The 20 Best CACH Syndrome Doctors Near Me in vienna, VA

Find the Top CACH Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 32 doctor with experience in CACH Syndrome near vienna, VA. Of these, 27 are Experienced, 4 are Advanced and 1 are Distinguished.

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32 providers found
    Experienced in CACH Syndrome
    Experienced in CACH Syndrome
    Referral may be required

    MS Center Of Greater Washington

    8320 Old Courthouse Rd, Suite 400, 
    Vienna, VA 
     (2.0 miles away)
    Languages Spoken:
    English

    Heidi Crayton is a Neurologist practicing medicine in Vienna, Virginia. Dr. Crayton is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), CACH Syndrome, and Migraine. Dr. Crayton is board certified in Abpn.

    Experienced in CACH Syndrome
    Experienced in CACH Syndrome
    Referral may be required

    Pediatric Specialists Of Virginia

    3023 Hamaker Ct, 300, 
    Fairfax, VA 
     (2.8 miles away)
    Languages Spoken:
    English

    Daniel Licht is a Neurologist practicing medicine in Fairfax, Virginia. Dr. Licht is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Periventricular Leukomalacia, Agyria Pachygyria Polymicrogyria, PHACE Syndrome, Stroke, and Thrombectomy.

    Experienced in CACH Syndrome
    Neuroradiology | Radiology
    Experienced in CACH Syndrome
    Neuroradiology | Radiology
    Referral may be required

    Fairfax Radiological Consultants PLLC

    8260 Willow Oaks Corporate Dr, 750, 
    Fairfax, VA 
     (3.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Robert Shih is a Neuroradiologist and a Radiologist practicing medicine in Fairfax, Virginia. Dr. Shih is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Herniated Disk, CAPOS Syndrome, Cerebral Arteriovenous Malformation, and Stroke. Dr. Shih is currently accepting new patients.

    Learn about our expert tiers
    Experienced in CACH Syndrome
    Experienced in CACH Syndrome
    Referral may be required

    Inova Fairfax Hospital

    3300 Gallows Rd, Department Of Neurosciences, 
    Falls Church, VA 
     (3.6 miles away)
    Languages Spoken:
    English

    Morgan Prust is a Neurologist practicing medicine in Falls Church, Virginia. Dr. Prust is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Aicardi-Goutieres Syndrome, Stroke, Inborn Amino Acid Metabolism Disorder, Urea Cycle Disorders (UCD), and Thrombectomy.

    Advanced in CACH Syndrome
    Advanced in CACH Syndrome
    Referral may be required

    Inova Neurology - Alexandria

    1500 North Beauregard St, 300, 
    Alexandria, VA 
     (8.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mohankumar Kurukumbi is a Neurologist practicing medicine in Alexandria, Virginia. Dr. Kurukumbi is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Seizures, Subependymoma, Epilepsy, and Generalized Tonic-Clonic Seizure. Dr. Kurukumbi is currently accepting new patients.

    Experienced in CACH Syndrome
    Pediatric Neurology
    Experienced in CACH Syndrome
    Pediatric Neurology
    Referral may be required

    Friendship Heights

    5028 Wisconsin Avenue Northwest, 
    Washington, DC 
     (9.7 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Ilana Kahn is a Pediatric Neurologist practicing medicine in Washington, Washington, D.c.. Dr. Kahn is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, Seizures, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), and Partial Seizure. Dr. Kahn is board certified in American Board Of Psychiatry And Neurology, 2015.

    Distinguished in CACH Syndrome
    Distinguished in CACH Syndrome
    Referral may be required

    Office

    Nih Clinical Ctr, 
    Bethesda, MD 
     (11.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Nancy Richert is a Radiologist practicing medicine in Bethesda, Maryland. Dr. Richert is rated as a Distinguished provider by MediFind in the treatment of CACH Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Progressive Multifocal Leukoencephalopathy, CACH Syndrome, and Relapsing Multiple Sclerosis (RMS). Dr. Richert is currently accepting new patients.

    Experienced in CACH Syndrome
    Experienced in CACH Syndrome
    Referral may be required

    Inova Neurology - Fair Oaks

    3620 Joseph Siewick Dr, 400, 
    Fairfax, VA 
     (6.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Mathura Ravishankar is a Neurologist practicing medicine in Fairfax, Virginia. Dr. Ravishankar is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her clinical expertise encompasses Tourette Syndrome, Increased Intracranial Pressure, and CACH Syndrome. Dr. Ravishankar is currently accepting new patients.

