The 20 Best CACH Syndrome Doctors Near Me

Find the Top CACH Syndrome Experts and Specialists

The 20 Best CACH Syndrome Doctors Near Me

Last Updated: 02/22/2026

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MediFind found 19248 doctor with experience in CACH Syndrome. Of these, 17248 are Experienced, 1585 are Advanced, 326 are Distinguished and 89 are Elite.

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19,248 providers found
    Joshua Bonkowsky
    Elite in CACH Syndrome
    Elite in CACH Syndrome

    Pediatric Nephrology - University Of Utah Hospital

    50 N Medical Dr, 
    Salt Lake City, UT 
    Experience:
    28+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. Josh Bonkowsky is an associate professor of Pediatric Neurology (Pediatrics) and of Neurology. He obtained his MD and PhD degrees at the University of California. His undergraduate training was at Harvard University, and his Pediatrics and Neurology/Pediatric Neurology training was at the University of Utah and Boston Children's Hospital. His clinical studies are focused on understanding clinical features of leukodystrophies and genetics of complex human neurobehavioral traits, especially language impairments. Dr. Bonkowsky's clinical research group is investigating genetics of leukodystrophies to understand the genetic and medical impacts of these disorders. The Bonkowsky Laboratory is generating disease models for high-throughput drug discovery and investigating human neurogenetic diseases, specifically diseases of basal ganglia function and white matter diseases. On sunny afternoons, Dr. Bonkowsky enjoys trail running and learning to skate ski. Dr. Bonkowsky is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are CACH Syndrome, Adrenoleukodystrophy (ALD), Leukodystrophy, Krabbe Disease, and Gastrostomy.

    Igor J. Koralnik
    Elite in CACH Syndrome
    Elite in CACH Syndrome

    Regenstein Center For Neurological Care - Lavin Family Pavilion

    259 E Erie St, Ste 1900, 
    Chicago, IL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Igor Koralnik is a Neurologist in Chicago, Illinois. Dr. Koralnik is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Progressive Multifocal Leukoencephalopathy, CACH Syndrome, Encephalitis, Thrombectomy, and Endovascular Embolization. Dr. Koralnik is currently accepting new patients.

    Elite in CACH Syndrome
    Neuroradiology
    Elite in CACH Syndrome
    Neuroradiology

    Johns Hopkins Hospital

    600 N Wolfe St, 
    Baltimore, MD 
    Languages Spoken:
    English

    Daniel Reich is a Neuroradiologist in Baltimore, Maryland. Dr. Reich is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Multiple Sclerosis (MS), CACH Syndrome, Progressive Multifocal Leukoencephalopathy, and Encephalitis.

    Learn about our expert tiers
    Elite in CACH Syndrome
    Neuroradiology
    Elite in CACH Syndrome
    Neuroradiology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    David Nascene is a Neuroradiologist in Minneapolis, Minnesota. Dr. Nascene is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are CACH Syndrome, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy with Arthrogryposis, Posterior Fossa Decompression, and Osteotomy.

    Elite in CACH Syndrome
    Elite in CACH Syndrome

    Johns Hopkins University

    600 N Wolf St, 
    Baltimore, MD 
    Languages Spoken:
    English

    Peter Calabresi is a Neurologist in Baltimore, Maryland. Dr. Calabresi is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Multiple Sclerosis (MS), Optic Neuritis, Relapsing Multiple Sclerosis (RMS), and CACH Syndrome.

    Elite in CACH Syndrome
    Neurology
    Elite in CACH Syndrome
    Neurology

    Penn Neuroscience Center - Neurology

    3400 Civic Center Boulevard, South Pavilion, 2nd Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Amit Bar is a Neurologist in Philadelphia, Pennsylvania. Dr. Bar is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), CACH Syndrome, and Encephalitis. Dr. Bar is currently accepting new patients.

    Frederik Barkhof
    Elite in CACH Syndrome
    Elite in CACH Syndrome
    UCL Queen Square Institute Of Neurology, 
    London, ENG, GB 

    Frederik Barkhof practices in London, United Kingdom. Mr. Barkhof is rated as an Elite expert by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Multiple Sclerosis (MS), Dementia, Alzheimer's Disease, CACH Syndrome, and Gastric Bypass.

    David Clifford
    Elite in CACH Syndrome
    Elite in CACH Syndrome

    Office

    4921 Parkview Pl Ste 6C, 
    Saint Louis, MO 
    Languages Spoken:
    English

    David Clifford is a Neurologist in Saint Louis, Missouri. Dr. Clifford is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Progressive Multifocal Leukoencephalopathy, CACH Syndrome, Encephalitis, and Neurosarcoidosis.

    Ingeborg Mann-Krageloh
    Elite in CACH Syndrome
    Elite in CACH Syndrome
    Tuebingen, BW, DE 

    Ingeborg Mann-Krageloh practices in Tuebingen, Germany. Ms. Mann-Krageloh is rated as an Elite expert by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Leukodystrophy, Metachromatic Leukodystrophy, CACH Syndrome, Pontocerebellar Hypoplasia, and Bone Marrow Transplant.

