EUROAAOCA Registry
Status: Recruiting
Location: See all (2) locations...
Intervention Type: Procedure
Study Type: Observational
SUMMARY
Anomalous aortic origin of a coronary artery (AAOCA) is a group of rare congenital heart defects with various clinical presentations. The lifetime-risk of an individual living with AAOCA is unknown, and data from multicentre registries are urgently needed to adapt current recommendations and guide optimal patient management. The European Registry for AAOCA (EURO-AAOCA) aims to assess differences with regard to AAOCA management between centres.
Eligibility
Participation Requirements
Sex: All
Healthy Volunteers: f
View:
• All patients with a diagnosis of AAOCA (either referred to surgery or to medical follow-up )
Locations
Other Locations
Italy
Massimo Padalino
RECRUITING
Padua
Switzerland
Christopher Grani
RECRUITING
Bern
Contact Information
Primary
Massimo Padalino, MD PhD
massimo.padalino@unipd.it
00393408922564
Backup
Chris Grani, MD PhD
christoph.graeni@insel.ch
0041788158858
Time Frame
Start Date: 2019-01-01
Estimated Completion Date: 2029-01-01
Participants
Target number of participants: 500
Treatments
adult > 30 years
All adult patient \> 30 yrs undergoing diagnosis (incidental or not) of anomalous aortic origin of coronary arteries
Juvenile < 30 yrs
All young patient \<30 yrs undergoing diagnosis (incidental or not) of anomalous aortic origin of coronary arteries
Related Therapeutic Areas
Sponsors
Collaborators: IRCCS Policlinico S. Donato, University Medical Center Groningen, Azienda Ospedaliera Universitaria Integrata Verona, Cliniques universitaires Saint-Luc- Université Catholique de Louvain, Hospital Universitario La Paz, Guy's and St Thomas' NHS Foundation Trust, Ospedale Civile Ca' Foncello, Insel Gruppe AG, University Hospital Bern, Azienda Ospedaliero-Universitaria di Parma, Mitera Children's Hospital, Athens Heart Surgery Institute, Greece, University Hospital, Ghent
Leads: University of Padova