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    Last Updated: 01/09/2026

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    MediFind found 33 doctor with experience in Canavan Disease near Germany. Of these, 28 are Experienced, 4 are Advanced and 1 are Elite.

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    33 providers found
      Elite in Canavan Disease

      Annette E. Bley
      Elite in Canavan Disease

      Annette E. Bley
      Martini Str. 52, 
      Hamburg, HH, DE 

      Annette Bley practices in Hamburg, Germany. Ms. Bley is rated as an Elite expert by MediFind in the treatment of Canavan Disease. Her top areas of expertise are Canavan Disease, CACH Syndrome, Leukodystrophy, and Metachromatic Leukodystrophy.

      Advanced in Canavan Disease

      Jorn O. Sass
      Advanced in Canavan Disease

      Jorn O. Sass
      Von Liebig Str. 20, 
      Rheinbach, NW, DE 

      Jorn Sass practices in Rheinbach, Germany. Mr. Sass is rated as an Advanced expert by MediFind in the treatment of Canavan Disease. His top areas of expertise are Succinyl-CoA:3-Ketoacid CoA Transferase Deficiency, 3-Hydroxy-3-Methylglutaryl-CoA Lyase Deficiency, Beta-Ketothiolase Deficiency, and Molybdenum Cofactor Deficiency (MoCD).

      Advanced in Canavan Disease

      Matthias Eckhardt
      Advanced in Canavan Disease

      Matthias Eckhardt
      Bonn, NW, DE 

      Matthias Eckhardt practices in Bonn, Germany. Mr. Eckhardt is rated as an Advanced expert by MediFind in the treatment of Canavan Disease. His top areas of expertise are Canavan Disease, Hereditary Spastic Paraparesis, CACH Syndrome, and Spastic Paraplegia Type 2.

      Learn about our expert tiers
      Advanced in Canavan Disease

      Alfried Kohlschutter
      Advanced in Canavan Disease

      Alfried Kohlschutter
      Martini Str. 52, 
      Hamburg, HH, DE 

      Alfried Kohlschutter practices in Hamburg, Germany. Kohlschutter is rated as an Advanced expert by MediFind in the treatment of Canavan Disease. Their top areas of expertise are CLN1 Disease, CLN4 Disease, CLN5 Disease, CLN3 Disease, and Bone Marrow Transplant.

      Advanced in Canavan Disease

      Lihua Eckhardt-Wang
      Advanced in Canavan Disease

      Lihua Eckhardt-Wang
      Bonn, NW, DE 

      Lihua Eckhardt-Wang practices in Bonn, Germany. Eckhardt-Wang is rated as an Advanced expert by MediFind in the treatment of Canavan Disease. Their top areas of expertise are Canavan Disease, Hereditary Spastic Paraparesis, Spastic Paraplegia Type 2, and Spastic Paraplegia Type 7.

      Christiane Herden
      Experienced in Canavan Disease

      Christiane Herden
      Experienced in Canavan Disease

      Christiane Herden
      Frankfurter Str. 96, 
      Giessen, HE, DE 

      Christiane Herden practices in Giessen, Germany. Ms. Herden is rated as an Experienced expert by MediFind in the treatment of Canavan Disease. Her top areas of expertise are Rat-Bite Fever, Encephalitis, Cerebral Hypoxia, and Hydrocephalus due to Congenital Stenosis of Aqueduct of Sylvius.

      Experienced in Canavan Disease

      Ivonne Becker
      Experienced in Canavan Disease

      Ivonne Becker
      Bonn, NW, DE 

      Ivonne Becker practices in Bonn, Germany. Ms. Becker is rated as an Experienced expert by MediFind in the treatment of Canavan Disease. Her top areas of expertise are Canavan Disease, Hereditary Spastic Paraparesis, Paraplegia, and Spastic Paraplegia Type 2.

      Experienced in Canavan Disease

      Andre Wegner
      Experienced in Canavan Disease

      Andre Wegner
      Braunschweig, NI, DE 

      Andre Wegner practices in Braunschweig, Germany. Mr. Wegner is rated as an Experienced expert by MediFind in the treatment of Canavan Disease. His top areas of expertise are Canavan Disease, Cerebral Hypoxia, and CACH Syndrome.

      Experienced in Canavan Disease

      Philipp Guder
      Experienced in Canavan Disease

      Philipp Guder
      Martini Str. 52, 
      Hamburg, HH, DE 

      Philipp Guder practices in Hamburg, Germany. Mr. Guder is rated as an Experienced expert by MediFind in the treatment of Canavan Disease. His top areas of expertise are Zellweger Syndrome, Pelizaeus-Merzbacher Disease, Canavan Disease, and Glycine Encephalopathy.

      Experienced in Canavan Disease

      Susann Schweiger
      Experienced in Canavan Disease

      Susann Schweiger
      Mainz, RP, DE 

      Susann Schweiger practices in Mainz, Germany. Ms. Schweiger is rated as an Experienced expert by MediFind in the treatment of Canavan Disease. Her top areas of expertise are Huntington Disease, Tuberous Sclerosis, Tuberous Sclerosis Complex, Retinopathy Pigmentary Mental Retardation, and Trabeculectomy.

      Experienced in Canavan Disease

      Maja Hempel
      Experienced in Canavan Disease

      Maja Hempel
      Martini Str. 52, 
      Hamburg, HH, DE 

      Maja Hempel practices in Hamburg, Germany. Ms. Hempel is rated as an Experienced expert by MediFind in the treatment of Canavan Disease. Her top areas of expertise are Lactic Acidosis, Mitochondrial Complex 3 Deficiency, Hypotonia, and Microcephaly.

