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    Last Updated: 10/30/2025

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    MediFind found 495 doctor with experience in Canavan Disease. Of these, 392 are Experienced, 89 are Advanced, 10 are Distinguished and 4 are Elite.

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    LocationClose
    495 providers found
      Elite in Canavan Disease
      Elite in Canavan Disease

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Florian Eichler is a Neurologist in Boston, Massachusetts. Dr. Eichler is rated as an Elite provider by MediFind in the treatment of Canavan Disease. His top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, Tay-Sachs Disease, Gangliosidosis, and Gastrostomy. Dr. Eichler is currently accepting new patients.

      Elite in Canavan Disease
      Elite in Canavan Disease
      Martini Str. 52, 
      Hamburg, HH, DE 

      Annette Bley practices in Hamburg, Germany. Ms. Bley is rated as an Elite expert by MediFind in the treatment of Canavan Disease. Her top areas of expertise are Canavan Disease, CACH Syndrome, Leukodystrophy, and Metachromatic Leukodystrophy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in Canavan Disease
      Elite in Canavan Disease
      2425 Stockton Blvd, Shriners Hospital For Children Northern California, 
      Sacramento, CA 
      Languages Spoken:
      English

      David Pleasure is a Neurologist in Sacramento, California. Dr. Pleasure is rated as an Elite provider by MediFind in the treatment of Canavan Disease. His top areas of expertise are Canavan Disease, CACH Syndrome, Leukodystrophy, and Periventricular Leukomalacia.

      Learn about our expert tiers
      Elite in Canavan Disease
      Elite in Canavan Disease
      No. 157, Jinbi Road, 
      Kunming, CN 

      Hongxia Xu practices in Kunming, China. Xu is rated as an Elite expert by MediFind in the treatment of Canavan Disease. Their top areas of expertise are Canavan Disease, CACH Syndrome, Cataract, Vitrectomy, and Tubal Ligation.

      Advanced in Canavan Disease
      Advanced in Canavan Disease
      3300 Main Street, 3rd Floor Suite C&d, 
      Springfield, MA 
      Languages Spoken:
      English

      Meghan Hickey is a Neurologist in Springfield, Massachusetts. Dr. Hickey is rated as an Advanced provider by MediFind in the treatment of Canavan Disease. Her top areas of expertise are Seizures, Migraine, Autosomal Dominant Partial Epilepsy with Auditory Features, and Tension Headache.

      Advanced in Canavan Disease
      Advanced in Canavan Disease

      University Of Cincinnati Physicians Company LLC

      3188 Bellevue Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Lawrence Goldstick is a Neurologist in Cincinnati, Ohio. Dr. Goldstick is rated as an Advanced provider by MediFind in the treatment of Canavan Disease. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Cerebellar Degeneration, and Peripheral Neuropathy. Dr. Goldstick is currently accepting new patients.

      Experienced in Canavan Disease
      Neurology
      Experienced in Canavan Disease
      Neurology

      University Of Cincinnati Physicians Company LLC

      68 Cavalier Blvd, 
      Florence, KY 
      Languages Spoken:
      English, Farsi
      Accepting New Patients
      Offers Telehealth

      Aram Zabeti is a Neurologist in Florence, Kentucky. Dr. Zabeti is rated as an Experienced provider by MediFind in the treatment of Canavan Disease. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Optic Neuritis, and Neuromyelitis Optica. Dr. Zabeti is currently accepting new patients.

      Experienced in Canavan Disease
      Family Medicine
      Experienced in Canavan Disease
      Family Medicine

      Loyola University Medical Center

      2160 S 1st Ave, 
      Maywood, IL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Amy Blair is a primary care provider, practicing in Family Medicine in Maywood, Illinois. Dr. Blair is rated as an Experienced provider by MediFind in the treatment of Canavan Disease. Her top areas of expertise are Breast Cancer, Type 2 Diabetes (T2D), Hypertension, and Familial Hypertension. Dr. Blair is currently accepting new patients.

      Experienced in Canavan Disease
      Experienced in Canavan Disease

      Froedtert Andthe Medical College Of Wisconsin Community Physicians Inc

      4805 S Moorland Rd, 
      New Berlin, WI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Ryan Brennan is a Neurologist in New Berlin, Wisconsin. Dr. Brennan is rated as an Experienced provider by MediFind in the treatment of Canavan Disease. His top areas of expertise are Movement Disorders, Parkinson's Disease, Essential Tremor, Camptocormism, and Deep Brain Stimulation. Dr. Brennan is currently accepting new patients.

      Distinguished in Canavan Disease
      Distinguished in Canavan Disease
      Sydney, NSW, AU 

      Georg Von Jonquieres practices in Sydney, Australia. Mr. Von Jonquieres is rated as a Distinguished expert by MediFind in the treatment of Canavan Disease. His top areas of expertise are Canavan Disease, Leukodystrophy, CACH Syndrome, and Spasticity.

      Distinguished in Canavan Disease
      Family Medicine
      Distinguished in Canavan Disease
      Family Medicine

      The Board Of Trustees Of The University Of Illinois

      1740 W Taylor St, 
      Chicago, IL 
      Languages Spoken:
      English, Japanese

      Masahito Jimbo is a primary care provider, practicing in Family Medicine in Chicago, Illinois. Dr. Jimbo is rated as a Distinguished provider by MediFind in the treatment of Canavan Disease. His top areas of expertise are Farber Lipogranulomatosis, CACH Syndrome, Leukodystrophy, and Pelizaeus-Merzbacher Disease.

