The 20 Best Castleman Disease Doctors in The United States

Find the Top Castleman Disease Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 1603 doctor with experience in Castleman Disease near The United States. Of these, 1348 are Experienced, 220 are Advanced, 26 are Distinguished and 9 are Elite.

Location
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1,603 providers found
    Elite in Castleman Disease
    Elite in Castleman Disease

    Dana-Farber Cancer Institute, Lipper Multiple Myeloma Center

    450 Brookline Avenue, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Nikhil Munshi is an Oncologist practicing medicine in Boston, Massachusetts. Dr. Munshi is rated as an Elite provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Multiple Myeloma, Smoldering Multiple Myeloma, Castleman Disease, and Relapsed Refractory Multiple Myeloma (RRMM). Dr. Munshi is board certified in Internal Medicine and Medical Oncology.

    Elite in Castleman Disease
    Hematology | Oncology
    Elite in Castleman Disease
    Hematology | Oncology

    Cleveland Clinic Main Campus

    10201 Carnegie Avenue, 
    Cleveland, OH 
    Languages Spoken:
    English, Bengali, Hindi
    Offers Telehealth

    Sudipto Mukherjee is a Hematologist and an Oncologist practicing medicine in Cleveland, Ohio. Dr. Mukherjee is rated as an Elite provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 34 other conditions, according to our data. His clinical expertise encompasses Multicentric Castleman Disease (MCD), Castleman Disease, Myelodysplastic Syndrome (MDS), Acute Myeloid Leukemia (AML), and Bone Marrow Aspiration. Dr. Mukherjee is board certified in American Board Of Internal Medicine, 2019.

    Elite in Castleman Disease
    Hematology | Oncology
    Elite in Castleman Disease
    Hematology | Oncology

    Atrium Health Levine Cancer Institute (Hematology)

    1021 Morehead Medical Drive, Building 2, Suite 60201, 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Peter Voorhees is a Hematologist and an Oncologist practicing medicine in Charlotte, North Carolina. Dr. Voorhees is rated as an Elite provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Multiple Myeloma, Smoldering Multiple Myeloma, Relapsed Refractory Multiple Myeloma (RRMM), Bone Marrow Transplant, and Bone Marrow Aspiration. Dr. Voorhees is board certified in American Board Of Internal Medicine, Hematology. Dr. Voorhees is currently accepting new patients.

    Are you looking for a specific type of Castleman Disease?

    Common conditions include: Multicentric Castleman Disease (MCD), Unicentric Castleman Disease (UCD)

    Learn about our expert tiers
    Elite in Castleman Disease
    Elite in Castleman Disease

    Clinical Cancer Center-Froedtert Hospital

    8800 W Doyne Ave, 
    Milwaukee, WI 
    Languages Spoken:
    English

    Razelle Kurzrock is an Oncologist practicing medicine in Milwaukee, Wisconsin. Dr. Kurzrock is rated as an Elite provider by MediFind in the treatment of Castleman Disease. She is also highly rated in 37 other conditions, according to our data. Her clinical expertise encompasses PIK3CA-Related Overgrowth Spectrum, Castleman Disease, Multicentric Castleman Disease (MCD), Lymphoid Hyperplasia, and Tissue Biopsy.

    Elite in Castleman Disease
    Elite in Castleman Disease

    Office

    10 Center Dr # 6N110, 
    Bethesda, MD 
    Languages Spoken:
    English

    Ramya Meenakshi is an Oncologist practicing medicine in Bethesda, Maryland. Dr. Meenakshi is rated as an Elite provider by MediFind in the treatment of Castleman Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Castleman Disease, Lymphoid Hyperplasia, Adult Soft Tissue Sarcoma, and Multicentric Castleman Disease (MCD).

    Elite in Castleman Disease
    Elite in Castleman Disease

    MN - Cancer Hematology

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Angela Dispenzieri is a Hematologist practicing medicine in Rochester, Minnesota. Dr. Dispenzieri is rated as an Elite provider by MediFind in the treatment of Castleman Disease. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Primary Amyloidosis, POEMS Syndrome, Multiple Myeloma, Bone Marrow Transplant, and Bone Marrow Aspiration.

    Elite in Castleman Disease
    Elite in Castleman Disease

    Select Specialty Hosp-Columbus

    410 W 10th Ave, 
    Columbus, OH 
    Languages Spoken:
    English

    Kathryn Lurain is a Hematologist practicing medicine in Columbus, Ohio. Dr. Lurain is rated as an Elite provider by MediFind in the treatment of Castleman Disease. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Castleman Disease, Multicentric Castleman Disease (MCD), B-Cell Lymphoma, and Non-Hodgkin Lymphoma.

    Elite in Castleman Disease
    Elite in Castleman Disease

    UT MD Anderson Cancer Center

    1515 Holcombe Blvd, 
    Houston, TX 
    Languages Spoken:
    English
    Offers Telehealth

    Luis Fayad is an Oncologist practicing medicine in Houston, Texas. Dr. Fayad is rated as an Elite provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Non-Hodgkin Lymphoma, B-Cell Lymphoma, Diffuse Large B-Cell Lymphoma (DLBCL), Bone Marrow Aspiration, and Bone Marrow Transplant.

