The 20 Best Behr Syndrome Doctors Near Me in Madison, WI

Find the Top Behr Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 5 doctor with experience in Behr Syndrome near Madison, WI. Of these, 5 are Experienced.

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5 providers found
    Experienced in Behr Syndrome
    Family Medicine | Geriatrics | Internal Medicine
    Experienced in Behr Syndrome
    Family Medicine | Geriatrics | Internal Medicine

    SSM Health Dean Medical Group

    1211 Fish Hatchery Road, 
    Madison, WI 
     (0.3 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Maciej Czechowski is a board certified internal medicine physician. He earned his medical degree from Jagiellonian University in Krakow, Poland. He completed his residency at Marquette General Hospital in Marquette, MI. Czechowski's practice is focused on geriatrics medicine. He has a specific interest in dermatology. Dr. Czechowski is board certified by the American Board of Family Medicine. He is a member of the American Academy of Family Physicians and the American Medical Association. In his free time, Dr. Czechowski enjoys spending time with his family, skiing, and music. Dr. Czechowski is rated as an Experienced provider by MediFind in the treatment of Behr Syndrome. His clinical expertise encompasses Spastic Ataxia Charlevoix-Saguenay Type, Infantile-Onset Spinocerebellar Ataxia (IOSCA), Behr Syndrome, and Marinesco Sjogren Syndrome. Dr. Czechowski is board certified in American Board Of Family Medicine , Drug Enforcement Administration , and Wisconsin Medical Examining Board.

    Experienced in Behr Syndrome
    Experienced in Behr Syndrome

    University Of Wisconsin Hospitals & Clinics Authority

    20 S Park St, 
    Madison, WI 
     (0.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Teresa Mangin is a Neurologist practicing medicine in Madison, Wisconsin. Dr. Mangin is rated as an Experienced provider by MediFind in the treatment of Behr Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Parkinson's Disease, Movement Disorders, Essential Tremor, and Drug Induced Dyskinesia.

    Experienced in Behr Syndrome
    Neurology
    Experienced in Behr Syndrome
    Neurology

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Laura Buyan is a Neurologist practicing medicine in Madison, Wisconsin. Dr. Buyan is rated as an Experienced provider by MediFind in the treatment of Behr Syndrome. She is also highly rated in 26 other conditions, according to our data. Her clinical expertise encompasses Parkinson's Disease, Movement Disorders, Essential Tremor, Drug Induced Dyskinesia, and Deep Brain Stimulation.

    Learn about our expert tiers
    Experienced in Behr Syndrome
    Experienced in Behr Syndrome

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English

    Andrew Waclawik is a Neurologist practicing medicine in Madison, Wisconsin. Dr. Waclawik is rated as an Experienced provider by MediFind in the treatment of Behr Syndrome. He is also highly rated in 51 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Guillain-Barre Syndrome, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Mitochondrial Complex 2 Deficiency.

    Experienced in Behr Syndrome
    Experienced in Behr Syndrome

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Kathleen Shannon is a Neurologist practicing medicine in Madison, Wisconsin. Dr. Shannon is rated as an Experienced provider by MediFind in the treatment of Behr Syndrome. She is also highly rated in 25 other conditions, according to our data. Her clinical expertise encompasses Huntington Disease, Movement Disorders, Parkinson's Disease, and Mcleod Neuroacanthocytosis Syndrome.

    Showing 1-5 of 5

    Last Updated: 04/28/2026

    What is the definition of Behr Syndrome?

    Behr syndrome is a disorder characterized by early-onset optic atrophy along with neurological features, including ataxia, spasticity, and intellectual disability. Other signs and symptoms may be present and vary from person to person. This condition is caused by genetic changes in the OPA1 gene. It is inherited in an autosomal recessive manner.

    When should I see a Behr Syndrome doctor near Madison, WI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Behr Syndrome doctor near Madison, WI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Behr Syndrome doctors near Madison, WI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Behr Syndrome doctors near Madison, WI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Behr Syndrome doctor near Madison, WI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Behr Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Behr Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Behr Syndrome doctor near Madison, WI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Behr Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Behr Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Behr Syndrome doctors near Madison, WI?

    Look for the filter feature on the left side of the Behr Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Behr Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Behr Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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