      Distinguished in Canavan Disease
      Distinguished in Canavan Disease
      Doha, DA, QA 

      Hatem Zayed practices in Doha, Qatar. Mr. Zayed is rated as a Distinguished expert by MediFind in the treatment of Canavan Disease. His top areas of expertise are Canavan Disease, Glutaric Acidemia Type 1, Classic Galactosemia, Galactose Epimerase Deficiency, and Angioplasty.

      Distinguished in Canavan Disease
      Distinguished in Canavan Disease

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Jacinda Sampson is a Neurologist in Stanford, California. Dr. Sampson is rated as a Distinguished provider by MediFind in the treatment of Canavan Disease. Her top areas of expertise are Oculodentodigital Dysplasia, Myotonic Dystrophy Type 2, Myotonic Dystrophy, Paramyotonia Congenita, and Thymectomy.

      Distinguished in Canavan Disease
      Distinguished in Canavan Disease
      Baxalta Innovations GmbH, Donau City Str. 7, 
      Vienna, AT 

      Matthias Klugmann practices in Vienna, Austria. Mr. Klugmann is rated as a Distinguished expert by MediFind in the treatment of Canavan Disease. His top areas of expertise are Canavan Disease, Leukodystrophy, Spasticity, and CACH Syndrome.

      Distinguished in Canavan Disease
      Distinguished in Canavan Disease

      University Of Texas Southwestern Medical Center At Dallas

      5303 Harry Hines Blvd, Fl 6, 
      Dallas, TX 
      Languages Spoken:
      English
      Offers Telehealth

      Vikram Shakkottai is a Neurologist in Dallas, Texas. Dr. Shakkottai is rated as a Distinguished provider by MediFind in the treatment of Canavan Disease. His top areas of expertise are Olivopontocerebellar Atrophy, Spinocerebellar Ataxia, Spinocerebellar Ataxia Type 1, and Drug Induced Dyskinesia.

      Distinguished in Canavan Disease
      Distinguished in Canavan Disease
      Bengaluru, KA, IN 

      Vykuntaraju Gowda practices in Bengaluru, India. Gowda is rated as a Distinguished expert by MediFind in the treatment of Canavan Disease. Their top areas of expertise are Biotinidase Deficiency, Riboflavin Transporter Deficiency Neuronopathy, Multiple Carboxylase Deficiency, and West Syndrome.

      Distinguished in Canavan Disease
      Distinguished in Canavan Disease
      Sydney, NSW, AU 

      Gary Housley practices in Sydney, Australia. Mr. Housley is rated as a Distinguished expert by MediFind in the treatment of Canavan Disease. His top areas of expertise are Canavan Disease, Leukodystrophy, Ganglion Cyst, and Occupational Hearing Loss.

      Distinguished in Canavan Disease
      Neurology | Neurosurgery
      Distinguished in Canavan Disease
      Neurology | Neurosurgery

      Virtua Medical Group, PA

      3242 Route 206, 
      Bordentown, NJ 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Christopher Janson is a Neurologist and a Neurosurgery provider in Bordentown, New Jersey. Dr. Janson is rated as a Distinguished provider by MediFind in the treatment of Canavan Disease. His top areas of expertise are Canavan Disease, Stroke, Transient Ischemic Attack (TIA), Generalized Tonic-Clonic Seizure, and Gastrostomy. Dr. Janson is currently accepting new patients.

      Distinguished in Canavan Disease
      Distinguished in Canavan Disease
      Sydney, NSW, AU 

      Dominik Frohlich practices in Sydney, Australia. Mr. Frohlich is rated as a Distinguished expert by MediFind in the treatment of Canavan Disease. His top areas of expertise are Canavan Disease, Leukodystrophy, Spasticity, and CACH Syndrome.

      Sumit Parikh
      Advanced in Canavan Disease
      Pediatric Neurology
      Advanced in Canavan Disease
      Pediatric Neurology

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
      Experience:
      31+ years
      Languages Spoken:
      English

      Sumit Parikh is a Pediatric Neurologist in Cleveland, Ohio. Dr. Parikh has been practicing medicine for over 31 years and is rated as an Advanced provider by MediFind in the treatment of Canavan Disease. His top areas of expertise are Leigh Syndrome, Kearns-Sayre Syndrome, Maternally Inherited Leigh Syndrome, and MELAS Syndrome.

      Showing 1-20 of 495

      Last Updated: 10/30/2025

      What is the definition of Canavan Disease?

      Canavan disease is a progressive, fatal, genetic disorder affecting the central nervous system, muscles, and eyes. Early symptoms in infancy may include increased head size, weakness, low muscle tone and loss of head control. Symptoms progress to seizures, blindness, inability to move voluntarily and difficulty eating solids or swallowing liquids. This condition is caused by changes in the ASPA gene and is inherited in an autosomal recessive pattern. Canavan disease is diagnosed based on symptoms, laboratory testing, and genetic testing.

      When should I see a Canavan Disease doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Canavan Disease doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Canavan Disease doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Canavan Disease doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Canavan Disease doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Canavan Disease doctor search results page. 

      Why is it important to get a second opinion from a different Canavan Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Canavan Disease doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Canavan Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Canavan Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Canavan Disease doctors near me?

      Look for the filter feature on the left side of the Canavan Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Canavan Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Canavan Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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