    Ari Waisman
    Elite in CACH Syndrome
    Elite in CACH Syndrome
    Obere Zahlbacher Str. 67, 
    Mainz, RP, DE 

    Ari Waisman practices in Mainz, Germany. Mr. Waisman is rated as an Elite expert by MediFind in the treatment of CACH Syndrome. His top areas of expertise are CACH Syndrome, Psoriasis, Leukocyte Adhesion Deficiency Type 1, Multiple Sclerosis (MS), and Tissue Biopsy.

    Elite in CACH Syndrome
    Pediatric Neurology
    Elite in CACH Syndrome
    Pediatric Neurology

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English

    Florian Eichler is a Pediatric Neurologist in Boston, Massachusetts. Dr. Eichler is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, Tay-Sachs Disease, Gangliosidosis, and Gastrostomy.

    Elite in CACH Syndrome
    Pediatric Neurology | Neurology
    Elite in CACH Syndrome
    Pediatric Neurology | Neurology

    Childrens Health Care Associates Inc

    3401 Civic Ctr Blvd, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Adeline Vanderver is a Pediatric Neurologist and a Neurologist in Philadelphia, Pennsylvania. Dr. Vanderver is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Leukodystrophy, CACH Syndrome, Pol 3-Related Leukodystrophy, and Gastrostomy.

    Elite in CACH Syndrome
    Elite in CACH Syndrome
    St. Josef Hospital, 
    Bochum, NW, DE 

    Ralf Gold practices in Bochum, Germany. Mr. Gold is rated as an Elite expert by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Multiple Sclerosis (MS), CACH Syndrome, Progressive Multifocal Leukoencephalopathy, Chronic Inflammatory Demyelinating Polyneuropathy, and Thrombectomy.

    Elite in CACH Syndrome
    Elite in CACH Syndrome
    Amsterdam, NH, NL 

    Marjo Van Der Knaap practices in Amsterdam, Netherlands. Ms. Van Der Knaap is rated as an Elite expert by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are CACH Syndrome, Leukodystrophy, Megalencephalic Leukoencephalopathy with Subcortical Cysts, Metachromatic Leukodystrophy, and Bone Marrow Transplant.

    Elite in CACH Syndrome
    Elite in CACH Syndrome
    Milan, IT 

    Ettore Salsano practices in Milan, Italy. Mr. Salsano is rated as an Elite expert by MediFind in the treatment of CACH Syndrome. His top areas of expertise are CACH Syndrome, Adrenoleukodystrophy (ALD), Addison's Disease, and Leukodystrophy.

    Elite in CACH Syndrome
    Elite in CACH Syndrome
    St, 
    Toronto, ON, CA 

    Xavier Montalban practices in Toronto, Canada. Mr. Montalban is rated as an Elite expert by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), CACH Syndrome, and Optic Neuritis.

    Elite in CACH Syndrome
    Elite in CACH Syndrome
    Brain Science Branch, 
    Niigata, JP 

    Osamu Onodera practices in Niigata, Japan. Mr. Onodera is rated as an Elite expert by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), CACH Syndrome, Primary Lateral Sclerosis, Laminectomy, and Liver Embolization.

    Elite in CACH Syndrome
    Elite in CACH Syndrome
    Paris, FR 

    Patrick Aubourg practices in Paris, France. Mr. Aubourg is rated as an Elite expert by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Adrenoleukodystrophy (ALD), Addison's Disease, CACH Syndrome, Metachromatic Leukodystrophy, and Bone Marrow Transplant.

    Elite in CACH Syndrome
    Elite in CACH Syndrome
    Seoul, KR 

    Duk Na practices in Seoul, Republic of Korea. Na is rated as an Elite expert by MediFind in the treatment of CACH Syndrome. Their top areas of expertise are Vascular Dementia, CACH Syndrome, Dementia, and Alzheimer's Disease.

    Elite in CACH Syndrome
    Elite in CACH Syndrome

    Office

    279 Campus Dr, 
    Stanford, CA 
    Languages Spoken:
    English

    Lawrence Steinman is a Neurologist in Stanford, California. Dr. Steinman is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are CACH Syndrome, Relapsing Multiple Sclerosis (RMS), Multiple Sclerosis (MS), and Transverse Myelitis.

    Showing 1-20 of 19,248

    Last Updated: 02/22/2026

    What is the definition of CACH Syndrome?

    Leukoencephalopathy with vanishing white matter is a progressive disorder that mainly affects the brain and spinal cord (central nervous system). This disorder causes deterioration of the central nervous system's white matter, which consists of nerve fibers covered by myelin. Myelin is the fatty substance that insulates and protects nerves.

    When should I see a CACH Syndrome doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a CACH Syndrome doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank CACH Syndrome doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by CACH Syndrome doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a CACH Syndrome doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CACH Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different CACH Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a CACH Syndrome doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my CACH Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my CACH Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female CACH Syndrome doctors near me?

    Look for the filter feature on the left side of the CACH Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a CACH Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the CACH Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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