    Experienced in CACH Syndrome
    Family Medicine
    Experienced in CACH Syndrome
    Family Medicine

    GW The Medical Faculty Associate

    3301 New Mexico Ave NW Ste 336, 
    Washington, DC 
     (9.7 miles away)
    Languages Spoken:
    English

    Kevin O'connor is a primary care provider, practicing in Family Medicine in Washington, Washington, D.c.. Dr. O'connor is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Neuromyelitis Optica, Inclusion Body Myositis, Thymectomy, and Kidney Transplant.

    Experienced in CACH Syndrome
    General Practice
    Experienced in CACH Syndrome
    General Practice

    Office

    10404 Crossing Creek Rd, 
    Potomac, MD 
     (9.8 miles away)
    Languages Spoken:
    English

    Ronald Germain is a primary care provider, practicing in General Practice in Potomac, Maryland. Dr. Germain is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His clinical expertise encompasses Tularemia, Flu, CACH Syndrome, and H1N1 Influenza.

    Advanced in CACH Syndrome
    Pediatric Neurology
    Advanced in CACH Syndrome
    Pediatric Neurology
    Referral may be required

    Montgomery County

    9850 Key West Avenue, 
    Rockville, MD 
     (14.1 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Laura Tochen is a Pediatric Neurologist practicing medicine in Rockville, Maryland. She has been practicing medicine for over 17 years. Dr. Tochen is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses CACH Syndrome, Pelizaeus-Merzbacher Disease, Leukodystrophy, Metachromatic Leukodystrophy, and Deep Brain Stimulation. Dr. Tochen is board certified in American Board Of Psychiatry And Neurology, 2014. Dr. Tochen is currently accepting new patients.

    Experienced in CACH Syndrome
    Experienced in CACH Syndrome
    Referral may be required

    Johns Hopkins Community Physicians - Downtown Bethesda

    7315 Wisconsin Avenue, Suite 700, 
    Bethesda, MD 
     (10.8 miles away)
    Languages Spoken:
    English, Farsi
    Accepting New Patients
    Offers Telehealth

    Bardia Nourbakhsh is a Neurologist practicing medicine in Bethesda, Maryland. Dr. Nourbakhsh is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, and Optic Neuritis. Dr. Nourbakhsh is board certified in American Board Of Psychiatry And Neurology. Dr. Nourbakhsh is currently accepting new patients.

    Advanced in CACH Syndrome
    Internal Medicine
    Advanced in CACH Syndrome
    Internal Medicine

    Nih Nhlbi Building 10 Room 6do5

    9000 Rockville Pike, 
    Bethesda, MD 
     (11.3 miles away)
    Languages Spoken:
    English

    Richard Hodes is a primary care provider, practicing in Internal Medicine in Bethesda, Maryland. Dr. Hodes is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Ataxia-Telangiectasia, Telangiectasia, CACH Syndrome, and Necrosis.

    Experienced in CACH Syndrome
    Pediatric Neurology
    Experienced in CACH Syndrome
    Pediatric Neurology
    Referral may be required

    Telehealth Video Visit

    111 Michigan Avenue Northwest, Childrens National Telemedicine, 
    Washington, DC 
     (12.8 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Alexandra Kornbluh is a Pediatric Neurologist practicing medicine in Washington, Washington, D.c.. Dr. Kornbluh is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, Seizures, CACH Syndrome, and Partial Seizure. Dr. Kornbluh is board certified in American Board Of Psychiatry And Neurology, 2020.

    Experienced in CACH Syndrome
    Pediatrics | Pediatric Neurology
    Experienced in CACH Syndrome
    Pediatrics | Pediatric Neurology
    Referral may be required

    Telehealth Video Visit

    111 Michigan Avenue Northwest, Childrens National Telemedicine, 
    Washington, DC 
     (12.8 miles away)
    Languages Spoken:
    English, Bengali, Hindi
    Offers Telehealth

    Kuntal Sen is a Pediatrics specialist and a Pediatric Neurologist practicing medicine in Washington, Washington, D.c.. Dr. Sen is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Urea Cycle Disorders (UCD), Hydranencephaly, Lissencephaly 2, and Cortical Dysplasia. Dr. Sen is board certified in American Board Of Psychiatry And Neurology, 2022 and Clinical Genetics (MD): American Board Of Medical Genetics And Genomics, 2019.

