The 20 Best Castleman Disease Doctors Near Me

Find the Top Castleman Disease Experts and Specialists

Last Updated: 09/26/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 6703 doctor with experience in Castleman Disease. Of these, 6209 are Experienced, 403 are Advanced, 73 are Distinguished and 18 are Elite.

Location
LocationClose
6,703 providers found
    Elite in Castleman Disease
    Elite in Castleman Disease
    Referral may be required

    Dana-Farber Cancer Institute, Lipper Multiple Myeloma Center

    450 Brookline Avenue, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Nikhil Munshi is an Oncologist practicing medicine in Boston, Massachusetts. Dr. Munshi is rated as an Elite provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Multiple Myeloma, Smoldering Multiple Myeloma, Castleman Disease, and Relapsed Refractory Multiple Myeloma (RRMM). Dr. Munshi is board certified in Internal Medicine and Medical Oncology. Dr. Munshi is currently accepting new patients.

    Elite in Castleman Disease
    Hematology | Oncology
    Elite in Castleman Disease
    Hematology | Oncology
    Referral may be required

    Froedtert Hospital Oncology

    9200 W Wisconsin Ave, 
    Milwaukee, WI 
    Languages Spoken:
    English
    Accepting New Patients

    Dr. Kurzrock is a world-renowned leader in precision oncology and rare cancers research. She is the Associate Director of Clinical Research for the Medical College of Wisconsin Cancer Center, Associate Director of Precision Oncology at the Linda T. and John A. Mellowes Center for Genomic Sciences and Precision Medicine and the founding director of the Michels Rare Cancers Research Laboratories at the MCW Cancer Center. She is recognized as one of the world’s 25 most important voices in precision medicine and one of the most highly cited scientists globally. She has authored over 950 scientific and medical publications. Dr. Kurzrock is the Chair for the Early Therapeutics and Rare Cancers Committee (SWOG NCI) — one of the largest clinical trials cooperative groups in the country — and has been the principal investigator for more than 100 early-phase clinical trials, leading eight life-changing drugs to FDA approval. In 2022, Dr. Kurzrock and the DART rare cancer study team received the National Cancer Institute Director’s Award of Merit for outstanding work. Dr. Kurzrock is rated as an Elite provider by MediFind in the treatment of Castleman Disease. She is also highly rated in 33 other conditions, according to our data. Her clinical expertise encompasses PIK3CA-Related Overgrowth Spectrum, Castleman Disease, Multicentric Castleman Disease (MCD), Lymphoid Hyperplasia, and Tissue Biopsy. Dr. Kurzrock is board certified in Internal Medicine and Medical Oncology. Dr. Kurzrock is currently accepting new patients.

    Elite in Castleman Disease
    Hematology | Oncology
    Elite in Castleman Disease
    Hematology | Oncology
    Referral may be required

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Languages Spoken:
    English, Bengali, Hindi
    Accepting New Patients
    Offers Telehealth

    Sudipto Mukherjee is a Hematologist and an Oncologist practicing medicine in Cleveland, Ohio. Dr. Mukherjee is rated as an Elite provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 34 other conditions, according to our data. His clinical expertise encompasses Multicentric Castleman Disease (MCD), Castleman Disease, Myelodysplastic Syndrome (MDS), Acute Myeloid Leukemia (AML), and Bone Marrow Aspiration. Dr. Mukherjee is board certified in American Board Of Internal Medicine, 2019. Dr. Mukherjee is currently accepting new patients.

    Are you looking for a specific type of Castleman Disease?

    Common conditions include: Multicentric Castleman Disease (MCD), Unicentric Castleman Disease (UCD)

    Learn about our expert tiers
    Elite in Castleman Disease
    Hematology | Oncology
    Elite in Castleman Disease
    Hematology | Oncology
    Referral required

    Atrium Health Levine Cancer Institute (Hematology)

    1021 Morehead Medical Drive, Building 2, Suite 60201, 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Peter Voorhees is a Hematologist and an Oncologist practicing medicine in Charlotte, North Carolina. Dr. Voorhees is rated as an Elite provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Multiple Myeloma, Smoldering Multiple Myeloma, Relapsed Refractory Multiple Myeloma (RRMM), Bone Marrow Transplant, and Bone Marrow Aspiration. Dr. Voorhees is board certified in American Board Of Internal Medicine, Hematology. Dr. Voorhees is currently accepting new patients.

    Elite in Castleman Disease
    Elite in Castleman Disease
    Referral may be required
    Paris, FR 

    Eric Oksenhendler practices practicing medicine in Paris, France. Mr. Oksenhendler is rated as an Elite expert by MediFind in the treatment of Castleman Disease. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Castleman Disease, Multicentric Castleman Disease (MCD), Lymphoid Hyperplasia, Unicentric Castleman Disease (UCD), and Splenectomy.

