The 20 Best Cardiofaciocutaneous Syndrome Doctors Near Me in Madison, WI

Find the Top Cardiofaciocutaneous Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 5 doctor with experience in Cardiofaciocutaneous Syndrome near Madison, WI. Of these, 5 are Experienced.

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5 providers found
    Experienced in Cardiofaciocutaneous Syndrome
    Pediatrics
    Experienced in Cardiofaciocutaneous Syndrome
    Pediatrics

    UnityPoint Health Meriter

    202 S Park St, 
    Madison, WI 
     (0.5 miles away)
    Languages Spoken:
    English

    Sumita Ram is a Pediatrics provider practicing medicine in Madison, Wisconsin. Dr. Ram is rated as an Experienced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. Her clinical expertise encompasses Obesity in Children, Cardiofaciocutaneous Syndrome, Autism Spectrum Disorder, and Asthma in Children.

    Experienced in Cardiofaciocutaneous Syndrome
    Pediatric Gastroenterology
    Experienced in Cardiofaciocutaneous Syndrome
    Pediatric Gastroenterology

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English

    Luther Sigurdsson is a Pediatric Gastroenterologist practicing medicine in Madison, Wisconsin. Dr. Sigurdsson is rated as an Experienced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. His clinical expertise encompasses Childhood Pancreatitis, Cardiofaciocutaneous Syndrome, Encopresis, and Short Bowel Syndrome.

    Experienced in Cardiofaciocutaneous Syndrome
    Pediatric Endocrinology
    Experienced in Cardiofaciocutaneous Syndrome
    Pediatric Endocrinology

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English

    David Allen is a Pediatric Endocrinologist practicing medicine in Madison, Wisconsin. Dr. Allen is rated as an Experienced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. His clinical expertise encompasses Short Stature (Growth Disorders), Idiopathic Short Stature (ISS), Familial Short Stature (FSS), and Noonan Syndrome.

    Learn about our expert tiers
    Experienced in Cardiofaciocutaneous Syndrome
    Hematology
    Experienced in Cardiofaciocutaneous Syndrome
    Hematology

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English

    Jane Churpek is a Hematologist practicing medicine in Madison, Wisconsin. Dr. Churpek is rated as an Experienced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Myelodysplastic Syndrome (MDS), Mesothelioma, Li-Fraumeni Syndrome, Leukemia, and Bone Marrow Aspiration.

    Experienced in Cardiofaciocutaneous Syndrome
    Sleep Medicine
    Experienced in Cardiofaciocutaneous Syndrome
    Sleep Medicine

    Office

    6001 Research Park Blvd, 
    Madison, WI 
     (4.4 miles away)
    Languages Spoken:
    English

    Camilla Matthews is a Sleep Medicine provider practicing medicine in Madison, Wisconsin. Dr. Matthews is rated as an Experienced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. Her clinical expertise encompasses Multiple Epiphyseal Dysplasia and Cardiofaciocutaneous Syndrome.

    To see more doctors, please expand your search radius or view related conditions below.

    RASopathies

    Showing 1-5 of 5

    Last Updated: 04/28/2026

    What is the definition of Cardiofaciocutaneous Syndrome?

    Cardiofaciocutaneous (CFC) syndrome is a disorder that affects many parts of the body, particularly the heart, face, skin, and hair. People with this condition also have developmental delay and intellectual disability, usually ranging from moderate to severe. The symptoms of CFC syndrome overlap significantly with those of two other conditions, Costello syndrome and Noonan syndrome. These syndromes belong to a group of related conditions called the RASopathies, which are distinguished by their genetic causes and specific pattern of features. It can sometimes be hard to tell these conditions apart in infancy. CFC syndrome is usually caused by a genetic change in the BRAF gene, but can also be due to a genetic change in the MAP2K1, MAP2K2 or KRAS gene. It is an autosomal dominant condition, but most cases are not inherited, due to a new genetic change that occursin the formation of the egg or sperm or shortly after fertilization.

    When should I see a Cardiofaciocutaneous Syndrome doctor near Madison, WI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Cardiofaciocutaneous Syndrome doctor near Madison, WI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Cardiofaciocutaneous Syndrome doctors near Madison, WI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Cardiofaciocutaneous Syndrome doctors near Madison, WI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Cardiofaciocutaneous Syndrome doctor near Madison, WI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cardiofaciocutaneous Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Cardiofaciocutaneous Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Cardiofaciocutaneous Syndrome doctor near Madison, WI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Cardiofaciocutaneous Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Cardiofaciocutaneous Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Cardiofaciocutaneous Syndrome doctors near Madison, WI?

    Look for the filter feature on the left side of the Cardiofaciocutaneous Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Cardiofaciocutaneous Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Cardiofaciocutaneous Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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