    Elite in Castleman Disease
    Internal Medicine
    Elite in Castleman Disease
    Internal Medicine

    Mayo Clinic-Rochester

    5716 Cleveland St Ste 200, 
    Virginia Beach, VA 
    Languages Spoken:
    English

    Yoshito Nishimura is an Internal Medicine provider practicing medicine in Virginia Beach, Virginia. Dr. Nishimura is rated as an Elite provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Castleman Disease, Lymphoid Hyperplasia, Multicentric Castleman Disease (MCD), Lymphofollicular Hyperplasia, and Endoscopy.

    Experienced in Castleman Disease
    Hematology | Oncology
    Experienced in Castleman Disease
    Hematology | Oncology

    Advocate Medical Group Oncology

    900 W Nelson St Ground Fl, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Denise Levitan is a Hematologist and an Oncologist practicing medicine in Chicago, Illinois. Dr. Levitan is rated as an Experienced provider by MediFind in the treatment of Castleman Disease. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Chronic Lymphocytic Leukemia (CLL), Cervical Cancer, Breast Cancer, and Myelodysplastic Syndrome (MDS). Dr. Levitan is board certified in American Board Of Internal Medicine, Medical Oncology.

    Experienced in Castleman Disease
    Experienced in Castleman Disease

    Ballad Health Cancer Center

    2202 North John B. Dennis Highway, Suite 100, 
    Kingsport, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Nakhoul is rated as an Experienced provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Colorectal Cancer, Lung Cancer, Familial Colorectal Cancer, and Pleuropulmonary Blastoma. Dr. Nakhoul is board certified in American Board Of Internal Medicine.

    Experienced in Castleman Disease
    Experienced in Castleman Disease

    Cancer Centers Of Colorado - Sloan's Lake

    1601 Lowell Boulevard, Suite 150, 
    Denver, CO 
    Experience:
    18+ years
    Languages Spoken:
    English
    Accepting New Patients

    Originally from Ohio, Dr. Jahangiri earned her medical degree and completed both her internship and residency at Northeast Ohio Medical University College of Medicine in Rootstown, Ohio. She went on to complete a fellowship in hematology and oncology at the University of Rochester Medical Center in Rochester, New York. Dr. Jahangiri has been practicing medicine for 6 years. Her clinical interests include gastrointestinal cancers, blood disorders and blood cancers.“I believe strongly in providing high quality oncology care for patients on the Western Slope. Cancer is so scary, and I want to help patients understand their diagnosis and options so that they can decide the best path for them. My job is to serve as a guide and support through that process.”When not working, Dr. Jahangiri enjoys running, a good book and Broadway shows. Often, she can be found partaking in one of Colorado’s many outdoor activities with her husband, three children and shelter dog. Dr. Jahangiri is rated as an Experienced provider by MediFind in the treatment of Castleman Disease. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Familial Colorectal Cancer, Porphyria Cutanea Tarda, Colorectal Cancer, and Lynch Syndrome. Dr. Jahangiri is board certified in American Board Of Internal Medicine and American Board Of Internal Medicine. Dr. Jahangiri is currently accepting new patients.

    Experienced in Castleman Disease
    Hematology | Oncology
    Experienced in Castleman Disease
    Hematology | Oncology

    App Regional Cancer Center At Jmh

    16000 Johnston Memorial Dr, Ste A, 
    Abingdon, VA 
    Languages Spoken:
    English

    . Dr. Welt is rated as an Experienced provider by MediFind in the treatment of Castleman Disease. His clinical expertise encompasses Breast Cancer, Paget Disease of the Breast, Angiosarcoma, and Inflammatory Breast Cancer. Dr. Welt is board certified in American Board Of Internal Medicine.

    Distinguished in Castleman Disease
    Hematology
    Distinguished in Castleman Disease
    Hematology

    Trustees Of The University Of Pennsylvania

    3400 Spruce St, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Adam Bagg is a Hematologist practicing medicine in Philadelphia, Pennsylvania. Dr. Bagg is rated as a Distinguished provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Castleman Disease, Acute Myeloid Leukemia (AML), Myelodysplastic Syndrome (MDS), Multicentric Castleman Disease (MCD), and Bone Marrow Aspiration.

    Distinguished in Castleman Disease
    Distinguished in Castleman Disease

    Abramson Cancer Center Perelman 4th Floor West

    3400 Civic Center Boulevard, West Pavilion, 4th Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Sunita Nasta is a Hematologist practicing medicine in Philadelphia, Pennsylvania. Dr. Nasta is rated as a Distinguished provider by MediFind in the treatment of Castleman Disease. She is also highly rated in 45 other conditions, according to our data. Her clinical expertise encompasses Non-Hodgkin Lymphoma, B-Cell Lymphoma, Hodgkin Lymphoma, Bone Marrow Transplant, and Bone Marrow Aspiration. Dr. Nasta is board certified in Hematology, 2002 and Medical Oncology, 2001. Dr. Nasta is currently accepting new patients.