      Experienced in Canavan Disease

      Thomas Bilzer
      Experienced in Canavan Disease

      Thomas Bilzer
      Leverkusen, NW, DE 

      Thomas Bilzer practices in Leverkusen, Germany. Mr. Bilzer is rated as an Experienced expert by MediFind in the treatment of Canavan Disease. His top areas of expertise are Collagen VI-Related Myopathy, Canavan Disease, Acute Cerebellar Ataxia, and Macroglossia.

      Experienced in Canavan Disease

      Anna Wierczeiko
      Experienced in Canavan Disease

      Anna Wierczeiko
      Gutenberg, RP, DE 

      Anna Wierczeiko practices in Gutenberg, Germany. Ms. Wierczeiko is rated as an Experienced expert by MediFind in the treatment of Canavan Disease. Her top areas of expertise are Canavan Disease and Rheumatoid Lung Disease.

      Experienced in Canavan Disease

      Rene Santer
      Experienced in Canavan Disease

      Rene Santer
      Eppendorf, HH, DE 

      Rene Santer practices in Eppendorf, Germany. Santer is rated as an Experienced expert by MediFind in the treatment of Canavan Disease. Their top areas of expertise are Mucolipidosis Type 4, Isovaleric Acidemia, Fructose-1,6-Bisphosphatase Deficiency, Fanconi Syndrome, and Liver Transplant.

      Experienced in Canavan Disease

      Gerhard M. Schon
      Experienced in Canavan Disease

      Gerhard M. Schon
      Martini Str. 52, 
      Hamburg, HH, DE 

      Gerhard Schon practices in Hamburg, Germany. Mr. Schon is rated as an Experienced expert by MediFind in the treatment of Canavan Disease. His top areas of expertise are Stroke, Alexander Disease, Marfan Syndrome, Thrombectomy, and Osteotomy.

      Experienced in Canavan Disease

      Christoph M. Heyer
      Experienced in Canavan Disease

      Christoph M. Heyer
      Bochum, NW, DE 

      Christoph Heyer practices in Bochum, Germany. Mr. Heyer is rated as an Experienced expert by MediFind in the treatment of Canavan Disease. His top areas of expertise are Juvenile Paget's Disease, Primary Lateral Sclerosis, Rhizomelic Syndrome, Canavan Disease, and Osteotomy.

      Experienced in Canavan Disease

      Susanne Gerber
      Experienced in Canavan Disease

      Susanne Gerber
      Gutenberg, RP, DE 

      Susanne Gerber practices in Gutenberg, Germany. Ms. Gerber is rated as an Experienced expert by MediFind in the treatment of Canavan Disease. Her top areas of expertise are Canavan Disease, Lamellar Ichthyosis, Angelman Syndrome, and Alzheimer's Disease.

      Experienced in Canavan Disease

      Sabine Hoffjan
      Experienced in Canavan Disease

      Sabine Hoffjan
      St. Josef Hospital, 
      Bochum, NW, DE 

      Sabine Hoffjan practices in Bochum, Germany. Ms. Hoffjan is rated as an Experienced expert by MediFind in the treatment of Canavan Disease. Her top areas of expertise are Beta-Propeller Protein-Associated Neurodegeneration, Hallervorden-Spatz Disease, Primary Lateral Sclerosis, and Lipoid Proteinosis.

      Experienced in Canavan Disease

      Simona Murko
      Experienced in Canavan Disease

      Simona Murko
      Hamburg, HH, DE 

      Simona Murko practices in Hamburg, Germany. Ms. Murko is rated as an Experienced expert by MediFind in the treatment of Canavan Disease. Her top areas of expertise are Fanconi Syndrome, Fanconi Bickel Syndrome, Isovaleric Acidemia, and Canavan Disease.

      Experienced in Canavan Disease

      Miriam H. Schneider
      Experienced in Canavan Disease

      Miriam H. Schneider
      Heidelberg, BW, DE 

      Miriam Schneider practices in Heidelberg, Germany. Ms. Schneider is rated as an Experienced expert by MediFind in the treatment of Canavan Disease. Her top areas of expertise are Cerebral Hypoxia, Canavan Disease, and Status Epilepticus.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 33

      Last Updated: 01/09/2026

      What is the definition of Canavan Disease?

      Canavan disease is a progressive, fatal, genetic disorder affecting the central nervous system, muscles, and eyes. Early symptoms in infancy may include increased head size, weakness, low muscle tone and loss of head control. Symptoms progress to seizures, blindness, inability to move voluntarily and difficulty eating solids or swallowing liquids. This condition is caused by changes in the ASPA gene and is inherited in an autosomal recessive pattern. Canavan disease is diagnosed based on symptoms, laboratory testing, and genetic testing.

      When should I see a Canavan Disease doctor in Germany?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Canavan Disease doctor in Germany?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Canavan Disease doctor in Germany?

      You can find a Canavan Disease doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Canavan Disease doctors in Germany?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Canavan Disease doctors in Germany?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Canavan Disease doctor in Germany?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Canavan Disease doctor search results page. 

      Why is it important to get a second opinion from a different Canavan Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Canavan Disease doctor in Germany?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Canavan Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Canavan Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Canavan Disease doctors in Germany?

      Look for the filter feature on the left side of the Canavan Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Canavan Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Canavan Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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