syndrome
      Advanced Heart Failure and Transplant Cardiology | Pediatrics | Pediatric Cardiology
      Experienced in Barth Syndrome
      Advanced Heart Failure and Transplant Cardiology | Pediatrics | Pediatric Cardiology

      Lpch Medical Group Div Of Lucile

      725 Welch Rd, 
      Palo Alto, CA 
      Languages Spoken:
      English

      Seth Hollander is an Advanced Heart Failure and Transplant Cardiologist and a Pediatrics provider in Palo Alto, California. Dr. Hollander is rated as an Experienced provider by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Dilated Cardiomyopathy (DCM), Heart Failure, Cardiomyopathy, Hypoplastic Left Heart Syndrome (HLHS), and Heart Transplant.

      Experienced in Barth Syndrome
      Pediatric Cardiology | Pediatrics
      Experienced in Barth Syndrome
      Pediatric Cardiology | Pediatrics

      Icahn School Of Medicine At Mount Sinai

      1 Gustave L Levy Pl, 
      New York, NY 
      Languages Spoken:
      English

      Joseph Mahgerefteh is a Pediatric Cardiologist and a Pediatrics provider in New York, New York. Dr. Mahgerefteh is rated as an Experienced provider by MediFind in the treatment of Barth Syndrome. His top areas of expertise are Kawasaki Disease, Pulmonary Atresia with Intact Ventricular Septum, Right Ventricle Hypoplasia, Ventricular Septal Defects, and Heart Transplant.

      Showing 1-20 of 50

      Last Updated: 10/30/2025

      What is the definition of Barth Syndrome?

      Barth syndrome is a rare condition characterized by an enlarged and weakened heart (dilated cardiomyopathy), weakness in muscles used for movement (skeletal myopathy), recurrent infections due to small numbers of white blood cells (neutropenia), and short stature. Barth syndrome occurs almost exclusively in males.

      When should I see a Barth Syndrome doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Barth Syndrome doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Barth Syndrome doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Barth Syndrome doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Barth Syndrome doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Barth Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Barth Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Barth Syndrome doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Barth Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Barth Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Barth Syndrome doctors in The United States?

      Look for the filter feature on the left side of the Barth Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Barth Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Barth Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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