    Elite in Castleman Disease
    Internal Medicine
    Elite in Castleman Disease
    Internal Medicine

    Dept Of Transfusion Medicine/Nih Clinical Center

    10 Center Dr, 
    Bethesda, MD 
    Languages Spoken:
    English

    Robert Yarchoan is a primary care provider, practicing in Internal Medicine in Bethesda, Maryland. Dr. Yarchoan is rated as an Elite provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Kaposi Sarcoma, Castleman Disease, Multicentric Castleman Disease (MCD), and Lymphoid Hyperplasia.

    Elite in Castleman Disease
    Elite in Castleman Disease
    Referral may be required

    MN - Cancer Hematology

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Angela Dispenzieri is a Hematologist practicing medicine in Rochester, Minnesota. Dr. Dispenzieri is rated as an Elite provider by MediFind in the treatment of Castleman Disease. She is also highly rated in 23 other conditions, according to our data. Her clinical expertise encompasses Primary Amyloidosis, POEMS Syndrome, Multiple Myeloma, Bone Marrow Transplant, and Bone Marrow Aspiration. Dr. Dispenzieri is currently accepting new patients.

    Elite in Castleman Disease
    Elite in Castleman Disease
    Referral may be required
    UniversitĂ© Paris Est, 
    Creteil, FR 

    Lionel Galicier practices practicing medicine in Creteil, France. Mr. Galicier is rated as an Elite expert by MediFind in the treatment of Castleman Disease. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Castleman Disease, Multicentric Castleman Disease (MCD), Thrombocytopenia, Splenectomy, and Bone Marrow Aspiration.

    Elite in Castleman Disease
    Elite in Castleman Disease
    Referral may be required

    Select Specialty Hosp-Columbus

    410 W 10th Ave, 
    Columbus, OH 
    Languages Spoken:
    English

    Kathryn Lurain is a Hematologist practicing medicine in Columbus, Ohio. Dr. Lurain is rated as an Elite provider by MediFind in the treatment of Castleman Disease. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Castleman Disease, Multicentric Castleman Disease (MCD), B-Cell Lymphoma, and Non-Hodgkin Lymphoma.

    Elite in Castleman Disease
    Elite in Castleman Disease
    Referral may be required
    Kahoku, JP 

    Yasufumi Masaki-Yamamoto practices practicing medicine in Kahoku, Japan. Masaki-Yamamoto is rated as an Elite expert by MediFind in the treatment of Castleman Disease. They are also highly rated in 10 other conditions, according to our data. Their clinical expertise encompasses Castleman Disease, Lymphoid Hyperplasia, Multicentric Castleman Disease (MCD), and IgG4-Related Disease.

    Elite in Castleman Disease
    Elite in Castleman Disease
    Referral may be required
    Hemel Hempstead, ENG, GB 

    Karan Kanhai practices practicing medicine in Hemel Hempstead, United Kingdom. Ms. Kanhai is rated as an Elite expert by MediFind in the treatment of Castleman Disease. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Castleman Disease, Multicentric Castleman Disease (MCD), Lymphofollicular Hyperplasia, Lymphoid Hyperplasia, and Prostatic Artery Embolization.

    Elite in Castleman Disease
    Elite in Castleman Disease
    Referral may be required
    Okayama, JP 

    Yasuharu Sato practices practicing medicine in Okayama, Japan. Sato is rated as an Elite expert by MediFind in the treatment of Castleman Disease. They are also highly rated in 21 other conditions, according to our data. Their clinical expertise encompasses Castleman Disease, IgG4-Related Disease, Lymphoid Hyperplasia, Bone Marrow Aspiration, and Kidney Transplant.

    Elite in Castleman Disease
    Elite in Castleman Disease
    Referral may be required
    Peking Union Medical College Hospital, Peking Union Medical College, 
    Beijing, CN 

    Lu Zhang practices practicing medicine in Beijing, China. Ms. Zhang is rated as an Elite expert by MediFind in the treatment of Castleman Disease. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Castleman Disease, Lymphoid Hyperplasia, Multicentric Castleman Disease (MCD), Splenectomy, and Bone Graft.

    Elite in Castleman Disease
    Elite in Castleman Disease
    Referral may be required

    UT MD Anderson Cancer Center

    1515 Holcombe Blvd, 
    Houston, TX 
    Languages Spoken:
    English
    Offers Telehealth

    Luis Fayad is an Oncologist practicing medicine in Houston, Texas. Dr. Fayad is rated as an Elite provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Non-Hodgkin Lymphoma, B-Cell Lymphoma, Diffuse Large B-Cell Lymphoma (DLBCL), Follicular Lymphoma, and Bone Marrow Aspiration.