    Advanced in CACH Syndrome
    Neurology
    Advanced in CACH Syndrome
    Neurology
    Referral may be required

    Office

    297 Rollins Ave, 
    Rockville, MD 
     (13.1 miles away)
    Languages Spoken:
    English

    Yair Mina is a Neurologist practicing medicine in Rockville, Maryland. Dr. Mina is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Encephalitis, Progressive Multifocal Leukoencephalopathy, Vitamin B12 Deficiency, and CACH Syndrome.

    Experienced in CACH Syndrome
    Pediatric Neurology | Neurology
    Experienced in CACH Syndrome
    Pediatric Neurology | Neurology
    Referral may be required
    111 Michigan Ave NW, 
    Washington, DC 
     (13.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Wei-liang Chen is a Pediatric Neurologist and a Neurologist practicing medicine in Washington, Washington, D.c.. Dr. Chen is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Megalencephaly-Capillary Malformation Syndrome, Seizures, Epilepsy, and Landau-Kleffner Syndrome. Dr. Chen is board certified in Clinical Neurophysiology: American Board Of Psychiatry And Neurology, 2019, American Board Of Medical Genetics And Genomics, 2021, and Neurology With Special Qualification In Child Neurology: American Board Of Psychiatry And Neurology, 2018.

    Experienced in CACH Syndrome
    Nurse Practitioner | Pediatric Neurology
    Experienced in CACH Syndrome
    Nurse Practitioner | Pediatric Neurology
    Referral may be required

    Montgomery County

    9850 Key West Avenue, 
    Rockville, MD 
     (14.1 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Jullie Rhee is a Nurse Practitioner specialist and a Pediatric Neurologist practicing medicine in Rockville, Maryland. Rhee, NP is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her clinical expertise encompasses Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Spinal Muscular Atrophy Type 2, Leukodystrophy, and Pelizaeus-Merzbacher Disease. Rhee, NP is board certified in Acute Care Certified Pediatric Nurse Practitioner (CPNP-AC): Pediatric Nursing Certification Board, 2011.

    Experienced in CACH Syndrome
    Pediatric Neurology
    Experienced in CACH Syndrome
    Pediatric Neurology
    Referral may be required

    Montgomery County

    9850 Key West Avenue, 
    Rockville, MD 
     (14.1 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Elizabeth Wells is a Pediatric Neurologist practicing medicine in Rockville, Maryland. Dr. Wells is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Seizures, Multisystem Inflammatory Syndrome in Children (MIS-C), and Epilepsy. Dr. Wells is board certified in American Board Of Psychiatry And Neurology, 2011.

    Experienced in CACH Syndrome
    Experienced in CACH Syndrome
    Referral may be required

    MedStar Health: Neuroscience At MedStar Georgetown University Hospital

    3800 Reservoir Rd NW Fl 6, 
    Washington, DC 
     (10.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Carlo Tornatore is a Neurologist practicing medicine in Washington, Washington, D.c.. Dr. Tornatore is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Encephalitis, and Paraplegia. Dr. Tornatore is currently accepting new patients.

    Showing 1-20 of 32

    Last Updated: 09/26/2026

    What is the definition of CACH Syndrome?

    Leukoencephalopathy with vanishing white matter is a progressive disorder that mainly affects the brain and spinal cord (central nervous system). This disorder causes deterioration of the central nervous system's white matter, which consists of nerve fibers covered by myelin. Myelin is the fatty substance that insulates and protects nerves.

    When should I see a CACH Syndrome doctor near vienna, VA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a CACH Syndrome doctor near vienna, VA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank CACH Syndrome doctors near vienna, VA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by CACH Syndrome doctors near vienna, VA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a CACH Syndrome doctor near vienna, VA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CACH Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different CACH Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a CACH Syndrome doctor near vienna, VA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my CACH Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my CACH Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female CACH Syndrome doctors near vienna, VA?

    Look for the filter feature on the left side of the CACH Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a CACH Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the CACH Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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