    Distinguished in Castleman Disease
    Distinguished in Castleman Disease

    Abramson Cancer Center Perelman 4th Floor West

    3400 Civic Center Boulevard, West Pavilion, 4th Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Joshua Brandstadter is a Hematologist practicing medicine in Philadelphia, Pennsylvania. Dr. Brandstadter is rated as a Distinguished provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Castleman Disease, Unicentric Castleman Disease (UCD), Lymphoid Hyperplasia, and Multicentric Castleman Disease (MCD). Dr. Brandstadter is board certified in Hematology, 2023 and Internal Medicine, 2018. Dr. Brandstadter is currently accepting new patients.

    Experienced in Castleman Disease
    Hematology | Oncology | Internal Medicine
    Experienced in Castleman Disease
    Hematology | Oncology | Internal Medicine

    McGlinn Cancer Institute - Reading Hospital

    420 S 5th Ave, Bldg N, 
    West Reading, PA 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Cescon is rated as an Experienced provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 76 other conditions, according to our data. His clinical expertise encompasses Acquired Agranulocytosis, Chronic Lymphocytic Leukemia (CLL), Richter Syndrome, Colorectal Cancer, and Prostatectomy. Dr. Cescon is board certified in American Board Of Internal Medicine.

    Experienced in Castleman Disease
    Hematology | Oncology | Internal Medicine
    Experienced in Castleman Disease
    Hematology | Oncology | Internal Medicine

    McGlinn Cancer Institute - Reading Hospital

    420 S 5th Ave, Bldg N, 
    West Reading, PA 
    Languages Spoken:
    English

    . Dr. Rettew is rated as an Experienced provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 58 other conditions, according to our data. His clinical expertise encompasses Agranulocytosis, Chronic Familial Neutropenia, Diffuse Large B-Cell Lymphoma (DLBCL), Large-Cell Immunoblastic Lymphoma, and Bone Marrow Aspiration. Dr. Rettew is board certified in American Board Of Internal Medicine and American Osteopathic Board Of Internal Medicine.

    Experienced in Castleman Disease
    Hematology | Oncology
    Experienced in Castleman Disease
    Hematology | Oncology

    Fred & Pamela Buffett Cancer Center - Nebraska Medical Center

    505 S 45th St., 
    Omaha, NE 
    Experience:
    22+ years
    Languages Spoken:
    English
    Offers Telehealth

    Sarah Holstein is a Hematologist and an Oncologist practicing medicine in Omaha, Nebraska. She has been practicing medicine for over 22 years. Dr. Holstein is rated as an Experienced provider by MediFind in the treatment of Castleman Disease. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Multiple Myeloma, Relapsed Refractory Multiple Myeloma (RRMM), Smoldering Multiple Myeloma, and Monoclonal Gammopathy of Undetermined Significance (MGUS).

    Experienced in Castleman Disease
    Hematology | Oncology
    Experienced in Castleman Disease
    Hematology | Oncology

    Fred & Pamela Buffett Cancer Center - Nebraska Medical Center

    505 S 45th St., 
    Omaha, NE 
    Experience:
    42+ years
    Languages Spoken:
    English
    Offers Telehealth

    Julie Vose is a Hematologist and an Oncologist practicing medicine in Omaha, Nebraska. She has been practicing medicine for over 42 years. Dr. Vose is rated as an Experienced provider by MediFind in the treatment of Castleman Disease. She is also highly rated in 34 other conditions, according to our data. Her clinical expertise encompasses Non-Hodgkin Lymphoma, Peripheral T-Cell Lymphoma, Mantle Cell Lymphoma (MCL), Bone Marrow Transplant, and Bone Marrow Aspiration.

    Showing 1-20 of 1,603

    Last Updated: 04/28/2026

    What is the definition of Castleman Disease?

    Castleman disease is a rare condition that is characterized by an abnormal growth of multiple cells in a single lymph node or multiple lymph nodes (depending on the type of disease), causing them to enlarge. There are two main types of Castleman disease: 1) Unicentric Castleman disease (UCD) affects a single lymph node, usually in the chest or abdomen and is the most common form of the disease. 2) Multicentric Castleman disease (MCD) affects multiple lymph nodes and has two subtypes which are commonly associated with having been infected with the human immunodeficiency virus (HIV): 2a) Human herpes virus type 8 (HHV-8-associated MCD) 2b) Human herpes virus type-8 (HHV-negative or idiopathic MCD ), which is also known as Kaposi sarcoma-associated herpesvirus.

    When should I see a Castleman Disease doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Castleman Disease doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Castleman Disease doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Castleman Disease doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Castleman Disease doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Castleman Disease doctor search results page. 

    Why is it important to get a second opinion from a different Castleman Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Castleman Disease doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Castleman Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Castleman Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Castleman Disease doctors in The United States?

    Look for the filter feature on the left side of the Castleman Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Castleman Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Castleman Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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