    Elite in Castleman Disease
    Elite in Castleman Disease
    Referral may be required
    Oslo, NO 

    Alexander Fossa practices practicing medicine in Oslo, Norway. Mr. Fossa is rated as an Elite expert by MediFind in the treatment of Castleman Disease. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Hodgkin Lymphoma, Castleman Disease, Classical Hodgkin Lymphoma, Sleeve Gastrectomy, and Bone Marrow Transplant.

    Elite in Castleman Disease
    Elite in Castleman Disease
    Referral may be required
    Paris, FR 

    Veronique Meignin practices practicing medicine in Paris, France. Ms. Meignin is rated as an Elite expert by MediFind in the treatment of Castleman Disease. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Castleman Disease, Multicentric Castleman Disease (MCD), Lymphoid Hyperplasia, Splenectomy, and Bone Marrow Transplant.

    Elite in Castleman Disease
    Internal Medicine
    Elite in Castleman Disease
    Internal Medicine

    Mayo Clinic-Rochester

    5716 Cleveland St Ste 200, 
    Virginia Beach, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Yoshito Nishimura is a primary care provider, practicing in Internal Medicine in Virginia Beach, Virginia. Dr. Nishimura is rated as an Elite provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Castleman Disease, Lymphoid Hyperplasia, Multicentric Castleman Disease (MCD), Small Bowel Resection, and Endoscopy.

    Elite in Castleman Disease
    Elite in Castleman Disease
    Referral may be required
    Nagasaki, JP 

    Tomohiro Koga practices practicing medicine in Nagasaki, Japan. Mr. Koga is rated as an Elite expert by MediFind in the treatment of Castleman Disease. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Familial Mediterranean Fever, Rheumatoid Arthritis (RA), Systemic Lupus Erythematosus (SLE), Bone Marrow Aspiration, and Osteotomy.

    Distinguished in Castleman Disease
    Distinguished in Castleman Disease
    Referral may be required

    Moffitt Cancer Center, Magnolia Campus

    12902 Usf Magnolia Dr, 
    Tampa, FL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jeffrey Lancet is a Hematologist practicing medicine in Tampa, Florida. Dr. Lancet is rated as a Distinguished provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 35 other conditions, according to our data. His clinical expertise encompasses Myelodysplastic Syndrome (MDS), Acute Myeloid Leukemia (AML), Chronic Myelomonocytic Leukemia (CMML), Bone Marrow Aspiration, and Bone Marrow Transplant. Dr. Lancet is currently accepting new patients.

    Experienced in Castleman Disease
    Oncology | Hematology
    Experienced in Castleman Disease
    Oncology | Hematology
    Referral may be required

    Northwest Oncology And Hematology SC

    Hoffman Estates Office, Enter Building 3, Through Glass Doors To Wooden Double Doors At End Of The Hall., 
    Hoffman Estates, IL 
    Languages Spoken:
    English, Hindi, Urdu
    Accepting New Patients
    Offers Telehealth

    Wajihuddin Syed is an Oncologist and a Hematologist practicing medicine in Hoffman Estates, Illinois. Dr. Syed is rated as an Experienced provider by MediFind in the treatment of Castleman Disease. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Breast Cancer, Chromophobe Renal Cell Carcinoma, Wilms Tumor, and Clear Cell Sarcoma. Dr. Syed is board certified in American Board Of Internal Medicine, Hematology, The American Board Of Internal Medicine - Hematology, The American Board Of Internal Medicine - Medical Oncology, The American Board Of Internal Medicine - Internal Medicine, and Medical Oncology & Hematology, Internal Medicine, American Board Of Internal Medicine. Dr. Syed is currently accepting new patients.

    Showing 1-20 of 6,703

    Last Updated: 09/26/2026

    What is the definition of Castleman Disease?

    Castleman disease is a rare condition that is characterized by an abnormal growth of multiple cells in a single lymph node or multiple lymph nodes (depending on the type of disease), causing them to enlarge. There are two main types of Castleman disease: 1) Unicentric Castleman disease (UCD) affects a single lymph node, usually in the chest or abdomen and is the most common form of the disease. 2) Multicentric Castleman disease (MCD) affects multiple lymph nodes and has two subtypes which are commonly associated with having been infected with the human immunodeficiency virus (HIV): 2a) Human herpes virus type 8 (HHV-8-associated MCD) 2b) Human herpes virus type-8 (HHV-negative or idiopathic MCD ), which is also known as Kaposi sarcoma-associated herpesvirus.

    When should I see a Castleman Disease doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Castleman Disease doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Castleman Disease doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Castleman Disease doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Castleman Disease doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Castleman Disease doctor search results page. 

    Why is it important to get a second opinion from a different Castleman Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Castleman Disease doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Castleman Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Castleman Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Castleman Disease doctors near me?

    Look for the filter feature on the left side of the Castleman Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Castleman Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Castleman Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy.